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Omg...i Might Be On To Something


Rachel--24

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rinne Apprentice
Rinne....I totally know how you feel when someone is trying to sell you some product...like they're trying to take advantage of the fact that you're sick. She could just mean well....but when people seem to be aggressive about trying to get you to buy the product it makes me believe they have something to gain from it. Like why the heck was this lady walking around the grocry store carrying these cards for miracle grape juice in her freakin back pocket??? Give me a break. <_<

But are you serious about getting well? ROTFLMAO Idiots come in all sizes, shapes and persuasions it appears, the I've got this ONE product solution for you people crack me up. :lol: They also make me angry, I can take care of myself but what about people who are so vulnerable and desperate that they succumb to the intimidation and that is exactly what it is.

Thanks to everyone I am no longer angry and with your help it has turned into something to laugh at, one of those perfect idiot stories every person who has been ill has to share. :lol:

Like I said I am not serious am getting well I am a lunatic about getting well. A Lyme Lunatic. :lol: Now I am beginning to imagine a comedy routine about all the different snake oil sales people and their strategies for convincing someone who is ill that their product is the one.

As far as my Usana saleswoman, I'm going to take Dingo Girl's suggestion and be wicked, that is what you were getting at, weren't you? :lol: I'm going to wait and respond to her next email, I promise I will stay amused, I will not let anything she does now upset me. I am going to use this as an opportunity to articulate something that I suspect I may have to articulate over and over again to the long line of idiots who see me only as an opportunity to enrich their pocketbook. Fiddle Faddle, so true.

Susan, wish I could be there to cheer you up, I promise you I am very good at it. :) I'm funny in person. :lol: Oh and I am a good cook too. :ph34r: I would make sure you weren't glutened and I iron pillow cases too. Sending love and hugs.

I can cry along...I am a very sympathetic cryer--I sympathy cry, lol. I cry at commercials sometimes.

Bah humbug on deadbeat flirtatious guys who are obviously not very smart!

No kidding, no matter how heartbroken I have always clung to the certainty that any man who would reject me is a fool I would not waste my time on anyways. Susan, I highly advise this strategy. :) And besides, in your case we all know it is true.

And Andrea I am thinking of you and your family, I so hope that you and your dad may have some time together. Trust your feelings.


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AndreaB Contributor
I'm going to wait and respond to her next email, I promise I will stay amused, I will not let anything she does now upset me. I am going to use this as an opportunity to articulate something that I suspect I may have to articulate over and over again to the long line of idiots who see me only as an opportunity to enrich their pocketbook. Fiddle Faddle, so true.

Susan, wish I could be there to cheer you up, I promise you I am very good at it. :) I'm funny in person. :lol: Oh and I am a good cook too. :ph34r: I would make sure you weren't glutened and I iron pillow cases too. Sending love and hugs.

Rhonda, will be waiting for your saleslady update. :P

A good cook.....I am always looking for ideas on stuff. Ho hum.....at least we are getting into the season when hubby is home more, he always has ideas on what to eat. :)

Fiddle-Faddle Community Regular

Oh, Andrea, I'm so sorry. :(

If it's any comfort, I lost a dear friend to Multiple Myeloma (a nasty cancer),a nd at the end, her kidneys shut down, which, the way the nurse explained it to me, was a GOOD thing, as she basically slept most of the time and eventually went into a sort of coma before passing--NO PAIN. Whatever might have been painful (with multiple myeloma, the cancer is in the blood and attacks the bones) was controlled with morphine.

It might help to explain to your children that their grandpa isn't in pain (if that's the case), and that he will be okay because God, or Jesus, or an angel is coming to take him up to Heaven when he is ready. (Apologies here to anybody if I am offending by mentioning religious stuff.)

Death is a part of the life cycle. There are many rituals in just about every religion that help us cope with death--the funeral, the burial, the viewing (Jews don't have this, I'm not sure why, but we have specific rituals abut what to do AFTER the burial, and I found these rituals amazingly comforting).

My mother was very upset at her mother's burial, and did not want to throw earth on the coffin at the gravesite until the rabbi (who had married my parents and my aunt and uncle, too) gently told her that it was a way to help her mother on to the next life, and that it was a mitzvah (good deed).

Gosh, I'm getting all choked up just writing about this. :(

Susie, Susie, Susie--would it help to visualize all the horrible thoughts flushing down the toilet with whatever gluten that invaded you? You're pooping out the poison and the bad feelings, too?

Don't forget to breathe.

I was going to suggest extra sunlght, but I know you're kind of attached to the toilet right now...I wonder if it would help to get one of those special sun-lamp-thingies (I forgot what they are called :rolleyes: ) with full-spectrum light or something like that--and keep it by the toilet? So you could get some nice cheering light every time you're stuck worshipping the porcelain goddess....

Oh--is the dingoes' food gluten-free?

Rinne, I can't wait to read what you say to the salescreep! :D

Hugs to everybody!

Susan--maybe the guy had brain fog and lost your number--or his nerve!!!

CarlaB Enthusiast
Susie, Susie, Susie--would it help to visualize all the horrible thoughts flushing down the toilet with whatever gluten that invaded you? You're pooping out the poison and the bad feelings, too?

I was going to suggest extra sunlght, but I know you're kind of attached to the toilet right now...I wonder if it would help to get one of those special sun-lamp-thingies (I forgot what they are called :rolleyes: ) with full-spectrum light or something like that--and keep it by the toilet? So you could get some nice cheering light every time you're stuck worshipping the porcelain goddess....

Hmm, considering the month of d I've had, this is an interesting thought!!

I have those bulbs ... I just get them at the grocery ... GE Reveal? Is that what they're called? It's full-spectrum lighting. The kitchen is a good place for them because you want it bright in there (not that they're bright, they're just not the normal yellow glow we're used to), and one in one lamp in my bedroom, and in the bathroom ... so there IS fake daylight in my bathroom. I think they help, but I only have a minor problem with the light thing ... enough to notice, but minor.

Susan--maybe the guy had brain fog and lost your number--or his nerve!!!

He's chicken. I'd go to the pub again and give him a hard time for not calling. I'd say, "Wow, all that talk about hiking and the dogs and you couldn't get up the nerve to call? I guess you decided I AM too old for you! (I think you said that he wasn't concerned about age)" I'd say it all fun and flirty ... but give him a hard time for quite a while making him think you just might walk away.

DingoGirl Enthusiast
As far as my Usana saleswoman, I'm going to take Dingo Girl's suggestion and be wicked, that is what you were getting at, weren't you? :lol:

Yes Rhonda, she must be gently chastised and put in her place, but in a benign and covert sort of way....I am not clever enough to think of it today but she must be somehow chagrined, I know you will think of something. ;):lol:

Susan, wish I could be there to cheer you up, I promise you I am very good at it. :) I'm funny in person. :lol: Oh and I am a good cook too. :ph34r: I would make sure you weren't glutened and I iron pillow cases too. Sending love and hugs.

No kidding, no matter how heartbroken I have always clung to the certainty that any man who would reject me is a fool I would not waste my time on anyways. Susan, I highly advise this strategy. :) And besides, in your case we all know it is true.

Oh I just bet you are funny in person, :lol: and you may not find this hard to believe, I am quite funny in person also. You cook AND you iron pillow cases? guess what, for guests I do iron the pillow cases as well, beautiful cotton sheets and crisp with lines, like a hotel. And a small container of fresh, gently fragrant flowers next to their bed.....it's kinda nice here. :)

Susie, Susie, Susie--would it help to visualize all the horrible thoughts flushing down the toilet with whatever gluten that invaded you? You're pooping out the poison and the bad feelings, too?

Don't forget to breathe.

I was going to suggest extra sunlght, but I know you're kind of attached to the toilet right now...I wonder if it would help to get one of those special sun-lamp-thingies (I forgot what they are called :rolleyes: ) with full-spectrum light or something like that--and keep it by the toilet? So you could get some nice cheering light every time you're stuck worshipping the porcelain goddess....

Oh--is the dingoes' food gluten-free?

Susan--maybe the guy had brain fog and lost your number--or his nerve!!!

My number was written all over his hands - both of them - upside down and rightside up, he kept making me write it over..... :lol: Thank you alison, I am off the toilet, that was during the morning. Had to go get the dogs some food (yes, it's gluten-free), and it is SO sunny here today, I am goign to walk the girls. I am better this afternoon, cried a lot this morniing and that does seem to help.

Thanks eveyrone......the whining and your support helps also. Now if Rhonda could just fly donw here and cook some gluten-free treats...... :)

(confession: whilst procuring dog food I took a quick trip into TJMaxx :ph34r: for my fabulous shampoos/conditioners I have just discovered - they are changing my hair and my life so I bought all of them. And a new blow dryer, am going to make my hair fabulous again......)

He's chicken. I'd go to the pub again and give him a hard time for not calling. I'd say, "Wow, all that talk about hiking and the dogs and you couldn't get up the nerve to call? I guess you decided I AM too old for you! (I think you said that he wasn't concerned about age)" I'd say it all fun and flirty ... but give him a hard time for quite a while making him think you just might walk away.

hmmmmm........it's a thought, but frankly I am just no longer that interested and don't want to give him the time of day, at this point......maybe in a few weeks, just don't care right now. You know, life's been blessedly calm wihtout a man torturing me, I have liked it. :) Just don't want to die alone....and last night and today, from the gluten poisoning my brain, it was the terrible thought that life has just passed me by......but I am calmer now.

Um, where is RICHARD and any other guys who could pipe in on this? have we scared them all off? :huh::lol:

heading out....a slow walk today but still a walk and a bit of time in fresh air and sun. :)

Fiddle-Faddle Community Regular
My number was written all over his hands - both of them - upside down and rightside up, he kept making me write it over..... :lol:

Then he is a total slimebooger and should be flushed down the toilet, too. :ph34r:

You can tell him I said so, if you ever run into him again.

CarlaB Enthusiast

That's even better, Susan. Go to the pub because it's where you like to go. Tell him he blew you off, if he's interested he can call!! Then flirt with everyone else there!! :lol: The idea is to get out and be happy anyway!

Rhonda, you could just send that lady and email back that says, "I guess I'm just not serious about getting well because I have no interest whatsoever in your product. Please refrain from future sales pitches to me."


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AndreaB Contributor
Rhonda, you could just send that lady and email back that says, "I guess I'm just not serious about getting well because I have no interest whatsoever in your product. Please refrain from future sales pitches to me."

:lol::lol::lol:

Susan,

Get some sunshine for me. :) I have to wait 2 weeks for my sunshine and warmth in Arizona.

Mtndog Collaborator
Oh I just bet you are funny in person, :lol: and you may not find this hard to believe, I am quite funny in person also. You cook AND you iron pillow cases? guess what, for guests I do iron the pillow cases as well, beautiful cotton sheets and crisp with lines, like a hotel. And a small container of fresh, gently fragrant flowers next to their bed.....it's kinda nice here. :)

heading out....a slow walk today but still a walk and a bit of time in fresh air and sun. :)

Susie- I am SO coming to visit. You don't even have to do the pillowcases. I am sending you a big CYBER HUG! :wub::wub::wub::wub: I hope you feel better soon!

As far as the guy goes...he's the one that's mssing out and DON"T YOU FORGET that!

Andrea- I'm so sorry about your dad. I know how difficult it is. I spent three days straight with my mom right before she died and my sister came to give me a break. She passed away while I was gone napping at home but my sister and I are convinced that she had hung on for my sister. She had already said her goodbye to me the night before and I told her it was okay for her to go. I think she waited for my sister to get my sister's permission to go too.

Actually, a funny story (if death can be funny- gallows humor I guess). The morning of the day she died, after she had told me she wanted to go, my dad woke me up at 6 am because she was trying to take off all her clothes (the conservative Catholic woman who wouldn't even go for massages!)and he didn't know what to do. I asked her why she was trying to take all her clothes off and she told me she had to be naked to get into Heaven. I told her she didn't but she would not believe me. I pretended I was calling the priest who had prayed with us the night before and i said VERY LOUDLY into the phone,"Fr. Doherty, my mom thinks she has to be naked to get into heaven...Oh OK...I'll tell her that she can wear clothes to heaven."

I got "off" the phone and told my mom that she could wear clothes to heaven- I called the priest and he said it was OK. She said, "You did not, that was WAY too fast."

It's a funny memory of a sad time. Bittersweet. :) May your dad's last days be peaceful.

Rinne- You can't be SERIOUS about getting better. I just don't see your dedication. :P

I actually started seeing an acupuncturist while i was very sick (prior to going gluten-free but knowing something was wrong). Every time I went in I needed a new $45 tea. I told him I was gluten-intolerant and he told me I absolutely wasn't. His acupuncture would allow me to eat wheat again. The, right after my gluten-challenge, when I was so sick, and he knew it, he called me under the guise of finding out how I was doiong but it was really him asking me to post flyers for his practice all over my university, AND HE WANTED ME TO MAKE THE PHOTO COPIES. End of him!

AndreaB Contributor
Andrea- I'm so sorry about your dad. I know how difficult it is. I spent three days straight with my mom right before she died and my sister came to give me a break. She passed away while I was gone napping at home but my sister and I are convinced that she had hung on for my sister. She had already said her goodbye to me the night before and I told her it was okay for her to go. I think she waited for my sister to get my sister's permission to go too.

Thanks Bev. I'm hoping he'll hold on until we get there. Two weeks suddenly seems like a really long time. :(

Your story about your mom and going to heaven. :lol:

Accupuncturist. :angry: Unbelievable. :angry:

DingoGirl Enthusiast
That's even better, Susan. Go to the pub because it's where you like to go. Tell him he blew you off, if he's interested he can call!! Then flirt with everyone else there!! :lol: The idea is to get out and be happy anyway!

Rhonda, you could just send that lady and email back that says, "I guess I'm just not serious about getting well because I have no interest whatsoever in your product. Please refrain from future sales pitches to me."

another interesting idea. we will see, I only go on the nights my niece works there anyway.....maybe a short break to create some MYSTERY ha ha and then pop in in a couple of weeks.

Carla - excellent email respone :lol::lol: maybe Rhonda should use that one......

Bev....that IS a funny and very cute story, gallows humour and all. Dying people do funny and charming things sometimes, though. And, through my training with Hospice (I trained in Monterey and then moved, never did it), we learned that the dying seem to choose when they die....always waiting for someone to come, or waiting for someone to leave.....it's really interesting. In my dad's last days, he was on quite a bit of morphine, and got funny and delirious at times, would call his best friend (who was a judge and quite busy working during the day) and scream at him about the Bulldogs and different basketball/football games.....that weren't even on TV at the time...... :blink::lol::blink:

I think I will have to make some rice pudding, am afraid I will Rachel the whole thing. :ph34r:

What is it with me and the animals lately? found a dead kitty, with a collar and bow around her neck. :( got close enough to see the phone # on collar, I called them....waiting for their call back to deliver this very sad news. :(:(:(

AndreaB Contributor
What is it with me and the animals lately? found a dead kitty, with a collar and bow around her neck. :( got close enough to see the phone # on collar, I called them....waiting for their call back to deliver this very sad news. :(:(:(

Poor kitty. :(:(

rinne Apprentice
Rhonda, you could just send that lady and email back that says, "I guess I'm just not serious about getting well because I have no interest whatsoever in your product. Please refrain from future sales pitches to me."

:lol::lol::lol:

My yoga class was cancelled yesterdady and since they offer massages there I had one (this going for the pillows is really paying off :lol: ) and I asked the massage therapist about far infra-red saunas, turns out there is another massage clinic that offers them and it is two blocks from my house. :) I made an appointment for one tomorrow morning. Carla is there anything I should know?

I had a wonderful walk this afternoon, it was brisk but I was dressed warmly and I dingo'd many deep and profound thoughts :lol: or I might of but the specifics elude me. :ph34r:

Oh I just bet you are funny in person, and you may not find this hard to believe, I am quite funny in person also. You cook AND you iron pillow cases? guess what, for guests I do iron the pillow cases as well, beautiful cotton sheets and crisp with lines, like a hotel. And a small container of fresh, gently fragrant flowers next to their bed.....it's kinda nice here.

I know I am thought generally insane for ironing pillow cases but it is my feeling that it is the small rituals that have the deepest capacity to evoke ease. I iron them on the red ironing board my grandmother gave me as a wedding gift, I know she knew my sweetie would never use it :lol: They give me such simple pleasure when I lay my head down at night. In a world where everything seems rushed and so much more interesting than something so mundane as ironing I find ease. I know I am odd and I suspect I may grow odder yet. :P For those of you who don't iron, you just don't know what you're missing. :P:lol: And I use a French Lavender water to mist the pillow cases. :lol:

I suspect you live in a magical world Dingo Girl and I am sure it is more than kinda nice, I am sure it is lovely. :)

CarlaB Enthusiast

Rhonda, I just use it as a time to relax. The infrared rays come from the panels, so I try to lay or sit in different positions so that I each part faces them for some time. Drink plenty of water. Enjoy! I love it! Oh, and don't take your computer in there ... it's too hot and you can tell us all about it later!!!

I'd love to iron my pillow cases ... maybe when some of the kids move out!!! :lol:

You should see the pretty chair hubby just bought me for our bedroom!!! VERY cool!!

Mtndog Collaborator
Bev....that IS a funny and very cute story, gallows humour and all. Dying people do funny and charming things sometimes, though. And, through my training with Hospice (I trained in Monterey and then moved, never did it), we learned that the dying seem to choose when they die....always waiting for someone to come, or waiting for someone to leave.....it's really interesting.

Actually that was part of our theory too...that she was waiting for me to leave because she knew I'd have a harder time with it. She knew......I didn't know you did hospice training...I worship them. They are true heroes and heroines. :wub:

In my dad's last days, he was on quite a bit of morphine, and got funny and delirious at times, would call his best friend (who was a judge and quite busy working during the day) and scream at him about the Bulldogs and different basketball/football games.....that weren't even on TV at the time...... :blink::lol::blink:

Hopefully he was yelling for them to LOSE!!!!!!!!!!!!!!!!!! :P

rinne- I think you should write her an email that makes you appear completely insane :P Then maybe she'll leave you alone because she'll be SCARED!!!!!!!!!!!!!!!!!!

rinne Apprentice
I actually started seeing an acupuncturist while i was very sick (prior to going gluten-free but knowing something was wrong). Every time I went in I needed a new $45 tea. I told him I was gluten-intolerant and he told me I absolutely wasn't. His acupuncture would allow me to eat wheat again. The, right after my gluten-challenge, when I was so sick, and he knew it, he called me under the guise of finding out how I was doiong but it was really him asking me to post flyers for his practice all over my university, AND HE WANTED ME TO MAKE THE PHOTO COPIES. End of him!

Beverly, I know we all have to deal with idiots (or was it ijits?) but this guy takes the proverbial cake.

My acupuncturist let me know that my pillows/rocks insight was the turning point that acupuncurists looked for in their patients and he said it was more important than all the treatments he could do for me. I am not seeing him anymore because I think he helped me as much as he could. I had come to the conclusion that he saw me primarily as someone with poor digestion and I knew it was more than that but then I KNEW it because of the acupuncture. :)

Green12 Enthusiast
What is it with me and the animals lately? found a dead kitty, with a collar and bow around her neck. :( got close enough to see the phone # on collar, I called them....waiting for their call back to deliver this very sad news. :(:(:(

Sorry about the kitty :( I saw a dog get hit by a car a few years ago and it was absolutely devastating. Susan I suspect you found the kitty because you are a kind caring soul who does thinks about the owners and how they are beside themselves with worry about the whereabouts of their cat, or maybe they are unsuspecting, but you are the right person to deliver the news.

I am beginning to think you are an animal pied piper of sorts, or at least a Dingo pied piper :lol: . I want to live in your world, or even rinne's world. Everything you guys talk about is so interesting and magical, ironed pillow cases that take all your worries away :lol:

Oh, totally forgot to comment on something I read pages ago....Susie, you want breast implants? She who climbs mountains and large rocks, and various other mounds of the earth, talks about water conservation, dreams of remote cabins where she can frolick with the dingoes and the squirrels, yes, she, wants a boob job?? Does not compute :lol::lol::lol:

Anyhow, I'm glad you are smiling and it sounds like the day has gotten better for you as it's gone on :)

rinne, enjoy the sauna :) Look forward to hearing what you think about it.

Bev, very sweet story about your mom's last moments. Glad you were able to spend those moments with her, as difficult as they were.

Interesting about the dying choosing when to die.

Rachel, :lol: at the lady trying to sell you the grape drink that will cure all! Shoot, if you could even tolerate grapes you wouldn't waste your time drinking them :lol: .

Andrea, again I'm sorry about the recent news on your day. You and your family are in my thoughts

Then he is a total slimebooger and should be flushed down the toilet, too. :ph34r:

You can tell him I said so, if you ever run into him again.

:lol: Fiddle Faddle, you crack me up!

Susie, it is true it is he who is missing out. I guess I might look on it as maybe something came up and it wasn't in the cards, wrong timing, just don't assume the worst- that it is something to do with you as the reason he has not called.

rinne- I think you should write her an email that makes you appear completely insane :P Then maybe she'll leave you alone because she'll be SCARED!!!!!!!!!!!!!!!!!!

:lol: Bev

Thanks again everyone for creating such a place for support while we all try to get through our "stuff". It's a comfort to come here and get info, share info, ask questions, get and give hugs, and laugh all along the way.

Wub to everyone!!!! :wub:

rinne Apprentice
rinne- I think you should write her an email that makes you appear completely insane :P Then maybe she'll leave you alone because she'll be SCARED!!!!!!!!!!!!!!!!!!

:lol::lol::lol:

The three times that I have been intimately involved with death, my grandmothers and my father-in-law it seemed clear to me that their choice was clear. I have learned through these experiences to trust that if I am to be present I will be and if I am not then I won't.

One of my grandmothers got so cold they couldn't read her temperature and they thought she would die within a week, she lived for another year. During that time I often wondered why she continued to live but towards the end of it when I was visiting her one day she smiled at me, it was the sweetest and most loving smile I ever recall receiving and it was as if her worried, negative self had dropped away. Not long after that when I was visiting with her I thanked her for that smile, I told her that I saw how beautiful she was and that I was grateful for all that she had taught me and given me. She died not long after that, my mother and I had sat through the night with her and when we left to rest she passed away.

Fiddle-Faddle Community Regular
. And, through my training with Hospice (I trained in Monterey and then moved, never did it), we learned that the dying seem to choose when they die....always waiting for someone to come, or waiting for someone to leave.....it's really interesting.

Hmmm. We were all sure that my MIL was dying a couple of weeks ago. She was sent to the hospital with dehydration, and I swear they (the hospital) tried to do her in. They wouldn't let her drink tea, coffee, or soup (she only likes hot liquids), and said that she had trouble swallowing , so they tried to make her eat hospital food (bad enough to start with) that had been put in the blender (that would make anyone vomit, I swear). When she refused the glop, they IV'ed her, and it hurt so she pulled it out, and then they put her in restraints. And she turns 98 next month.

Luckily, my brother-in-law made them remove the restraints, and insisted that she should not be IV-ed if she doesn't want to be. My husband and his other brother went racing out to California last week--and she perked up, drank the soup that they brought her, and even ate inari sushi (no trouble swallowing that!).

She is still dehydrated, I think--but comfortable, eating and drinking a little, and mostly sleeping the days away. I'm wondering if she is waiting for her birthday, for Christmas, for the New Year--or if it's simply not her time yet, and maybe not her time for quite a while!

My 5-year-old brought home a wonderful library book from school, and we read it tonight, and Andrea, I thought of you--it's called [u]Nana Upstairs and Downstairs by Tomie de Paola, and it's really lovely--about littel 4-year-old Tommy and his grandma and great-grandma--and the great-grandma passes away. He sees a shooting star out the window, and his mother tells him that it's a kiss from his great-grandma.

Susan--ooh, those people are going to be so SAD about their poor kitty--but it's very, very kind of you to call and let them know; at least they won't be wondering, and they'll know that someone cared. :(

AndreaB Contributor

:wub: fest!

:wub::wub::wub::wub::wub::wub::wub:

Julie,

Thanks for the note. I'll write back later tonight, probably much later. :)

Fiddle-Faddle Community Regular
I want to live in your world, or even rinne's world. Everything you guys talk about is so interesting and magical, ironed pillow cases that take all your worries away :lol:

DingoWorld is adjacent to Rachelville, and there are Rinne-land Hotels (or hostels?) sprinkled throughout both places, all with ironed pillowcases. :)

AndreaB Contributor

Richard!

I see you. Good to have you back. :)

DingoWorld is adjacent to Rachelville, and there are Rinne-land Hotels (or hostels?) sprinkled throughout both places, all with ironed pillowcases. :)

That's sounding pretty restful. :)

DingoGirl Enthusiast
I had a wonderful walk this afternoon, it was brisk but I was dressed warmly and I dingo'd many deep and profound thoughts :lol: or I might of but the specifics elude me. :ph34r:

I know I am thought generally insane for ironing pillow cases but it is my feeling that it is the small rituals that have the deepest capacity to evoke ease. I iron them on the red ironing board my grandmother gave me as a wedding gift, I know she knew my sweetie would never use it :lol: They give me such simple pleasure when I lay my head down at night. In a world where everything seems rushed and so much more interesting than something so mundane as ironing I find ease. I know I am odd and I suspect I may grow odder yet. For those of you who don't iron, you just don't know what you're missing. :lol: And I use a French Lavender water to mist the pillow cases.

I suspect you live in a magical world Dingo Girl and I am sure it is more than kinda nice, I am sure it is lovely.

Rinne....we are kindred souls. Yes, the beautiful, small touches mean so much....I have used Linen Water before and also lavendar water......it is a beautiful ritual but yes, you are odd :lol: because you ENJOY the ironing. :blink: I do not, phooey, and don't do as many of those beautiful, magical things that I used to do as I have less stamina, but it is a tranquil haven here, I am drowning a bit in a sea of turquoise silk and linen (the house is more formal than I, that's for sure!), but fresh flowers (from the garden), and even if no flowers are in my yard, bouquets of green......many candles, sandalwood and balsam fir incense (to remind me of the mountains!), and small touches, it makes the difference.

Hopefully he was yelling for them to LOSE!!!!!!!!!!!!!!!!!!

rinne- I think you should write her an email that makes you appear completely insane :P Then maybe she'll leave you alone because she'll be SCARED!!!!!!!!!!!!!!!!!!

gaaaaaaaaaaaaaaaaaaah Bev you just gave me quite a guffaw on both statements, but no, I think at that time he wanted them to win, he didn't have any negative experiences with sport-obsessed ex-boyfriends (um, that I KNOW of :ph34r: ) :lol::lol:

Julie.....Your post gave me a SNORTING guffaw! What a pleasure it is to come here, after a pretty lousy day, and read such mirth and support, humour and warmth. I only wish we could all be together, at some cozy mountain lodge (dingos there, of course), sipping hot toddies and laughing and telling stories....ME WIHT MY FAKE BREASTS AND ALL!! :lol::lol: Yes, you did get that right, sister. ;) I am gittin' me some! some day...... :lol:

Pied piper of animals....you have no idea. I practically ran an animal shelter out of many of my homes....when I had just one dog, I never went by a stray dog or car without stopping.....we kept them for a few days, found owners or placed them, or took them to SPCA when there was no other option. :( Now that I have two dogs and a very small place I don't take in too many, but, the blessed thing is, I don't SEE too many any more. At my old job, at the very serious mennonite college, I once kept a cat behind my desk for the afternoon, hidden in a mail crate :ph34r: until I was found out......and a large dog tied outside all day another time.....they wrote something in my review about keeping too many animals around :lol::lol:

well friends thank you so much for so many laughs and helping me get through this heinous day. :)

Off to list things on ebay.

CarlaB Enthusiast
Beverly, I know we all have to deal with idiots (or was it ijits?) but this guy takes the proverbial cake.

My acupuncturist let me know that my pillows/rocks insight was the turning point that acupuncurists looked for in their patients and he said it was more important than all the treatments he could do for me. I am not seeing him anymore because I think he helped me as much as he could. I had come to the conclusion that he saw me primarily as someone with poor digestion and I knew it was more than that but then I KNEW it because of the acupuncture. :)

That's interesting. My doctor (holistic) said I started to heal when I broke ties with my mom and step-father and she couldn't believe I told them WHY ... she said that is when I started to heal. I actually took control of my life a little before that .... that was more a result of my taking control of it. I think there is a lot of mental to all this, yet at the same time, the mental part is only so much, part is physical. We're integrated as people ... everything plays a role.

DingoGirl Enthusiast
DingoWorld is adjacent to Rachelville, and there are Rinne-land Hotels (or hostels?) sprinkled throughout both places, all with ironed pillowcases. :)

gaaaaaaaaaaaaaaaah :lol: cracking me up!!! Yes, it's true, as Julie said, the ironed cotton pillowcases in the Rinne-land Hotels (surely not hostels, too stinky) "take all your worries away...." ;) oh, would that it were so!

another good laugh....thanks Alison..... :rolleyes:

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    • lmemsm
      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
    • knitty kitty
      Hello, @Dora77, I agree with you that your doctors aren't very knowledgeable about Celiac Disease.  My doctors didn't recognize nutritional deficiencies either.  I became very deficient in vitamins before I was diagnosed, so having experienced similar, I understand what a difficult time you're having.   Poor absorption of essential nutrients is caused by the damage done to the intestines by Celiac Disease.  The gluten free diet can be low in essential nutrients, so supplementing to boost your absorption is beneficial.  New symptoms can develop or worsen as one becomes more and more deficient.   There's eight essential B vitamins that our bodies cannot make, so they must come from our food and supplements.  These eight B vitamins work together, like instruments in an orchestra.  They need to be supplemented together with essential minerals like magnesium.   Deficiencies in the B vitamins can have overlapping symptoms.  Some symptoms can be traced to specific B vitamins.  OCD can be traced to low Pyridoxine Vitamin B 6.  Yes, I had OCD and washed my hands until my skin cracked and bled.  ADHD symptoms can be traced to low Thiamine Vitamin B 1.  ADHD is something one is born with.  People who are born with ADHD have a metabolic problem with getting sufficient thiamine into their brain cells.  People who develop symptoms of ADHD later in life are more likely to be low in Thiamine.  The same symptoms appear if one is not getting sufficient thiamine from the diet.  Yes, I developed symptoms of ADHD.  These symptoms improved and disappeared after supplementing with Thiamine and the other essential nutrients. I was diagnosed with Type Two Diabetes.  99% of diabetics of both types are deficient in Thiamine because our kidneys don't re-absorb thiamine properly.  Thiamine is needed to make insulin and digestive enzymes in the pancreas.  Poor digestion (floating, undigested stools) can result with insufficient pancreatic enzymes.  The gall bladder (upper right quadrant) needs thiamine to make and release bile which also helps with digestion.  Constipation is also a symptom of Thiamine and magnesium deficiencies.  The thyroid is another organ that uses lots of Thiamine, too.  Low thyroid hormones can be due to insufficient thiamine, selenium, iron, and iodine.  Swelling of hands, face and feet are also symptoms of thiamine insufficiency.   Our bodies use thiamine to make energy so organs and tissues can function.  Thiamine cannot be stored longer than three weeks.  If our stores are not replenished every day, we can run out of Thiamine quickly.  If we do get some thiamine from our diet, symptoms can wax and wane mysteriously, because a twenty percent increase in dietary thiamine causes an eighty percent improvement in brain function and symptoms.  Thiamine interacts with all the other vitamins in some way.  Many other vitamins and their metabolic processes won't work without thiamine.  In Celiac Disease you are apt to be low in all the essential nutrients, not just thiamine, but thiamine deficiency symptoms may appear first. Talk to your dietician about eating a nutritionally dense gluten free diet.  Keep in mind that processed gluten free foods do not contain sufficient vitamins to be useful.  Processed gluten free foods are filled with saturated fats and excess fiber (that could explain your constipation).  Dairy products, milk and cheese can cause problems because Casein, the protein in dairy, causes the same autoimmune reaction that gluten does in some.  Your current restricted diet is dangerous to your health.  I followed the Autoimmune Protocol Diet (Dr. Sarah Ballantyne).  It's a Paleo diet that promotes intestinal healing.   Discuss with your doctors about correcting nutritional deficiencies as soon as possible.   Interesting reading... https://pubmed.ncbi.nlm.nih.gov/34165060/ https://pubmed.ncbi.nlm.nih.gov/21816221/#:~:text=Lipid-soluble thiamin precursors can,and attention deficit%2Fhyperactivity disorder.
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    • cristiana
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    • Dora77
      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
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