Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics


L.A.

Recommended Posts

L.A. Contributor

Has anyone tried probiotics? What were your experiences? B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I never did use them but I know that Cynthia Rudert (sp??), considered one of the top celiac doctors in the country, recommends all new patients take probiotics for a while. She's even had cases where other doctors diagnosed refractory sprue and the probiotics solved the problem.

richard

Guest cassidy

I take them and have noticed a huge difference. I had a stool test done and it showed that I didn't have any good bacteria. I was feeling much better after going gluten-free, but I was still going to the bathroom several times a day and it wasn't always fully formed - sorry to be gross.

Now, I really don't have any bathroom issues unless I get glutened. I took a strong, expensive one for a month and then backed down. I still take one a day. I also drink kefir which is like liquid yogurt with lots more probiotics.

I really feel that they have helped me.

kbtoyssni Contributor

I take them and it's the one thing that really helped me. (NOTE, at the time I was diagnosed with fibromyalgia and was taking so many different things to see if anything would help). I went to england for two weeks and didn't take my probiotics with and my guts hated me. Now I think my intestines are healed so I'm not sure if I need them any more, but when I was first healing they helped a lot.

dionnek Enthusiast

What kind (brand) do you recommend and do you have to get them at a health store like GNC, or can you just get them at the drug/grocery store? I've been thinking about taking these myself. Been eating the Activa yogurt but I think dairy is a problem....

lorka150 Collaborator

I use Bio-K Dairy free, and love it.

taz sharratt Enthusiast
I use Bio-K Dairy free, and love it.

what about asidofolis, if you cant find yogurt DF then this is a goodreplacement, it gives good bacteria back into your tummy. sometimes when ive felt the thrush coming on ive downed a few for a couple of days and sometimes i manage to fend it off.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

Yep, I take acidophilus every day (a cheaper brand but you have to make sure you're getting six billion active cells), and if I ever feel the start of a yeast infection starting, I triple the dose and it always goes away. :)

L.A. Contributor

Thanks for the input, as always, everyone is most helpful :) I contacted my health food store and they have two probiotics that are gluten free--here i come. Thanks again.

Guest cassidy
What kind (brand) do you recommend and do you have to get them at a health store like GNC, or can you just get them at the drug/grocery store? I've been thinking about taking these myself. Been eating the Activa yogurt but I think dairy is a problem....

I don't think activia is gluten-free. If you search for it on here you will see that someone called the company and they said that no activia yogurts are gluten-free. Maybe that is whey you aren't doing so well eating it.

kbtoyssni Contributor

I think the brand of acidopholis I take is Pro Flora. I'll have to check when I get home, though. The label does say gluten-free. I get mine at the health food store, but my old pharmacy also carried it. I got a different brand of acidopholis from my new pharmacy, and I don't think it's gluten-free. I kept getting sick and that was the only thing I changed in my diet. The company couldn't tell me if it contained gluten - they only had information on the active ingredients so I stopped taking it. I'll post the brand later.

ebrbetty Rising Star

Am I the only one who has problems with them? my stomach hurt more when I was on them

gfp Enthusiast
Am I the only one who has problems with them? my stomach hurt more when I was on them

That might not be a bad thing, think of it like adding antiseptic to a cut.

If you add antiseptic and it stings its because its killing the germs....

If your stomach is full of bad bacteria then it makes sense it would be a bit upset and hurt while they wage thier little war?

kbtoyssni Contributor

The brand that I take is Florajen. The brand that I think is NOT gluten-free is BC Lactinex.

acousticmom Explorer

I don't have any experience with probiotics, but I just read this in a book about food intolerance (Food Allergies and Food Intolerance, by Jonathan Brostoff, MD and Linda Gamlin, 2000):

"Some of these [commercial preparations of bacteria intended to restore normal gut flora] have been tested and a crucial difference was found between those bought in health food stores or drug stores and those purchased through mail order. The former had often been stored for long periods at room temperature, and, not surprisingly, researchers found very few live bacteria in them. The bacterial replacers bought by mail order had only spend two to three days in nonrefrigerated conditions and were as rich in bacteria as the manufacturers claimed."

Also:

"If you choose yogurt, you can make sure the brand you are buying really is live by adding a spoonful to some warm milk that has been heated to boiling and then allowed to cool. Keep the mixture in a thermos for six to eight hours. If it has not turned to yogurt, then the original yogurt was not live. The best way of ensuring that your yogurt is live is to make your own--starter cultures are available from some health food stores, or by mail."

I can't vouch for the accuracy of these statements, but the rest of the book has helped me a lot. The authors address the medical controversies surrounding food intolerance and candida issues in a pretty evenhanded way. And they give much more detailed info on doing an elimination diet than my dr. provided. (When I asked her about their advice, she agreed on every point. I was too polite to ask why she didn't tell me all that in the first place!)

Hope some of this is helpful.

Carol

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,172
    • Most Online (within 30 mins)
      7,748

    L B
    Newest Member
    L B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.