Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rachelville 2

Rachel--24

Recommended Posts

nikki-uk Enthusiast
nikki-uk
Posted

Great news!!!

Enjoy camping!! :D:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 1.7k
  • Created
  • Last Reply
2Boys4Me Enthusiast
2Boys4Me
Posted

Whew. Glad to hear he's all right.

Better you than me camping...I do have to do a scout bottle drive tomorrow morning, I think the forecast is for sunny and 7. I have my fingers crossed.

jerseyangel Proficient
jerseyangel
Posted

Oh Sandy, that is the absolute best news! :D:D

AndreaB Contributor
AndreaB
Posted

Sandy,

A big sigh of relief.

Have fun camping! :)

2kids4me Contributor
2kids4me
Posted

Thank you everyone - so good to share great news!

Linda - you mean you guys didnt have enough fun selling popcorn? :D

AND that the wind wont be blowing either - the other day, I thought our railings were going to blow off, the school flagpole snapped and I tried to walk my dog (nature calls) and she was getting buffeted around.

I only have to camp one night, they have someone out there for tonight and after I drop off stuff for our church tea and bazaar - I am grabbing my bedroll and heading out.

Sandy :)

2Boys4Me Enthusiast
2Boys4Me
Posted

Ha Ha. We only did one block. Luckily the people at my and my husband's office are pigs. Family, too. The thing that bugged me about popcorn is the guy made it sound like it was mandatory to go door to door and it turns out it's optional.

I remember the first bottle drive. We were thinking What! He's been a Beaver for a day and he has a bottle drive? :blink:

Ty has hockey tomorrow morning, but I'd rather not risk the weather in January or March, so I'll be out there sorting by myself until he shows up to help.

Holy cow! That wind! Any damage down there? We were okay.

2kids4me Contributor
2kids4me
Posted

we had some damage to eavestrough, other houses had shingles blown off, one tree toppled into a garage. We had semis everywhere parked in town.. at least 5 were in the ditch to the west and south of us... so when truckers got here - they stopped!

They always push the door to door cause it increases sales = more money to the big guys. We did pretty good here - we only have 5 beavers, 2 cubs and 7 scouts... we sold close to $9,000 in popcorn!!

Sandy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author
GOOD NEWS!!!!!!!!!!!!!!!!!!!

Bone scan normal! So the part of his femur that looked abnormal is not "active" whcih means he must have, at some point in the past banged his thigh hard enough to cause a bit of bone reaction. Not sure when, but he IS a boy! :D

YEAH

AWESOME!!

What a relief Sandy.....thats great news. :)

Have fun on the camping trip!

I LOVE camping.....its one of my favorite things. :)

Daxin Explorer
Daxin
Posted

Sansy, that's great news!!! Hope the camping goes well.

Well folks, I'm going to be rather inactive for the next month or so. I am off on a course that I need for my career advancement, and will be limited in my internet use for a while.

I want to wish you all a very happy Thanksgiving, and to wish you all the warmest start to your HUGE holiday seasons.

Talk to you all as soon as I can,

Ryan

jerseyangel Proficient
jerseyangel
Posted

Warmest holiday wishes to you and your family, Ryan!

Take care--we'll be here when you get back :)

AndreaB Contributor
AndreaB
Posted

Good to see you Ryan, although briefly. I've been wondering if you were still with us.

We'll be here when you can return. :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hello all... I havent been around too much again.. I hope everyone is doing well

Sandy.. glad to hear all turned out well!

Ryan.. good luck! see you when you get back.

  • 4 weeks later...
Daxin Explorer
Daxin
Posted

Well, I am back, but now have 50 odd pages of unread posts to wade through.

It's good to be home.

nikki-uk Enthusiast
nikki-uk
Posted
Well, I am back, but now have 50 odd pages of unread posts to wade through.

It's good to be home.

Welcome back Ryan - it must be great to be home!! :):)

jerseyangel Proficient
jerseyangel
Posted
Well, I am back, but now have 50 odd pages of unread posts to wade through.

It's good to be home.

Ryan! Nice to have you back! When you get a chance, you'll have to fill us in--hope your assignment is going well.

Bet the family is so-o-o happy that you're home :D

AndreaB Contributor
AndreaB
Posted

Welcome Back Ryan!

Hope all is well with you. Updates when you can. :)

  • 4 weeks later...
2kids4me Contributor
2kids4me
Posted

Its nice to be here in Rachelville. I have been unable to get to the site becasue I had an old version of explorer which kept telling me - page is unavailable. Fixed it so now I can see I have 61 pages to sift thru!

My mother in Law passed away last week and we had the funeral 2 days ago. Very hard on kids as this grandma lived close by and adored the kids and spoiled them as Grandmas are supposed to do. She was in ICU for 5 weeks when they decided to discontunue life support. She died of complications related to heart meds. Apparently a drug called Amniodarone can cause lung scarring.

And just because life is never dull, Kathryn has bilirubin and protein in her urine, GP here did basic liver function tests and said ' Oh there all fine. That was Dec 28/06. I asked for a referral to pediatrician and still waiting, so called and asked them to check on status of referral.

I had asked that autoimmune hepatitis be ruled out and he (the doc) gave me "the look" and said:" well those tests are very expensive". Yeah okay, so refer me please to someone who deals with chidlren who have multiple immune mediated illnesses and then we'll see. I lalso know that bilirubin in the urine is the earliest sign of a problem in the liver (a problem with red blood cells has been ruled out).

SIGH....................

and THEN at the funeral, at least 3 relatives on my husband's side of the family all assure me that the children will "outgrow" celiac..... because THEY did! So I said bluntly - you dont outgrow celiac, you can still have ongoing damage but no outward symptoms. I ended it like that cause a funeral is no place for the debate - they are all adults, I have enought to deal with..

I really do wish Rachelville existed in a physical form and I could move there.

Sandy

2Boys4Me Enthusiast
2Boys4Me
Posted

Sigh, Sandy, what a rough time you've had. ((hug))

Good luck with getting to a pediatrician quickly.

nikki-uk Enthusiast
nikki-uk
Posted

Oh boy Sandy - you have had alot to deal with! :(

I'm really sorry for your loss.

Hope you get some answers for Kathryn - gosh it's alway's something to worry about with kids isn't it? <_<

..and as for the relatives who've 'outgrown' celiac disease....*sigh*...well you can only try and correct them! :blink:

Yes..in Rachelville you would not have to deal with such people!! :lol:

AndreaB Contributor
AndreaB
Posted

Sandy,

I'm sorry about the loss of your MIL. That's got to be tough dealing with that on top of the "outgrow celiac" and Kathryn.

I hope you can get in to see the ped. soon and get some testing to get things ruled in or out.

HUGS.

2kids4me Contributor
2kids4me
Posted

Thank you all for such quick replies of support and empathy!! This is such a wonderful place. Just reading them has boosted my spirit !! :):)

Sandy

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Its nice to be here in Rachelville. I have been unable to get to the site becasue I had an old version of explorer which kept telling me - page is unavailable. Fixed it so now I can see I have 61 pages to sift thru!

Sandy,

I dont know what I would do if I couldnt access this site. :blink:

Glad that you got the problem fixed and we're glad to see you back here. :)

Sorry about all that you've been going through....I guess when it rains it pours. :(

I hope the Dr.s can figure out whats going on with Kathryn and I'm very sorry about the loss of your MIL.

Daxin Explorer
Daxin
Posted

Sandy,

My thoughts and prayers to you and you family. It is never easy when things seem to all pile up at once like that.

I hope you find some answers for Kathryn quickly! :)

If Rachelville existed in a real way, I think we would ALL benefit from a move.

Please keep us posted.

Mtndog Collaborator
Mtndog
Posted

Sandy- I'm so sorry about your loss and your experience at the funeral. :(

I hope that everything turns out OK with Kathryn. I'll keep you all in my thoughts and prayers.

Judyin Philly Enthusiast
Judyin Philly
Posted

SANDY..SO SORRY FOR YOUR LOSS AND THE FUNERAL EXPERIENCE

HUGS COMING YOUR WAY.

I'M SO GLAD TO SEE RACHELVILLE BACK UP AND RUNNING. I HAVEN'T CK'D THE LAST FEW PAGES AT ALL...JUST GLAD TO SEE YOU GUYS AGAIN.

MISSED YOU ALL.

LET'S KEEP THIS ACTIVE, OK.

JUDY IN PHILLY

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,974
    • Most Online (within 30 mins)
      7,748
    LRB
    Newest Member
    LRB
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.