Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cant Stand Up

Lister

Recommended Posts

Lister Rising Star
Lister
Posted

ugh, everytime i stand up i get really really lightheaded and my ears start to ring wtf is going on.... i feel so tired like i did not sleep at all but i got plently of sleep, i would blame it on some form of food but since my stomic is not bothering me at all (foronce) i dont know what it is, i got vitemens i got b12 pills im eating balanced meals ARG

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 116
  • Created
  • Last Reply
CarlaB Enthusiast
CarlaB
Posted

Is it REALLY HOT where you are? I know I've been dragging a lot and it's really hot here. If it's hot, are you drinking enough and getting enough salt?

queenofhearts Explorer
queenofhearts
Posted
ugh, everytime i stand up i get really really lightheaded and my ears start to ring wtf is going on.... i feel so tired like i did not sleep at all but i got plently of sleep, i would blame it on some form of food but since my stomic is not bothering me at all (foronce) i dont know what it is, i got vitemens i got b12 pills im eating balanced meals ARG

Do you have low blood pressure? Or anemia? Both can cause this lightheadedness. And yes, it's worse in heat.

Leah

Lister Rising Star
Lister
Posted
  • Author

nope not hot today, thunder and lightning storms and crap acually.

as for anemia - not to my knowlege unless its a recent development, when i had all my tests done to figure out what was wrong that was one thing they where testing for and no blood loss here. As for low blood presure i dont think that either, unless its a recent thing since my blood levels have always been exalent

CarlaB Enthusiast
CarlaB
Posted

Did they check your thyroid levels?

Could it be low blood sugar?

eKatherine Apprentice
eKatherine
Posted

How much did you smoke yesterday? Wasn't it a lot?

Lister Rising Star
Lister
Posted
  • Author

yesterday was none, it was the day before that i smoked alot, but i felt b etter in the afternoon, today i feel the same but it is not getting better

as for thyroids and blood suger that i dont know

i know they ran like 5 diffrent blood tests, and i had a catscan to test for thyroid problems but other then that im clueless

update- im getting hot cold flashs gar why today

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


judy05 Apprentice
judy05
Posted
yesterday was none, it was the day before that i smoked alot, but i felt b etter in the afternoon, today i feel the same but it is not getting better

as for thyroids and blood suger that i dont know

i know they ran like 5 diffrent blood tests, and i had a catscan to test for thyroid problems but other then that im clueless

update- im getting hot cold flashs gar why today

Could be allergies or fluid in the inner ear. This is the time of year that affects me. Does your head spin around when you are lying down? You might need an antihistamine such as Benadryl. I myself take Zyrtec. If you take one they will make you sleepy so don't drive.

Lister Rising Star
Lister
Posted
  • Author

no not dizzy if i lay down just if im standing up, im already really tired i fell asleep around 3pm and woke up around 7 and im still really tired i dont know whats wrong :( im supposed to stay up late for the 4th today :(

is dr.pepper gluten-free my friend got a 12 pack and i want one to wake me up

plantime Contributor
plantime
Posted
nope not hot today, thunder and lightning storms and crap acually.

as for anemia - not to my knowlege unless its a recent development, when i had all my tests done to figure out what was wrong that was one thing they where testing for and no blood loss here. As for low blood presure i dont think that either, unless its a recent thing since my blood levels have always been exalent

This got my attention. Whenever there is a storm in my area, I get the exact same symptoms. I literally fall off my feet with dizziness. The doc says I am reacting to the change in barometric pressure. I have to lean against something or sit in a chair with a back so as not to fall. Sometimes, it makes me just want to puke.

Guest Robbin
Guest Robbin
Posted

:) Dessa-I have had the same thing for years too! Snow storms also make me ill. My husband says it is the barometric pressure and the release of nitrogen into the air. I also get severe stabbing pains in my joints. :blink:

Lister--are you eating enough? Did you get some grocery help? Also, during my first couple of months, I had hot flashes, sweats, dizziness and extreme exhaustion. I would sleep eight hours at night and have to take a two hour nap- for a couple of weeks this lasted and then it suddenly went away. I know a lot of people on here experienced some similar symptoms. Maybe you have reached that point in recovery as well. Low blood sugars can do this big-time and that is another celiac symptom. Hypoglycemia seems to go with this too, as well as thyroid problems. I sure hope this is not the case and it is another "milestone" in the recovery.

Green12 Enthusiast
Green12
Posted

THC can cause extreme dizziness, and is fat soluble staying in your body (including brain tissue) up to three weeks.

Tests also have shown that THC blocks the immune system’s ability to function properly, have you considered giving up the doobage until your body has a chance to heal a little more?

Not a lecture, just a question.

lorka150 Collaborator
lorka150
Posted

lister - perhaps if you focus on whole, natural foods for awhile, your body might readily adjust. you might be getting cross contaminated without knowing it (from prepackaged goods).

Guest nini
Guest nini
Posted

hmmm, I also react this way when the weather is stormy... barometric pressure changes... people around me think I'm crazy when I tell them I can tell a storm is coming because I get so "out of it" dizzy lightheaded and can't get up out of bed without tremendous effort.

evie Rookie
evie
Posted
no not dizzy if i lay down just if im standing up, im already really tired i fell asleep around 3pm and woke up around 7 and im still really tired i dont know whats wrong :( im supposed to stay up late for the 4th today :(

is dr.pepper gluten-free my friend got a 12 pack and i want one to wake me up

Lister, I agree with those who spoke of barometric pressure causing problems when a storm is coming in, affects me too. I am also wondering if you are eating enough since you were low on $$ recently?? :blink:

since you are probably getting better from some problems some new ones may be cropping up, just the way it works/ celiac disease. You think " now I am going to be better and a new phase kicks in", takes a lot of patience. Best o" luck!! evie " hypoglycemia also sounds like a reasonable idea too, eat less and more often to keep blood sugar level".

CarlaB Enthusiast
CarlaB
Posted

Isn't it true that people with candida overgrowth are affected by the rain? Seems that I remember reading that somewhere as one of the symptoms.

loraleena Contributor
loraleena
Posted

Just a thought. Since going gluten free I can't seem to tolerate alcohol anymore and others have said this as well. I wonder if the same can happen for THC?

mama belle Newbie
mama belle
Posted

For those with barometric pressure issues who are amenable to alternative medicine (namely accupunture) NAET (Nambudripod (sp?) Allergy Ellimnation Therapy), has the potential to help this. Just FYI.

ebrbetty Rising Star
ebrbetty
Posted

hope you're feeling better

Lister Rising Star
Lister
Posted
  • Author

still tired but cant say anthing about it since i did have to get up for work at 4:30 am so that is probably why today :).... Ugh i slept so awfull i had a "glutened" sleep like wehre i kept having panic attacks and wierd feelings thruout my body it sucked... but i dont think i can say it was gluten this time since i woke up and my stomic is fine just my head is all messed up still :(

is coke and dr.pepper gluten-free? i think i need caffine today but both of these have carmel color

penguin Community Regular
penguin
Posted
is coke and dr.pepper gluten-free? i think i need caffine today but both of these have carmel color

All coca-cola, pepsi, and dr. pepper products are gluten-free.

Lister Rising Star
Lister
Posted
  • Author

omg sweeeeet so that meens i can finally have a dew again? YAY

i have also laid back on the intoxicatns for a few days to see if that was the problem and it does not seem to be them..... grrr i was hoping for a easy solution but im still as tired as i would have been if i would have smoked to fall asleep last night (man that woulda helped)

anyone have this( you move around and things seem to move in frames, like your eyes skip things like every 3 seconds or so, so its like im looking at the monitor one second and then the next im looking into the kitchen but the look betweeen the kitchen and the monitor was skipped in my mind) its really confusing and makes me dizzy

also can we trust fountain drinks? dont know why im asking but i figured i would ask, i work around soda all day but have not drank any since going gluten-free because of the fountain

Guhlia Rising Star
Guhlia
Posted

I wouldn't trust the fountain sodas if they wipe them with the same cloth that they wipe the counter with. My best suggestion, if you really want to drink the soda at work, is to take the nozzles off and clean them thoroughly before drinking out of them. The actual soda is gluten free, there's just a risk of cross contamination.

I get the same thing with vision in frames. It usually only happens when I'm really tired. I think it's just your optic nerve telling you that it can't function anymore without sleep. Who knows though. When this happens, try putting a warm cloth over your eyes. Not only will it sooth your eyes, but it may help you to go to sleep faster. It works very well for me. I either put it on my eyes or over one ear, either way it makes me desperately sleepy.

On a side note, if I were you I would try to stay away from caffein. It's a diuretic and may increase any D that you've been experiencing. It also aids in sleeplessness and restless sleep. If you must drink soda, try to stick to sprite, sierra mist, ginger ale, and caffein free colas.

I hope you're feeling better soon.

plantime Contributor
plantime
Posted

I get my coke from a fountain, never had any problem with it. Usually, the only thing that touches the fountain nozzle is the drink itself. We wash the outside of it by soaking it in soapy water, then rinse and let air dry. No towel, sponge, or cloth is used, as they only cause clogging inside the nozzle, and are really not necessary.

FYI: I drank some Mug root beer the other day, and spent the rest of the day in the bathroom. I know the website says gluten-free, but I still had a reaction to it. Maybe it was one of the herbs they use for flavor?

CarlaB Enthusiast
CarlaB
Posted

I've never had trouble with a fountain drink, but I seldom drink them, and the only one I drink is Coke (or Pepsi).

Caffeine can be a vicious cycle -- you drink it to stay awake because you haven't had enough sleep -- then you don't get enough sleep because the caffeine keeps you awake all night. I only drink it when I'm getting enough sleep :blink:

It might take some time before you can get to sleep easily if you're used to a little smoke before bed. Be patient with it. I would imagine a few days is not enough time to get the drug out of your system.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748
    Rachel Wilson
    Newest Member
    Rachel Wilson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.