Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Strange Sensations Today..


Lisa

Recommended Posts

Lisa Mentor

Ok.....

This will be brief because how I feel

1. Feel drunk

2. headache - aleve won't help

3. turn my head or look up and down, swishy dizzy feeling

4. feel like I should not drive

5. feel like I have a fever, buy don't

6. catching myself swaying while sitting or standing, like now

7. very odd, but heard a whispered voice call my name at the grocery store several times, looked around and no one was there. Watching TV, same voice. NEVER had that happen before.

8. Gradually stopped Lexipro over a weeks time. Cut down dosage accordingly. Today is 72 hours

without. (gosh, I am sooo dizzy)

Is this detox from the lexipro or is my brain going to explode tonight and the angles are calling me. :unsure::unsure:

Really feeling VERY strange tonight and all day.

Lisa, in la-la land


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 50
  • Created
  • Last Reply
jerseyangel Proficient

Lisa, I don't know anything about Lexipro, so I don't know if that's what is causing this. I am worried about you--are you home alone? Is your husband there? I would call my doctor and see wht he/she says. I know it's Sunday, but I think you should get a professional opinion.

Hopefully someone familiar with the drug and it's side effects when weaning off will see this.

If not, please call the doctor :)

wolfie Enthusiast

I google "going off Lexapro" and this is what I got:

Open Original Shared Link

It talks about several of the things you mentioned.

Hope this helps!

StrongerToday Enthusiast

Lisa, I think this does sound like Lexapro withdrawal. Did you talk w/ your dr. about how you should wean yourself off?

Lisa Mentor

Have to be at someones house for dinner, but I bet it will be short one for me. Be back soon. Yeah, worried about me too.

Lisa

ravenwoodglass Mentor
Have to be at someones house for dinner, but I bet it will be short one for me. Be back soon. Yeah, worried about me too.

Lisa

Lisa I agree you may want to call your doctor. Is there any chance in addition to the drug stoppage that you might have been glutened as well?

tarnalberry Community Regular

while some of those things happen to me when I get a migraine, I'd think the lexapro withdrawl is far likelier. isn't a week pretty fast to come off that med? most of the meds I've titraed on that were meds you had to be careful of titrating, it was done over the course of a month or so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
while some of those things happen to me when I get a migraine, I'd think the lexapro withdrawl is far likelier. isn't a week pretty fast to come off that med? most of the meds I've titraed on that were meds you had to be careful of titrating, it was done over the course of a month or so.

Good catch on that, I missed the week. That is much to short of a time to wean off a drug. I weaned off all meds under a doctors reluctant supervision before I did the elimination diet and we took a full month to do it. Not a pleasant time either, I made bi weekly trips to my acupuncturist which helped with the pain of the celiac and the withdrawl symptoms.

key Contributor

Lisa,

It sounds like Lexapro withdrawal from what I have read. How are you weaning yourself. What was the dose and how quick are you weaning yourself? Sounds like you are miserable. How long were you on Lexapro? Would love to know, because I am weaning myself, but from everything I have read, it can be tough, so I am going to do it slowly. I was on it for two months now and thought it had helped me alot for symptoms I was having that were like IBS still. I think though it was from being gluttened in small amounts before, so I want to go off and see. I really didn't have any major side effects I thought, until I realized I was tired alot more lately and woke in the morning still tired. Also, now that I have been feeling great, I would like to get pregnant. This is why I am being so nosey!

HOpe you feel better. I would take a very small dose to make your symptoms a bit better.

Monica

Lisa Mentor
I google "going off Lexapro" and this is what I got:

Open Original Shared Link

It talks about several of the things you mentioned.

Hope this helps!

Holy Cow, after reading your site you posted, I know where I am. Thank goodness tomorrow is Monday, and I can call my doctor. It is so strange that parts of my body are :jumping" It's something that I can't explain.

I think that a Tylenol PM might help. Who knows, I have never been here before.

thanks for your research, I own you one.

Lisa, I don't know anything about Lexipro, so I don't know if that's what is causing this. I am worried about you--are you home alone? Is your husband there? I would call my doctor and see wht he/she says. I know it's Sunday, but I think you should get a professional opinion.

Hopefully someone familiar with the drug and it's side effects when weaning off will see this.

If not, please call the doctor :)

I'm ok. I had to go to dinner around the corner, short but sweet. I will explain to them later, or tomorrow.

I tried to step down from the Lexipro from 10 mg to 5 for a week and then one 5mg every other day........well that didn't seem to work.

I truely can't imagine going off drugs like coke, or crack..........

Would a Tylnenal PM help me tonight to sleep.

jerseyangel Proficient

Good to know that you're home safe, Lisa. Scary stuff. Try to get a good night's sleep--definately get in touch with your doctor tomorrow to find out the best way to go about this. :)

Canadian Karen Community Regular

Hi Lisa!

Just wanted to chime in to say that I think you are on the right track and it is Lexapro withdrawal....

I can remember one time years ago when I stopped taking Rivotril, holy crap, I thought I was going to die! It literally felt like someone had a tie around my neck, and wrists, and it was getting tighter and tighter by the minute! I literally thought I was going to die, even to the point of the sensation of my eyes bulging out.... It was a horrid experience! Just wanted to share to set your mind at ease that it indeed is probably the drug withdrawal, as it sure can feel sometimes like we are walking in hell coming off some drugs.....

This too shall pass....... ;)

I highly recommend calling your doctor first thing and fill him in though - maybe you are coming off it too fast.....

In the meantime, sending you lots of hugs and hope the Tylenol PM helps you....

Hugs.

Karen

Judyin Philly Enthusiast

Gosh Lisa I was praying you'd post after you got back. I was so worried about you too.

I read the site too and found this and am going to see what i can find on the SSRI Withdrawal Syndrome.

The jolts of electricity alot of people mentioned, thought you did too but just ck'd and guess you didn't but feverish alot of people said they had. It sure sounds like this is what you are going through. We u on it long? Sounds like a week is a short time based on what the people said.

I hope your not home alone.

It sounds so scarey..if you get worse and are alone..please post and we'll try to talk you through it.

bless your heart...these drugs are so scarey to me..

hugs and prayers coming your way.

PLEASE CALL THE DR IN THE AM.

JUDY

did a cut and paste of this from the thread wolfie posted.--The last sentence is scarey and i know you don't need scarey right now but it's better to be prepared if you need help tonight..ok. We love ya girlfriend

Shocker, the symptoms you are experiencing are not the dizziness, they are separate symptoms that make you feel like you are recieving a jolt of electricity, going from your head to your extremities. These are rare side effects of SSRI withdrawal, but they are symptoms. Be careful of tapering too quickly, you could plunge yourself into SSRI Withdrawal Syndrome, which consists of flu-like symptoms that can leave you bed-ridden for weeks.

Lisa Mentor

Good to know all my girls are here, as well as a good lawyer. (just in case)

Feel better now that I am home. I told every one that I had a a very bad head cold, and as much as i enjoyed it, I should go home. bla bla bla

The sensation is soooo weird. I feel that there are little jolts all over my body from time to time. I wonder if I could lite a litebulb :huh:

Everyone has been so helpful, as I was a little, well alot freekin out about what was happening.

Last night I had the most vivid dreams that I could not even dream about relaying...but so very much disturbing. It still creaps me out in the day time. Terrible things about family and stuff. oooh.

If this is what controlled drugs do............adious for me jack.

Patti. Jim is here and I made him read some postes. He fusses, but, first to be there when I am in need. Don't worry about that.

(This is so weird, my body feels like there are little firecrackers, without the heat, just the pop, in mu muscles)

My better thought is that I will reget this post when I wake up in the morning.

I apparently made a mistake on going off Lexipro too fast. Maybe my unfortunate experience will help some one else. It was wonderful when on it.........apparently, hard to get off.

As I usually sign off, and going to bed: to Patti, Karen and Bronko and the rest of the world, thanks

and everyone else........

......when I come off Lexipro, can I come and visit Rachelville.? :huh:

Good Night, Love you guys. Talk to you in the am.

Lisa

Canadian Karen Community Regular

What are you talking about, can you come visit? YOU'RE THE MAYOR!!!!!

Just curious, do you have the sensation of what feels like a bug crawling on you, but there is nothing there? I had that all over my body also when I was going off Rivotril...... obviously coming off some drugs makes the nerve endings go haywire, I guess.....

Hugs.

Karen

Judyin Philly Enthusiast

Lisa-

Glad you are going to bed.

It looks like i posted while you were writing so glad you didn't see what i wrote about the 'syndrome'

the 'little shockings' seem to be what the others were trying to describe...

hope you have a great nites sleep...

I can't relate to this except for the 'reactions' i get when on predizone..so i sure feel for you.

hugs

Judy

Lisa Mentor

THE MAYOR: Well, Karen, that is an elective post. Consult your constiuents. But remember,I am a bossy Biach. B)

No, the sensation is with a lack of terms "a little electrical small zapp" , not hot, just a buzz feeling.

A small electrical tickle

Rikki Tikki Explorer

Lisa:

If it helps a few years ago I had been taking klonopin for restless legs and decided I should stop taking it, so I stopped just like that. I thought I was going to die, my heart was going crazy, it was just awful. I didn't talk to my doctor about tapering off it, just stopped, and didn't make the connection for several months.

Anyway, I have been to Rachelville and the streets are all rolled up, lights are out, dustbowls everywhere, :lol: save your gas for another day

Lisa Mentor

Love all your post, all my best budds.

Zipp out tonigh. Check in the am.

MAYOR, howly cow, I have enough issues here. Maybe Rachelville, won't have any issues.

Sweet dreams all. See you in the am.

Lisa.xxoo

plantime Contributor

Lisa, just curious: Why are you quitting the Lexapro? I am on 5 mg a day, and have no intention of quitting at this point in my life!

Judyin Philly Enthusiast

lisa

did a cut and past from the sorce listed on the thread..

SSRI Withdrawal Syndrome

--------------------------------------------------------------------------------

The following criteria define the SSRI (or SNRI) withdrawal syndrome:

Criterion A: A course of treatment in which an SSRI (or vanlafaxine) is stopped or interrupted or the dose is reduced after a period of 4 weeks or more.

Criterion B: Two or more of the following symptoms develop within 1 to 10 days of criterion A (except for fluoxetine in which case the symptoms must develop within 28 days):

(a) dizziness or light headedness

(B) nausea and/or vomiting

© headaches

(d) lethargy

(e) anxiety and/or agitation

(f) tingling (paresthesias), numbness or "electric" shock-like sensations in the head or limbs

(g) tremors

(h) sweating

(i)insomnia

(j) irritability

(k) vertigo (dizziness)

(l) diarrhea

maybe this will help just give some info.

judy

debmidge Rising Star

Lisa

It sounds like withdrawal symptoms. My husband had those symptoms when he started Serzone years ago and within 3 weeks had to abruptly stop because the symptoms just intensified. Anti-anxiety/depressants work wonderfully, but there are a lot of neurological side effects that happen.

Call Dr. as soon as his office is open just to alert him to this situation.

wolfie Enthusiast

Just checking in to see how you are feeling today. I hope that you can get in touch with your Dr and figure out a plan. I take Lexapro too and worry about how I am going to get off of it when I am ready to. Please update us and let us know how you are doing. ((((HUGS))))

Canadian Karen Community Regular

Hey Mayor,

Just checking to see how you are this morning.......

Hugs.

Karen

Rikki Tikki Explorer

Hi Lisa:

How are you feeling this morning? Don't forget to call the doctor

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to bold-95's topic in Introduce Yourself / Share Stuff
      2

      I hate to cook!

    2. - Wheatwacked replied to bold-95's topic in Introduce Yourself / Share Stuff
      2

      I hate to cook!

    3. - Wheatwacked replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Cartilage and rib pain.

    4. - knitty kitty replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Cartilage and rib pain.

    5. - bold-95 replied to Diana Swales's topic in Introduce Yourself / Share Stuff
      4

      Recently qualified Nutritionist looking for support


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,394
    • Most Online (within 30 mins)
      7,748

    wstarks
    Newest Member
    wstarks
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      In 70-year-olds, DHEA (Dehydroepiandrosterone) levels are significantly lower than in young adults, typically around 20% of youthful levels, according to the National Institutes of Health (NIH) | (.gov). This decline is a natural part of aging, with DHEA production decreasing from its peak in the third decade of life. While some studies suggest potential benefits of DHEA replacement in older adults, particularly in women, results are not consistently positive across all studies. 
    • Wheatwacked
      Welcome @bold-95.   That's a tough situation.   Understanding DHEA Deficiency in Menopausal Women A major cause of hypothyroid is iodine deficiency.  In the 60's bread had 90 mcg, milk 100 mcg per cup and we used iodized table salt.  A sandwich and glass of milk supplied 300 mcg,  Now in the US bread does not use iodine as dough condition, milk has a bad name and table salt is avoided.  Net reduction from 1970 to 1984 of 50% of iodine intake.   Urinary iodine levels (mg/dL) in the United States, 6-74 years of age NHANES I, 1971-74 Median 32.00 2NHANES III, 1988-91 Median 14.5 NHANES 2000 Median 16.1 There has been a trend for increased prescribing of levothyroxine (LT4) in the United States.  LT4 was the tenth and seventh most commonly prescribed drug based on the number of prescriptions in 2005 and 2006, respectively. From 2008 to 2011 the number of LT4 prescriptions rose from 99 million to 105 million, with LT4 being the second most prescribed medication.1 From 2012 to 2016 the number of annual LT4 prescriptions increased steadily from 112 million to 123 million, with LT4 being the most prescribed medication.2,3 During 2017 and 2018 LT4 was the third most prescribed medication, with 98 million Levothyroxine prescriptions trends may indicate a downtrend in prescribing. DHEA and hypothyroidism are linked, with some evidence suggesting that low DHEA levels may be associated with hypothyroidism.
    • Wheatwacked
      For minor aches and pains, my go to is Original Alka-Seltzer.  Aspirin and bicarbonate.  It is dissoved in water before you swallow it so no tablets to aggravate the stomach wall.  The bicarbonate buffers the stomach acid for upset stomach. Willow bark contains a chemical called salicin, which is similar to aspirin. It has pain and fever reducing effects in the body. The last time I took Advil for serious pain it spiked my BP to 190. Some blood pressure medications have been linked to rib pain or musculoskeletal pain as a side effect.  I had to stop Atnenolol because it had me bent over like a 90 year old with a walker.  Another med prescribe by my doctor left my knees unstable.  Currently, Losartan has weakened my back and thighs.  Can't walk to my mailbox at the street and back without having to rest my legs.  Upper body is however increasing muscle mass.  No one believes me though; think I'm malingering.  Those blood pressure meds also had no effect on my BP, but doctor wants me to continue on (man up, its good for you, with the Losartan + clonidine.  What has been working is Clonidine.  It has lowered my BP. but it is considered third tier BP med.  No side effects and it lowers my BP from 160+ to between 115 and 139.  
    • knitty kitty
      @bold-95, welcome to the forum. Rib pain can be caused by Chondritis, an inflammation of the cartilage in the ribcage or breastbone.  Vitamin D deficiency causes this condition and Osteopenia. Celiac disease damages the lining of the small intestine, making absorption of nutrients like vitamins difficult.  Nutritional deficiencies result.  Diseases can be caused by not having enough of certain vitamins and minerals. Vitamins are chemical compounds that our bodies cannot make, so we must get them from food or supplements.  Vitamins are crucial to our bodies functioning properly.  Eating a nutritionally dense diet is important, but to correct nutritional deficiencies, supplemental vitamins are needed.   Over the counter pain relievers like NSAIDs and PPIs can cause additional inflammation and damage to the small intestine.  OTC pain relievers worked for me but they hurt my digestive system worse.  Yes, Cobalamine Vitamin B12, Pyridoxine B 6, and Thiamine B 1 have an analgesic effect when taken together.   I'm leaving links below so you can see for yourself.   Analgesic and analgesia-potentiating action of B vitamins.     https://pubmed.ncbi.nlm.nih.gov/12799982/#:~:text=Disregarding pain resulting from vitamin,three are given in combination.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/   B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/   Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/   The Combination of Neurotropic Vitamins B1, B6, and B12 Enhances Neural Cell Maturation and Connectivity Superior to Single B Vitamins https://pmc.ncbi.nlm.nih.gov/articles/PMC11987730/  
    • bold-95
      Diana, I replied “ready,” but I’m brand new to the site and don’t know if I replied via the correct place.  I would like to participate.
×
×
  • Create New...