Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

confusedks Enthusiast
confusedks
Posted

Sherry,

I don't know if I would test poorly for Mepron because she seems to have an issue with prescription drugs. It's a good question. I am not really too worried about what she said because I really trust my LLMD and his NP. I will take into consideration some of the things she said, but I'm not going to stop taking Mepron or Zith because I didn't test well for them.

Also, she said that she could get rid of my insomnia by me taking these little pellets...well, I didn't fall asleep without Ambien last night, so I don't know. I'm also not willing to lose up to 12 days of sleep, which is how long she said it would take.

My sleep issues are only because I am not able to do enough to get tired enough. I have never had insomnia, and I know that once I have more energy to do more things, I will be able to sleep better. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
AndreaB
Posted

Wasn't getting updates again. I don't know what it is about updates for this thread.

Sherry,

Sounds like you had a very busy, tiring day. That's a lot of traveling!

confused Community Regular
confused
Posted

Ok I bit the bullet and ordered humaworm. I was talking to hubby about it and he was like order me some, i almost fell off my computer chair lol. Then while talking we decided to order it for the whole family. I cant wait to get it and try it.

I also got my foot pads today, and will start using them tonight.

paula

tabasco32 Apprentice
tabasco32
Posted

Happy B day Carla. What are you like 36, 37? ^_^

Hi everyone.

Yeah Julie I still have my amalgams. About 6 of them and I know this is one reason I taste metal so bad. That is actually maybe a good thing since it warned me about the rust coming in from outside my window.

About the foot detox pads, did you know that Avon sells them now? My mom was showing me the avon catalog that she orders from. :rolleyes: They really do have detox foot pads that you can order. I don't know if I would order them from Avon..

So for the rust I have been taking bentonite clay, vegetable binder and zeolite hp from nutramedix.

I really want to try the zeolite from waiora. I have been to several conferences and the product seems promising about how thier zeolite can pull many toxins and metals from the body.

There zeolite has been cleared of toxins and metal, where most zeolites have many toxins and metals on them already. I don't know, have to see...

CarlaB Enthusiast
CarlaB
Posted
Happy B day Carla. What are you like 36, 37? ^_^

:lol: Thanks! Actually, I turned 45! :PB)

confusedks Enthusiast
confusedks
Posted
:lol: Thanks! Actually, I turned 45! :PB)

LOL! :lol:

CarlaB Enthusiast
CarlaB
Posted
LOL! :lol:

Yeah, very funny. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Mia, I just finally ordered my detox foot pads yesterday. I'm really not all that excited to try them because I think I'm probably gonna react to them.

I only ordered the minimum (20) and I'll see what happens. Once I saw the ingredients on the pads my excitement faded pretty fast. Its all stuff I know my body cant process very well. I just dont know how much of it will be absorbed into my system and if it'll be enough to cause problems.

I know that the castor oil from the packs I tried last year was enough to totally cause all kinds of symptoms after about 15 minutes over my mid-section. Way too much salicylate I think. :blink:

I hope its not the same problem with the foot pads but they do contain salicylates. :(

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Duplicate. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Duplicate. :)

confused Community Regular
confused
Posted

Rachel were did you order them from? I will post in the morning how i did with mine. I really hope i dont react to them.

I looked for the ones from avon and i cant find them, do you remember how much they are.

paula

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I got my molybdenum in the mail today. :)

I cant try it until next week because I have to stop taking minerals 4 days prior to my bloodtest on Monday. I got impatient and bought a lesser quality brand of it at the health store but I only took one because as soon as I swallowed it I started reacting. :rolleyes:

Hopefully that wont be the case with this stuff.

Kassandra....did you send an email about the appt. with the practitioner who did muscle testing or did you post about it? I didnt see any posts...if you sent an email...can I have one? :)

If you dont mind coming to the bay area once every 3 months maybe you can try to see Amy. She's great...I think you'd really like her. I dont feel that she's anti-abx or prescription meds...she wanted me on Alinia for parasites rather than any of the herbal treatments....which I didnt test well for.

She has me on prescription drugs for chelation rather than some of the other options...because thats what I test well for.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel were did you order them from? I will post in the morning how i did with mine. I really hope i dont react to them.

I ordered the ones recommended on Scott's site.

Open Original Shared Link

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So for the rust I have been taking bentonite clay, vegetable binder and zeolite hp from nutramedix.

I really want to try the zeolite from waiora. I have been to several conferences and the product seems promising about how thier zeolite can pull many toxins and metals from the body.

There zeolite has been cleared of toxins and metal, where most zeolites have many toxins and metals on them already. I don't know, have to see...

I've heard some good things about zeolite. Do you think its helping you Lisa?

Cool that you're getting out there and learning all this stuff. I wanna go to a conference too! :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Even though most people I talk to are pretty understanding and even interested in some of this stuff...in the beginning noone really "gets it". Its all new to them....most of us wouldn't have a clue if we hadnt gotten sick. Well...I know I wouldnt....I'd still be living off Big-Macs (and loving it!). :D

I wouldnt have heard of any of the things we discuss here.

Theres a customer who shops at my store. Nice guy...gave me a rose on Valentines Day...asked me out a couple times. I declined and told him I'm pretty much doing my own thing...not looking to date anyone. I said I have health issues I'm working on, etc. etc.

He ended up asking me about my health...and mentioning herbal treatments. I didnt want to go into any detail about my problems...just said that I got really toxic and cant tolerate foods, herbal treatments, etc. But thanks for the suggesstions. :)

He said he understood what I was talking about...that he was working on detox too....with some herbal stuff. Lots of people say they understand but they really dont...they dont get the whole picture until I really explain it to them.

Today he came in and asked when we're gonna go out for...water?? :lol::lol:

Anyways, he handed me a paper with some stuff he thought might be helpful for me. He had written down some stuff about EDTA chelation, zeolites and some other stuff. All stuff having to do with heavy metals and detox. :blink:

That totally impressed me!! :o

Ok...I'm still not trying to date anyone but I did appreciate that he had taken the time to write that stuff down for me. It was sweet. :)

I guess he must have some understanding even with what little info. I gave him. I'm not used to meeting people who already have some knowledge about any of this....except for the ones I meet in the doctor's office. :P

Also shocking that I didnt have to go into great detail for someone to really understand what I'm taking about when I say I'm toxic and cant eat anything. :lol:

AndreaB Contributor
AndreaB
Posted
Today he came in and asked when we're gonna go out for...water?? :lol::lol:

Anyways, he handed me a paper with some stuff he thought might be helpful for me. He had written down some stuff about EDTA chelation, zeolites and some other stuff. All stuff having to do with heavy metals and detox. :blink:

:lol: :lol:

That's pretty neat! I'm surprised too. :huh:

confusedks Enthusiast
confusedks
Posted
Kassandra....did you send an email about the appt. with the practitioner who did muscle testing or did you post about it? I didnt see any posts...if you sent an email...can I have one? :)

If you dont mind coming to the bay area once every 3 months maybe you can try to see Amy. She's great...I think you'd really like her. I dont feel that she's anti-abx or prescription meds...she wanted me on Alinia for parasites rather than any of the herbal treatments....which I didnt test well for.

She has me on prescription drugs for chelation rather than some of the other options...because thats what I test well for.

Sure, I'll send you an email. I don't know if I'm really interested in seeing yet another Dr right now. I have heard GREAT things about Dr Amy, but I just think I need to stick it out a little bit longer with my Dr's. I could see going to see Dr Amy if I don't make any progress, but for now that's not the case.

Also, $$$$$. LOL! These things get so expensive!

ShadowSwallow Newbie
ShadowSwallow
Posted

Happy Belated Birthday Carla! :wub: :wub: :wub:

CarlaB Enthusiast
CarlaB
Posted
Happy Belated Birthday Carla! :wub: :wub: :wub:

Thank you Birdy!

Rachel, that guy sounds very cool, I think you should go out for water ... I mean, it's just .... water ....

tabasco32 Apprentice
tabasco32
Posted

rachel, I haven't tried the waiora zeolite but I am wanting to. I am on nutramedix zeolite but I don't think thier's would be quite as good.

confusedks Enthusiast
confusedks
Posted
Rachel, that guy sounds very cool, I think you should go out for water ... I mean, it's just .... water ....

:lol: :lol: I agree Rachel! I was going to say you could get herbal tea, but I think even that bothers you! :huh:

mftnchn Explorer
mftnchn
Posted

Yep, I think a guy that is willing to go out for water sounds like someone worth checking out--friendship anyway.

I asked today at the local pharmacy about detox foot pads, and she knew what they were. Said they were Chinese not Japanese! So I'll keep looking.

Sherry

miamia Rookie
miamia
Posted

My foot pads are by health marvels- www.healthmarvelsdetoxpatch.com

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My foot pads are by health marvels- www.healthmarvelsdetoxpatch.com

Same here.

CarlaB Enthusiast
CarlaB
Posted

Rachel, I don't know if you're interested in this or not, but IGeneX has a new test .... if you have an equivocal result and had band 30 or 31 show up, they can run this test to see whether that band is from borrelia or not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    2. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
    5. Scott Adams
      - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Your situation is a classic p...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748
    Dakota4
    Newest Member
    Dakota4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.