Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Megan's Gagging Isn't Any Better


TCA

Recommended Posts

Fiddle-Faddle Community Regular

WOW! I"m just sitting here with tears running down my cheeks, I'm so happy! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 882
  • Created
  • Last Reply
jerseyangel Proficient
WOW! I"m just sitting here with tears running down my cheeks, I'm so happy! :)

I know--such a sense of relief! The best possible news :D

rinne Apprentice

Wonderful news. My prayers are with you all.

jenvan Collaborator

awesome news!

angel-jd1 Community Regular

Wow........seems like everything went so fast for Baby Meg today!! Prayers that she continues to do what is needed to get healthy!!

WOW! I"m just sitting here with tears running down my cheeks, I'm so happy!

I can't read the caring bridge messages to Meg and her Family without tears streaming down.

-Jessica :rolleyes:

VydorScope Proficient

Keep the prayers up... she has several weeks of hard recovery ahead... but this is GREAT AND WONDERFUL NEWS :)

AndreaB Contributor

Praise the Lord!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

:) Thank the Good Lord!

Judy

VydorScope Proficient

Judy, I do not work miricles... I just try to keep my self in postion to be a tool for Him to use...

Lisa... heard back from her, I'll email you the details, but baislcy everything that can be done has been done now...

Judyin Philly Enthusiast

sorry Vincent--that's what I meant but you said it better.

It's a blessing to be open to be the 'tool' through which God works his miracles.

judy

Canadian Karen Community Regular

That is absolutely WONDERFUL news!!!!!!!

Hugs.

Karen

penguin Community Regular

Vincent isn't on right now, but there is an update!

I just talked to Ms. Debbie (Jarod's mom), and she had just gotten to see Megan. She said she looks really good; nothing like the last time. Thanks to everyone that has said prayers for her today.

Cotrena

:D

mouse Enthusiast

That is such great news about Megan. Such a little trooper and a fighter to boot. Hugs and well wishes to Megan, Tanya and the family.

nikki-uk Enthusiast

Excellent news!!

Lets hope she has a speedy recovery.

What a relief,had to check in before I went to bed.

Night all :)

VydorScope Proficient
Vincent isn't on right now, but there is an update!

:D

Thanks Chel...err penguin! I was on the phone with insurance ppls trying to striaghten a mess out with my policy (prehaps you should pray I dont get my hand on some weapons right now...grrrr :angry: ) and was not up here. So goo work picking up the slack!!

imsohungry Collaborator

I'm so glad to see such wonderful news! :)

Prayers and blessings. Julie

Rachel--24 Collaborator

YAY!!

Just got home....this is such great news. I hope everything continues to go just as perfectly as it did today. :)

jaten Enthusiast

God is so good!

Judyin Philly Enthusiast

Thrilled that Megan looks so good.

prayers still coming.

Judy

Guest Robbin

THANK YOU GOD!!! I was unable to get online since earlier this a.m. and now I am just thrilled. Been praying all day for "our little Megan" !!!

schuyler Apprentice

God is so good! I am so happy that everything went well. Megan will continue to be in my thoughts and prayers, and I hope that things continue to go smoothly.

DingoGirl Enthusiast

Indeed, God is good....such wonderful news....let's keep our prayers going for little Meggan and family! :)

evie Rookie

Glad to get the GOOD news about megan's surgery going well. Am praying for the next few weeks to go just as well. Yes, God is GOOD. :):) evie

Luvs to Scrap Apprentice

Tanya and family: Just wanted to let you know that we've been praying and are so glad that all has gone well so far. Will continue to pray for a full recovery. Hugs! Kendra

VydorScope Proficient

I plan to call TCA tommorow and get a more personal update. I was thinking of calling tonight, but I think they prlby all exhausted from the stress. I'll pass along the comments in this thread to her when I do so dont type to much ! LOL

MEGAN UPDATE!!!

TUESDAY, JULY 25, 2006 10:15 PM, CDT

As I write tonight I am overwhelmed with thankfulness. Each of you had a huge part in today with your prayers for Megan. I was AMAZED when I saw her tonight. I didn't realize just how bad she looked last time until I saw how good she looked this time. She is starting to wake up, but is being kept sedated for pain. She's only on 2 IVs, the last time there were 18. Her color is so pink. Her nailbeds aren't blue anymore!!!! I'm praising God for his handiwork and thanking him for the wonderful doctors and nurses caring for her. We are so blessed. The next few days are still critical, but we are so relieved to be on this side of surgery. Still a ways to go, but this was a major step. She kept her prayer blanket made by Mrs. Betsy Supancik with her during surgery, and she is blanketed with prayer by all of you now.

We got into Ronald McDonald House tonight. The Andrews are staying with Cole there tonight and my parents are in a hotel. Cole did great today and we hope to let him see Megan tomorrow. Yesterday when we got to her preop appt. he announced "This is Megnie. She has a big boo-boo on her heart that's getting fixed and it's going to hurt real bad." The ever caring big brother.

Thanks again for EVERYTHING. Keep the prayers going - God's definitely hearing and healing!!!

Love to all, Jarod, Tanya, Cole, and Megan Hope

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.