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Omg...i Might Be On To Something


Rachel--24

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AndreaB Contributor
Oh! Forgot I don't think I mentioned I like your latest av too! :)

(Always a fan of changing avatars ;) )

Thanks. :)

I can't change avatars nearly as frequently as you as I don't have a digital camera. It takes awhile to go through a roll of film.

We are heading out to a wildlife park tomorrow. They have a tram to ride through the park and see the animals. Children should enjoy it. My mom said they also have an exhibit where the children can see honey being made, watch bees interact etc.


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tom Contributor
We are heading out to a wildlife park tomorrow.

Oooh! Sounds fun!

Is that towards Portland or Seattle or is there another choice?

AndreaB Contributor
Oooh! Sounds fun!

Is that towards Portland or Seattle or is there another choice?

NE from us. It's actually Eatonville I think.....NW Trek. They do have a website if you want to venture that way when you're up in Portland. They are about 2 hours from us and we are about 1/2 from the WA/OR border.

tom Contributor
NE from us. It's actually Eatonville I think.....NW Trek. They do have a website if you want to venture that way when you're up in Portland. They are about 2 hours from us and we are about 1/2 from the WA/OR border.

I'll have to ask my sister if she's been there. I'm sure her boys, 8 & almost 4, would love it.

Annnnnnnnnnnnnd I think you're about 45min from her house. Hmmmm when will I be up there next . . . . . .. . . . .. :)

Janeti Apprentice

Hello Tom,

Are you saying that it took you 4 years to come out of that brain fog?? Also when you were at your worst, did your muscles bother you, and also the front of your neck muscles? I can't figure out why sometimes when I lean against a counter my guts feel sore. Do you think this is detoxing from the candida? Has this ever happened to you? I feel like this has taken such a toll on my entire body.

As you can see, this is still making me crazy, but the oregano oil is helping. Janet

tom Contributor
Hello Tom,

Are you saying that it took you 4 years to come out of that brain fog??

When did I say THAT!?!! :o Hehe j/k, you're getting that from my sig, I presume.

That sure doesn't sound good, does it? One way to look at it could put it at 7-8 yrs, and another way could put it at 35yrs!!

But the right way to look at it, in this context, would be that I was too . . . . (is 'stupid' the right word?) . . . .well I was too SOMEthing to quit soy 2 yrs ago when I found the candida - tho in my defense my Naturopath didn't think soy was a problem and I think even recommended soymilk.

If I HAD quit soy when I started treating candida, w/ both the strict diet and the pills/powders from the N.D., it may have taken only a MONTH from that point. <what? No emoticon for dietary regret?>

A while into candida treatment, I was fooled when I did my own soy elimination tests, expecting it to follow the pattern that other foods had - namely that it took only a few days to feel enough of a positive change that I knew I shouldn't have that food again.

W/ soy, it was almost 2 weeks before I knew.

I suppose I missed my 1st chance to quit soy when I went gluten-free in '03. I had read that soy was often a problem for celiacs. But at that time I very rarely HAD any and of course was suddenly off soy sauce due to the wheat. I didn't know about wheat-free tamari yet.

There weren't NEAR as many gluten-free products back then btw.

Going dairy-free a couple months later got me started on soymilk.

I probably talk about soy too much. It really only gets so much attn from me because it was the FINAL food intolerance, and thus was the one that made for such an incredible change.

I've definitely proven I don't have a concise answer to your question, haven't I?

But if I'd done things a little better, and using the candida dx as a starting point, it may have taken only a month to dump the brainfog.

It may not be fair to measure from that point. Starting from when 100% gluten-free started may not be fair either. I was pretty bad off and brainfog may not have made a top20 symptoms list.

Just a few weeks gluten-free, I could say I was a million times better to get the point across, but truly, w/out exagerrating at all, I could put it at ~300x better.

And even w/ that improvement I wasn't anywhere near healthy yet, in mind nor body. Now . . . . . what was the question again? :lol:

I don't have a good answer but one thing I DO know is that if I had the resources of this thread back in '03, or just known then what I know now, I could've easily saved myself 3+ yrs.

Also when you were at your worst, did your muscles bother you, and also the front of your neck muscles?

Bother me? BOTHER me??!! I'm not sure if I could simply shift position while seated w/out pain. Heck, there was enough pain most of the time w/out moving at all, tho the bone pain was greater than the muscles'.

Front of the neck doesn't stand out in particular. Maybe occasional cramping when I was having trouble simply supporting my own head. :(

I can't figure out why sometimes when I lean against a counter my guts feel sore. Do you think this is detoxing from the candida? Has this ever happened to you? I feel like this has taken such a toll on my entire body.

As you can see, this is still making me crazy, but the oregano oil is helping. Janet

I don't recall any particular gut soreness from counter-leaning, but maybe it was there and I stopped leaning. ;)

The candida die-off/'detox' was mostly 3 days of feeling like I had the worst flu I ever had, but w/ pre-gluten-free memories still haunting me, was a walk in the park in comparison.

I've been under the impression that a candida die-off is boom all-at-once, and not lingering and ongoing, but that may be because the N.D. got me started on a variety of candida-killers all at once.

The continuing mystery & confusion in trying to make sense of what's happening to your body is frustrating, but as long as progress is being made, all you can do is keep pushing on.

It's all worth it in the end. :)

P.S. I forgot - are you seeing a health care pro of some sort?

Janeti Apprentice

Wow, Tom, what an answer....Am I more confused than ever?? NO, I am not seeing a health care professional because, for years, I have been roaming from one Dr to another, but this last year and a half has been the worst. When I started with rib pain, and burning reflux, I was just given nexium. I had to pull a tantrum to get a referral to see a GI who did an endo, but did not biopsy my intestine. He only told me my stomach was inflamed...No poop, but why I ASKED??? Two months later(this past Dec) my GI symptoms were too numerous, and they removed my gallbladder. I was told Eat...anything and everything. By the time I left the hospital, I was now having nosebleeds. What the heck is this?? Days later, for my first regular breakfast, I made myself a fluffy little pancake. Soon after I wasn't sure which end I would be seeing it exit. I thought this was crazy, and went back to he GI, who swore it didn't have anthing to do with my gut. I was getting weaker, and weaker. My regular MD sent me for bloodwork, no b12, not vit d no calcium, liver functions were elevated, but to him, he thought this was fine, and blamed it on my mothers death(mom died 8/06). From my bed, I started to google hashimotos(I was diagnosed 1999) and other autoimmune, and celiacs came up. What a blessing I thought. I went back to the GI and asked him, he said no, you do not have sprue...but sure, go get bloodwork. My antibodies were off the chart. Doctors suck, I will never change my mind. This website has been the best thing for me. Now the latest thing (every day is something new) my gums hurt me on and off. I am assuing that candida can be in your mouth also? I made a dentist appt, the end of this month, so we'll see. I guess I need for find a better GI, now that I did all the hard work for them...I am always scared though, I can't believe how sick I was, and I never want to be like that again. Know what I mean??? Janet


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tom Contributor
. . . I can't believe how sick I was, and I never want to be like that again. Know what I mean??? Janet

I know exactly what you mean and far too well. I got chills reading that last bit.

I don't talk about how it was at my worst. Even thinking about it for too long will make me me cry still and it's been 4 yrs. (that was "too long" btw, or at least damn close)

No GI ever helped me. I left furious every time. Stanford's HEAD of GI and celiac.org's medical consultant was the worst. Another was phoenixceliac yahoo group's fav GI.

A Naturopath and an Acupuncturist did help however, well after I was gluten-free but still miserable.

You may want to look into the non-MD path. Many are very very good.

NoGluGirl Contributor

Dear Andrea,

Seeing bees make honey is neat! :) Bees are actually very intelligent. They communicate by moving their body. In order to tell each other where a food source is, they do a little dance! Those suckers have nasty tempers, though!

I wish you had a digital camera. They are nice to have around. Dad gave me his old Toshiba when he got a new one. It is a great camera! A used camera is better than no camera!

I thought you probably had Candida. That stupid yeast is relentless! :angry: I hate having to deal with that. The Pau D'Arco may be something I should try. Cyprilic acid is definitely a good option.

So, the LED is the first layer. The second layer is ASYRA. ASYRA is more specific, right? Is it better or as good as BioSet or ART? I know different things can show in different testing methods.

Dear tom,

Yes, four woohoos! :P I am hoping things will workout with school. In the meantime, I have to figure out what to do about the outstanding balance. Deciding what to go for is difficult. I am not sure if I should pursue the advanced degree or not at this point.

It is great you are going to another meet-up! Momma Goose, Broncobux, and Mouse will surely be a fine group to get to know in person! This is exciting! I cannot wait to hear how it goes! Take pics if you can.

Only 15 more days now until moving day! You will get the packing done, I am sure. Although it is not the most enjoyable task, it will go a lot quicker if you do a bit here and there. Remember to label the boxes so you do not have to sift through them all to find what you are looking for. Since you are moving a ways from where you are now, it may be a good idea to pack some survival items so you do not have to go to the store for things all of the time.

Maybe you will get to meet Andrea the next time you visit your sister! That would be awesome! Washington is a nice place. It does not usually get too hot there, either. The nice temperatures are definitely a plus.

I share your annoyance at doctors. They assume they are smarter than their patients. If that were the case, how come so many of us had to diagnose ourselves with conditions before finally getting well? The least they could do is humor people sometimes. Of course, that would mean admitting someone is not crazy and is actually ill.

Dear Donna,

I hope the tests show something as well. It always sucks when you pay a ton of money for nothing. That is so aggravating! The Vitamin D deficiency may not be a problem for you. Let us know when the results come back from your neurotransmitter test and the others.

Working for an attorney can be exhausting. The workload is quite large, often to the point of absurdity. There are only so many hours in a day. All you can do is what time allows. Ridiculous demands should not be made by any employer, but normally, that is not how it goes!

Thank you for the congratulations on Finance! I am so glad I am finished with that crap! No more of that! I do not want to take a course like that ever again. No one else does, either! :lol:

Dear Rachel,

When are you going on vacation again? I thought you might already be on it. You had mentioned something about doing it after your LED treatment for mercury. Are you going to go to the beach? That is where I would go, but with serious sun protection!

Dear Janet,

I know the pain you describe. I get sore like that as well. My whole body aches. I have Fibromyalgia. I was diagnosed at 18 years old. I am 24 now. Leaning on a counter or a chair can make me so sore!

The misery never seems to go away with the Candida. You have to work with it. This stuff is hard to kill. Once it is in its mycelial form, it has rooted itself in the gut. That often leads to Leaky-Gut, and numerous other problems. I am implementing my plan slowly to avoid extreme herxing. I tried to stop everything all at once before, but due to the low blood sugar, that threw me into severe misery.

I also lost my gallbladder, and still suffered with pain and nausea after surgery. The gluten probably was the culprit. After going gluten-free last year, the reflux that forced me to sleep practically sitting straight up despite taking twice the dosage of Prilosec daily reduced to the point I sometimes can cheat and only take one a day. I agree that doctors are complete idiots. :angry: They also have huge egos, and could never admit that they were ever wrong about anything.

Dear Everyone,

Thank you for the congratulations on my new cousin on the way! I will pass on the good wishes to my cousin and his wife! I bet Chris is very excited. He is probably already planning the nursery, although his wife is only a month along! :lol: He will make a great father, and I am sure she will be a great mother.

Sincerely,

Jin

tom Contributor

ANDREA!

:) HAPPY BIRTHDAY!!!! :)

AndreaB Contributor
So, the LED is the first layer. The second layer is ASYRA. ASYRA is more specific, right? Is it better or as good as BioSet or ART? I know different things can show in different testing methods.

We had the ASYRA and ART done twice with the children. ASYRA maps out what can be treated with LED's (if the person has the money for LED treatments, which are cheaper in the long run than supplements). We had the LED's done for all of the first ASYRA run. The second ASYRA run we just had done, we don't have the money for LED's so we are going the supplement route. It will take longer but should still do what we need.

I forgot to say Congrats on the Finance. That is a huge stressor off of you!

ANDREA!

:) HAPPY BIRTHDAY!!!! :)

Thank you! :)

We had a reasonably good day today. T was in a snit about me not packing dates to go with lunch. I drove an hour north to meet my mom and stepdad. He took over and drove to and from NW Trek. We saw everything but the white tailed deer on the tram ride......black tailed deer, elk, the one lone female moose (the male was killed last year by tree fall, they are hoping to replace him next year), bison, caribou (I think), mountain goats, trumpter swans, raccoons, ducks, blue heron.

We also saw the rest of the animal exhibits which include the lynx, bobcat, cougar (we didn't see), wolves, coyotes, grizzly and black bears, barn owl, snowy owl, great horned owl, golden eagles, bald eagles (all the birds are rescued animals that have been injured and can't fly anymore, or much), wolverines, sea otters, porcupine, beaver, skunk, badger. I think that's mostly it.

We also saw the bee exhibit. I can't believe how many bees fit in a hive! Didn't see the queen bee but did see one of the worker bees trying to remove a dead bee from the hive.

Overall it was a good, albeit tiring day.

Don't remember if I posted about talking to my dentist yesterday about ozone therapy. He said it works great as long as you're getting the treatment but as soon as you stop the infection comes back. I'll be getting the other cavitations taken care of after the amalgams are out. He says the amalgams are the most important as they put a big stressor on the body.

NoGluGirl Contributor

Dear Andrea,

HAPPY BIRTHDAY TO YOU! :) Do you have any special plans for today? I was thinking maybe a little party or something with the family? My father's birthday was the 4th. I got him a Blockbuster gift certificate and a card. It was difficult choosing between the two cards, because the one was really sentimental, and the other was humorous. I ended up getting the mushy one, but I wish I had gotten the other one as well. It said "Dad, you are really lucky. I could have been twins!" :lol:

Thank you for the congratulations on the Finance! Boy am I glad I am done with that! No more of those classes! From now on, it is pre-law. I need to speak with my Academic Advisor. I have no idea which degree I should go for.

Going to see nature sounded wonderful! We have a lot of squirrels here. There are four or five in a tree in our neighbor's yard alone! :o They did not even notice them until we mentioned them! That is odd, considering they always know what we are doing. <_<

We get raccoons around here. They get into the trash cans and scatter it all over the place. Once, when I was a teenager, I was playing wall tennis, and my ball bounced down the street, and a raccoon began chasing it! :lol: I never knew they liked sports. Raccoons are not always shy, either.

The bees reminded me of the hornet's nest we had on my parents' bedroom window. We could watch them moving around in there! I could not believe how many there were! We also got to see the eggs hatch. It had to be killed and removed, because they were dangerous to the neighbor children and us. Hornets are terribly aggressive.

My town does not have some of the other animals like wolverines. We have quite a bit of deer, and in fact they have to have hunters go after them due to the population being so high. Otherwise, the deer starve to death. Some were eating farmer's crops and tree bark. :( Still, I see no reason they cannot just inject them with birth control. Hunting is so violent.

Apparently, in your area, so are trees!

Baby bunnies run around a lot here. They are adorable! We also have lizards, which sometimes get into the house. Lately, we have had a few really beautiful butterflies. There was a large white one, a light yellow butterfly, a monarch, and a beautiful black and blue winged butterfly. Robins and turtle doves are the most common birds, although we used to have more cardinals. Once in a while, I see a sparrow.

ASYRA seems to be wonderful to help decide treatment options. I wish I could get it done. That would be nice. You will get everything straightened out. It takes some time, but will be worthwhile in the long-run.

Herbs are much safer than all of those poisonous pills regular MDs use. All of the side effects are terrifying! :o You are better off without those. It looks like dental-wise, the amalgams are the big concern. Cavitations seem secondary compared to them. I need to get my molar out, and am concerned about cavitations. With the overcrowding, the wisdom teeth will have to go, too. That terrifies me.

Dear tom,

Only 14 more days until the big move! :) Are you counting down? You will finally be out of that inferno in two weeks!

Meanwhile, you get to meet Momma Goose, broncobux, and mouse! Say hey for us all! We wish we could be there.

Well, my mother is back to her old crap. :angry: I hate her! I really do! You know what? I am tired of her whining. I told her, she is no longer allowed to even mention her stomach hurting or getting D, because she refuses to do anything about it!

Dear Carla,

I cannot believe you lived in Indiana and never have heard of the Fall Festival! :o It is the second largest street festival next to Mardis Gras! Go to Open Original Shared Link to see about it! I cannot eat any food, but I love to play the games. Those little duckies are so cute! Despite the fact it is a child's game, it still is fun!

Sincerely,

Jin

CarlaB Enthusiast
I cannot believe you lived in Indiana and never have heard of the Fall Festival! :o
Well, Evansville was not exactly right around the corner from us. :) Nor is it easy to get to. ;)

The festival looks fun, though.

Andrea, happy birthday!

covsooze Enthusiast

Happy Birthday Andrea! :D

I think we are starting to get to the bottom of my hair results! It looks like my zinc and magnesium levels were only in the OK range because there's zinc and magnesium in my shampoo. Not so sure why the iron is OK, but I have read that zinc deficiency can cause iron deficiency anemia, so maybe that's an explanation.

Anyway, the real concern is that I have a heavy metal problem. That's probably not a surprise to you guys, but it is to me a bit! The main offender is lead, but aluminum is also a problem. the lab is recommending some supplements to get rid of the metals and I've bought a water filter today and am gradually replacing our aluminium pans (good job I got a bonus at last! :D ). Is there anything else I can do to get rid of the metals? Would detox baths help? I wasn't around on this thread when the discussions about metals took place, so I'm working in the dark a bit here.

Anyway, I'm taking this as a positive step forward. Maybe it's the key to my ongoing issues, who knows?

Susie x

AndreaB Contributor
Is there anything else I can do to get rid of the metals? Would detox baths help? I wasn't around on this thread when the discussions about metals took place, so I'm working in the dark a bit here.

What kind of toxin binder are they putting you on? Chlorella, Modifilan, Charcoal...etc.

Replacing your pans is a great start! Do you use non stick pans....those are also trouble as far as toxins. A lot of the gals here have used the coffee enemas.

I think the baths, foot pads, FIR sauna's all help. It really depends on what you have available and what you can swing. It also depends on your toxic metal load and whether supplements and toxin binders will be able to deal with a lot of it.

Thanks for the birthday wishes everyone! No special plans today. Haven't figured out dinner since I can't have what I originally wanted due to T not being able to have nuts yet. I was going to have pesto.

jerseyangel Proficient

Hi Andrea--

Just popping in to wish you a Happy Birthday!

I started a birthday thread for you, and the "B" was a capital letter in the preview, and came out small in the post :o

Anyway, have a great day, and bummer about the pesto :D

CarlaB Enthusiast

Susie, I had aluminum show up in my hair analysis, but not in my heavy metal provoked urine test. So, the assumption is, I am getting aluminum from somewhere, but I am excreting it, not storing it in tissue.

A provoked urine test would be a better indicator of your heavy metal load ... especially with your hair analysis to cross reference with it.

To detox metals, chlorella can help, but in the end you'll need a chelator. You really want someone to oversee the detox because you don't want to redistribute them.

NoGluGirl Contributor

Dear Carla,

The Festival is nice. I want to go this year. I miss the food, but I can still play games! :) Rides are not my thing. Some days walking makes me want to puke, so rides are not a good idea. This yeast is probably adding a lot to that. However, the Lyme is in there, I am sure. I just have to get my doctor moving.

I am sure I have aluminum. I was cooking with the foil bags a lot. I have cut down on it, but still know that because I probably cannot detox, that is trouble. If it is just laying in there and accumulating, it is messing things up. Hopefully, I will be able to address those in the near future. :unsure:

Dear Susie,

I am not surprised by the results. Heavy metals are everywhere. It is difficult to avoid them. Getting rid of those aluminum pans will be a great help. Nonstick is bad for people. When they become overheated, they can kill birds! :o I had been getting dizzy when using them, but until someone said something on here, it did not occur to me!

Chelation may be next. This is hard to say. Some doctors do other things first. If you have amalgams, this is a concern. Since you have lead, there are many ways that could have gotten in your system. Drinking wine out of lead chrystal goblets is one source. Lipsticks often have it as well. Plumbing is another source, as well as candle wicks.

Dear Andrea,

I am sorry to hear the pesto is a no-go. :( Poor T! Hopefully she will be able to eat nuts again soon. They are in a lot!It sounds like you are having a nice, relaxed birthday. Those are good to have sometimes.

I totally agree nonstick pans are bad! Those gases are deadly. I was reacting to them. The pan was not that new, but still. Toxins like that are not safe for anyone to inhale or ingest.

Dear Patti,

Hello Angel Spice! :D It is great to see you! ;) We all have wondered how you have been. So many regulars have disappeared lately. Laura was on here the other day, but we have not heard much if anything from Julie, Alison, Lisa, Mia, Judy, Susie Q, or Bev. I know Bev and Susie Q have been on the Silly Thread, but they have not been on here.

Sincerely,

Jin

tom Contributor
......black tailed deer, elk, the one lone female moose (the male was killed last year by tree fall, they are hoping to replace him next year), bison, caribou (I think), mountain goats, trumpter swans, raccoons, ducks, blue heron.

. . . . lynx, bobcat, cougar (we didn't see), wolves, coyotes, grizzly and black bears, barn owl, snowy owl, great horned owl, golden eagles, bald eagles . . . wolverines, sea otters, porcupine, beaver, skunk, badger. I think that's mostly it.

OK, first . . . .Good Golly Miss Molly were u taking notes!? :D

Secondly, on a college football Saturday, I couldn't help but think of which colleges have each of those animals as a mascot. Got a lot of 'em too, but I don't think anyone goes by The Fightin' Skunks! :lol:

Otters came last but I think Monterey County's old Fort Ord army base that's been turned into Cal State U. - Monterey Bay decided upon Otters!

. . . . but I wish I had gotten the other one as well. It said "Dad, you are really lucky. I could have been twins!" :lol:

:lol:

Otherwise, the deer starve to death. Some were eating farmer's crops and tree bark. :(

Hooved mammals LIKE eating bark!

What DOES deserve a :( , however is that North Koreans had to, not many yrs ago.

Apparently, in your area, so are trees!

:lol:

Dear tom,

Only 14 more days until the big move! :) Are you counting down? You will finally be out of that inferno in two weeks!

Meanwhile, you get to meet Momma Goose, broncobux, and mouse! Say hey for us all! We wish we could be there.

I'll pass along a "hey"!!

Re: Counting down - I have the calendar function on this sidekick do a reminder alarm every day lol!

Dear Carla,

I cannot believe you lived in Indiana and never have heard of the Fall Festival! :o

??? So that's "used to" live in IN Carla? Have I lost my mind again or are you a long-time OH resident?

Haven't figured out dinner since I can't have what I originally wanted due to T not being able to have nuts yet. I was going to have pesto.

Mmmmmmm pesto!!

I ran out recently. Time to make a new batch! Even tho it's so easy to make, it's still one of my most pride-worthy kitchen accomplishments. :) (heyyy I barely cooked at *all* before candida!)

jerseyangel Proficient

Hi Jin--

I'm always lurking and reading B)

I've been trying to spend most of my time on here helping the newbies with Celiac questions. We've had so many new people join lately.

I'm actually fine, thanks for asking :D . I feel better than I have in a very long time. I almost hate to say it--I don't want to jinx anything.

In July, I had to go on Zithromycin for an upper resp. infection. From the second day of treatment, I could feel a difference in the way my intestines felt. (Odd, since antibiotics have always upset my stomach) The constant uneasy feeling vanished, and I've not had D since :rolleyes:

I've also been taking a Caltrate 600 / D with every meal as insurance, as I read that it absorbs excess fluid in the intestine. I swear it does!

Between the two, my D, and more importantly, my anxiety is gone. I've been able to add a couple of things back into my diet, which is great. I even had a Redbridge Beer the other night. :o I'm sure I had a bacterial problem of some sort that responded to the antibiotic.

I have a GI appointment next month, and I plan to run this by him. Since this sort of thing can reoccur, I want to be ready with a plan ;)

So-o-o-o, I find myself on the computer less and it's probably a good thing as we've got a lot going on here at the moment.

NoGluGirl Contributor

Dear tom,

I really liked that card! I should have gotten it, too! :( There is no rule where you cannot give someone two cards for their birthday! Maybe I should go back and see if they still have it. I could get it for next year.

Yes, what happened in North Korea is horrific. It is so tragic all that those poor people have been forced to endure. I am aware that many were tied to a post and shot to death right in front of their family. :( Kim Jong-Il is evil. There are no ifs, ands or buts.

Trees being violent is another sign of the mutations in nature that happen due to pollution! :o This must stop! What is next? Al Gore doing the Macarena? Oh, God! That already happened?! It is the Apocolypse! Lord save us! :lol:

Thank you in advance for saying hello to everyone at the gathering! Since we cannot be there, you are the representative for us all, so behave yourself! :lol: Do not make us look bad! I bet your Sidekick is wired to the second for the move! Those things can be good to have.

Carla lived in Indiana before she moved to Ohio. She stayed behind with her daughter until she finished high school the other year. It was soon before graduation, and Morgan wanted to graduate from there. Her daughter is in Indiana now going to college. I believe she is in Bloomington. I think Carla lived near there before moving to Cincy.

Dear Patti,

I am glad you are always lurking! :) I try to help as many newbies as possible, too. My brother is one newbie who does not have a computer. He has to have me alone to help. We were on the phone this morning for 163 minutes and 13 seconds! He believes our parents are idiots and we must both be adopted, too! :lol:

There has been a ton of new members lately. That is really interesting. Maybe more people are getting diagnosed now! It sure would be great if doctors had brains. Some probably have them, but just do not use them. The jury is still out on this one, as we must cut open or x-ray a doctor's brain, and have run into difficulties. Our study cannot conclude at this time. :lol:

I could see why you would not want to jinx it! I am very superstitious, so I am like so paranoid about that. It is wonderful to hear that your bacterial overload seems to have corrected your stomach issues. That happens to a lot of people. Kassandra had a sinus infection that interfered with her menstrual cycle on top of causing full body issues! You never would have suspected a sinus infection to do so much damage.

You do experience a lot of anxiety when you feel that way. Physical issues make people that way. You are afraid to go anywhere, or do anything. Making plans is impossible. Now that the D is not a problem, it certainly helps with this a lot! Caltrate is probably a good idea anyway, since the calcium is always something Celiacs are deficient in. The bloating is something I could use help with!

I am glad you got to add some stuff back! Even a beer! How great is that? You never would have expected that, would you? This is a wonderful surprise I am sure!

Keeping your GI doc informed is a good idea. Having a plan ready if it reoccurs is smart. Doctors normally take their sweet time. That is what annoys me. We suffer endlessly until they decide to get their butt in gear.

I spend way too much time on the computer! Maybe I will actually get off of here more now that I am out of school for a short while. I need to get some new clothes. Pants are something I just do not like shopping for, although I probably would if I was not bloated. Maybe I could get that 6 Week Body Makeover for Christmas!

Sincerely,

Jin

CarlaB Enthusiast
??? So that's "used to" live in IN Carla? Have I lost my mind again or are you a long-time OH resident?

After moving all over the country we finally moved back to the midwest in 1990. We lived in Indy till '99, then moved outside Bloomington. We tried to move to Ohio because that's where hubby's business is located (his dad was sort of retiring, so it was time to be at the main office ... hubby always worked out of the house) in 2002 ... in fact, we DID move, into the house we live in now, BUT our IN country house didn't sell.

Soooo, a year later we had to move BACK to IN! We couldn't keep up two houses anymore, and that one wasn't rentable, but this one was (in fact, everyone wants to buy this house ... it's historical ... people are known to ask if we'll sell).

Once our house sold, in 2006, we moved back here ... by this time the renters were month-to-month, so we gave them 6 weeks notice to move. We had actually taken our IN house off the market and were going to stay, but this pesky person kept making offers through our old agent ... when he finally offered almost full-price, we accepted. Honestly, by that time I wanted to stay. It was a good move for the other 7 people I live with though.

So, now you know the stress that triggered my Lyme to become active! I got sick in Ohio in 2003 and declined steadily until last December.

Now, my kitchen is getting ripped out Oct. 1st, so new stress ... will it be finished on schedule right before Thanksgiving??? Hope so, or we'll have to eat out!

So, is that more detail than you wanted? I guess you assumed we lived in IN because we went to the race ... but no, hubby has a 5 state territory, so he knows people all over ... someone in IN gave him the tickets. You can't get seats that good unless you know someone who has them ... it takes years of buying race tickets to be able to be high enough up on the list to buy seats near the pole.

NoGluGirl Contributor

Dear Carla,

Whew! Just reading about the experience made me tired! :lol: That would be exhausting moving back and forth. There are so many people who stay put. My parents have. The last time they moved was before I was born, in 1978!

Sincerely,

Jin

miamia Rookie

Andrea-

HAPPY BIRTHDAY!!!!!!!!!!!!!!!!

I hope you ahve a great day. Can you make the pesto with seeds?

Patti

its so good to see you- hear you

tom Contributor
I've been trying to spend most of my time on here helping the newbies with Celiac questions. We've had so many new people join lately.

Yeahhhh now that u mention it. One I posted to had started her diet-related thread in the Tech Help section. I hope it's not still there. GuitarGurl I think.

And not to make light of his/her frustration, but the one who created a thread and 10min later posted to it, a bit perturbed that nobody responded yet was a little amusing.

I feel better than I have in a very long time.

Yay!

I think I've finally stopped worrying about a jinxing or a serious relapse.

Mmmm Redbridge! Was it to your liking beer-wise? Some prefer New Grist.

(Ugh that sounds close to gristle :bleh: )

So, is that more detail than you wanted?

No! Now I'm wondering about the late 80s! :lol:

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    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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