Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

mftnchn Explorer

I am on prescription digestive enzymes. Was taking Lipram UL20, now on pangestyme UL20.

Sherry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
mftnchn Explorer

Thanks for the link, Carla. That is interesting, but couldn't follow all of it.

confusedks Enthusiast

Carla, Thanks for the link. I will read it later when I'm not so :wacko:.

Sherry, Do the digestive enzymes help you a lot? Do they relieve nausea induced by eating?

tom Contributor
Yes, I did food testing after the fast, so it was to prepare for that...clear my system of all foods so I could test using organic foods, one food at a time.

I felt worse at first then felt quite well by day 5-6.

:) Thx for the info Sherry :)

I can't imagine 5 days w/out nourishment & feeling well. :ph34r:

So good thing I'm not the fastee . . .. . .faster? :huh:

miamia Rookie
I am on prescription digestive enzymes. Was taking Lipram UL20, now on pangestyme UL20.

Sherry

do you find it helpful?

miamia Rookie

ok so i had my colonoscopy and endoscopy and as everyone said the prep was the owrst of it alll. But its over!!! The doc saw mild irritation and took biopsies. So those results will be in on Friday- of course you guys know me and can imagine how impatient I am!!!

The crazy thing was the Gi Doc was actually supisingly well versed in parasites leaky gut, etc. I was shocked I am thinking to possibly consult him or maybe have my doc and him do some serious talking.

There is more to say and i got my metal results in but i will post about that later.

mftnchn Explorer

Mia and Kassandra,

Yes, the digestive enzymes do help me with stomach upset, I noticed quite a bit when I ran out recently. Right now I am dealing with nausea again, maybe a virus, maybe the Levaquin. I'll double my enzymes today and see if it helps.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor

Dear Everyone,

Well, I will be typing out my super-long column after taking notes from what I just read. Yesterday was a big day. I began my makeover! We are going to go and finish up Wednesday at 1pm. Christine is great, and very understanding about my stomach issues. We also have a lot in common, and had a great time talking while doing my hair.

Right now, my hair is just slightly longer than shoulder-length, and kind of rainbow-looking. We still need to do some more stripping, but should be able to complete it in two hours or so next week. The hair dresser is as excited as I am, and so are some of the other students there! I was surprised, because I thought hairdressers liked it when they got to do what they wanted, but these were actually happy I knew exactly what I wanted instead of telling them to do whatever! If I can just get my stomach to hold out, I will be in good shape.

Sincerely,

Jin

Green12 Enthusiast

I haven't had a chance to catch up with all of yesterday's posts, I had terrible vertigo all day yesterday and I'm still rather dizzy today :( .

Miamia, glad you checked in and I'm so relieved everything went ok. Thank goodness that is all over :D

I look ofrward to hearing the results.

Carla, I read through some of that link you had posted on the Cowden protocol study.

I am not following conventional lyme treatment, my protocol is a combination of Cowden and Klinghardt protocols from my ART session.

Ok, back to bed to try to make still my spinning surroundings.

dlp252 Apprentice

Okay Jin, we'll expect to see an updated avatar soon!!! ;)

~~~~

Everyone...just gave myself another B12 shot. :P Leg is not quite ready to fall off, but I still have a bruise on my other leg from the shot last week...I think I'll have a nice one on this leg this week too. :P Stupid self-administered B12 shots. :angry::P

CarlaB Enthusiast
Thanks for the link, Carla. That is interesting, but couldn't follow all of it.

Yes, I think it was a Power Point presentation for the Lyme conference .... at least that's how it looked to me. It was interesting though.

After all we've talked about here, and learned here, I really feel like he is on the same page as I am. :) I'm on just about everything he mentions for detox.

This morning I felt GREAT! I woke up early and alert, and I just felt normal. I was trying to think about what made me feel so good so I could duplicate it :P . Then I remembered I skipped my GSE last night! It's a cyst buster. I just couldn't take it anymore and wanted to feel good for Mass this morning. At least I know the GSE is working .... and at least it doesn't make me feel as bad as Tindamax did. I'm also glad I'm taking the drops .... though they taste revolting, I can really control how much I take, and I do vary the dosage based on what I have to do that day.

confusedks Enthusiast
Mia and Kassandra,

Yes, the digestive enzymes do help me with stomach upset, I noticed quite a bit when I ran out recently. Right now I am dealing with nausea again, maybe a virus, maybe the Levaquin. I'll double my enzymes today and see if it helps.

Yea, can you let us know? That would be great!

Everyone...just gave myself another B12 shot. :P Leg is not quite ready to fall off, but I still have a bruise on my other leg from the shot last week...I think I'll have a nice one on this leg this week too. :P Stupid self-administered B12 shots. :angry::P

Donna, How often do you give yourself B12 shots? Is it still 1x week? That's interesting you have a bruise, I haven't bruised from them.

Julie,

Sorry you're feeling dizzy! I hate that. I have been dizzy a lot too lately, but it's kinda the norm for me unfortunately.

Mia,

Glad everything went okay with your endo/colonoscopy.

Everyone,

I slept 12 hours! I am SO happy! I was SOOOO tired I actually had bloodshot eyes, which I've never had before! :o The only problem is having to wake up every 2 hours to take care of "feminine" stuff. ;)

tabasco32 Apprentice

Hey yeah I slept for 13 hours and still feel sleepy with red eyes. You know I am starting to realize I get this way when I take real long hot baths. I feel more tired the next day.Hmm <_<

So I was taking a bath and sweating profusely and then My heart beat was getting stronger and stronger. It felt like it was going to come out of my chest. Does this happen to anybody else, anyone, Rachel?

dlp252 Apprentice
Donna, How often do you give yourself B12 shots? Is it still 1x week? That's interesting you have a bruise, I haven't bruised from them.

Yeah, I don't miss that every-two-hour taking care of feminine stuff, lol! HATED that, and for me it was more like every hour. :angry: but no more :lol:

I was giving myself the shots twice a week, I'm back to once per week for a couple of weeks, then I'll go back to two times a week. I don't know why it bruised so badly...it bruised almost immediately, but I guess it could have been because I rubbed it pretty hard with the cotton afterwards. Today I just swiped it a little bit, and it was bleeding a bit so I put a bandaid on it. So far, there's some discoloration, but not nearly as bad as last week, and it's in a line...not round! :unsure: The bad one on my other leg is round. I don't know...I'm thinking being such a danger to myself, I should probably go to the doctor's office for these, lol.

So I was taking a bath and sweating profusely and then My heart beat was getting stronger and stronger. It felt like it was going to come out of my chest. Does this happen to anybody else, anyone, Rachel?

I get that heart thing, but not from the baths. I used to get it when I would lay down to sleep...and sometimes if I woke up in the middle of the night. I get it sometimes now, at all different times--can't find a pattern to it.

mftnchn Explorer
At least I know the GSE is working .... and at least it doesn't make me feel as bad as Tindamax did. I'm also glad I'm taking the drops .... though they taste revolting, I can really control how much I take, and I do vary the dosage based on what I have to do that day.

Carla, what is GSE? I can't figure it out from the Cowden protocol.

Sherry

mftnchn Explorer
I was giving myself the shots twice a week, I'm back to once per week for a couple of weeks, then I'll go back to two times a week. I don't know why it bruised so badly...it bruised almost immediately, but I guess it could have been because I rubbed it pretty hard with the cotton afterwards. Today I just swiped it a little bit, and it was bleeding a bit so I put a bandaid on it. So far, there's some discoloration, but not nearly as bad as last week, and it's in a line...not round! :unsure: The bad one on my other leg is round. I don't know...I'm thinking being such a danger to myself, I should probably go to the doctor's office for these, lol.

Donna, I have been doing allergy shots for so many years...and sometimes I bruise and sometimes I don't. Its not really a big deal to me anymore. Seems like there are just some small vessels and sometimes I happen to hit one just right.

I'd suggest not rubbing after, just press and put pressure for a minute or two like you do when they draw your blood. It isn't foolproof, but it helps.

Sherry

Green12 Enthusiast

Sherry I am thinking Grapefruit Seed Extract? Maybe?

Thanks Kass, you are so sweet. Yeah there is a virus going around here and vertigo is one of the symptoms. I have never had it before, it's kind of scary.

Donna, sorry about your bruise :(

Lisa, I have read about that happening with the baths, can't recall exactly what it is. I will check into it and post it if I find the info.

I often get weak and can't stay in longer than 20 minutes.

ShadowSwallow Newbie

Mia,

I don't use prescription Digestive Enzymes, I use BioSet Protein Digestion and GastroCalm. They've been very effective for me. :)

Jin,

Congratualtions on starting your makeover! I can't wait to see your new picture!! :D

Carla,

That's wonderful news about your day! *tosses a mini party* :P:lol:

Julie,

I hope your vertigo lets up soon. :( All of the family's sick here... it's a nasty little bug.

Lisa,

That happens to me a lot when I take hot baths. I've found that just standing up in the tub would help (getting out of the hot water) as well as drinking cold water (with ice... but sometimes that made it worse). Just not heating the bath up so much (my skin used to turn red! :wacko:) helped a lot.

Sherry,

I'm also nearly certain that GSE is Grapefruit Seed Extract. :)

Everyone,

I got the results from some bloodwork I got a few weeks ago (remember the coughing and biohazards story? :lol:). It's for intercelluar vitamin levels. Basically, I'm low in all my Bs (particularly B12... this isn't a surprise since I don't tolerate any sort of B supplement well at all... I'm actually allergic to the vitamin itself :blink:) along with a couple miscellaneous others. Not too bad. I can't wait until my appointment Monday! :D

aprilh Apprentice

HELP! Anyone with knowledge about iron deficiency.

A year ago my daughter had terrible leg pains that would come and go. They got so bad that she wouldn't even walk on it. After 7 doctor visits a neurologist suggested it could be from iron deficiency.

Since she had levels high in lead, this could displace iron in the body. They checked her iron and the levels were okay in the blood but later my ND said they should have checked her iron stores (ferritin levels?)

Anyway, she responded positivily to iron supplement and then during the summer we did a short detox and it seemed she didn't need as much iron after that. My guess was that some of the lead was removed.

So, tonight she is getting bad pains again for the first time in a year. She is on the couch crying in pain and won't walk or hardly move. I gave her some iron and vitamin C with it, but its one of those things you don't want to overdose on.

Kassandra, what were your symptoms of anemia?? Did you have leg pains?

I am not sure what to do next right now.

CarlaB Enthusiast
Carla, what is GSE? I can't figure it out from the Cowden protocol.

Sherry

Yes, like everyone has said, grapefruit seed extract. It's not part of Cowden, my LLMD uses it as a cyst-buster. I had too much trouble with Tindamax, so we're going this less intense way.

Someone from LN sent me instructions on how to muscle test yourself .... I tested at needing 6 drops twice daily both when I had Adam test me and when I did it myself. I have been taking 10. So, maybe this will help some with my lingering symptoms. I really, really felt good this morning after skipping last night's dose.

Thanks for the party, Birdy. I was dancing around the kitchen this morning when I was making pancakes .... one of the kids asked if I had to go to the bathroom! :lol: I was just humming and dancing to some of the music we had played at Mass! :lol:

CarlaB Enthusiast

April, I get restless legs when my iron is low. And, sometimes I get it when it's technically within "safe" range ... like close to 12 .... I feel better when it's over 13. I'm talking about hemoglobin.

All you can do is give her some iron and C and wait.

mftnchn Explorer

Thanks, I need to research on the GSE and see how that compares to the resveratrol that I was taking which I think is an extract even more refined perhaps. The ART session said I should not take that so am no longer taking it.

I'm interested because I would like to be on a cyst-buster.

BTW my liver enzymes are now normal! So maybe I can try flagyl again eventually.

Green12 Enthusiast

Hi Birdy, I look forward to the update from your appt Mon :)

April, I know nothing about iron, but any chance she is potassium deficient??

I had a lot of leg pain and leg cramping for several years and eating foods high in potassium helped, don't know if your daughter is experiencing these same kinds of pains/cramps? Just a thought.

CarlaB Enthusiast

Yay for normal liver enzymes! You might try the GSE .... I take it in a drop form ... tastes pretty vile, but at least I can control how much I take since I'm so sensitive to it. I think Flagyl would kill me!

Green12 Enthusiast
BTW my liver enzymes are now normal!

Great news Sherry!

Did you do anything specific to try to get them down, or was it just a wait and see and retest thing?

I am hoping the homeopathic liver detox I am on will help mine return to normal on my next retest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to numike's topic in Food Intolerance & Leaky Gut
      8

      is my celiac disease gone?

    2. - Wheatwacked replied to numike's topic in Food Intolerance & Leaky Gut
      8

      is my celiac disease gone?

    3. - Wheatwacked replied to numike's topic in Food Intolerance & Leaky Gut
      8

      is my celiac disease gone?

    4. - numike replied to numike's topic in Food Intolerance & Leaky Gut
      8

      is my celiac disease gone?

    5. - Wheatwacked replied to numike's topic in Food Intolerance & Leaky Gut
      8

      is my celiac disease gone?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,293
    • Most Online (within 30 mins)
      7,748

    Jschwind351
    Newest Member
    Jschwind351
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      I can confirm this. I no longer have any issues with Iodine since being strictly gluten and dairy free.
    • Wheatwacked
      I should point out that iodine is known to exasperate dermatitis herpetiformis blistering. It can take several months or even years of a strict gluten-free diet for the IgA-TG3 deposits to clear from the skin. After the skin completely heals, iodine may no longer trigger symptoms. "The circulating antibodies disappear and skin symptoms resolve as a result of gluten-free diet but the cutaneous anti-TG3 IgA deposits may persist for several years. " Missing Insight Into T and B Cell Responses in Dermatitis Herpetiformis
    • Wheatwacked
      I get my supplements f from Pipingrock.com close to 10 years now. Good quality, prices, ship  worldwide.  My 25(OH)D is at 93 ng/ml after 10 years taking. In 2019 it had still only gotten to 47 ng/ml.  Celiac Disease causes low D from malabsorption. High Potency Vitamin D3, 10,000 IU, 250 Quick Release Softgels 4.8 out of 5 stars, average rating value. Read 1662 Reviews. Sale price$10.70 Regular price$21.39 Basil Carcinoma.  Basil cell carcinoma is the result of failure of the immune system to recognize fauty DNA in cells. It is iodine that causes apoptosis, killing old and defective cells.  Not enough vitamin D to control the immune system and not enough iodine to do the job.  I had a sebaceous cyst, my seventh facial cyst, in 2014.  It started looking like a blackhead, but grew (Third eye blind).  All my 7 previous cysts had drained and healed normally.  When I drained this, there was a hairball the size of a BB and it would not heal.  This was one of many reasons I started Gluten Free.  I chose to not have it surgically removed, because I realized I had nutrient deficiencies that were causing slow healing.  By 2015 I realized it was Iodine deficiency and started eating seaweed, which helped my muscle tone, but not the healing.  The warnings on iodine from the gov't were so scary, I was afraid to use them.  Turns out it is all based on one study on rats in 1948. "The Wolff-Chaikoff Effect:   Crying Wolf?"   Last year I started taking 600 mcg a day and it is reversing my glaucoma and fixing muscle tone, hair nails and skin all returning to healthy,  Brain fog, which had improved dramatically on Gluten Free diet, my thinking got even clearer with the iodine. Finally the cyst my bellwether since 2014, began to heal.  So I had it biopsied  in July 2025, came back basal cell carcinoma.  With the Iodine (Piping Rock Liquid Iodine 12 drops a day 😃 = 600 mcg) is healing normally and I have a follow up in December.  By then it will have healed.  It is scabbing over like a normal wound.  In 1970 the US stopped using Iodine as a dough modifier.  The daily intake of Iodine dropped in the US 50% between 1970 and 1984.  Also, prescriptions for thyroxine have doubled.  150 mcg the RDA is not enough for anything more than preventing goiter.  Growing up in the sixties just 2 slices of bread had 200 micrograms of iodine, add a glass of milk and iodized salt and you're at 300 mcg a day.  The safe upper tolerable limit in the US is 1000 mcg.  In Japan it is 3000 mcg and the average Japanese, traditional diet, averages above 1000 mcg.  Remember when in the 80's our schools were loosing competitions to Japanese schools?  Iodine.  And Japan has 50% less breast cancer.  Nicer hair nails and skin.  It the US our kids are getting dumber, more flabby.  Fertility is dependant on enough iodine, also. 600 mcg.
    • numike
      69yo M I have had skin cancer basal  I use a higher quality Vit D https://www.amazon.com/Biotech-D3-5-5000iu-Capsules-Count/dp/B00NGMJRTE
    • Wheatwacked
      Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom.  You likely have low vitamin D, another symptom.  Unless you get lots of sun.   Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies.  A lot of people have these symptoms just before an acute phase of Celiac Disease.  Each of the symptoms can have multiple causes that are not celiac disease,  but when you start having multiple symptoms,  and each symptom is treated as a separate disease,  you have to think, maybe these are all one cause. celiac disease. There is a misconception that Celiac Disease is  a gastrointestinal disease and symptoms are only gastro related.  Wrong.  It is an autoimmune disease and has many symptoms that usually are disregarded.  I made that mistake until 63 y.o.  It can cause a dermatitis herpetiformis rash,  white spots on the brain.  It caused my alcoholism, arthritis, congested sineses, protein spots on my contacts lenses, swollen prostate, symptoms that are "part of aging". You may be tolerating gluten, the damage will happen. Of curiosity though, your age, sex, are you outside a lot without sunscreen?  
×
×
  • Create New...