Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Rachel--24 Collaborator

Lori,

I've only had the Myers cocktail once and I didnt react well to it....I felt bad afterwards and I wasnt given any more after that. It was a "test" prior to starting chelation....my Dr. said that if I handled the Myers cocktail then I could proceed with the provoked urine test and chelation (if necessary).

I failed his test. They had taken the B vitamins out of the IV because alot of people who are sensitive have problems with B's. I still had problems with it though.

The Myers had Vitamin C and glutathione and I've had problems with both in oral supplements. I ended up testing very badly for the glutathione in ART. My practitioner told me to inform the nurses who do my IV's that I should not be given any glutathione in any of the IV's. She said it was a major stressor for me.

I ended up requesting only trace minerals in my IV..nothing else. I havent had any bad reactions with the trace minerals. I've been getting the mineral IV's for a few months now and I've been doing chelation along with it.

If you're feeling bad after the IV's its entirely possible that your body is not responding well to something in the IV. Maybe you can be energetically tested to see if you tolerate it? I use ART to guide me through treatment. Everything that makes me feel bad pretty much also tests poorly for me in ART or other types of energetic testing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator
Heavy Metals - ( I know provoked urine and hair analysis to verify, right?)

Candida - blood antibodies: what is it called? maybe MD could run it

Parasites/Bacteria Infections - stool test? does it matter which one?

Leaky Gut - your above mentioned urine test

Food Allergies - Elisa if I decide to do that

Vitamin/Minerals - any particular one here? just one MD runs covered by insurance?!

For heavy metals I would recommend Doctors Data for both hair and provoked urine testing.

Open Original Shared Link

They also run tests for parasites and bacteria. I think they offer good tests but parasite testing is still very unreliable.

Heres a link to candida testing..

Open Original Shared Link

BioHealth has a D-Arabinitol test for Candida.

Open Original Shared Link

I had an Intestinal Barrier Function test through Immunosciences Lab. It tested IgG and IgM antibodies for yeast, dietary protein and bacteria....basically things which can cause leaky gut. I'm not sure if Immunosciences is still offering tests...I recall reading somewhere that they were no longer testing...but I'm not sure if thats accurate.

I had all my vit/minerals tested through SpectraCell Laboratories.

I also got tested for EBV, CMV and HHV-6 through Hunter Laboratories.

For less money than what you would spend on ELISA testing you could get the Igenex Western Blots for Lyme...I would recommend this for anyone with any unexplained symptoms of chronic illness.

Heres a list of testing essentials that one of my Dr.'s uses.

Rpm999 Contributor

thanks for the detox pathway info, makes sense now

rachel, i know you and even the practitioner has said it, but if you're sensitive to vitamins, that's treated in bioset right? because there's no way to help any sickness if you have deficiencies and all that

Rachel--24 Collaborator
thanks for the detox pathway info, makes sense now

rachel, i know you and even the practitioner has said it, but if you're sensitive to vitamins, that's treated in bioset right? because there's no way to help any sickness if you have deficiencies and all that

They can treat it...but it doesnt always work. I dont take any vitamins and I'm not concerned with it at this point. When my toxic burden is lighter, things are functioning better, tolerance is higher, etc....I will take whatever I need. Right now getting the metals out is more of a priority.

If you have parasites, yeast, etc...you can take all the vitamins you want but most of it will be taken in by the bugs...and you'll get whatever is left. My bloodwork didnt show any significant vitamin deficiencies...except for folate.

LoriG Contributor

Thank you Rachel for all of your help and knowledge! Thank you also for the list of tests. That is very helpful for me. My nutritionist is trying to get me the CDSA as we talk so hopefully I can start there.

confusedks Enthusiast

:ph34r: I am going to challenge dairy. I can't take it anymore. I am dying for some caramel ice cream! Mmmm. :ph34r:

I might regret it, but I have been wanting to see my reaction for a long time, so why not? ;)

CarlaB Enthusiast
:ph34r: I am going to challenge dairy. I can't take it anymore. I am dying for some caramel ice cream! Mmmm. :ph34r:

I might regret it, but I have been wanting to see my reaction for a long time, so why not? ;)

Don't do it! Wait till you're feeling better! If I thought you should challenge it, I would have dragged you to Graeter's!!

See if that chocolate sorbet will satisfy your craving.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast
Don't do it! Wait till you're feeling better! If I thought you should challenge it, I would have dragged you to Graeter's!!

See if that chocolate sorbet will satisfy your craving.

:ph34r: Too late! I had some of the chocolate sorbet and it didn't do much for the cravings.

I don't know how I have gone this long without ice cream!!! It was soooo good! I had caramel sauce and chocolate chips on it...mmmmmmm!

I'll keep you all updated on my reaction! :lol:

CarlaB Enthusiast

What flavor did you have? Was the carmel sauce on top or mixed in?

confusedks Enthusiast
What flavor did you have? Was the carmel sauce on top or mixed in?

Vanilla with caramel sauce on top. Yummm. My stomach and head already hurt, LOL. ;)

CarlaB Enthusiast
Vanilla with caramel sauce on top. Yummm. My stomach and head already hurt, LOL. ;)

:( I tried to stop you ..... I hope the pain goes away soon!

ShadowSwallow Newbie

Kassandra! :lol::( I've been considering doing a casein challenge myself, although I know it would disagree with me a lot. You're being a bad inspiration! :P;) I do hope you feel better soon. :( :(

*hides from the e-coffee* :ph34r:

AndreaB Contributor
*hides from the e-coffee* :ph34r:

:lol::lol: You and Donna.......I'll join your list. Not going into the e realm. :ph34r:

AndreaB Contributor
Vanilla with caramel sauce on top. Yummm. My stomach and head already hurt, LOL. ;)

MMMMMMMM!!!!! Sounds wonderful!!!! :D

Hope your negative reactions don't last too long though. :(

Rachel--24 Collaborator

About the e-coffees...I dont do them anymore. I havent done any in a few months now because I found that alot of the time I was reacting. I was reacting with the same typical symptoms that I get when I eat the wrong foods. :huh:

So does anyone know if the e-coffee would enter the bloodstream?? I get symptoms as if I'm ingesting it.

Theres alot of things I cannot tolerate on my skin...any lipstick, lotions, hair products, toothpaste, etc....with natural ingredients (salicylates) all cause me problems. I had major symptoms every time I tried castor oil packs....after 3 attempts I realized that my body was NOT liking it and it wasnt helping me to detox....it was making me MORE toxic! :blink:

The phenols that I cant eliminate build up fast and cause all sorts of problems....but does anyone think that with e-coffee I'm taking in the phenols?? Coffee is high in phenols so if it gets into my system it would cause reaction.

Rachel--24 Collaborator

If I do have a PST deficiency I think that would be the main cause of my gut issues. I do feel that this is likely the main reason for my symptoms of toxicity and obviously the reason for having to follow such a restricted diet.

It seems like the Epsom salt baths are making a difference already. I also ordered No Fenol enzymes and those should be here any day now. I'm really excited to try it! :)

As far as I know theres only 3 ways to increase PST function.

First is eliminating the phenols so that the load is reduced. Salicylates inhibit PST enzymes up to 50%. :blink:

Second is making sulfates available by taking epsom salt baths.

Third is No-Fenol...or another brand of enzymes that are used for breaking down phenols.

I'm betting by doing these things and increasing PST function I may start dumping higher levels of metals following chelation. I'll have to ask Amy about this though.

It does explain alot about my gut issues though. Mercury robs the body of sulfates and sulfates are essential for a healthy gut and for PST function/detoxification.

PST is an essential enzyme that breaks down and gets rid of toxins in the body such as products of foods, phenols, residues of medications, hormones and chemicals that are no longer needed. In another study she noted that a majority of autistic children have sulphate levels below normal levels (2).

A deficiency in PST and sulphates can have several consequences:

- On the gut permeability: it seems that a deficiency of sulphates could make the walls of the intestines permeable (

confusedks Enthusiast
Kassandra! :lol::( I've been considering doing a casein challenge myself, although I know it would disagree with me a lot. You're being a bad inspiration! :P;) I do hope you feel better soon. :( :(

*hides from the e-coffee* :ph34r:

LOL! Ecoffee isn't that bad at all! Trust me, if I did it, anyone can! Those things really freak me out, but it's really not that bad!

And, the casein reaction so far isn't that bad at all! :P;)

Hope your negative reactions don't last too long though. :(

So far it's really not that bad. I did have a headache for a while earlier, but it is better now. We'll see how I feel in the morning when I wake up. That will be the REAL test! LOL

Rachel--24 Collaborator

Heres more info. about how a lack of sulfates can casue leaky gut and problems with detoxification.

Sulphur, another important nutrient, is also extremely difficult to obtain from food sources and much more readily available through the skin. The human body requires sulphation for the formation of brain tissue, joint proteins, and mucin proteins. (Mucin proteins line the walls of the gastrointestinal tract.)

Sulphur is also needed to sulphate a polypeptide hormone called Cholecystokinin. Produced principally by the small intestine in response to the presence of fats, Cholecystokinin causes the secretion of pancreatic digestive enzymes and contraction of the gallbladder to release bile.

Pancreatic digestive enzymes are crucial for the detoxification of environmental toxins, drug medication and other chemicals or synthetic pollutants from the body. They also stimulate special neurons called oxytocinergic to release oxytocin, a hormone responsible for socialization or what is also known as the

Rachel--24 Collaborator

I'm excited about this because I think researching about the PST deficiency has been my biggest "OMG...I might be onto something" moment yet!! :D

Then again...I'm not sure anything beats the "I might be able to eat dairy again" moment. :lol:

ShadowSwallow Newbie

No Kassandra! That's not what I need to hear!!! *covers ears* Lalalalala. :P:lol: :lol: :lol:

At this point I'm pretty safe from e-coffee since I can't ever see my Mom approving of me doing one. :P:lol:

Rachel,

That's fascinating information! Could you please post the links to these artciles, I'd like to print them out for my naturopath/Biotset practitioner to read. :)

Nyxie63 Apprentice

Note to self: The next time you take a detox bath, shut the door or the kitties will come in and laugh at you the entire time.

Rachel--24 Collaborator
Rachel,

That's fascinating information! Could you please post the links to these artciles, I'd like to print them out for my naturopath/Biotset practitioner to read. :)

Here they are.

Open Original Shared Link

Open Original Shared Link

and one more...

Open Original Shared Link

tabasco32 Apprentice

Oh no Kassandra not ice cream! I usually don't eat the ice cream with the caramel sauce. That sauce is killer. Even organic. I usually just eat vanilla or sometimes chocolate. You shouldn't start because it's hard to stop. Well it has been for me.

6 months and 3 pints a day. eeekk. I had some in the fridge and told my family, "Here eat, eat, everyone eat!"

Oh Rachel about the coffee, yeah my protocol says that your heart pumps all of your blood through the liver every 4 minutes. As your body absorbs the coffee directly into the blood stream, it is filtered out by the liver and stays in the liver absorbing toxins from the blood.

So if you already have an overburdened liver with toxins how would this help your liver any?

I did one today and feel very toxic and spacey. :wacko:

maybe need more epsom salt baths and less enymas.

confusedks Enthusiast
Then again...I'm not sure anything beats the "I might be able to eat dairy again" moment. :lol:

It felt pretty good to eat dairy! I don't know how I'll feel in the morning, but so far so good!

Oh no Kassandra not ice cream! I usually don't eat the ice cream with the caramel sauce. That sauce is killer. Even organic. I usually just eat vanilla or sometimes chocolate. You shouldn't start because it's hard to stop. Well it has been for me.

Oh, but the sauce is SO good! :lol:

confusedks Enthusiast
At this point I'm pretty safe from e-coffee since I can't ever see my Mom approving of me doing one. :P:lol:

My LLMD suggested them to me, so my mom has no issues. She trusts him 110% so she assumes that if he wants me to do them, they're safe. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.