Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

tom Contributor
tom
Posted
Tom,

Did you say *why* she wants to do that? I know a lot of people do it with weight loss as a motivation...could that be part of her interest? I have no idea, so correct me if I'm wrong. Because if it is, the weight comes back. ;)

She's read a water fast can help fight a mold allergy & generally detox.

It's not about weight at all.

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted
Oh funny haha Carla. :)
;):lol:

She's read a water fast can help fight a mold allergy & generally detox.

That's what I've read about fasting ... good for detox. Not something that will ever be an option for me though.

Link to comment
Share on other sites
confusedks Enthusiast
confusedks
Posted
She's read a water fast can help fight a mold allergy & generally detox.

It's not about weight at all.

Duh, now I remember. :rolleyes: Oops, Lyme brain.

Ugh, this whole "having a period" thing is really getting to me. I am having a MAJOR Lyme flare! Ugh...so glad I see Dr H on next Saturday. We are going to ask about iron shots...I can administer them to myself. :lol: Can't be any harder than B12 shots! ;)

Also, I went to the gym today and got sighed up, but I have no energy to go workout...maybe tomorrow.

Carla, Do you mainly just lift weights?

Link to comment
Share on other sites
CarlaB Enthusiast
CarlaB
Posted

Kassandra, when I was really sick, I only lifted weights. Now I also do heavy cardio. I took months to work back up to this, but I'm back up to 30 minutes on level 7 of the elliptical. I started out at about 10 minutes on level 1 once I started getting my stamina back.

You should only be doing weights, stretching, yoga, etc. You should do nothing that takes and excessive amount of energy because you need it for healing. Go back and read Dr. B's guidelines, they are very specific about exercise.

At my worst, I would still go to the gym, though the resting between sets would often get long, and if I was really feeling bad, someone would have to go with me because I just couldn't keep track of it all and there was NO CHANCE I'd be able to count to three sets! :lol:

There were times when I could only work out for ten minutes, and I looked like I should be home in bed. But I figured every little bit helps. Dr. B has seen Lyme go into remission from exercise alone! My own has at least twice.

Link to comment
Share on other sites
ShadowSwallow Newbie
ShadowSwallow
Posted

Hi Everyone,

I'm just hanging in here, doing fairly well, and waiting for my next dr's appointment. Like Nyxie, I'm not feeling particularly talkative right now. :)

Birdy

Link to comment
Share on other sites
confusedks Enthusiast
confusedks
Posted

Uh oh. I have a dilemma. I told the family I babysit for, that I could babysit tonight. Now I am feeling awful. I'm just exhausted. Ahh, what to do! And, they have a new kitten they want me to see. :(

Link to comment
Share on other sites
CarlaB Enthusiast
CarlaB
Posted

Well, Kassandra, if you were my kid :), I would tell you you have to go over there and babysit because you told them you would. :) My son had to teach swim lessons last week when he stayed home from school with the flu because he couldn't find an alternate .... it's life, unfortunately.

On the other hand, next time either say no, or give them a conditional yes.

Fortunately, you will be able to lie down on their couch and you won't be in a swimming pool :)

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dlp252 Apprentice
dlp252
Posted

Sorry folks...I keep getting debug errors every time I press a key here (like about 20 messages for every time I try to hit "quote", lol), so I'll have to catch up tomorrow.

I had another "best" massage today, lol. This girl is just really good. She worked extra long on my neck and shoulders and also did my stomach again. This time when she did my stomach, everything was VERY tender. I guess maybe I am having some sort of flare. I had the skin burning again today (and a little bit yesterday evening).

Good news...got an email from the mortgage company and my refinance was approved!

Link to comment
Share on other sites
mftnchn Explorer
mftnchn
Posted
Oh my gosh! 3-5 days!? Is there any way to prevent it? What did the eye dr say about it today?

Nope, no way to prevent it I guess. I just have some slight narrowing at this point, it doesn't need treatment at this point. Crummy genetics.

Today I have been trying to face the fact that I have two and possibly a third condition that is connected to diabetes. I don't have that at this point thank goodness, but I guess I had best face facts and cut way back on sweets and starches.

Link to comment
Share on other sites
AndreaB Contributor
AndreaB
Posted

Donna,

Good news on the refinance! :D

Sherry,

Doesn't sound like fun. :(

Link to comment
Share on other sites
mftnchn Explorer
mftnchn
Posted
Ack! Day4! How many days did you GO?

I went 5 at least, it has been awhile, maybe I went 6 once. Again under direction of my allergist. I wasn't super thin though.

Link to comment
Share on other sites
confusedks Enthusiast
confusedks
Posted
Well, Kassandra, if you were my kid :), I would tell you you have to go over there and babysit because you told them you would. :) My son had to teach swim lessons last week when he stayed home from school with the flu because he couldn't find an alternate .... it's life, unfortunately.

On the other hand, next time either say no, or give them a conditional yes.

Fortunately, you will be able to lie down on their couch and you won't be in a swimming pool :)

I was going to but then the mom emailed me and told me the youngest boy has a fever!!! Not that I'm excited he has a fever, BUT now I don't have to babysit! Yay!

Today I have been trying to face the fact that I have two and possibly a third condition that is connected to diabetes. I don't have that at this point thank goodness, but I guess I had best face facts and cut way back on sweets and starches.

Ugh, I understand the sugar/starch thing. It's SO hard! Nothing really motivates me to stay away, lol. And, when I'm nauseous (which is almost all the time, lol), I don't want chicken and veggies! :rolleyes: And Diabetes is an issue in my family too, unfortunately.

Link to comment
Share on other sites
mftnchn Explorer
mftnchn
Posted
We are going to ask about iron shots...I can administer them to myself. :lol: Can't be any harder than B12 shots! ;)

From what I understand it is quite different because if the shot solution "leaks" back up the needle track it stains your skin permanently. You have to do a Z track method where you pull the skin to one side, inject then release so that it seals up the spot with the solution.

This isn't current information though...maybe it is a lot better than it was years ago.

Link to comment
Share on other sites
mftnchn Explorer
mftnchn
Posted

Yay, Donna on the refinance!

I'm looking forward to hearing at some point about that carpet removal, LOL!

Link to comment
Share on other sites
confusedks Enthusiast
confusedks
Posted
From what I understand it is quite different because if the shot solution "leaks" back up the needle track it stains your skin permanently. You have to do a Z track method where you pull the skin to one side, inject then release so that it seals up the spot with the solution.

This isn't current information though...maybe it is a lot better than it was years ago.

I think that's not correct anymore. My uncle had to do them and he said it wasn't a big deal. I could be wrong though. It just would be easier than getting another PICC and going in for Iron IV's again.

Link to comment
Share on other sites
CarlaB Enthusiast
CarlaB
Posted
I was going to but then the mom emailed me and told me the youngest boy has a fever!!! Not that I'm excited he has a fever, BUT now I don't have to babysit! Yay!

Well, that was lucky!

Yay, Donna on the refinance!

I'm looking forward to hearing at some point about that carpet removal, LOL!

Me, too, Donna!

Link to comment
Share on other sites
miamia Rookie
miamia
Posted
Hi Everyone,

I'm just hanging in here, doing fairly well, and waiting for my next dr's appointment. Like Nyxie, I'm not feeling particularly talkative right now. :)

Birdy

Birdy'

are you the one taking prescription digestive enzymes? If so what are they

Link to comment
Share on other sites
confusedks Enthusiast
confusedks
Posted

Mia,

How did everything go? How are you feeling?

Link to comment
Share on other sites
tabasco32 Apprentice
tabasco32
Posted

Hi yeah hey anyone who takes coffee enymas what type of purified water did you or are you using?. Some have sulfates in them and I can't do those.And some have fluride. Is it ok to use mountain spring water or distilled?

lisa

Link to comment
Share on other sites
Rachel--24 Collaborator
Rachel--24
  • Author
Posted
Oh funny haha Carla. :) I forgot about that traumatization and you brought it back up today. :D

:lol::lol:

Lisa....how could you possibly forget about that kind of trauma?? :P

Hey chemicals are starting to burn my throat. Does anyone else have that problem. I wonder if it's the toxins. Yeah and I was wondering since I had bad gas, yeah um, I wonder if that can burn your throat too! :unsure:

liza

Chemicals cause all sorts of heinosities for me....burning eyes and skin are more common for me though. When I went on that chocolate binge I think I got damage from top to bottom...inflammation all throughout my digestive tract. My throat felt raw and I think it did burn a little. Of course...like everything else...I went a little overboard. :rolleyes:

I used only distilled water for ememas.

Link to comment
Share on other sites
CarlaB Enthusiast
CarlaB
Posted

I use water from my RO filter at home for the enemas.

Link to comment
Share on other sites
tabasco32 Apprentice
tabasco32
Posted

So todays my brothers birthday. He turns 15 today. He actually acts like he's 25 though. Everyone is out so I am here alone. They are celebrating my cousins sons birthday. He turned 1 and my brothers. Wow it's somehow seems strange that I am 20 years older than my little brother. My brother and his girlfriend.

Link to comment
Share on other sites
tom Contributor
tom
Posted
I went 5 at least, it has been awhile, maybe I went 6 once. Again under direction of my allergist. I wasn't super thin though.

And you found it benificial at the time?

Link to comment
Share on other sites
CarlaB Enthusiast
CarlaB
Posted

I haven't had time to read it yet, but here's Dr. H's study on the Cowden protocol. :)

Open Original Shared Link

Link to comment
Share on other sites
mftnchn Explorer
mftnchn
Posted
And you found it benificial at the time?

Yes, I did food testing after the fast, so it was to prepare for that...clear my system of all foods so I could test using organic foods, one food at a time.

I felt worse at first then felt quite well by day 5-6.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748
    angie78
    Newest Member
    angie78
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      14 year old with Celiac & EOE still suffering...

      By knitty kitty · Posted

      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      This forum might be the last hope I have in my life. Please I beg you

      By knitty kitty · Posted

      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      This forum might be the last hope I have in my life. Please I beg you

      By BluegrassCeliac · Posted

      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      14 year old with Celiac & EOE still suffering...

      By Scott Adams · Posted

      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...