Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

confusedks Enthusiast
confusedks
Posted

Sherry,

I don't know if I would test poorly for Mepron because she seems to have an issue with prescription drugs. It's a good question. I am not really too worried about what she said because I really trust my LLMD and his NP. I will take into consideration some of the things she said, but I'm not going to stop taking Mepron or Zith because I didn't test well for them.

Also, she said that she could get rid of my insomnia by me taking these little pellets...well, I didn't fall asleep without Ambien last night, so I don't know. I'm also not willing to lose up to 12 days of sleep, which is how long she said it would take.

My sleep issues are only because I am not able to do enough to get tired enough. I have never had insomnia, and I know that once I have more energy to do more things, I will be able to sleep better. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
AndreaB
Posted

Wasn't getting updates again. I don't know what it is about updates for this thread.

Sherry,

Sounds like you had a very busy, tiring day. That's a lot of traveling!

confused Community Regular
confused
Posted

Ok I bit the bullet and ordered humaworm. I was talking to hubby about it and he was like order me some, i almost fell off my computer chair lol. Then while talking we decided to order it for the whole family. I cant wait to get it and try it.

I also got my foot pads today, and will start using them tonight.

paula

tabasco32 Apprentice
tabasco32
Posted

Happy B day Carla. What are you like 36, 37? ^_^

Hi everyone.

Yeah Julie I still have my amalgams. About 6 of them and I know this is one reason I taste metal so bad. That is actually maybe a good thing since it warned me about the rust coming in from outside my window.

About the foot detox pads, did you know that Avon sells them now? My mom was showing me the avon catalog that she orders from. :rolleyes: They really do have detox foot pads that you can order. I don't know if I would order them from Avon..

So for the rust I have been taking bentonite clay, vegetable binder and zeolite hp from nutramedix.

I really want to try the zeolite from waiora. I have been to several conferences and the product seems promising about how thier zeolite can pull many toxins and metals from the body.

There zeolite has been cleared of toxins and metal, where most zeolites have many toxins and metals on them already. I don't know, have to see...

CarlaB Enthusiast
CarlaB
Posted
Happy B day Carla. What are you like 36, 37? ^_^

:lol: Thanks! Actually, I turned 45! :PB)

confusedks Enthusiast
confusedks
Posted
:lol: Thanks! Actually, I turned 45! :PB)

LOL! :lol:

CarlaB Enthusiast
CarlaB
Posted
LOL! :lol:

Yeah, very funny. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Mia, I just finally ordered my detox foot pads yesterday. I'm really not all that excited to try them because I think I'm probably gonna react to them.

I only ordered the minimum (20) and I'll see what happens. Once I saw the ingredients on the pads my excitement faded pretty fast. Its all stuff I know my body cant process very well. I just dont know how much of it will be absorbed into my system and if it'll be enough to cause problems.

I know that the castor oil from the packs I tried last year was enough to totally cause all kinds of symptoms after about 15 minutes over my mid-section. Way too much salicylate I think. :blink:

I hope its not the same problem with the foot pads but they do contain salicylates. :(

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Duplicate. :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Duplicate. :)

confused Community Regular
confused
Posted

Rachel were did you order them from? I will post in the morning how i did with mine. I really hope i dont react to them.

I looked for the ones from avon and i cant find them, do you remember how much they are.

paula

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I got my molybdenum in the mail today. :)

I cant try it until next week because I have to stop taking minerals 4 days prior to my bloodtest on Monday. I got impatient and bought a lesser quality brand of it at the health store but I only took one because as soon as I swallowed it I started reacting. :rolleyes:

Hopefully that wont be the case with this stuff.

Kassandra....did you send an email about the appt. with the practitioner who did muscle testing or did you post about it? I didnt see any posts...if you sent an email...can I have one? :)

If you dont mind coming to the bay area once every 3 months maybe you can try to see Amy. She's great...I think you'd really like her. I dont feel that she's anti-abx or prescription meds...she wanted me on Alinia for parasites rather than any of the herbal treatments....which I didnt test well for.

She has me on prescription drugs for chelation rather than some of the other options...because thats what I test well for.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel were did you order them from? I will post in the morning how i did with mine. I really hope i dont react to them.

I ordered the ones recommended on Scott's site.

Open Original Shared Link

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
So for the rust I have been taking bentonite clay, vegetable binder and zeolite hp from nutramedix.

I really want to try the zeolite from waiora. I have been to several conferences and the product seems promising about how thier zeolite can pull many toxins and metals from the body.

There zeolite has been cleared of toxins and metal, where most zeolites have many toxins and metals on them already. I don't know, have to see...

I've heard some good things about zeolite. Do you think its helping you Lisa?

Cool that you're getting out there and learning all this stuff. I wanna go to a conference too! :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Even though most people I talk to are pretty understanding and even interested in some of this stuff...in the beginning noone really "gets it". Its all new to them....most of us wouldn't have a clue if we hadnt gotten sick. Well...I know I wouldnt....I'd still be living off Big-Macs (and loving it!). :D

I wouldnt have heard of any of the things we discuss here.

Theres a customer who shops at my store. Nice guy...gave me a rose on Valentines Day...asked me out a couple times. I declined and told him I'm pretty much doing my own thing...not looking to date anyone. I said I have health issues I'm working on, etc. etc.

He ended up asking me about my health...and mentioning herbal treatments. I didnt want to go into any detail about my problems...just said that I got really toxic and cant tolerate foods, herbal treatments, etc. But thanks for the suggesstions. :)

He said he understood what I was talking about...that he was working on detox too....with some herbal stuff. Lots of people say they understand but they really dont...they dont get the whole picture until I really explain it to them.

Today he came in and asked when we're gonna go out for...water?? :lol::lol:

Anyways, he handed me a paper with some stuff he thought might be helpful for me. He had written down some stuff about EDTA chelation, zeolites and some other stuff. All stuff having to do with heavy metals and detox. :blink:

That totally impressed me!! :o

Ok...I'm still not trying to date anyone but I did appreciate that he had taken the time to write that stuff down for me. It was sweet. :)

I guess he must have some understanding even with what little info. I gave him. I'm not used to meeting people who already have some knowledge about any of this....except for the ones I meet in the doctor's office. :P

Also shocking that I didnt have to go into great detail for someone to really understand what I'm taking about when I say I'm toxic and cant eat anything. :lol:

AndreaB Contributor
AndreaB
Posted
Today he came in and asked when we're gonna go out for...water?? :lol::lol:

Anyways, he handed me a paper with some stuff he thought might be helpful for me. He had written down some stuff about EDTA chelation, zeolites and some other stuff. All stuff having to do with heavy metals and detox. :blink:

:lol: :lol:

That's pretty neat! I'm surprised too. :huh:

confusedks Enthusiast
confusedks
Posted
Kassandra....did you send an email about the appt. with the practitioner who did muscle testing or did you post about it? I didnt see any posts...if you sent an email...can I have one? :)

If you dont mind coming to the bay area once every 3 months maybe you can try to see Amy. She's great...I think you'd really like her. I dont feel that she's anti-abx or prescription meds...she wanted me on Alinia for parasites rather than any of the herbal treatments....which I didnt test well for.

She has me on prescription drugs for chelation rather than some of the other options...because thats what I test well for.

Sure, I'll send you an email. I don't know if I'm really interested in seeing yet another Dr right now. I have heard GREAT things about Dr Amy, but I just think I need to stick it out a little bit longer with my Dr's. I could see going to see Dr Amy if I don't make any progress, but for now that's not the case.

Also, $$$$$. LOL! These things get so expensive!

ShadowSwallow Newbie
ShadowSwallow
Posted

Happy Belated Birthday Carla! :wub: :wub: :wub:

CarlaB Enthusiast
CarlaB
Posted
Happy Belated Birthday Carla! :wub: :wub: :wub:

Thank you Birdy!

Rachel, that guy sounds very cool, I think you should go out for water ... I mean, it's just .... water ....

tabasco32 Apprentice
tabasco32
Posted

rachel, I haven't tried the waiora zeolite but I am wanting to. I am on nutramedix zeolite but I don't think thier's would be quite as good.

confusedks Enthusiast
confusedks
Posted
Rachel, that guy sounds very cool, I think you should go out for water ... I mean, it's just .... water ....

:lol: :lol: I agree Rachel! I was going to say you could get herbal tea, but I think even that bothers you! :huh:

mftnchn Explorer
mftnchn
Posted

Yep, I think a guy that is willing to go out for water sounds like someone worth checking out--friendship anyway.

I asked today at the local pharmacy about detox foot pads, and she knew what they were. Said they were Chinese not Japanese! So I'll keep looking.

Sherry

miamia Rookie
miamia
Posted

My foot pads are by health marvels- www.healthmarvelsdetoxpatch.com

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
My foot pads are by health marvels- www.healthmarvelsdetoxpatch.com

Same here.

CarlaB Enthusiast
CarlaB
Posted

Rachel, I don't know if you're interested in this or not, but IGeneX has a new test .... if you have an equivocal result and had band 30 or 31 show up, they can run this test to see whether that band is from borrelia or not.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...