Omg...i Might Be On To Something

[Rachel--24]

The anesthesia, I can understand why he may have kept injecting you. Do you remember if you were responding to it or not? My mom and I both (and many others in my family) have issues with anesthesia, we don't respond to it and have always had to be given much larger doses than normal in order for it to take during dental work. So I don't know if that is also the case for you.

I know that with every other dentist I didnt ever have to be injected so much. I dont recall ever having had problems with it or not responding. I think this dentist just made bad decisions while he was treating me. I think he used excessive anesthesia because my whole face ended up numb.

He may have been asking me if I still had feeling but I think if he would have waited the first injection would have been sufficient. I know for sure that I wasnt requesting more of it.

The antibiotics could not have done me any good considering I'd just been exposed to all that mercury with no protection.

[rinne]

Thanks for the link Julie.

It was after he drilled out my amalgams. There was no infection...apparantly the antibiotics were to prevent infection. Is that normal??

I think this dentist was just a complete idiot and did EVERYTHING wrong.

Lets see, he injected me repeatedly with the anesthetic....then he proceeded to drill out the fillings with no protection whatsoever (not even a rubber damn)...then he sent me home with antibiotics. ...then he placed gold crowns in direct contact with my remaining amalgams (galvanic reaction between dissimilar metals)...and then he sent me home with more antibiotics.

I've never been presribed anti-biotics by a dentist. I think your assessment of him is correct.

[Green12]

I know that with every other dentist I didnt ever have to be injected so much. I dont recall ever having had problems with it or not responding. I think this dentist just made bad decisions while he was treating me. I think he used excessive anesthesia because my whole face ended up numb.

He may have been asking me if I still had feeling but I think if he would have waited the first injection would have been sufficient. I know for sure that I wasnt requesting more of it.

The antibiotics could not have done me any good considering I'd just been exposed to all that mercury with no protection.

Well, I was trying to give him the benefit of the doubt with something, but he seems not to be very deserving all the way around.

[confusedks]

Kassandra, I am getting the LEAP stuff sent to me this week, probably won't get it til the first of next week, but when I learn more about it I can let you know if you are still interested in knowing about it.

Yes, please do let me know.

[CarlaB]

Hi everyone! I've been in Chicago for a couple days. It's easy to check the thread on my phone, but not to reply .... and internet cost about $60 per day at our hotel, so I didn't get on.

Thank you for the reminder of the Lariam, Andrea. I remembered. My next day is Sunday.

All my air hunger is gone, so I've cut back to two Malarone per day. I'll wait until I'm back from seeing Morgan to cut back to one. I'm leaving this afternoon to go over and see her for Mom's weekend.

I have heard of dentists prescribing abx prior to dental work. Usually it's done for someone with heart conditions. Here is the first site that came up with Googline "antibiotics dental work." Perhaps he was concerned because he was doing so much work on you. (I'm not saying I think he's a good dentist )

The drug treatment is intended to prevent bacterial endocarditis, a dangerous infection of the heart valves and lining. Although the disease is rare, prevention is considered essential because endocarditis can be fatal or cause devastating complications, including destruction of the heart valves and stroke.

The antibiotics are recommended because people with certain heart conditions have an increased risk of endocarditis after any dental procedure, like extraction or cleaning, that causes enough bleeding to allow large numbers of the bacteria that normally inhabit the mouth to invade the bloodstream. ''Bacteria floating in the blood can lodge in the heart and establish housekeeping, and you get endocarditis,'' said Dr. Adnan S. Dajani, an author of the guidelines and director of infectious diseases at Children's Hospital of Michigan, in Detroit

I think a lot of my feeling bad may have been the Humaworm, unless it was just coincidental timing that I felt better from the flu the day I got off it. I can't understand why the Humaworm makes me so symptomatic, but it really seems to. I only had three and a half days left, so I'm just not going to do it.

I felt good in Chicago. When I got really tired, everyone else was, too. It's just so hard to know what's "normal", especially since I've never known normal. I had a little knee pain and shin pain, but we did a LOT of walking and Adam was complaining his legs hurt, so maybe it was just from the walking.

Well, just as a precaution, I'm resting all morning ... I don't want to be too tired for Mom's weekend.

I didn't have my ecoffee for a couple days. I have had insomnia worse than before, and my knee has hurt a little. Other than that, I've been okay. I even had insomnia last night at home, so it wasn't just from being in a hotel. I meant to take my glutathione cream with me to replace the coffee, but I forgot it. I'll try to remember to take it to Bloomington with me.

[ShadowSwallow]

Rachel,

All that scientific-ness is fascinating. I'm so happy for you that (hopefully) some of the final pieces of your puzzle are falling into place. :D

Kassandra,

How've you been doing lately?

Andrea,

I hope the addition of the cheese works well for you guys long-term.

Everyone,

I've been going through some ups and downs lately. I just got off a herx, and, thankfully, now the epsom salt baths are working again (I had to take a break for my visitor ) after 3 days taking them every night. Yay!

For the h.pylori I was started on Avelox (come from the same family as Levaquin) and I've been having some very specific Bartonella symptoms. However, to treat the h.pylori I also had to be on a double dose of prilosec OTC--and that made my blood pressure drop. Also, I'd been wondering if I was allergic to it... but I'm pretty sure it was just herxing. But last night and today I've been having tendon pain in my left hand/wrist which is not normal for me.

My LLMD is only open Monday-Wednesday, so I have to wait over the weekend to find out what I'll be put on instead (I'm stopping taking it now, though ).

[CarlaB]

Birdy, does your LLMD have an emergency number you can call?

That wrist pain is not a normal Lyme symptom for me, but it is something I get once in a while from it. When I started Levaquin, I had much more intense joint pain than before. My LLMD thought it was a herx, and wanted to watch it a couple days before taking me off Levaquin. It ended up being a herx.

I hope yours is not tendon pain because it can be such an effective drug!

[AndreaB]

Birdy,

I hope you get the pain figured out. Not fun, especially not being sure whether it's lyme or meds causing it.

Julie,

How old were you when you got your amalgams out? Anywhere around when you had the MMR and later got sick?

Carla,

I'll have to try and remind you saturday night, if you're even going to be on. Have a fun weekend and say "hi" to Morgan for me.

Jin,

I see you reading once in awhile. "HI" How are you doing?

[Green12]

Andrea, I got my amalgams out after I got sick, several years after my MMR.

Carla, I thought maybe you had gotten sicker with the flu and was about to post something, then I remembered about your trip to Chicago and Mom's weekend with Morgan.

That is interesting that the Humaworm causes a lot of symptoms for you, maybe some of the herbs are more specific for things that haven't been addressed by other supplements/meds you have taken??

Have fun and tell Morgan hello.

Birdy, sorry about your joint pain. I hope you are able to check in with your Dr soon. Maybe more baths will help?

Jin, you have been MIA. Did you have more computer problems?

[confusedks]

Kassandra,

How've you been doing lately?

I've been pretty good. I've been going through a lot emotionally...working on things from a LONG time ago, so I have been kinda overwhelmed. Everything kinda really hit me about being sick and not going to school and not living a "normal" teen life.

There is one particular thing that I didn't realize was such a big deal for me and it is really starting to rear its head, so I am starting to have to actually face it, and it's SCARY! LOL!

But it's all good and feels very good to get things out.

Also, we are planning lots of family vacations, so I've been busy working out dates, etc. I'm going to Las Vegas for a couple days soon and Lake Tahoe for about 5 days for my grandma's 80th bday. There has been lots of planning going into all of this.

Health wise, things are okay. I have added more supplements that my LLMD wanted me to add, and it's almost impossible to take them all in a day. So, I've been trying to figure that out. And I have been working out every other day which is great! Things are good, I think my dose of Mepron was too high and lowering it has made things more tolerable.

[confusedks]

Rachel,

I always used to get an rx for abx for before I would go to the dentist. I have heart issues, so that's why they did it. I never actually took the abx because my parents never remembered to fill the rx. But every time I'd go, they'd ask me if I took my abx and I'd have to lie and say yes.

He could have been worried because of the amount of work you were having done, that you needed something to prevent an infection? I don't know. I'm also not saying he's a good dentist, but just saying that might be the reason.

They will have your chart. You might have to pay to get it out of storage...we did that with my pediatrician's office. It was $25....but we wanted to find out my abx allergies, so it was worth it.

And, they should have written down the anesthesia they used on you. They are supposed to put EVERYTHING in your chart. Because if you had a reaction, etc. it needs to be in your chart.

[AndreaB]

Kassandra,

Sounds like you have some fun things ahead with your vacations/b-day party.

Sorry about the other issues you have to deal with but it will be worth it in the long run.

[Rachel--24]

The dentist office called me this morning.

She was very friendly and just passed on the info. that I had requested. OMG...as I was writing it down I felt myself start to get naseous. I felt like I might throw up.

I dont even know where this is gonna take us but I just feel like pieces are falling into place. I really hope it leads to something.

The anesthetic they used was 2% Lidocaine w/ Epinephrine.

The epinephrine is the part that caught my attention.

All day yesterday when I was researching the sulfites and anesthisia I kept finding this info...

Injectable medication -- this is the most likely source of exposure.

Adrenaline (epinephrine), isoprenaline, phenylephrine, dexamethasone and some other injectable corticosteroids, dopamine, local anaesthetics/dental anaesthetics containing adrenaline, some anaesthetic agents (eg. propofol) and aminoglycoside antibiotics are the most common potential sources of exposure.

It should be noted however, that even in patients with sulfite sensitivity, it is generally considered that adrenaline should not be withheld if needed, as the benefit of adrenaline is considered to outweigh any theoretical risk from sulfites sensitivity in an emergency situation.

It was actually mentioned in this list that I posted the other day.

Sulfites are also used in some medications

[Green12]

Wow Rachel, it sure sounds like this is significant.

[AndreaB]

Wow Rachel, it sure sounds like this is significant.

I agree.

[confused]

Rachel,

I have been fascinated with your post lately. It really has my mnd really spinning lately. I know all my health problems really started after i had my second son. Now im wodering if they are from a0 the spinal, the drugs to stop labor or if maybe they left something inside me during hte c/s.

I was in perfect heath until that and the mold exposure in my house.

I really need to sit down and think about all of this and research.

Im really thinking i must have metal or mold toxicity, now to find someone to test me for all this. I wish i could do the hair analyzes but with the arsenic and salmonella in the water, im afraid to do it.

paula

[tom]

Hi everyone! I've been in Chicago for a couple days. . .. .. . .

. .. . we did a LOT of walking

Ahhhh good old Chicago .. .1st place that comes to mind for walking for me is Michigan Ave by the river, where the old water tower which survived The Fire is, and more importantly, the Tribune Building, w/ its embedded pieces of famous structures from across the globe.

Then Grant Park & Buckingham Fountain & the Art Institute.

Such a long time since I've been 'home'.

[Rachel--24]

Ok...heres more info that I came across.

Epinephrine, norepinephrine or one of its analogs called levonordefrine, is commonly added to local anesthetics given for dental procedures and other minor surgical procedures requiring a local anesthestic.

The exact biochemical reaction is unknown but some people with Th1 inflammatory diseases react abnormally to epinephrine in a local anesthetic. There are many anecdotal accounts of patients with Th1 inflammatory diseases experiencing increased local inflammation (redness), local tissue damage, decreased anesthetic effect (numbness) and systemic reactions such as palpitations, rapid heart rate, anxiety, tremor and headache following injection with a local anesthetic containing epinephrine.

Adverse reactions associated with norepinephrine in dental local anesthesia.

Epinephrine (also known as adrenaline), is produced by the adrenal glands in response to stress and is sometimes called the

[ShadowSwallow]

Birdy, does your LLMD have an emergency number you can call?

That wrist pain is not a normal Lyme symptom for me, but it is something I get once in a while from it. When I started Levaquin, I had much more intense joint pain than before. My LLMD thought it was a herx, and wanted to watch it a couple days before taking me off Levaquin. It ended up being a herx.

I hope yours is not tendon pain because it can be such an effective drug!

I have a number I could call... but I called them two/three days ago... so I thought I'd wait until Monday. Also, I know it's not joint pain, because it's not in the joint, but on top of my hands and under my writs (where I had carpal tunnel pain when I had it in my right hand.

Birdy, sorry about your joint pain. I hope you are able to check in with your Dr soon. Maybe more baths will help?

As I said... it's no in the joint, but the baths are helping a lot now! I haven't been able to take the charcoal yet, because I've been accidentally taking my supplements too late, so I'd be up past 4am. I need to get on that.

Kassandra,

Going through all those emotions is very difficult, but it's good to face them. :wub:

Those vacation plans sound fun, though!

Birdy

[confusedks]

Kassandra,

Going through all those emotions is very difficult, but it's good to face them. :wub:

Those vacation plans sound fun, though!

Thanks! I'm excited about vacation! :D It will be lots of fun! I just hope if I do go on IV abx, (we are going to talk about it again at my next appt.) it will be manageable to fly, etc. with all of that. It sure is hard to make plans while sick...you never know what is going to happen.

Yes, it is great to face my emotions! I am very happy I did.

[AndreaB]

Rachel,

It really does sound like you've found a (or the) missing puzzle piece.

[CarlaB]

Carla,

I'll have to try and remind you saturday night, if you're even going to be on. Have a fun weekend and say "hi" to Morgan for me.

Thank you.

That is interesting that the Humaworm causes a lot of symptoms for you, maybe some of the herbs are more specific for things that haven't been addressed by other supplements/meds you have taken??

It is interesting. It's hard to tell whether I should take more of it because it's doing something, or if it's just something that is bad for me. It has a lot of detox herbs, so maybe the detox is just moving more than I can handle at a time.

I've been pretty good. I've been going through a lot emotionally...working on things from a LONG time ago, so I have been kinda overwhelmed. Everything kinda really hit me about being sick and not going to school and not living a

Well, even though it's tough, I'm glad you're finally to the point that you care about this stuff .... it's worse when you're so sick it doesn't matter to you. Sorry you're going through this.

Wow Rachel, it sure sounds like this is significant.

Sounds like you might be onto something!

Ahhhh good old Chicago .. .1st place that comes to mind for walking for me is Michigan Ave by the river, where the old water tower which survived The Fire is, and more importantly, the Tribune Building, w/ its embedded pieces of famous structures from across the globe.

Then Grant Park & Buckingham Fountain & the Art Institute.

Such a long time since I've been 'home'.

We went to the Field Museum and the Art Institute.

We walked on Michigan Ave. near the old water tower .... I didn't know you liked expensive shopping!

I have a number I could call... but I called them two/three days ago... so I thought I'd wait until Monday. Also, I know it's not joint pain, because it's not in the joint, but on top of my hands and under my writs (where I had carpal tunnel pain when I had it in my right hand.

I'm sure they wouldn't mind a call on a possible drug reaction.

I'm also thinking that if you've had pain here before, it's probably a herx .... but it is best to check with your doctor. Maybe the was the bacteria causing the carpal tunnel, too.

[dlp252]

Morning everyone...I'm among the semi-living again. Whatever the heck this is has just knocked me down for the count. I'm on day 7 or 8 now, and still can't quite function. I've sort of skimmed the posts, but not really able to catch up.

I saw my HN doctor on Wednesday...fortunately it ISN'T pneumonia or bronchitis, but it's trying to be I think. I had a fever for a few days, but I think that's gone now.

And yeah Julie, my head is VERY toxic.

[AndreaB]

Morning everyone...I'm among the semi-living again. Whatever the heck this is has just knocked me down for the count. I'm on day 7 or 8 now, and still can't quite function. I've sort of skimmed the posts, but not really able to catch up.

Welcome back to the semi living Donna. We've missed you.

[dlp252]

Thanks Andrea!