Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

Rpm999 Contributor
Rpm999
Posted

ah i've always been wondering this, does anybody know what could make your tongue have this tone: sometimes it looks like rust, like a yellow/brown/orangeish coating, kind of like copper or something

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted

Sherry, congratulations to your daughter, how exciting! How will you ever be able to stay in China?

How fun!!! You guys will have to take lots of pics. Kass, are you taking your laptop?? Then you guys can sit in the same room and post on the forum, like Carla and Morgan used to do :lol::lol:

:lol: I'm sure we'll do that for Lyme chat ... we're both there almost every night, LOL. In fact, I think we've had as many as five of us from this thread there, LOL. We should call it OMG chat!

Update on my LLMD appointment today to review my Igenex test. He doesn't think I am positive for lyme. Well, I am sort of confused. I am sort of positive because I had 1 band but sort of not positive because your supposed to have 2 bands at least. So, not sure...

I thought maybe if I was positive it would give me a clue on where to go with my daughters leg/bone pain.

What band was positive? I'm guessing 41.

You can be negative and still have Lyme .... but an LLMD would know that. Did he have any suggestions on what else it could be?

I am more and more convinced all the time that it's a composite of "illnesses" that we all have. I knew Lyme was primary for me, so I attacked it with abx, then I started addressing other issues.

Rachel's primary problem was holding toxins, so she started there, moved to metals and Lyme.

Both of us are getting better. You might just be more like Rachel than you are like me .... not that Lyme is not there, but maybe it's not your primary problem. I actually think ART would be a really good idea for you if you had something like that near you. That way you don't have to guess what's going on.

I also know that I still have Lyme .... but Lyme is not making me sick. I believe that my immune system has been good at taking care of it all these years, so I think the idea for me is to beat the Lyme down enough and strengthen my immune system enough so that I can stay healthy on my own .... so that's where I am now, taking just enough meds to be symptom-free, taking things for immune support, supporting my thyroid and adrenals, and working on detox.

I'm not there yet with the babs though!

I think this is the goal of all of us .... to find the stressors, remove them, strengthen the immune system, and live symptom-free even though we may always need to deal with the fact that we were ill so that we prevent it from happening again.

I am so glad, btw, that I didn't ignore the air hunger. ;) I'm herxing a little from the Malarone already. I feel a little intoxicated ... my back aches a little ... I'd say I'm about 85% today though ... I worked out for 30 minutes, got tired fast in the gym. My air hunger is already improving ... I was going to wash my sheets today, but I figured that I'll probably have a terrible sweat again tonight with it being my first day back on Malarone so I waited, LOL.

We are REALLY getting dumped on right now with the snow! Adam just called and is about a two hour drive away ... with the snow it could take him all night because of accidents ... so he pulled over and checked in to a hotel. My kids are out sledding. :) (at the cemetery, LOL) .... it's supposed to turn into an ice storm later, so that makes for bad sledding. I wish it would just stay snow.

We bought enough food today at Wild Oats that we should be able to stay home all day tomorrow. :D Well, I'll go to work though .... I'm hourly, so I have to go to get paid, LOL.

AndreaB Contributor
AndreaB
Posted

Carla,

Sorry about Adam not being able to make it home tonight. :(

Hope the children have fun with the snow before the ice storm hits. Those are no fun.

aprilh Apprentice
aprilh
Posted

Yep, I believe it was 41. I do think that if i do have lyme its not my primary stressor. I think possibly the metals and yeast are. So that basically leaves metals. The yeast won't go until the metals do.

My problem is that I have trouble detoxing because of my liver. So he gave me a glutathione supplement and policansinol??? msp. Said it might help my liver work better then in a month he might see if I can do the DMSA detoxing.

He thinks i probably moved metals and stored them in my liver last summer when I tried that cilantro detox on my own without knowing what I was doing then I did 2 days of castor oil packs on the liver. MORE IS NOT BETTER!

I moved metals because I was REALLY bad off. I thought I might die seriously. I prayed that I would wake up in the morning. I finally learned of AC and detox baths and that seemed to help. But my liver has not been right since. So, guess that's what I need to work on.

Anyone have any other suggestions for liver support?

How do you get to lyme chat again? Do you have to have a special sign in?

RPM,

Sounds like total back up of toxins. Usually means you need liver support (like me!). Although my tongue is not that color.

CarlaB Enthusiast
CarlaB
Posted
Sorry about Adam not being able to make it home tonight. :(

Thanks, Andrea. :) I talked him into NOT coming home, LOL. He travels so much, I'm used to him being gone .... but I didn't feel like it was safe to be driving in ... he thinks he's invincible ....

You know, my kids idea of DARK and my idea of DARK are two different things! LOL I told them to be home by dark! We are really under a beautiful blanket of snow! I'd like to continue to sit here and watch it, but I need to go take my sauna!

CarlaB Enthusiast
CarlaB
Posted
How do you get to lyme chat again? Do you have to have a special sign in?

www.lymediseaseaudio.com/lymechat.htm

Milk Thistle is good for the liver.

What about coffee enemas? :D

confusedks Enthusiast
confusedks
Posted
What about coffee enemas? :D

Carla, I am going tonight to go and buy the stuff for ecoffee! I am going to do it!!! LOL! :lol: I don't even know if we have coffee?! :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Well, then, Kassandra, you need to buy coffee, too!!! Be sure it's organic and has caffeine! Have fun with that, LOL. (Donna, I know your reading this in secret, secretly thinking of trying it yourself).

Rpm999 Contributor
Rpm999
Posted
RPM,

Sounds like total back up of toxins. Usually means you need liver support (like me!). Although my tongue is not that color.

yeah, my urine is the same way....sometimes it's really foggy too....i remember you asking what it was like before, usually the first time i go to the bathroom it's really strong and then the next time it's almost always clear =\ to me it sounds like maybe my body has like no nutrients

confusedks Enthusiast
confusedks
Posted
Well, then, Kassandra, you need to buy coffee, too!!! Be sure it's organic and has caffeine! Have fun with that, LOL. (Donna, I know your reading this in secret, secretly thinking of trying it yourself).

LOL! :lol: Yea Donna! You should try it too! I keep thinking about it, then I think it's not a bad idea. Then, I think about ACTUALLY doing it, and I freak out! LOL!

dlp252 Apprentice
dlp252
Posted
I must admit thought I expected them to be more candy bar like (like a chocolate coated luna bar perhaps?), they are actualy quite healthy tasting, nutty and seedy, which I like.

A little more candy bar like if you slather nut butter all over it. :ph34r:

I thought maybe if I was positive it would give me a clue on where to go with my daughters leg/bone pain.

Aw, I'm sorry that wasn't the answer (well, didn't want you to have lyme, but just wanted you to be closer to the answer).

AAAAUUUGGGGHHH! The craving monster has awakened! And it wants donuts!

Mine was awaken today as well...I was not so successful. I finally pleaded with one of the lawyers to remove the offending stupid chocolate hearts from my presence. He complied, but not until I had eaten 9. :ph34r: Stupid candida. :angry:

ah i've always been wondering this, does anybody know what could make your tongue have this tone: sometimes it looks like rust, like a yellow/brown/orangeish coating, kind of like copper or something

Gosh, nope. Mine is always coated, but it's more whitish.

Well, then, Kassandra, you need to buy coffee, too!!! Be sure it's organic and has caffeine! Have fun with that, LOL. (Donna, I know your reading this in secret, secretly thinking of trying it yourself).

LOL! :lol: Yea Donna! You should try it too! I keep thinking about it, then I think it's not a bad idea. Then, I think about ACTUALLY doing it, and I freak out! LOL!

LALALALALALALALALALALALA Still NOT listening!!!! LALALALALALALALALALA

aprilh Apprentice
aprilh
Posted
www.lymediseaseaudio.com/lymechat.htm

Milk Thistle is good for the liver.

What about coffee enemas? :D

Going back on the e-coffee's. I have trouble with it for some reason. :(

Anybody take glutathione? That is one of the new supps I am starting. Is it okay to continue my other supps along with?

aprilh Apprentice
aprilh
Posted
yeah, my urine is the same way....sometimes it's really foggy too....i remember you asking what it was like before, usually the first time i go to the bathroom it's really strong and then the next time it's almost always clear =\ to me it sounds like maybe my body has like no nutrients

How long had it been before going to the bathroom did it look foggy? Are you drinking plenty of water?

If you are very toxic your body may not be utilyzing minerals correctly.

Are you taking any nutrional support?

Did you ever get in with Art or Bioset?

Green12 Enthusiast
Green12
Posted
ah i've always been wondering this, does anybody know what could make your tongue have this tone: sometimes it looks like rust, like a yellow/brown/orangeish coating, kind of like copper or something

Like Donna, I usually only have a white coating, or lots of bumps along the side when my symptoms invovle the tongue.

Have you been to an acupuncturist before? They do tongue diagnosis.

Yep, I believe it was 41. I do think that if i do have lyme its not my primary stressor. I think possibly the metals and yeast are. So that basically leaves metals. The yeast won't go until the metals do.

My problem is that I have trouble detoxing because of my liver. So he gave me a glutathione supplement and policansinol??? msp. Said it might help my liver work better then in a month he might see if I can do the DMSA detoxing.

He thinks i probably moved metals and stored them in my liver last summer when I tried that cilantro detox on my own without knowing what I was doing then I did 2 days of castor oil packs on the liver. MORE IS NOT BETTER!

I moved metals because I was REALLY bad off. I thought I might die seriously. I prayed that I would wake up in the morning. I finally learned of AC and detox baths and that seemed to help. But my liver has not been right since. So, guess that's what I need to work on.

Anyone have any other suggestions for liver support?

I'm confused as to why you weren't given a clinical diagnosis, because it seems to me you are presenting many of the symptoms, but I don't really understand the lyme test interpretations so I really don't know what I am talking about....

I am glad he is addressing your liver.

I wish you could find someone to do ART, or even Bioset/Bioscan because they could work with your liver. I am on a homeopathic liver detox from UNDA, schizandra complex also is a liver supporting herbal mix I was on for a while through my acupuncturist. Dandelion root is also good for liver support, you can get it in bulk and make tea.

If you continue to go to acupuncture, they can do liver supporting points.

yeah, my urine is the same way....sometimes it's really foggy too....i remember you asking what it was like before, usually the first time i go to the bathroom it's really strong and then the next time it's almost always clear =\ to me it sounds like maybe my body has like no nutrients

Urine color, or concentration, can also change if you are taking certain supplements. I think the B vitamins might be what makes it dark.

If you are dehydrated it can also be dark, concentrated.

LOL! :lol: Yea Donna! You should try it too! I keep thinking about it, then I think it's not a bad idea. Then, I think about ACTUALLY doing it, and I freak out! LOL!

:lol:

A little more candy bar like if you slather nut butter all over it. :ph34r:

:lol:

Or what about slathering it with melted chocolate :huh:

aprilh Apprentice
aprilh
Posted

Oh how I wish I could find Art too! I was thinking it would help with figuring out my daughters issues. If the hematologist has no answers I think I might be able to talk my hubby into spending the money to take her to Art and I'll just make an appt for me while were there. We will have to travel to find someone.

I may have found a Bioset person but I thought that was more about food allergies??? Maybe I should check that out first?

I think he doesn't think I am presenting with many of the symptoms that most lyme people do. I typically am not that bad off. I don't have a lot of the common symptoms. he mentioned retesting in 3 months. Not sure what would change it wasn't a abx challenge, though. I have been bitten many times. He tries to act within the bounds of the medical laws here so I think that might hold him back a bit.

He said according to the CDC I wouldn't be positive. I said that I didn't trust the CDC's criteria for that. He agreed but maybe that is what he is worried about.

Clark Bent as Stupor-Man Contributor
Clark Bent as Stupor-Man
Posted

well, I figured it would be easier to skip trying all the alternative suggestions to put on weight and go straight for some staples like cheesecake and pizza... don't know why nobody suggested that B)

went up to the risotteria on Sunday so everything was gluten-free, but certainly not dairy-free, low in carbs, or good for candida... considering it was the first time I've eaten out in 2 years (which was incidentally also the last time I had dairy) and that I ate a number of different items available (breadsticks, meatballs, some chicken risotto meal, a little pizza, cheesecake, brownie) for dinner and then with a couple meals later that night, it was surprising how little I've reacted this week, relatively speaking...

Monday I didn't feel great and probably would have called out from work if it wasn't a holiday though the symptoms were nothing overwhelming and I was able to get stuff done around my apartment... and since then, I've worked my usual current hours (which are increased over what I had been working for a year or so anyway), played ball, etc. and felt fine for the most part with maybe a bit of a worse headache than usual early Tuesday... I'll probably try eating out again sometime in the next couple months at a place like PF Changs and go with a meal more typical of what I eat on a daily basis (less carbs, higher protein), but either way, I've been pleasantly surprised how I've felt this week... to be honest, it seems that I might have reacted just as strongly from a couple spoonfuls of sunflower butter I tried recently as I did to all the food from the Risotteria...

anyway, thanks for the birthday wishes...

as an aside, I just ordered theralac per my LLMD's recommendation... I know a few people here (carla comes to mind) are taking/were taking it, and I've been considering trying another probiotic for a while... my LLMD also recommended Transfer Factor, which I'm gonna check out a little more before ordering... don't know if anyone is currently taking it though I've seen rachel mention it as well as autism MBs if memory serves me correctly..

CarlaB Enthusiast
CarlaB
Posted
Anybody take glutathione? That is one of the new supps I am starting. Is it okay to continue my other supps along with?
I have a prescription glutathione cream. The jury's still out.

as an aside, I just ordered theralac per my LLMD's recommendation... I know a few people here (carla comes to mind) are taking/were taking it, and I've been considering trying another probiotic for a while... my LLMD also recommended Transfer Factor, which I'm gonna check out a little more before ordering... don't know if anyone is currently taking it though I've seen rachel mention it as well as autism MBs if memory serves me correctly..

I still take it. :) I also take Ultra Flora. I've stopped the VSL#3 now that I'm off the heavy abx.

mftnchn Explorer
mftnchn
Posted
When do you leave for China?

March 29...

mftnchn Explorer
mftnchn
Posted
Sherry, was it you who mentioned you have problems taking your supplements, something with your throat?

I was curious what you were instructed to do to help this, something with your pallette??

Yep, that's me. I am using the small laser pointer. It is just a normal red laser pointer, with a little piece of plastic tubing which she cut herself it looks like, about an inch or a bit more, it slides on the end of the pointer and I put a little vial of water down into a hole in the tubing so that the laser points through the vial and makes a line of light instead of one point.

I go up and down with this on my throat, behind my ears and back of the head/neck while swallowing, rubbing my tongue along my upper palatte, and sucking on a straw plus swallowing. Supposed to do 2-3 times a day, 3 minutes each. I haven't quite got that down yet.

Sherry

mftnchn Explorer
mftnchn
Posted
:D :D :D YAY!!!! :D :D :D Hey, everyone, Kassandra's coming to visit! :wub:

So cool!!! That should be so fun for you both!

mftnchn Explorer
mftnchn
Posted
My llmd has this. He called it something else. It sounded sort of scary to me! How was it?

The HOT was no biggie to me. If you have gotten any IV meds by syringe, it is just similar. I guess if someone was queasy they could not look at the pink/red stuff infusing?

Sherry

mftnchn Explorer
mftnchn
Posted
my LLMD also recommended Transfer Factor, which I'm gonna check out a little more before ordering... don't know if anyone is currently taking it though I've seen rachel mention it as well as autism MBs if memory serves me correctly..

I have taken TF for years, the main hassle is I travel a lot and it is fragile and has to be kept cool.

I didn't test for it well in my last ART so I am not using it now. Yay! One less hassle and it is frighteningly expensive.

Sherry

mftnchn Explorer
mftnchn
Posted

Carla, sorry about the babs return, hope the M does the trick and without a lot of down time.

Yes, it is hard to be thinking of going to China with my daughter making plans. She and her fiance are both very laid back, so they are going to wait a year to get married so they can enjoy the whole process. The hard part is I will likely be in China when it is time to shop for her dress. ):

Rpm999 Contributor
Rpm999
Posted
How long had it been before going to the bathroom did it look foggy? Are you drinking plenty of water?

If you are very toxic your body may not be utilyzing minerals correctly.

Are you taking any nutrional support?

Did you ever get in with Art or Bioset?

i have no clue, just sometimes you can barely see through it...i'm not taking any support, i'm going to see the bioset woman soon so hopefully i'll get a better idea and see because i feel very sensitive....i'm in some dilemma though, i feel like when i drink a lot, my body feels paralyzed and i can't stop crying randomly...i feel like my body can't even handle that, could be my liver right? once that is helped, i'm sure i won't be as reactant and will be able to handle a lot more

for some reason i'm ALWAYS thirsty/hungry....it's more like cravings though, but just from the cravings i could probably drink and eat endlessly and still feel empty/queezy, yet since i'm dealing with these things, feel bloated at the same time because like i said, it's more craving, not hunger...that's more of a recent thing, same with my body not being able to handle much, so probably my liver between whatever the dye did....i've been sick for 12 months, yet before the die which was about 10 months, i had no appetite at all, which would have made things easier! haha

the thing is, i just feel like my body couldn't handle feeling worst...like a herx/die-off/overload, so it's probably good to help a few things before anything, right? i couldn't deal with neuro symptoms getting worst or anything, it scares me...it just dazzles me how i've been sick for only a year and i'm young, yet have more symptoms than some people who are untreated for years lol, got hit with it all at once which is horrible yet good in a way

Urine color, or concentration, can also change if you are taking certain supplements. I think the B vitamins might be what makes it dark.

If you are dehydrated it can also be dark, concentrated.

i'm not taking any supplements, so probably i'm dehydrated in SOME sense

mftnchn Explorer
mftnchn
Posted

Carla, sorry about the babs return, hope the M does the trick and without a lot of down time.

Yes, it is hard to be thinking of going to China with my daughter making plans. She and her fiance are both very laid back, so they are going to wait a year to get married so they can enjoy the whole process. The hard part is I will likely be in China when it is time to shop for her dress. ):

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.