Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dumb Family, Doctor Gone...


num1habsfan

Recommended Posts

num1habsfan Rising Star

*sighs grumpy sighs*.

Some of my family just never learns, and never cares!

I went over to my auntie and uncle's place today, and me and my Baba made some gluten-free pyrogies, so I was there all afternoon.

As soon as I got there I showed Auntie my marks from college, and she said they were good, but jumped straight to giving me a huge lecture about how I should be working. She pretty much said that my stomach is do excuse, and scoffed at me because I said I'm trying to run around with doctors. She doesnt even believe that I have anything wrong with me, that I dont need to be talking to specialists or nothing, I should be getting a summer job instead.

And then before we started the pyrogies I was wiping the cupboard, and seriously, 3 times today she actually MADE FUN OF ME because mom told her the one time I got sick from some bread comes coming in contact with me food. Not just joke about it, MADE FUN OF. She said "oh dont worry, these are just mushrooms, they are breadcrumbs, they wont kill you" in such a sarcastic voice.

GAH!!!

OH and I found out today that my family doctor has left town for good...I'm completely screwed now. I'm not kidding you. Since he was the one who referred me to the specialist, he was the only one who could send more letters (I tried to get other docs to do it before). I had gone in there before asking about the letters and none of the other docs knew anything about it...When I talked to that government Representative, she wrote down he was my doctor (because she need to discuss with who referred me)...now I dont know WHAT I WILL DO!

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

*hugs*

I'm sorry. Please ignore your annoying family members. They sound ignorant, and just because they are family does NOT mean that they are right. (You know that, of course!)

As for doctors, maybe you'll get lucky, though you might need to drive a bit farther. :-( I'll keep my fingers crossed for you.

mamaw Community Regular

Sorry to hear about your doc leaving, its hard to find one that really understands. And for your Auntie, she should feel awful about her actions. You should have said to her " Dear auntie, do you truly love me? If so then I do have an illness that makes me very sick. I know you may not understand it fully but please try to understand that I do know what will happen if I get glutened.You wouldn't want to be the one who causes me pain now would you!!" Maybe a guilt trip might soften her thought process a bit.

Now to the best part of your story!!!!!!! Can you please please send me your recipe for pierogi's. My family is wanting them sooooo bad.....And we will love you forever.............

If you are willing to share the recipe please pm to me.

mamaw

natalunia Rookie

I'm sorry you had this happen. I was worried my family would do that too, but so far they have been accomodating.... give it a few months and I may be in your shoes.

Now, what I want to know is about a gluten free pierogies recipe! My daughter is Russian, and I have a box of gluten filled ones in my freezer. I'd love to be able to make them where I could eat them, or even make pelmeni with it. Can you pass it on?

num1habsfan Rising Star
Now to the best part of your story!!!!!!! Can you please please send me your recipe for pierogi's. My family is wanting them sooooo bad.....And we will love you forever.............

If you are willing to share the recipe please pm to me.

mamaw

Honestly, if I had a recipe for the pyrogies, I'd give you them. Someone here in Saskatchewan (the company is called KayBee) makes a pre-mix for them, so I just buy those premixes and add eggs/oil/water to make a cup of liquid to each packag,e and then make them like you would normal pyrogies..

Wish I could help you more with that!

~lisa~

num1habsfan Rising Star

So that Client Representative called me this morning.

She talked to the receptionist of the GIs office, and they HAVE looked at my files there.

She said the problem is, my referral letters are not specific enough to give the GI reason to see me sooner.

I told her that the blood didnt start until after the last letter was already sent.

I explained that my family doctor who referred me in the first place is gone for good...

Her suggestion is have the ultrasound (next week), and when the results come back go and see my other family doctor, get HIM to send another letter to the GI or actually phone the GI to discuss my results and explain how I am getting worse and include the fact about blood.

She said I could always call her again if I have anymore questions...

Theres my update!

~lisa~

Guest nini

Oh Lisa, I am sorry you are still having such a hard time with this and getting the run around from Dr.s, hopefully you can persuade whoever needs to be persuaded to get you the care that you need. I'm so sorry about your auntie's insensitive comments, believe me, I get them from my family all the time. EVEN THOUGH they can see the obvious improvements in my health off of gluten. I have aunts and uncles and even my mom, sister, cousins, and nieces and nephews that I am convinced all have problems with gluten, but they don't take me seriously. My sister tries really hard to make gluten-free things for me and my daughter, but inevitably she conveniently forgets to check one critical ingredient and thinks it won't matter. (It usually does matter)... oh well. All I can offer you is cyber {{{{{{{{{{{{HUGS}}}}}}}}}}}}} and hope that this gets better for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Yea Lisa--what Nini said. It seems like you can not catch a break here. We're all behind you though, and I'm sending you a great big hug :)

mamaw Community Regular

Hi Lisa

Hopefully things will start to turn a corner for you soon, I will pray for that.....

Now back to the pierogi mix!!!!! You are saying you buy a gluten-free premix?????? WOW................Could you get the name off the mix or where you buy from? I will e-mail them to see if I can purchase by mailorder then. These two kids are driving me crazy for pierogi's so I will do anything to get them! Well maybe just about anything................

Maybe you should start selling pierogi's on the side!!!!!!I never new the kids would miss these things so much.....

thanks Lisa

mamaw

gabby Enthusiast

I googled the KayBee gluten-free perogies mix, and came up with this info below: (note that I've never personally used the company or products myself...but thought I'd just find the contact info)

KayBee Gluten-Free Products

PO Box 629

Cudworth, Saskatchewan

S0K 1B0

Phone: (306) 256-3951

Fax: (306) 256-3424

e-mail: kaybee@sasktel.net

Product NAICS #

Mixes, pizza, prepared, gluten free 311990

Cake mixes, gluten free 311822

Mixes, bakery, prepared, gluten free 311990

Mixes, perogies, prepared, gluten free 311990

Mixes, cookie, pancake, muffin, brownie, gluten free 311990

Mixes, bread and buns gluten free 311822

num1habsfan Rising Star
I googled the KayBee gluten-free perogies mix, and came up with this info below: (note that I've never personally used the company or products myself...but thought I'd just find the contact info)

KayBee Gluten-Free Products

PO Box 629

Cudworth, Saskatchewan

S0K 1B0

Phone: (306) 256-3951

Fax: (306) 256-3424

e-mail: kaybee@sasktel.net

Product NAICS #

Mixes, pizza, prepared, gluten free 311990

Cake mixes, gluten free 311822

Mixes, bakery, prepared, gluten free 311990

Mixes, perogies, prepared, gluten free 311990

Mixes, cookie, pancake, muffin, brownie, gluten free 311990

Mixes, bread and buns gluten free 311822

Thats the right info, Gabby. Thanks for saving me the trouble of finding it myself :lol:

~lisa~

mamaw Community Regular

Thanks for finding the info. now if they will ship I guess i'll be making two kids happy!!!!!!

I'm excited thanks for m aking my day!!!!

blessings

mamaw

mamaw Community Regular

Thanks Lisa & gabby & Patti for helping me !!!!!!

To Lisa:

I heard back from KayBee and they do ship to the USA so I,m almost ready to order. Do you use any other mixes from them and how are they? I don't know if the other stuff is good or not so your input would be appreciated. It's ten bucks to ship so I might as well get other stuff to if it is good....

thanks all

mamaw

Rachel--24 Collaborator

What are Perogies? :huh:

Ursa Major Collaborator

Open Original Shared Link

Here you go, Rachel.

Lisa, I am awfully sorry for your troubles with your family and doctors. But it looks like at least your doctor trouble can be solved now, and that is good. Fortunately, my family is not too bad, and especially extended families, like aunts and cousins etc. are really good about my celiac disease. But I know it must hurt, when your aunt is so insensitive.

mamaw Community Regular

Rachel 24

Pierogi's can be of polish, russian,ukranian origins plus there are probably others too. They are a dough that has a potato,cheese, onion, or sauerkraut filling in them , the dough is a circle shape and once filled it is folded over to make a half moon shape and the ends sealed.they can be boiled or fried and I serve mine with grilled onions and sour cream.some people also filled them with a prune mixture. thay can often be found at ethnic festivals doing the summer months.

hope you get to taste some one day......

mamaw

Rachel--24 Collaborator
Rachel 24

Pierogi's can be of polish, russian,ukranian origins plus there are probably others too. They are a dough that has a potato,cheese, onion, or sauerkraut filling in them , the dough is a circle shape and once filled it is folded over to make a half moon shape and the ends sealed.they can be boiled or fried and I serve mine with grilled onions and sour cream.some people also filled them with a prune mixture. thay can often be found at ethnic festivals doing the summer months.

hope you get to taste some one day......

mamaw

Those sound really "yummy".

I hope I get well enough to try them someday.

Thanks for the explanation. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.