Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

20 Year Old College Student


lisaemu

Recommended Posts

lisaemu Contributor

Hey guys I'm relatively new to this and kind of struggling, but I've finally accepted the need to be gluten freee. I don't know anybody else who has celiacs, or even anybody who knows what it is. Makes it kind of difficult, and itd be nice to have someone to talk to who knows what its like.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Lisa--Glad you found us! When I was diagnosed last year, I had never heard of Celiac--much less knew anyone with it. Finding this board has been a lifesaver for me. Drop in anytime--just to chat with others who know exactly what you're going through. There's a wealth of information here, too. Read the older posts and always feel free to ask any questions you have. It really does get easier the longer you do gluten-free. :)

StrongerToday Enthusiast

Welcome! You'll find other Michiganders in the Meeting room too:

Open Original Shared Link

skinnyminny Enthusiast

Hey I am close to your age too and would be willing to help you if you need anything, we might have some of the similar frustrastions and could help each other with products and keep each other up to date on things. Just let me know if you need anything!

printmaker81 Rookie

Hi Lisa,

I'm a college student in MI, too. It's a big adjustment going gluten free, and it definitely is something that a lot of other people will find strange. However, I've found that my friends at school are really supportive. If you're going to school in Southeast MI anwhere, there is a gluten free food fair in one of the suburbs just west of Detroit. I'll be there because I live right around here. Let me know if you want to meet up.

Heather

lisaemu Contributor
Hey I am close to your age too and would be willing to help you if you need anything, we might have some of the similar frustrastions and could help each other with products and keep each other up to date on things. Just let me know if you need anything!

Thanks for your offer- I might be taking you up on that! Overall I've accepted, its just hard that most people don't know what it is or understand the need to be really vigilent. How long have you been gluten-free for?

Heather which school do you go to? I go to EMU, I just transferred here this semester from Central. I heard about that food fair and thought it'd be awesome to go to, but I have an Earth day 5k in South Lyon. What time is it at?

lorka150 Collaborator

Hey Lisa!

I was also diagnosed in university in my early twenties - I totally understand your 'pain'! (Or lack thereof, now :))

It's nice to meet you, and if you help / support, let me know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



printmaker81 Rookie

Lisa,

You're not too far from me! I go to Cranbrook Art Academy, so I'm over here in Bloomfield Hills. There's actually another girl here who has Celiac's, too. The food fair is from 10:00 AM to 2:00 PM at The First Presbyterian Church of Farmington (26165 Farmington Road, Farmington Hills). I hope you can make it.

Heather

PS. If you're ever in this neck of the woods, there's a great little cafe that's 100% gluten free and they have pizza!! It's called Belcibo, in Clawson.

  • 1 month later...
Katie O'Rourke Rookie

Hi. I'm 22 and was also diagnosed while I was 19, and at university and found it really hard. If you want any advice, help or just to talk, just email me - katie_orourke_11@hotmail.com

Take care and good luck with the diet :) x

  • 5 months later...
Sinenox Apprentice
Hey guys I'm relatively new to this and kind of struggling, but I've finally accepted the need to be gluten freee. I don't know anybody else who has celiacs, or even anybody who knows what it is. Makes it kind of difficult, and itd be nice to have someone to talk to who knows what its like.

Hey Steph, I'm a 21 year old college student who just figured it out myself. It's bloody hard to handle, especially in college. But I've had some luck. Feel free to email or IM me sometime and we can share ways to make it easier.

  • 5 months later...
Vince Newbie

I'll be 20 next month, I was diagnosed three months ago, I completely feel your pain. Feel free to contact me.

  • 2 weeks later...
sallyterpsichore Explorer

Well, you can read my "I'm a lazy single girl with Celiac Disease" blog: Open Original Shared Link for starters! I just did a special post about dealing with hangovers on a gluten-free, dairy-free, soy-free diet, so there's that! :rolleyes:

Also, I'm 23 and was diagnosed a month after I graduated college, so I hear ya! I also went to Western Michigan University and grew up in the state. I live in Boston now, but I'm hear to talk if you need me!

-Sally

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.