Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Auto Immunde Diseases


Lister

Recommended Posts

Lister Rising Star

so celiac is considerd a auto immune disease correct? ok so abriveated its aids so that is a little confusing... does this meen that people with celiac are more easaly subject to get things like cancers and just in general health problems or are we healthy?? just a little confused


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Yes, Celiac is considered an autoimmune disease. In an autoimmune disease, the body attacks it's own tissue. In Celiac, the gluten triggers an autoimmune response that in turn attacks the small intestine. In undiagnosed or untreated Celiac, there is a greater risk of Intestinal Lymphoma--being strictly gluten-free lowers that risk, and after 5 years, our risk returns to that of the general population. I have also read that if a person has one autoimmune disease, they are a greater risk for another one. Bottom line--it's vitally inportant for us to be as close to 100% gluten-free as possible.

Lister Rising Star

wish the doctor would let me know things like this

minibabe Contributor

Okay so here is my theory on the whole thing.....

When you have a recation to a food or somthing like that your body has an inflmation. Acutally, I believe that any auto immune dieases cause an inflamation which naturally makes the body weaker. When you body has an inflamation you are more suseptable to things. And I believe that this is because your is weak and your immune system is weak. I have had converstions about this with people and I have books on it at home. I am at work right now, but when I get home I will rummage through the books.

Hope that this helps :)

Amanda NY

Katie O'Rourke Rookie

Hi. I've heard that coeliacs are more prone to bacterial or fungal infections, and over here coeliacs are supposed to have a pneumonia jab, to reduce the chance of catching it. The way I look at it is this, you're body is so used to attacking itself, that it is slower to respond to actual invading organisms, and is less able to cope with them compared to other people's. I've heard coeliacs also have a lower infective dose as far as things like bacterial food poisoning are concerned. However, and I'm not sure if this is just me and my dad or coeliacs on the whole, but I find I am actually totally immune to viruses of all kinds including influnza, as long as I have not eaten gluten. Recently everyone at my work who I sit near to every day has been off for at least a few days with flu which turned into chest infections, laryngitis or gastro-flu, all of which were very nasty, and I totally didnt get any of these, and I was the only person. However, I think the reason I get them if I have eaten gluten, is becasue your body is so busy attacking itself it doesnt notice the virus invading, so may get it worse than everyone else. However, I find the exception to this rule is the Herpes zoster virus - chickpox, as this is always dormant in your spinal cord after first infection, and can come back when you're run down, usually in the form of shingles. I personally have had chicken pox 5 times :(

I know this may not help you, but eating a wide variety of fruit and veg shouldhelp keep you healthy, as well as staying gluten-free, obviously :)

Lister Rising Star

yeah, im just checking since after reading that its a uto immunde disease the first thing that ran thru my head is omg im gonna get like cancer or something before im 30 but i also always think on the most negative aspects of things, i too have noticed even though im not fully healed that i dont seem to catch bugs that are going around,

a form of influenza, the one that comes from beeing on boats hit our town about week and a half ago, killed about 30 elderly 2 children and infected over 200 including every one of my co-workers and i managed to not get it

shai76 Explorer

You would think that gluten intolerance would bea lot like allergies; atopic people who have lots of allergies, which is actually the immune system attacking things it shouldn't all the time, are less likely to have cancer, and other infections, such as the cold and flu.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor
yeah, im just checking since after reading that its a uto immunde disease the first thing that ran thru my head is omg im gonna get like cancer or something before im 30 but i also always think on the most negative aspects of things, i too have noticed even though im not fully healed that i dont seem to catch bugs that are going around,

a form of influenza, the one that comes from beeing on boats hit our town about week and a half ago, killed about 30 elderly 2 children and infected over 200 including every one of my co-workers and i managed to not get it

WELL AT LEAST YOU DID NOT GET SICK :D:D

lorka150 Collaborator

every single person in my family and extended family has an autoimmune disorder and no one has cancer... if that makes you feel better.

Lister Rising Star

just after reading that its a auto immune disorder it got me really worrying about other ilnesses that i thought i may be easy to get, but now that i think about it, yeah are bodys attack ourselfs if we eat gluten but other then that, with our eating habits and what not we are more healthy then most, even though most celiacs that i have seen around here where i live are all pale skinny and look like there going to break if u tuch them but i think probably they where very late in diagnosis also

queenofhearts Explorer

Just to clarify, Lister, the initials are confusing, but AIDS is actually Acquired Immune DEFICIENCY Syndrome, which is not at all the same as an Auto-Immune disease. Lots of folks mix these up-- I've even heard of people being afraid they could catch Celiac.

I'm not a doctor, by the way, but I do know that the medical definitions are very different. After all, our immune systems are going overboard! With AIDS one loses the normal immune response. More or less the opposite mechanism.

Not to say that Celiac isn't a little scary in its own way, but much less dangerous than AIDS.

Hang in there, you'll be fine!

Leah

Hair Detective Newbie

In the 2006 book - Celiac Disease - A Hidden Epidemic....the author Dr. Green from Columbia University who runs the Celiac center....says that Celiacs have a 30% odds of getting an autoimmune disease versus the rest of the population which is 3%. Cancer is 2X as likely to occur if you have celiac. Inflammation is the bodies response to an outside invader...parasite, flu bug, food poisoning, and gluten if you're celiac. So the body responses...like firefighters would to a 911 call. The problem is if you've ever cleaned up after a fire...the water and chemical sprays can be as damaging as the fire. So image you're body is doing a 911 drill everytime you eat gluten....lots of fire damage :-)

Lister Rising Star

gah 2x likely :( colon cancer runs in the family now thats just great :( o well to early in my life to start worrying i guess

phakephur Apprentice

Here's an article from this site about autoimmune disease and celiac

kb8ogn Rookie

I have several auto immune diseases and have just recently been diagnosed with Celiac. Now, my rheumy told me that I am more suseptible to other auto immune diseases and when I get things like a cold or the flu, I feel it a lot worse than others because of the the autoimmune diseases.

My first dx was Lupus, then RA and Raynaud's, then Severe Vitamin D deficiency, now possibly fibro and the last was Celiac. I am also being tested for sjogrens.

Now, I did have uterine cancer, but that was also before all of my other issues and that also runs in my family. Those problems also started when I was very young.

Lister Rising Star

well so i guess we all are just playing a waiting game to see what we get next then :(

elye Community Regular

Since I was first diagnosed with celiac (eight months ago), I have often wondered if there is any connection to it and the fact that I so rarely get a cold or the flu...now I wonder more, because it sounds like a number of other celiacs have the same situation. Yep, people around me can be dropping like flies, and I remain the lone one standing. I would suspect that our immune systems are particularly STRONG, not weak (witness the damage it does!), but as my endocrinologist put it, it is "twisted", i.e., responding when it shouldn't. Maybe that's why I'm never sick...my immune system has had so much practice attacking things, and it gets such regular "workouts" that it is stronger than any threatening virus. :)

Lister, I've gone through all the autoimmune stats with my endo: one in eight celiacs will develop type one diabetes, and one in ten (the number's higher for women) will develop hypothyroidism. I've got all three. Now, I'm assuming that those are celiacs who have been undiagnosed and had a lot of damage. All the more reason to avoid gluten!

Lister Rising Star

yeah its great to hear that we probably wont get viruses but at the same time we get stuck with the crap that makes us feel sick all day long... i just want to feel "normal" again its been so long im starting to forget what it feels like

it feels like i have been on a mild mushroom trip for the past 2 months. and i hate mushrooms

ravenwoodglass Mentor
well so i guess we all are just playing a waiting game to see what we get next then :(

Lister, if you stay Gluten Free these other autoimmune problems are not going to appear. They appear because the body is fighting the gluten response which takes place in any organ that gets blood. In attempting to protect us from the gluten our immune response starts to activate on the organs also. I believe this occurs because the gluten gets into all body fluids and perhaps even cells. If you do not consume gluten and get to a gluten free workpalce (are you still at Burger King?) you will not develop these other responses. No Gluten EVER IN ANY FORM will keep the other autoimmune problems from developing. IMHO There are exceptions of course like diabetes but in general we are more healthy than the rest of the population IF we are diagnosed young enough which you were

it feels like i have been on a mild mushroom trip for the past 2 months. and i hate mushrooms

This could be from CC. The obsessive thought patterns you mentioned in another post could be also.

Hummingbird-Hill Newbie

Dear KB: My first DX was celiac and that was 15 years ago. Since then I have been DX'd with Sjogrens, fibromyalgia, connective tissue disorder, and finally diabetes one year ago. I think the celiac was just a precurser to all the auto immune stuff that I finally ended up with. Sort of like a trial run. I look at it like it was God's little test to get me used to the idea that there was some bumpy roads ahead. I learned how to deal and cope with celiac so when the really debillitating stuff came around it was easier to cope with. If you look at it, celiac is treated by diet, which is self administered, and all up to us really. How we feel is totally in our own hands. Or mouth. But the other diseases we haved to deal with in the auto immune family is so much more complicated and diffiuclt, it makes celiac look like a walk in the park. That is how I look at it anyway. And I feel so totally blessed. I feel like I could have gotten some disease that was a death sentence and only got an disease that is hard yes to deal with, but mostly an inconvenience. Now how lucky are we? :D

  • 1 month later...
au natural Newbie
<_< I have had my thyroid out before I was diagnosed. (They found cancer starting). Was also diagnosed with severe chronic idiopathic neutropenia ( unable to keep a healthy white count) before the celiac diagnosis. Have a few other food allergies. The more you keep on the diet hopefully the more you can remain healthy.
moonmaiden Newbie

I have Hashimoto's Thyroiditis. I notice that whenever anything at all challenges my immune system, be it a cold, flu or bug bite - my immune system seems to go into "overkill" and my Hashi's symptoms get worse. moon

loraleena Contributor

Lister,

If colon cancer runs in your family, I would suspect others in your family had or have celiac as well. I would urge your family members to be tested. Lister, your mind can have an enormous affect on your health and well being. You can actually damage your health and make yourself sick, by having such negative thoughts. You should rent the movie What the Bleep to we Know? It talks about this. Try not to dwell so much on all those scary thoughts and picture yourself healthy!!

Nancym Enthusiast

AIDS is not short for autoimmune disease, it is short for Acquired Immune Deficiency (if I remember correctly).

You're more likely to get other autoimmune diseases if you're gluten sensitive. I've had two diagnosed so far. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.