Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

DingoGirl Enthusiast
Hi everyone

How is everyone today? Wow didn't wake up till 2 pm today thought it was like 12 or something. Hey dingogirl that avatar you have are you crying with that glass of wine

or are you really just very very constipated? :D

Because Magnesium Citrate can clear that right up for you.:)

LISA!!!!!!!!!!!!!!!!!!!!! Are you getting funnier??????????????? Why, yes, I believe she is!!!! :lol::lol::lol:

No I am not crying into my wine, silly. :P I was laughing like a maniac. but I AM a little constipated. :ph34r::huh: Sounds like Magnesium Citrate can be a weight loss method.....if so I am quite interested (just these pesky FIVE pounds that I want to go away! harrumph! :angry: ). Should I try it? :lol:

SCATOLOGY ALERT - - - Last night I ate some of my faves - the Trader Joe's soy flax seed chips - - OMG - - - BIG PERNICIOUS GAS BOMB TODAY - - all day - - - the farts will not come out - - - - so I'm just carrying the bomb around with me all day. :huh: not so much fun.....constipated also......must go lay on side to see if things can be worked around in there. Back hurting again....ouch.....must recline.

[welcome to Susan's Online Whining Site. Please read at your own risk] :lol::lol::lol:

Rinne! hi there.....worrisome, this thing w/ your eyes! Wish I could help. Do get it checked out!

Donna - - the reason you wake up all night is because you must awake at the most UNGODLY hour imagineable!!!!!!!!!!!! For Pete's sake, humans are not really supposed to awake before 7 am, that is even slightly inhumane but certainly more civilized than whatever time YOU have to get up.....

Carla is right.......men can vote but the votes do not count. Suffrage, indeed. :lol:

Grump! Happy father's day.

Tom - - I think you need a bobo. [pronounced bow-bow] In our family, I called my security blanket as a baby my BOBO. Well, my dad and many other members of the family slept with a fan on (white noise).....the adults knew that this was THEIR security blanket. So, the fan also came to be called the BOBO. In our family many of us sleep with bobos on. I have three or four bobos - - in summer it is time to pull out the big guns and have the tall standing bobo out, blowing at high speed right upon me. I also have two travel bobos, and another medium bobo for portable use in-home. There is a noise machine for the wilderness, that is also a bobo. If the bobo is not enough, earplugs and eye mask are also utilized. the room must be very cool and dark, with a huge amount of whooshing air and white noise. If someone came into kill me, I would not know, nor would I care. :lol:

Tom (and Donna, and really EVERYONE!) needs a BOBO!!!!!!!!!!! :D

okay GArrison Keillor on right now.....must go into the cool, darkened room and listen...and yes, there will be a bobo blowing on me.

:wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
DingoGirl Enthusiast
I still say it's destined to become a myth or fable. Future celiacs will say their cousin's teacher's daughter's friend knew someone (who was a friend of hers from choir) who SWORE she'd cyber-met this woman who could make a gluten-free donut last 3 wks!! :lol::lol::lol:

<"she swore it was true">

oh my gaaaaaaaaaaaaaaaaawd :lol: :lol: :lol: :lol: :lol: :lol:

very true, it's become mythic in its scope.......a donut for three weeks...

(shakes head, maniacally cackling.....)

CarlaB Enthusiast

Actually, I racheled that donut ... doctor told me no sugar and I ate it anyway. :P

It might be what's called photopsia. Not the almost fainting part. I'd have to guess that whatever caused that also caused the ferris wheel.

Mine was pretty small and temporary and not at all carnival-related.

Rinne, I've read on Lymenet about people having this type of thing. I think it's pretty common. My floaters look like 2 spirochetes and a cyst ... not technically floaters, all I see are the spirochetes and cyst. I am told that they cannot be ... but they sure look like them. The first time I went to Lymephotos and saw the photos, I KNEW I had Lyme because that's what's floating around in my eye

It's pretty quiet around here. The slow falling asleep isn't new.

The strange new part is that upon 1st waking, "back to sleep" doesn't seem to be an option anymore. Even after only 3-4 hrs!

This week I got more than 5 just once - the night after a tiring Monday following ~4hrs Sun nite sleep. (Oh wait last night got 5-6)

Regardless of how much more sleeping should be done, once I'm conscious the brain "wants out" like a poorly-trained Big Dog.

"Stay" doesn't work.

Yes, if I wake up past 4, I cannot go back to sleep. Strange thing is, if hubby is traveling I can. I generally sleep 8 hours now, but I used to have a terrible time getting to sleep and staying asleep. Fortunately that has improved.

Nights I can't sleep, I do what my grandmother suggests, I just lay there and rest. She says if I needed to sleep, I would, and that rest will be just as good for me, but if I lay there and worry about no sleeping, I'll never sleep nor rest.

Come to think of it, I started sleeping through the night when I started eating right before bed.

tom Contributor
I heard Celiacs often do not notice other allergies and sensitivities until they have been gluten-free for a while.

<raising hand> I'll testify to that!

dlp252 Apprentice
I still say it's destined to become a myth or fable. Future celiacs will say their cousin's teacher's daughter's friend knew someone (who was a friend of hers from choir) who SWORE she'd cyber-met this woman who could make a gluten-free donut last 3 wks!!

<"she swore it was true">

:lol: !!!!

SCATOLOGY ALERT - - - Last night I ate some of my faves - the Trader Joe's soy flax seed chips - - OMG - - - BIG PERNICIOUS GAS BOMB TODAY - - all day - - - the farts will not come out - - - - so I'm just carrying the bomb around with me all day. :huh: not so much fun.....constipated also......must go lay on side to see if things can be worked around in there. Back hurting again....ouch.....must recline.

Tom (and Donna, and really EVERYONE!) needs a BOBO!!!!!!!!!!! :D

:lol: !!!! Sorry to laugh at your misery, I think I WOULDN'T or COULDN'T had I not been there myself. :lol:

I have a bobo!! I have my sound machine! (not Miami) I think I was not meant to sleep. :P

Actually, I racheled that donut ... doctor told me no sugar and I ate it anyway. :P

Hum, nope, I don't think that qualifies as racheling...racheling involves massive quantities in a short amount of time...carlaing involves miniscule quantities over a longer period of time (or if your name is Rachel, following doctor's orders).

tom Contributor
...but you still do not get to vote. :lol: Carla is right...vote amongst yourselves, but it carries no weight. :P

Yeah u can talk like that NOW but my new civic goal is to be the Anthony B. Pseuzuhn of Rachelville.

And don't forget - I'm pretty close w/ a Judge u may have read about recently!!

(W/ no history of appeals, btw :P )

:lol: :lol: :lol:

dlp252 Apprentice
Yeah u can talk like that NOW but my new civic goal is to be the Anthony B. Pseuzuhn of Rachelville.

And don't forget - I'm pretty close w/ a Judge u may have read about recently!!

(W/ no history of appeals, btw :P )

Knock yourself out suffragent!!!! :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Yeah u can talk like that NOW but my new civic goal is to be the Anthony B. Pseuzuhn of Rachelville.

And don't forget - I'm pretty close w/ a Judge u may have read about recently!!

(W/ no history of appeals, btw :P )

:lol::lol::lol:

This is a town run by women, do you think logic has any place here??? ;)

tabasco32 Apprentice

Hey

Remember all that talk of cookies yesterday? I bought some jeannies macroon cookies in a can. Should I have one, just one or even half of one? Please someone say yes!

jerseyangel Proficient
I still say it's destined to become a myth or fable. Future celiacs will say their cousin's teacher's daughter's friend knew someone (who was a friend of hers from choir) who SWORE she'd cyber-met this woman who could make a gluten-free donut last 3 wks!! :lol::lol::lol:

<"she swore it was true">

:lol::lol::lol:

CarlaB Enthusiast
Hey

Remember all that talk of cookies yesterday? I bought some jeannies macroon cookies in a can. Should I have one, just one or even half of one? Please someone say yes!

NO! Don't do it, it's not worth it!!!

tom Contributor
Knock yourself out suffragent!!!! :lol:

ROFL!

FakeAnthony would actually accept a SuffragentSpice moniker, but that's him, he's quirky that way.

AndreaB Contributor
carlaing involves miniscule quantities over a longer period of time (or if your name is Rachel, following doctor's orders).

Tee Hee :lol:

Reading right along everyone.......can anyone say chocolate!!! :D

Does anyone go through times when they are hungrier than normal?

I was reading one of Klinghardt's articles and he said high protein diet is not good for lyme. As we know, high protein is good for mercury and he also states is good for chronic mold. I would assume in that instance if you have both that you deal with whatever is causing the most trouble at the time. :blink:

Rachel--24 Collaborator

Just driving by.....totally behind on posts...will have to catch up later.

Its been a busy day....lots of errands to run. :rolleyes:

When I tumbled outta bed this morning the very first thing I did was take a ride in the Spiceship!! :D

WOO-HOO....I would love to start every day like that!!

Hope everyone is doing at least one thing to help themselves detox today....even you Tomatha. :P

Oh...Andrea....I totally broke my New Years Resolution today!!!!! :o

OMG....shoot me now!! I was doing soooooo good. <insert rows and rows of head banging emoticons here> :rolleyes:

I think I need EXTRA detox today. :ph34r:

AndreaB Contributor

This is what he says about the cd57

celiac disease 57: aggressive white cell, gets lowered by Bb via unknown

mechanism. Patients with low celiac disease 57 have more co-infections and feel

sicker, have more neurological symptoms and more immune problems.

Stricker MD recommends this as marker for progression of disease (

Ann Agric Environ Med 2002, 9:111-113)

Rachel--24 Collaborator
Hey

Remember all that talk of cookies yesterday? I bought some jeannies macroon cookies in a can. Should I have one, just one or even half of one? Please someone say yes!

Sorry I cannot tell you to dive into the cookies.....even though I, myself would probably go crazy and no WAY could I settle for 1/2 of a macroon cookie....or ANY cookie for that matter. :rolleyes: But I know what it would do to me.....and so I'm gonna have to say NOOOOOO dont do it!!!

EEEK...I dont even think those cookies are gluten-free are they?? :unsure:

AndreaB Contributor
Oh...Andrea....I totally broke my New Years Resolution today!!!!! :o

OMG....shoot me now!! I was doing soooooo good. <insert rows and rows of head banging emoticons here> :rolleyes:

BANG!!!!

Is this what happens when I don't talk to you for so long? :angry::ph34r::o

Rachel--24 Collaborator

Are Jeannies macaroons the ones that are gluten-free and come in little packages??

I cant recall the name of the gluten-free ones but I've eaten them and I reacted everytime.

They had honey, dried coconut and other stuff. All bad for me. :(

Rachel--24 Collaborator
BANG!!!!

Is this what happens when I don't talk to you for so long? :angry::ph34r::o

Yeah....I lost all control and I dont even know what I can blame it on. :unsure:

I didnt even eat anything bad....I feel fine......I just lost all sense of logic. :rolleyes:

I think Michelle wants to shoot me too. She said I'm gonna become more toxic now....that I knowingly poisoned myself. :ph34r:

AndreaB Contributor
I think Michelle wants to shoot me too. She said I'm gonna become more toxic now....that I knowingly poisoned myself. :ph34r:

Can't blame her. I totally agree with her.

I think Michelle and I would get along pretty well concerning you. :)

Mtndog Collaborator
Spiceship oh come on something better. How about Lymerdida. Yeah lyme+mercury+candida=lymerdida. Has a latin flare to it huh? Lymerdida Guadalupe.

:lol: :lol: :lol: :lol: :lol: :lol: THAT is funny!

Just popping in to say hello. I actually had a DAY today- we went to a local farmer's market and then played skee ball where I CRUSHED my huby with the all-time top score of 310! MOOO HOO AH HA HA. We have a huge skee ball/Go Kart rivalry. I won!

Of course, all this was folowed by a two hour nap :rolleyes:

Rachel- I'm glad the Spiceship is working out for you. I wish I could tolerate heat...maybe in the fall when it cools down here.

So, about the Lymerdida and abx. I wonder about mercury but I can't really think of where I would have gotten major amounts (no fillings, but braces and seafood). I know my doc doesn't just do abx alone. I have a gazillion supplements I have to take- taking them is practically a full-time job at this point! Milk thistle, CoQ10, multivitamin, Vitamin C (I cut out the salt for now), an Immune Booster and Super Cleanse and Omega 3 blah blah blah.......

Rinne- I start plaquenil on Wednesday. Should I be scared? What happened?

Andrea- Yeah about the appt!!!!!!! :D Boo about the time :( Too bad you can't fly to it in the Spice Ship :P

OK- has Susie Q gone MIA on percocet? How can we sent out the dingos when they are her's? :ph34r::P

In regards to carlaing- I wish SO bad that I could Carla sunflower butter and chocolate chips (EL brand of course) but none shall pass my lips as I am a compulsive racheler when hungry!

dlp252 Apprentice
Hey

Remember all that talk of cookies yesterday? I bought some jeannies macroon cookies in a can. Should I have one, just one or even half of one? Please someone say yes!

NO, don't do it!! :P I resisted buying a brownie today....resist, resist, resist.

FakeAnthony would actually accept a SuffragentSpice moniker, but that's him, he's quirky that way.

I kind of like FakeAnthony SuffragentSpice.... :lol: But, either one would do it for me. :lol: I bestow on you either one of those names!

Does anyone go through times when they are hungrier than normal?

YES!!!! Heinous!

Oh...Andrea....I totally broke my New Years Resolution today!!!!! :o

OMG....shoot me now!! I was doing soooooo good. <insert rows and rows of head banging emoticons here> :rolleyes:

Ooooh, sounds interesting! Worthy of confession even. :P

AndreaB Contributor
Ooooh, sounds interesting! Worthy of confession even. :P

Yah, I tried calling her to give her my 10 cents worth.....got no answer.

If I didn't know you were busy Rachel, I'd say you were avoiding me. :P:lol:

Think she'll answer if I only give her my 2 cents worth? :lol:

AndreaB Contributor

Here's another quote I thought some might find interesting.

Clinical tips from Dr Klinghardt

Most symptoms of heavy metal toxicity, mold exposure, Lyme disease and

parasite infestation often look identical. Here is a way to differentiate:

Tip #1:

Lyme symptoms worsen during and after successful mercury

detoxification (Hg-poisoning was successfully used as a treatment for

spirochetes. After eliminating Hg, the microbes recover before the host

immune system does).

Mold symptoms improve after successful Hg removal (mold uses Hg to

protect itself from the host immune system)

Tip#2:

Lyme arthritis affects the large joints, mostly knee and hip

Mold arthritis affects the small joints of the spine (facet joints) and of the

fingers

Tip#3: rythms and biorythms:

mold symptoms can flare up within minutes after exposure (ie visiting

someone who lives in a moldy home)

Lyme symptoms undulate with slower biorythms: 9-10 day cycles, 28-day

cycles . When symptoms come back, usually slow rise in intensity over 24

hours.

Worm and parasite symptoms worsen for 2-3 days during the full moon

(this is when they are sexually most active and propagate

AndreaB Contributor
Too bad you can't fly to it in the Spice Ship :P

:lol::lol:

Glad you had a good day and got a good nap to boot!

What is skee ball... :ph34r::huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.