Jump to content
  • Sign Up

Archived

This topic is now archived and is closed to further replies.

Rachel--24

Omg...i Might Be On To Something

Recommended Posts

Rachel,

Dr. H thinks that a parasite or tapeworm is "eating" my ferritin. Let's hope that's the case because the next step would be an endoscopy/colonsocopy and he REALLY doesn't want me to do that because of anesthesia.

Carla,

I talk to people all the time about things forgetting I'm not on this thread! LOL!! Like my friend who had the rectal bleeding...she was SO embarrassed to tell me and I started to laugh because it's such a non issue!

Everyone,

I was really bad today and I had an In-N-Out hamburger with no bun and just ketchup, onions, lettuce and tomato and french fries....BAD idea!! As a matter of fact, one of the worst I have had in a long time. I thought we were only going to be gone for about 1 hour, but we ended up being gone for about 4, so I didn't have enough green smoothie with me to hold me over until I got home.

I am *still* feeling the effects of it...almost 5 hours later! UGH!!! I am nauseous and just feel yucky!

The good news (well, kinda!) is that we got my 30 days of zithro for $260 instead of $350 and the Epi-Pen for $50 instead of $60.

I am going to call Dr. H tomorrow and see if he thinks that the zithro will be okay to start while doing the iron IV's. My concern is if I don't start taking the abx, I will be herxing so badly during Christmas and I don't want that!! <_<

Question: does anyone know...if I take the probiotics tomorrow after I do my stool sample test, how long will it take for me to see if I react to them? They are apparently dairy free, but they do have milk and soy in them!!! I don't get it...if I react to them, I will get another brand, but if not, I will continue to take them as long as I feel okay. (does any of that make sense? I'm really brain fogged right now. :()

Also, does ginger have any properties about it other than anti-nausea? Does anyone get nauseous from ginger??

Kassandra

Share this post


Link to post
Share on other sites
That's what I had, I held a rod in one hand, and she touched certain points on my hands, arm, feet with the probe and the info was on the computer, or she put the item on the machine. Response was graphic on the computer. The person that did it had special training in it. My LLMD said that he looked at this as a guideline, not an absolute.

ASYRA is different than what you had. No probes are touched to your body. Just holding the metal (they aren't rods, much thicker) in your hands. They do vibrate a little with the current from the computer. Nothing is put on the computer to test your response. It's all done by frequencies of items and covers everything under the sun in a matter of minutes. It sounds more like BioSET or BioScan to me. Maybe Rachel could elaborate more.

Share this post


Link to post
Share on other sites

Kassandra,

Sorry about the food reation......no fun at all. <_<

Good news on the Zithro and epi-pen.....still sounds expensive though. I'll defer to the more experienced ones on your other questions. :)

Share this post


Link to post
Share on other sites
ASYRA is different than what you had. No probes are touched to your body. Just holding the metal (they aren't rods, much thicker) in your hands. They do vibrate a little with the current from the computer. Nothing is put on the computer to test your response. It's all done by frequencies of items and covers everything under the sun in a matter of minutes. It sounds more like BioSET or BioScan to me. Maybe Rachel could elaborate more.

I see. So the ASYRA and ART are more developed than the BioSET then, also more accurate?

Share this post


Link to post
Share on other sites
Yes, that's it exactly. Only the GI dr (a celiac specialist, he actually spoke at the local annual celiac seminar) is just treating it with steroids now, probably because I'm already eliminating so many foods already. :rolleyes:

Didn't you test positive for Lyme? You CAN'T take steroids if you have Lyme Disease!!!! :o

Kassandra, YAY on finding the meds cheaper! Are you taking the generic version? Chloe is ...

You could still herx at Christmas even if you started now .... but you could also start to feel better when you start .... I felt better right away starting meds, but would herx and feel as bad before, but with more dizziness. I felt so bad, there was really no way it could have made me feel any worse!

Share this post


Link to post
Share on other sites

Ugg, so it's definitely the magnesium that was causing the distress, lol. I took two capsules last night and within 30 minutes started feeling the nausea, burning in my whole digestive tract and the start of that "productive" gas. Fortunately it didn't get as bad as it had been. I think I'll not take any more until after I've finished the Humaworm and then I'll try taking the other kind that I have. The magnesium didn't bother me until I started the Humaworm, so either it's reacting with something in it or I'm just plain getting sensitive to it. I have a liquid kind that I've taken before, and so I'll try that once I'm done with the Humaworm. Dr. S (or any of my Drs for that matter) won't be happy that I'm not taking the magnesium, but it's just too uncomfortable and I'm so close to being done with the Humaworm.

Bioset, asyra, ART, etc. How are they different?

I see. So the ASYRA and ART are more developed than the BioSET then, also more accurate?

The muscle testing you had sounds more like BioSET or BioScan. When I have BioSET done I hold a metal rod in one hand which is connected to the computer. Anna (the BioSET practitioner) then uses another instrument to touch points in my hand...that is also connected to the computer. Whatever she is testing me for is either stored in the computer or in little glass vials which I touch with the hand that is holding the rod. All of what she tests me for is "filtered" with a little vial of my blood. When she tests my brain function to see if I can handle the treatments, I touch the hand with the rod to my temples. It sound hokey, but it sure seems to be REALLY accurate.

BioSET tests for sensitivities to certain things and the treatments are to desensitize you. ART is testing for something different and there aren't really "treatments". It's looking for the stressors on your body and usually to find the things that are the BIGGEST stressors. In all my ART tests so far Lyme has come up as the biggest stressor. Metals and bacteria/viruses always come up too.

I haven't had asyra or LED yet. LED will probably be next for me, because that is more of a detox thing (did I finally get that right Rachel?? LOL).

ART was what first found the Lyme for me...apparently my body hasn't become sensitized to the Lyme, so it didn't show up in the basic BioSET testing (but did later in more specific testing). The ART testing is what led me to go to the LLMD to get blood tested for lyme because I just didn't believe it, lol. So far, everything that came up in ART except the co-infections have been lab tested and confirmed. We haven't lab tested the co-infections yet.

Both ART and BioSET can test for how well your body wants certain medications and supplements, and BioSET (and maybe ART) can also tell how much it wants.

Yes, gluten came up in ALL the "alternative" testing I've had done. BioSET, ART, etc.

Let's say that due to the changes I have made this year, I AM moving mercury at this point. Could this account for the liver enzyme elevation? (On top of the long term meds of course, but I have been fine with those for a very long time.)

I would think so. All of this would cause your body to try to get rid of stuff, and that's what the liver does, so if it's working really hard, I would think that could cause the elevation, but I'm not sure...just my opinion.

After doing the math I've discovered that I need to stay on this soft foods diet until the Friday after Christmas! This is going to drive me nuts! :huh: Fortunately our library system has a soft foods recipe book, so hopefully that will come in soon since I'm running out of ideas. I'm also going to talk to my Naturopath about adding dairy back into my diet temporarily. I'm already losing weight, and all stuff with lots of sugar in it is making my body unhappy. :(

Well that sucks! Last year at this time I had to start an elimination diet...not fun at all, lol.

I am *still* feeling the effects of it...almost 5 hours later! UGH!!! I am nauseous and just feel yucky!

...

Question: does anyone know...if I take the probiotics tomorrow after I do my stool sample test, how long will it take for me to see if I react to them? They are apparently dairy free, but they do have milk and soy in them!!! I don't get it...if I react to them, I will get another brand, but if not, I will continue to take them as long as I feel okay. (does any of that make sense? I'm really brain fogged right now. :()

Also, does ginger have any properties about it other than anti-nausea? Does anyone get nauseous from ginger??

Sorry you are feeling bad...I can't say much because I've been the queen of stupid lately, lol.

I get mixed reactions to probiotics if I react. Some things happen right away and some are delayed, but it varies from time to time and with brand to brand. I seem to get gas right away, sometimes I get D (more than usual, lol) or C...that is usually the next day.

I sometimes get nauseous from ginger. I've heard it's good for a lot of things...I bought some to take on my first cruise because I had heard it was good for sea sickness. I took a little the first day even though I wasn't feeling sea sick...after I took it I started feeling nauseated, lol. Don't know about the other properties though...someone in choir once told me that ginger tea was good for the throat. Don't know how reliable that is though.

Share this post


Link to post
Share on other sites
Ugg, so it's definitely the magnesium that was causing the distress, lol. I took two capsules last night and within 30 minutes started feeling the nausea, burning in my whole digestive tract and the start of that "productive" gas.

You found the problem! Yay!

Share this post


Link to post
Share on other sites

Hey gals! Got a couple of stupid questions for you. Hoping you can clue me in a little.

First stupid question topic - I popped over to the Lyme thread and saw the symptoms list. I have 41 of them. Think its worth getting this checked out, or should I just see what my dr comes up with and go from there? Granted, most of the symptoms on the list that I checked off were mental/emotional (surprise! not). I'd run Lyme past my GP, but she just kinda blew me off since I don't have unexplained fevers or chronic joint aches. Goodness knows, I've had enough tick bites in my life. Btw, have your bites taken 6 weeks or longer to heal? And itch?

Second stupid question topic - Was chatting with a couple of gals yesterday on a board and they brought up something that's kinda making my head go "boom". They said that adrenal fatigue can contribute to food intolerances as cortisol is necessary for the metabolism of carbs, proteins, and fats. Any input? I'd feel really kind of stupid if all this was the result of not having any adrenal support and could have been treated 6 months ago.

Thanks in advance!

Share this post


Link to post
Share on other sites

Carla,

I am taking the generic because the other one was so expensive it's ridiculous! It's strange the things they say it interacts with...like magnesium and antacids...lol! I need to MAKE sure I write that nice and BIG somewhere so I don't forget!

I am SO nervous to start taking it because I am worried I will have an allergic reaction!!! YIKES! Getting the EpiPen made it all seem so real...lol.

Also, out of all the probiotics you take, which do you suggest the most? I am thinking Theralac, but let me know...okay? Thx.

As far as feeling bad...I am sure I can feel worse. At least I can walk (well, barely...lol!). When I was on the other abx for the SBBO, I could only go from bed to the fridge...that doesn't really happen often.

Donna,

Thank you for the info. It turns out my mom wants me to do the tests tomorrow, so I have a little more time to figur eout what I am going to do with the probiotics, etc.

Kassandra

Share this post


Link to post
Share on other sites

Get the lyme properly checked out!!!! Adrenal fatigue can be the result of about any chronic illness ... I think it's more a symptom than anything else. Sometimes you need to treat it, but you also need to find what's causing it.

I was right where you are ..... many tick bites, but those ticks didn't have Lyme, LOL! .... many of the symptoms ... then I got a positive Western Blot by IGeneX.

Get tested FOR SURE, no doubt about it!!!

Share this post


Link to post
Share on other sites
I see. So the ASYRA and ART are more developed than the BioSET then, also more accurate?

That's the way I understand it.

I haven't had asyra or LED yet. LED will probably be next for me, because that is more of a detox thing (did I finally get that right Rachel?? LOL).

You got it right Donna, from the sounds of it. :D

LED does in 25 hours what it would take up to 90 days to do with supplementation. It's more expensive in the short run, but more cost efficient in the long run. Another reason I'm not happy we can't afford more right now. We've got to go the supplementation route, as minimal as that is due to finances.

Sherry, I'll email you copies of T's first ASYRA so you can look at it. The others we got done in September included more but I didn't scan those. I can also send the results of those since you'll be able to see what all stuff comes up on the ASYRA. ASYRA will flag stuff that can be treated with LED and prioritize them. Aside from doing Sulfa Group first they go in order that ASYRA prioritizes them.

Nyxie, I don't know much about adrenal fatigue.....even though I have it. I would suggest lyme testing. Can you get in with an LLMD in your area/state. I think that would be more beneficial and make sure to use Igenex for the lab. You can contact Igenex yourself and they will mail you the paperwork.

Igenex

Share this post


Link to post
Share on other sites

Kassandra, I always take the generic ... I was going to suggest that if you weren't already.

If you're only going to take one probiotic, I'd recommend Theralac. If two, then Theralac and Ultra Flora. Also take s. boulardii to prevent C. Diff.

You should get in the habit of taking your supplements away from your abx. I take pills four times daily ... and eat each time .... twice for meds, twice for supps. I take probiotics with supps.

Keep us posted on the reaction to Zith! You will probably be back to how you were on the other abx, but then will slowly start to see improvement. Be sure you're doing your detox stuff! I think the whey protein and coffee enemas every day have been essential for me.

Share this post


Link to post
Share on other sites

Nyxie, those questions are definitely NOT stupid, lol. it's my humble opinion that ANYONE who has a known tick bite and has any symptoms that linger despite testing and treatment should be tested for lyme. I can't even remember a tick bite at all, and no rash. I had 47 of the symptoms on that list, but still never in a million years thought seriously it could be lyme. Since I can't remember the bite, I can't answer the question about the rash and itching. While joint pain is a common symptom, lyme doesn't affect everyone the same way.

Re the adrenal fatigue...for me it seemed to work a bit differently...

In my case, we needed to take as many stressors off the body as possible to get the adrenals back in decent shape. We started with the diet...not eating the things I'm intolerant or sensitive to (so eating LESS foods, lol) and supporting and supplementing the off balance stuff. I had to do an elimination diet, but was still reacting...turns out I was sensitive to the "safe" foods on most elimination diets, lol. I got testing with BioSET, which identified all the foods I was sensitive too, and following that list really helped.

Reducing my pain levels was next on the list. Taking that stress off the body was a biggy.

Next was trying to get enough rest and not overdoing exercise or getting too worn out by doing too many things. My doctor even wanted me to get a less stressful job, lol.

I believe tHe last piece of the puzzle will be to address the mold, lyme and metals. The food issues got a little better for sure, but I still can't eat lots of different foods...the list of safe foods is bigger though. I don't think I'll truly get over that until the last piece of the mold, lyme and/or metals is dealt with.

We just retested my adrenals, so I'm still waiting to see if my levels improved--will find out the day after Christmas.

Share this post


Link to post
Share on other sites
We just retested my adrenals, so I'm still waiting to see if my levels improved--will find out the day after Christmas.

A late Christmas present! :P

I'm going to guess they've improved since you've had a bit more energy. :)

Share this post


Link to post
Share on other sites

Donna, I agree! It's a bunch of things that tire the adrenals .... just like Lyme doesn't exist alone. All my kids have been bitten by ticks more than once ..... but most are perfectly healthy .... their bodies didn't get sick from it. Of course, we'll watch for it for the rest of their lives, but it's not just Lyme that makes you sick, or just metals, or just any one thing .... you have to address them all .... then the adrenals will work better .... if they're tired, there's a reason. :)

Share this post


Link to post
Share on other sites

Andrea, Carla, and Donna,

Thanks! I called them stupid questions, largely because I feel like I'm grasping at straws here. I really do think I'm becoming a hypochondriac and losing my mind. The past year has been hell! Its like my doctors are trying to fix a leaky boat with a wad of chewing gum and duct tape - some improvement in the short run, but eventually it stops working and things get worse. Nobody's actually bothered to find out what's causing all this.

The docs all say my thyroid levels are fine, in spite of the FreeTs being below midrange. They say I only have 'borderline' adrenal fatigue, even though my overall levels are way below normal. It might also help if they actually bothered to look at the test results themselves, rather than just the other doc's notes. Something ain't right and I can't get any of them to take me seriously!

*sigh* Maybe its because I have a difficult time keeping my thoughts on a consistent track and get distracted by their other questions before I can fully explain what's going on in regard to a specific issue. Maybe its because I "look" healthy i.e., not dropping over in their office, and am upbeat in person (in spite of how tired I might actually be or sound on the boards). Maybe its the blue hair. :P

Anyway....

Apparently, there are a couple of LLMDs in the area. Problem is finding a good one. Any ideas how to scope out one of these docs? The last thing I need is another added to an already too-long list of bad ones.

Share this post


Link to post
Share on other sites

Hi everyone!

JIN!! Hope it was a Happy Birthday! :)

By the time I could get around to posting yesterday, the forum got uncooperative. :(

So I'm stuck w/ wishing a belated HAPPY BIRTHDAY!!!!

Annnnnnnnnndrea . .. . . . I get to Portland Wed night (aw dang I'll be flying right when I thought I'd be watching Donna's choir :( ) but I don't know which days are best candidates for us to meet. :)

So VERY much looking fwd to it tho!!! :):D:)

Are any days on your side not as good as others?

Share this post


Link to post
Share on other sites

I am officially starting Carla's diet today...lol. I'm having an egg white protein smoothie and a piece of fudge. I'm still feeling yucky though....so we'll have to see what happens throughout the rest of the day.

Carla, I am going to call Dr. H's office and ask about coffee enema's to make sure he's okay with them. We'll see what he says. I am nervous about the zithro, I am going to take it in the morning so I can see how I react because I'd hate to have my throat close while trying to fall asleep...lol!! (I think I have had WAY too much time to think about all of this stuff!)

I will have to talk to my mom and see what she wants to do as far as probiotics. It's driving me crazy to not be able to start taking some of these supps/abx. AHHH!

I will get used to taking stuff a few times a day...and I will definitely take the probiotics AWAY from abx or meds. We'll have to see how they want me to do the B-12 shots and all the other good, fun stuff! :D

Kassandra

Share this post


Link to post
Share on other sites

Nyxie,

I've felt the same way...believing I was a hypochondriac...not having doctor's take me seriously or believing me. Some of them wouldn't even LISTEN to my symptoms. It's frustrating indeed.

You can post over at Lymenet to see if anyone has any experience with the two doctors near you. Remember not to post a whole last name...just an initial. Just say Dr. S in Whatevertown, State.

Tom,

Not to worry...it's supposed to rain here this entire week, and it'd be pretty miserable standing out there waiting/watching us, lol.

Share this post


Link to post
Share on other sites

I got my Humaworm without psyllium and cascara sagrada, I am allergic to psyllium and it binds me up and I'm not a fan of cascara sagrada, but I am thinking I need to be on some sort of "laxative" while I take it. I'm wondering if I drank senna leaf tea every other day if that would be effective enough...anyone have any thoughts on this??

Rachel, what exactly is alinina (?) the parasite remedy you will be taking. Is it homeopathic, prescription?? Sorry if this is a repetitive question, I just skimmed over a lot of the posts so maybe you posted about this already.

Share this post


Link to post
Share on other sites

Carla,

I completely forgot that. I have a call into the LLMD now, but we have to leave momentarily for the Naturopath's. Hopefully they won't call back during the 4 hours we're going to be away. The steroid I'm on is aerosol, so it's only supposed to affect my stomach and esophagus. :huh:

What egg white protein powders have people used? I've been calling around for the one from NOW, but no one seems to carry it.

Share this post


Link to post
Share on other sites
Apparently, there are a couple of LLMDs in the area. Problem is finding a good one. Any ideas how to scope out one of these docs? The last thing I need is another added to an already too-long list of bad ones.

Donna already answered this for you. :)

You are not a hypochondriac!

Are any days on your side not as good as others?

22nd and 25th are the only bad days. If you want to meet up with hubby too it would have to be 23rd, 24th or the following long weekend. I'm thinking you were staying til around the 29th though right?

Not to worry...it's supposed to rain here this entire week, and it'd be pretty miserable standing out there waiting/watching us, lol.

Rain! You are getting rain. I always picture CA as having blue sky Christmases. Is it supposed to clear up for next week?

Share this post


Link to post
Share on other sites
Rachel, what exactly is alinina (?) the parasite remedy you will be taking. Is it homeopathic, prescription?? Sorry if this is a repetitive question, I just skimmed over a lot of the posts so maybe you posted about this already.

It sounds like a prescription and sounds pretty hard hitting. Hopefully Rachel will be on today to respond more fully.

Share this post


Link to post
Share on other sites
What egg white protein powders have people used? I've been calling around for the one from NOW, but no one seems to carry it.

I use Deb El. It comes in a little cannister and is located in the baking section in my Whole Foods. Bob's Red Mill also used to have one...it was also found in the baking section at my Whole Foods, but I haven't seen it in a while now.

Rain! You are getting rain. I always picture CA as having blue sky Christmases. Is it supposed to clear up for next week?

I haven't heard the forcast for next week, but yeah, sometimes we get rain. :P

Share this post


Link to post
Share on other sites
I am officially starting Carla's diet today...lol. I'm having an egg white protein smoothie and a piece of fudge. I'm still feeling yucky though....so we'll have to see what happens throughout the rest of the day.

I will get used to taking stuff a few times a day...and I will definitely take the probiotics AWAY from abx or meds.

Kassandra

Kass,

Good luck with your new diet approach. I hope it works for you!

We seem to all have varied diets, what works for one doesn't always work for the other. I could never eat the whey smoothies and fudge everyday, but I can eat carrots by the bag full, or sweet potatoes, and they would give Rachel so many problems :lol: It's funny how we are all different.

I usually take my probiotics on an empty stomach, first thing in the am. I would even set my alarm really early, take it, then go back to bed for a while. If it's a formula that you can take without upsetting your stomach that might work for you, this way you can take it away from all your other meds and supps.

Donna, I would find at times magnesium would cause my stomach to burn. I am not currently taking it but I had to make sure I always had it with meals to avoid that burning.

Share this post


Link to post
Share on other sites
Guest
This topic is now closed to further replies.

×
×
  • Create New...