Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To Site, New To Celiac


mythreesuns

Recommended Posts

mythreesuns Contributor

Hello, all! I've been reading your posts for a couple of days and now I thought I'd introduce myself. Some friends from a WebMD board told me how wonderful you all were, so I thought I'd find out for myself.

My name is Toni (on WebMD it's Ann.....long story! LOL). Anyway, I'm 33 and have had over the years:

asthma

chronic sinus infections

Reynaud's Syndrome

Nerve pain (presumably from my bad back)

Migraines

panic attacks/anxiety

chronic acid reflux

chronic diarrhea

bloating/gas

Restless Leg Syndrome

arthritis (the one that finally sent me over the edge!)

I went to the dr and went through a series of tests (blood test and endoscopy biopsy came up negative) I went lactose free, and when that didn't work I went MILK free. And, when that didn't work and I found out I have arthritis, I decided to FINALLY listen to some very nice people who said CELIAC, CELIAC, CELIAC!!! lol

I am doing a gluten-free trial on my own, as my GP thinks it's impossible to have celiac because its so rare, and my gastro dr thinks it's not possible either because the blood test was negative. Well, that may be, but I'm SICK AND TIRED of being SICK AND TIRED so I went ahead with the diet anyway because I can' imagine at this point what else could be going on with me.

What I'm hoping to get from all of you is some support, and some answers to those stupid questions everyone asks in the beginning.

A little more personal background on me: I'm married 13 years, and have 3 wonderful boys. Our 12 y.o. has Asperger's and is selectively mute. Our 9 y.o. has OCD and Tourette's (and I'm not ruling out celiac, as I do recall some antibody showing up on his bloodwork that had us scared about juvenile arthritis or some other auto-immune disease and he has chronic diarrhea as well), and our 2 y.o. has verbal apraxia and SID and is being potty trained FINALLY! We all live in NJ with our dog, Mandy, and our cat, Koocha.

I hope to get to know all of you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beaglemania Rookie

Hello Toni, welcome to the board!! I hope the Celiac diet works for you and you begin to feel better!!! :)

jerseyangel Proficient

Hi Toni--welcome! :)

You've come to the right place for advice/support with the gluten-free diet.

Read over the old posts--there's a ton of information here. Anything you can't find an answer to, feel free to ask!

ravenwoodglass Mentor
Hello, all! I've been reading your posts for a couple of days and now I thought I'd introduce myself. Some friends from a WebMD board told me how wonderful you all were, so I thought I'd find out for myself.

My name is Toni (on WebMD it's Ann.....long story! LOL). Anyway, I'm 33 and have had over the years:

asthma

chronic sinus infections

Reynaud's Syndrome

Nerve pain (presumably from my bad back)

Migraines

panic attacks/anxiety

chronic acid reflux

chronic diarrhea

bloating/gas

Restless Leg Syndrome

arthritis (the one that finally sent me over the edge!)

I went to the dr and went through a series of tests (blood test and endoscopy biopsy came up negative) I went lactose free, and when that didn't work I went MILK free. And, when that didn't work and I found out I have arthritis, I decided to FINALLY listen to some very nice people who said CELIAC, CELIAC, CELIAC!!! lol

I am doing a gluten-free trial on my own, as my GP thinks it's impossible to have celiac because its so rare, and my gastro dr thinks it's not possible either because the blood test was negative. Well, that may be, but I'm SICK AND TIRED of being SICK AND TIRED so I went ahead with the diet anyway because I can' imagine at this point what else could be going on with me.

What I'm hoping to get from all of you is some support, and some answers to those stupid questions everyone asks in the beginning.

A little more personal background on me: I'm married 13 years, and have 3 wonderful boys. Our 12 y.o. has Asperger's and is selectively mute. Our 9 y.o. has OCD and Tourette's (and I'm not ruling out celiac, as I do recall some antibody showing up on his bloodwork that had us scared about juvenile arthritis or some other auto-immune disease and he has chronic diarrhea as well), and our 2 y.o. has verbal apraxia and SID and is being potty trained FINALLY! We all live in NJ with our dog, Mandy, and our cat, Koocha.

I hope to get to know all of you!!

Hi Toni, I am so glad to see you made it to the group. You will find a wealth of info here. It won't be long till you join us celiac nags on WebMD. :D

Anyway glad to see you here. Welcome.

:ph34r::ph34r::ph34r: Kris :ph34r::ph34r::ph34r:

Can you guess which WebMD nag I am :D

mythreesuns Contributor

Kris, hello!!!!!!!!!

Yeah, I forgot my password, so I couldn't log on at work. Had to wait until I had time at night to get the e-mail.

Anyway, at least you know that something you said got through to SOMEone, right? LOL

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,069
    • Most Online (within 30 mins)
      7,748

    Mapia
    Newest Member
    Mapia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.