Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

happygirl Collaborator

Patti and Donna:

Thanks ladies!!!!!!!

I think it is huge to. It is seriously the biggest relief. I never remembered a tick...but this is all proof that there was one h$ll of one that got me.....

I think I'm in shock.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
tom Contributor

Yay! Happy for u too.

I'm feeling good enough from going soy-free last week that I'm off to play bball for the 1st time in easily over a yr! :)

dlp252 Apprentice
I'm feeling good enough from going soy-free last week that I'm off to play bball for the 1st time in easily over a yr!

That's HUGE too! Yay!

happygirl Collaborator

ok, so right now i see judy, rinne, donna, and susan----this makes me feel like a huge part of my family is here with me right now. :)

dlp252 Apprentice
ok, so right now i see judy, rinne, donna, and susan----this makes me feel like a huge part of my family is here with me right now. :)

:wub: It's almost like we're there to celebrate with you!!!

jerseyangel Proficient
:wub: It's almost like we're there to celebrate with you!!!

Yes--and to give you a big old group hug! :D

rinne Apprentice

Hi Laura, so glad you have had it confirmed. :wub:

Patti and Donna:

Thanks ladies!!!!!!!

I think it is huge to. It is seriously the biggest relief. I never remembered a tick...but this is all proof that there was one h$ll of one that got me.....

I think I'm in shock.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I'm happy for you, Laura! I hope this is the beginning of getting your health under control and to many better days ahead!

CarlaB Enthusiast

Laura, that's GREAT news!! I can honestly say, I know how you feel. Excited to have a diagnosis (we went out to celebrate the day I got my results), yet at the same time realizing you have a serious fight ahead of you.

You're strong, you'll be able to fight this now that you know what it is. It's been a long road for you. :D:wub:

rinne Apprentice
.....just that, I think many, many people HIDE in their illnesses, and accept the wastebasket diagnoses and the state of illness, because in that state, much less is demanded of them as humans and as participants in the world.

It takes courage, strength, and not a small amount of ferocity and tenacity to become well.....as we all know. :) All, hallmarks of Citizens of Rachelville.

Love and happy Friday to all! :wub:

Beautifully said. :P:wub:

....

My goal is to get better.....not to see how many foods I can restrict from my diet, and not to outdo others with the strictness of my anti-candida regime. I'm focused on the bigger picture...which is to get my body to a healthy state by eliminating the toxic burden.

Well said Rachel. :)

Rachel,

I wasn't questioning your personal health issues or decisions. I tried to present an opposing viewpoint on the topic of lingering candida.

Apparently that makes me argumentative. Seems more like a mars/venus thing to me.

Sorry if I offended u or anyone else.

Hi Tom,

Todays news from Laura is a wonderful example of why this thread is so precious to us.

As to the Mars/Venus thing, could be. :lol:

Essentially you walked into a room with a group of mostly women who have formed a close friendship, some of us have been talking to eachother for over a year and most of us have been through HELL. It has been not only our illness, which is devasting enough, but with doctors who have treated us without respect and family and friends who think we're crazy.

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

We are AMAZONS. :lol::lol::lol:

jerseyangel Proficient
If we are protective it is only because this is one of the few places we come to and know we are safe. :)

I've been wanting to say that all day--as usual, Rinne said it better than I could, and I thank her for it. :)

Mtndog Collaborator
I return to that moment where I understood that with each breath I have a choice.

I can lean toward illness or I can lean toward wellness and the leaning itself has power, if the leaning is supported with nutrition, detoxification and treatment then wellness may be realized. Conversely, if I lean toward ill health even with nutrition, detoxification and treatment I may not ever get well. What is that?

I see a lot of people get tangled up in their sickness, their sickness becomes a belief system they imbed their lives in. I am not interested in that.

What can be poison for you may be cure for me, what cures me may harm you, the road to wellness is as unique as the person walking it.

What I love, love, love about this thread is our joy and determination to be well.

rinne- that is what we love about you! What you just said is so beautiful. Like you. :wub: :wub:

Almond Spice is far too bland for you....I shall christen thee Serendipitous Spice.

Susie- You are under rachelville House arrest on this thread. we NEED you here!!!!!!!!! Esp to make fun of me. I love a good ribbing!

Donna- You have a beautiful smile (from your other avatar) so I crown thee Smiley Spice. :rolleyes:

Laura- YIPPPEEEEEEE!!!!!!!!!!!!!!!!!!!!!!!!!!! what a relief. It helps so much when what you're fighting has a name. I'm so happy for you!

Patti- That's great news about Marc's job.... I know you said PA but I forget where? Will you be close to Judy?

Tom (Murph)- yeah...you can go play that's great! And it could very well be the Mars/Venus thing. I think we also feel very protective of each other because we've been through so much in the 1171 pages of this thread! So, we are women hear us ROAR! Not at you, but at the thought of getting healthy!!!!

HAPPY FRIDAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :wub: :wub: :wub: :wub: :wub: :wub: :wub:

AndreaB Contributor
So-------its official. This is what I have AND I have the paper to back it up. I have an appt on Monday to discuss everything.

Thank you to everyone---I am overwhelmed---laughing and crying....but it is proof that something IS wrong. I don't know what I would have done without everyone. HUGSSSSSSS :wub:

I'm so glad you have your answers and know what needs to be fought now! :D

Love and hugs back to you. :wub::wub: :wub:

Keep me on the email list if you do updates by email. :D

AndreaB Contributor
Yay! Happy for u too.

I'm feeling good enough from going soy-free last week that I'm off to play bball for the 1st time in easily over a yr! :)

That's great! Have a good time. :D

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

I think I'm thirding or fourthing this. :P

We have grown very close over the last year. I'm the healthiest as far as symptoms go but I'm not taking that for granted. I'm also not sure if I have a candida problem and I'm not going there until my little guy is weaned late next year. He had enough of a problem with the tiny bit of chlorella I was taking.

I've pushed back my amalgam removal and crowns due to that. But, even if this thread is long dead by the time I can go through testing I will still keep everyone posted by email or pm's if I don't have their email address.

One of the reasons I'm still here is to learn but the far greater reason is my love for my friends here......that I've never met before this thread.

We welcome newcomers, this is not a clique, it's a growing family.

Love to everyone. :wub: :wub: :wub: :wub:

rinne Apprentice
.....

We welcome newcomers, this is not a clique, it's a growing family.

Love to everyone. :wub: :wub: :wub: :wub:

Yes, I love that too and thank you for saying it so well Andrea. :)

Oh and yes to Serendipitous Spice, that's me. :lol:

jerseyangel Proficient

That was very sweet, Andrea.

I'm feeling especially emotional today--my husband gave his official notice, so we begin another chapter. Somewhat bittersweet.....I love that amidst all that we go through individually, we all have this place to come home to.

DingoGirl Enthusiast
Dear Susie,

We are so glad you are here! You cannot leave. That is not allowed. You are being held captive in Rachelville. The dingos are guarding the gates. :P

silly girl! I am guarding the dingos! ;) But don't worry, we'll stick around.

ok, so right now i see judy, rinne, donna, and susan----this makes me feel like a huge part of my family is here with me right now. :)

:wub:

LAURA!!! so ecstatic for you!!!!!!!!! I'm going to pm you my email address......I am just not really up on exactly what Babesis is or does, or the other one - was it Erlichia? something like that? But now you know what buggers to treat! SO SO happy for you. and so happy that we, your cyber family, can be here for you.

The dingos send lots of kisses and a biff on your leg with their rear ends (kind of like canine HIGH FIVE) ;)

Essentially you walked into a room with a group of mostly women who have formed a close friendship, some of us have been talking to eachother for over a year and most of us have been through HELL. It has been not only our illness, which is devasting enough, but with doctors who have treated us without respect and family and friends who think we're crazy.

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

We are AMAZONS. :lol::lol::lol:

:lol::lol::lol::lol: Amazonian Lyme Ladies of the Rachelville Paradise Cult Farm in-the-Mountains-by-the-Sea. ;)

whew - - good thing we smoothed over the slight disharmony in Rachelville - - I was goign to have to send the dingos out to find those shirtless cops we had last summer....... :P

Yay Tom for the baseball!!!!!!!!!

We welcome newcomers, this is not a clique, it's a growing family.

Yes! Well-said, Mother Spice! (or was it - Mama Spice? can't remember)....

Bev - - you are just a lunatic.......through and through....... (winky face here)

AndreaB Contributor
:lol::lol::lol::lol: Amazonian Lyme Ladies of the Rachelville Paradise Cult Farm in-the-Mountains-by-the-Sea. ;)

I don't know how you keep that straight. :blink::o:huh::lol:

AndreaB Contributor
I'm feeling especially emotional today--my husband gave his official notice, so we begin another chapter.

An exciting chapter......just remember to relax, you don't want to get yourself sick. :)

DingoGirl Enthusiast
I'm feeling especially emotional today--my husband gave his official notice, so we begin another chapter. Somewhat bittersweet.....I love that amidst all that we go through individually, we all have this place to come home to.

It IS emotional! Big changes (and good ones!) ahead for you and Mark......another chapter - - another adventure! We will be here for you. ;)

I don't know how you keep that straight. :blink::o:huh::lol:

:lol::ph34r: If dingo-brained memory serves me correctly.....I may have been the one to kind of give it the name GFPCF - - I think, as we started describing our perfect world - - yours truly just *may* have been the one to say, this sounds like a CULT :lol:

I have a very active and whimsical imagination, you have all let me sort of run wild with it on this thread :lol: which is why I am back again!

:wub:

AndreaB Contributor
I have a very active and whimsical imagination, you have all let me sort of run wild with it on this thread :lol: which is why I am back again!

:wub:

Run away.....We love having you here! :wub: I hope you don't want me to post the town list again :ph34r: .........it's not even up to date. I do have it on my computer though. :ph34r:

Rachel--24 Collaborator
So-------its official. This is what I have AND I have the paper to back it up. I have an appt on Monday to discuss everything.

BIG NEWS indeed!! :D

Lots of reading and catching up to do but just HAD to respond to this right now.

I'm so happy for you Laura....I know its not the BEST diagnosis in the world....but OMG...its proof...and its official.....and you are going to get better!! :)

No reasons for anyone to second guess you now. ;)

I know how much it meant to you to have those positive results...especially having gone through all the same stuff I went through with all the Dr.'s...getting the runaround and noone taking things seriously.

I know it must have been killing you to wait for the results...well....for me its always the worst part. I'm not very patient. :ph34r:

Just wanted to say congrats. :D

I never doubted you were on the right track with this but its certainly nice to have the positive results in your hands for reassurance. :)

I'm sure its really emotional for you to have these answers finally. Will look forward to your posts. I'm kind of pre-mature posting so maybe there is more info. I havent read yet.

Anyways.....YAY!!! :D

Now my next question is.....are you gonna show these results to any of your previous docs?? :P

happygirl Collaborator

rach-

real quick---- thanks for all your sweet words :)

and the running joke is that i'll send the results, with a nice letter (a la rinne!), and a picture of me, holding a certain finger up. don't worry, its a joke, but i've laughed (and cried) over it a handful of times already.

tom Contributor

Only four minutes until a shuttle launch!

Always an amazing spectacle.

Rachel--24 Collaborator
Todays news from Laura is a wonderful example of why this thread is so precious to us.

Yeah..its just the most exciting thing to me to see all my friends getting answers and I just know we're all gonna be healthy one day soon. :) We'll have a real-life Rachelville get together....lots of food and Rinne Bars for everyone!! :D

I still remember when Laura first joined us here....and she said something to the effect of never thinking she was as bad off as "Rachel is" and so she didnt think she really needed to join this thread....but made the decision to jump in anyways.

I think my face looked like this... :o....it was pretty funny though...I always laugh when I think of that. :lol:

Yeah....nobody wants to end up in Rachelville where people cant eat anything. :rolleyes:

Little do they know how much fun we have. :P

Anyways...we're all really glad you did decide to join us Laura. We all love you and are very happy for you today. :wub:

If we are protective it is only because this is one of the few places we come to and know we are safe. :)

Yup...this thread is near and dear to us....our home away from home...the one place where the light is always on and everyones always welcome. :wub:

We are AMAZONS. :lol::lol::lol:

:lol::lol:

True that!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.