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- knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7results from 13 day gluten challenge - does this mean I can't have celiac?
@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract... -
- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease49
My journey is it gluten or fiber?
I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ... -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7results from 13 day gluten challenge - does this mean I can't have celiac?
good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again. -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
results from 13 day gluten challenge - does this mean I can't have celiac?
I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ... -
- xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease49My journey is it gluten or fiber?
What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
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By knitty kitty · Posted
@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/ -
By knitty kitty · Posted
I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since. Tryptophan and Vitamin A help heal the intestines as well as improves skin health. I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset. So I'm healing the outside as well as the inside. I take one 1000 mg Tryptophan before bedtime. With the Thiamine HCl, take 100 mg to start. If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement. Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended. If you've been thiamine insufficient for a while, you do notice a big difference. It's like the start of a NASCAR race: Zoom, Zoom, turn it up! This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine. I took 1000 mg all at once without food. It kicked in beautifully, but I got a tummy ache, so take with food. I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing. So cool. You may feel worse for a couple days as your body adjusts to having sufficient thiamine. Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough. Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement. You can reach a plateau, so stay there for several days, then try bumping it up again. If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD. It's like being your own lab rat. LoL Yes, take one Benfotiamine at breakfast and one at lunch. Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well. I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals. You may want to add in some zinc. I take Thorne Zinc 30 mg at breakfast at the beginning of the meal. Are you getting sufficient Omega Threes? Our brains are made up mostly of fat. Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that. Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful. @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes. He's also had dramatic health improvement by supplementing thiamine. You're doing great! Thank you for sharing your journey with us. This path will smooth out. Keep going! -
good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
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I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose they are going to have to come up with a test that doesn't require it.
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By xxnonamexx · Posted
What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
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Recommended Posts
I know--the more I find out, the more I think Celiac will be a sideline. But, we'll wait and see--any mention is better than none at all!
Just bumping this--tonight's the night!
I also saw preview and was wondering how they are going to tie celiac disease to this womans problems. Although with all the reading I've done I know some people do get seizures. I do hope this show is good. I for one will be Tivo'g it so I can watch again.
In one preview, she looked darnright possessed!
Let's hope it gets celiac "out there"......
Hugs.
Karen
It will be interesting to see what the "research" section of the website will reveal after tonight's episode.
Let's hope it doesn't make people with celiac look "out there"....
*fingers crossed*
Actually, I bet this stie will get hammered. Every here should be ready for it... IF celiac disease is the star of the show, then ppl will hope online, and guess what site comes up first in google..... I feel for the moderators!
Yeah, good luck moderators!
I meant that I hope it doesn't make celiacs look like crazy baby-drowning posessed crazies.
Maybe I'd better take a nap this afternoon--get rested up for tonight
THis would be a bad day to swear off cafine....
NaNa NaNa, Boo Boo!!!!!!!
Better rest up moderators!!!!!
Hugs.
Karen
thanks I realy need that this am!
Ha--got out just in the nick of time
Hey all, just checked on the time in my neck of the woods, and the summary says this (on tvguide.com site)
"A mother almost drowns her newborn son when she has a seizure while bathing him, but that's not what's causing his serious illness. And the mother's "seizure" turns out not to be a seizure at all. Meanwhile, Chase begins working in the Neonatal Intensive Care Unit; Cuddy and Wilson have dinner together; and Foreman's back at work, though his mental acuity isn't all the way back."
So........hm.......maybe she has celiac? Tune in to find out! LOL! I will
I know that this has been repeated over and over but someone please say it again...What time is tonights show? I am coming home from work early just so I can see it but I am having a brain fog moment. Sorry.
Sis
It's on at 9 PM Eastern.
9pm eastern time
You beat me to it Patty..hehehe
9pm on the west coast too. always check your local listings. ;-)
Thanks a bunch!
8 CENTRAL
9 p.m. what channel...
My TV is set to HBO Sopranos -- I don't watch much of anything else. BUT tonight I'm looking forward to this.... what channel???
Fox.
-Elonwy