Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Makes You Happiest About Being Gluten-free?


Guest BERNESES

Recommended Posts

Guest BERNESES

I love jnkmnky's thread about the best advice you have ever gotten from this board, and I was thinking, you know, there really are a lot of positives about being gluten-free (and sometimes newbies don't see them).

Here's mine- I think my favorite things about being gluten free are that my depression may have been related to Celiac's. My whole life I could never figure it out. It just didn't "fit" and my doctor and therapist always said I was the clearest case for a biological depression they had ever seen. Turns out they were right- 18 years ago!

i love that I like Chebe pizza crust better than "real" pizza crust.

I love that's it's brought my relationship to a new level with my hubby.

I love that I eat healthier now than I EVER did before.

I love that I can still have a lot of my favorite foods.

I'm happy that I finally figured out why I got sick so often and can control it through my diet and not mounds of medicines.

I'm happy that I feel like I'm finally starting to heal- that waas scaary.

I'm happy that my energy is coming back!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green12 Enthusiast

What makes me happiest about being gluten-free is knowing that it is totally do-able and possible as a lifestyle, and that you don't have to feel deprived of anything, there are fabulous substitutions, and that it gets easier and easier with time.

StrongerToday Enthusiast

I'd have to second most of Berneses comments (minus the hubby one!).

I really love that I've lost 50+ pounds without even trying. It just comes from a naturally healthy diet.

I also love that I'm trusting my body a little bit more each day... it's nice not to have to scope out where the bathrooms are the minute I walk into a store :lol:

odcdinah Contributor

Just curious - how long were you gluten-free before you started feeling better?

quote name='BERNESES' date='Apr 20 2006, 12:58 PM' post='129227']

I love jnkmnky's thread about the best advice you have ever gotten from this board, and I was thinking, you know, there really are a lot of positives about being gluten-free (and sometimes newbies don't see them).

Here's mine- I think my favorite things about being gluten free are that my depression may have been related to Celiac's. My whole life I could never figure it out. It just didn't "fit" and my doctor and therapist always said I was the clearest case for a biological depression they had ever seen. Turns out they were right- 18 years ago!

i love that I like Chebe pizza crust better than "real" pizza crust.

I love that's it's brought my relationship to a new level with my hubby.

I love that I eat healthier now than I EVER did before.

I love that I can still have a lot of my favorite foods.

I'm happy that I finally figured out why I got sick so often and can control it through my diet and not mounds of medicines.

I'm happy that I feel like I'm finally starting to heal- that waas scaary.

I'm happy that my energy is coming back!!!!!!

lonewolf Collaborator

I love being able to walk, run, coach basketball, play baseball in the yard with my kids, and just feel healthy. Considering that one doctor told me I'd be in and out of a wheelchair for the rest of my life (at age 32), the minor "incovenience" of a changed diet is nothing. There's no substitute for good health.

Moongirl Community Regular

what makes me the happiest, just feeling better, i dont care that its food restriction, at least im not on meds for the rest of my life....not having those aches and pains all over my belly area is worth being gluten-free. sure its hard, but almost gluten-free 5 months later, i havent felt like myself, this good, in years....so yah being my old self again makes me the happiest!!!!

jmengert Enthusiast

I love knowing exactly (or almost exactly) what is in my food since I read labels *all* the time.

I love that I save money by not eating out, which leaves me more money for shopping for clothes :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel-jd1 Community Regular

I am not sick anymore!!! I do not feel/look like death warmed over. YEAH!!

-Jessica :rolleyes:

Becky6 Enthusiast

That I feel good for once!! And that I don't have MS like they origanally thought! I eat healthier.

jerseyangel Proficient

I'm no longer pale as a ghost

My toenails look great--this is the first spring I don't have to start putting polish on them right away in order to wear sandals--I may just use clear this year, cuz I can!

My hair has filled back in and it's nice and shiny

I feel better much of the time

I have more confidence when going out of the house--don't feel like I always need to know where all the bathrooms are

My husband is a partner in this whole thing--he's frequently the one asking questions when in a restaurant or coffee shop. He takes me to Whole Foods and wherever else I need to go to get what I need. (he comes from a family where they think chronic illness is all in the head, and mind over matter--so this one is huge!)

My diet is healthier overall--much 'cleaner' and more natural

I have more confidence now to stand up for myself and do what I need to do to stay healthy

Pegster Apprentice

I know what was making me sick! When I got sick after having coffee with a muffin, I blamed the coffee! When I got sick after eating pancakes, I blamed the syrup! I used to have "Food Poisoning" CONSTANTLY. Now the mystery is solved! :D Also I don't have to eat all the weird foods at the church pot luck!

Guhlia Rising Star

I love that this disease has brought me to understand how much my family really cares about me and to what lengths they'd go to for me. My father (who I'm not close to) made many ER runs with me so that my husband could stay home with our baby. My mother babysat A LOT while my husband was at work while I was too sick to get out of bed. I never really understood the meaning of family until I got sick from Celiac.

I love that I have the perfect, legitimate excuse to not eat my MIL/SIL's cooking!

I love that nobody steals my snack food now because it's so "weird". My husband used to always eat the food that I had bought specifically for me.

I love that I feel better.

I love that I was able to gain weight.

I love that I have enough energy to excercise when I was never able to do that before in my life.

tarnalberry Community Regular

no side effects from a pill to worry about!

db8diva Newbie

No more migraines. The weird skin rashes (not DH) that had my dermatologist scratching her head while writing a prescription for ever stronger steroid creams are gone. I'm no longer anemic. The slight stomach ache I had every day of my life (hey, it was normal for me) finally went away. I like feeling that my body and I aren't at war.

ianm Apprentice

I am healthier at 38 than I was at 18. I am no longer obese and finally know what it is like to feel alive. A little over 2 years ago I almost lost my job because of the brain fog. Now I have an extremely demanding but very high paying job and have been running circles around everyone. I am no longer the man I used to be in any way, shape or form and that is a good thing. Well I still have the same warped and perverted sense of humor. Celiac is the best thing that ever happened to me.

Guest BERNESES
I love knowing exactly (or almost exactly) what is in my food since I read labels *all* the time.

I love that I save money by not eating out, which leaves me more money for shopping for clothes :)

Oh my gosh- Yep! Forgot those two. I like both of them.

I would say it took me a little over a year before I REALLY started to feel better. I noticed a huge change at first, then didn't do so hot for awhile, but since probably February 9the one year mark) started to feel much better. But it's different for everyone. My cousin felt completely fine within a month and she had been much sicker than me.

flagbabyds Collaborator

MY LIFE,

yeah I would have dien w/ in 3-4 weeks if I had not been diagnosed w/ celiac. The docs told my parents after I was diagnosed that they had thought I had about a month to live.

Guest nini

what makes me happiest is that I lost over 100 pounds WITHOUT EVEN TRYING!!!! The weight just FELL off!!!!

I am happy that my daughter was dx'ed early in life ahd won't have to experience the same debilitating health issues that I struggled with for years!

I am so glad that the depression/anxiety and brain fog are but a memory!

I am happy that I feel more like "myself" than I have in years! I finally feel like I "fit in" and love that my brain is working again!

tiredofdoctors Enthusiast

I like that I know that I will no longer have any destruction of my brain. The damage that is done is done, but there will be no more! What makes me happiest is that they found out what was wrong, and that I will be around a LONG time and will be able to see my grandchildren -- whenever they get here! :D

Mongoose Rookie

I love feeling good. Every time I think about it I absolutely love not being in chronic pain from arthritis anymore. No Advil just to sleep at night anymore. When I started to feel good I took up hiking!

I get the neurological problems. I like being able to talk without stuttering, not worry about having a seizure, and not trip over my own feet. I like being able to participate in conversations. I used to have trouble remembering nouns, especially if I was tired.

I like not having brain fog a lot! I can take classes now and keep up with the subject matter. I can read now, without my vision getting blurry right away, and remember what I read!

No pills is big too, except for the vitamins every day. No migraines anymore. Life is just so awesome! Yippee!

Odysseian Newbie

The itchyness is gone, except for when I excercise. I'm healthier all around. My high-stress job would trigger the itchyness all the time... now I never get it unless I goof and have wheat. Unfortunately I have to echo the joy expressed earlier at not having to scope out the bathrooms... you'd never think to take it for granted.

Oh yeah, my doctor wanted to do exploratory surgery (In addition to a number of other unpleasant things :blink: )... I don't see him anymore.

WLJOHNSON Newbie

I love that I can breathe!

At age 8 and thereafter I suffered with Asthma to the point of being hospitalized many times. Now, at 61, I have gone from 13 Asthma pills a day down to 1, and use a breathing machine twice a day.

I love walking an hour a day without wheezing, and the depression I used to have is gone!

I love weighing a little over 100 pounds, and having so much energy.

I love that I can keep up with my 7 grandkids, including my hyperactive 3 year old grandson, who I have helped with the Celiac diet since he was diagnosed at 3 weeks of age.

I like knowing that I can help my grandson, cousin, and sister, all diagnosed with Celiac, and that I can encourage other family members to get tested.

I enjoy knowing that I have come from being overly-sensitive about what I could eat, to realizing that it is a life or death decision each time I put food into my mouth.

I have enjoyed learning that no matter what anyone else says, I am now educated to what is best for my own health, and I can take my own food to restaurants or wherever I want to go, assuring that I will live a longer and healthier life.

Welda Lou

Ursa Major Collaborator

I love not aching all over and having to take strong painkillers 24 hours a day any more. I love especially that I am finally losing weight, this far 30 pounds in six months of being gluten free.

I am finally able to start exercising again, I swim once a week, and have gone back to my table tennis club to play serious table tennis (and I do NOT play ping-pong, this is REAL exercise, where you're soaked in sweat after playing for an hour), something I hadn't been able to do for four years.

I also love not having to rush to the bathroom at my grocery store twice while shopping, praying that nobody else is in there, because I can't wait. :o

I am glad that I have hope of not dying early of cancer, like my mom, so I can enjoy my beautiful grandchildren.

I have stopped having terribly frightening nightmares, that made me wake up gasping in terror. I am sure they were mostly due to the gluten affecting my brain.

Kiki Explorer

even though Im new i am so glad that now i have a reason to eat healthier... I always wanted to but never had the self control but when i began to have the symptoms and was finally diagnosed, I have a reason. Im young so i have a healthy bright future ahead of me.!!!!!! :) Also I feel like my mother and myself are closer than before and we have always been close.

Carriefaith Enthusiast

I am thankful that I am so healthy now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.