Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rachelville 2


Rachel--24

Recommended Posts

flagbabyds Collaborator

08 08 08 08 08 08

WE BEAT THE SENIORS!!!!!!!!!!!!!!

YAY!

I NOW HAVE TO DO HOMEWORK

I WILL HAVE PICTURES UP THIS WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 1.7k
  • Created
  • Last Reply
AndreaB Contributor

WooHoo! Good for your team! :D

Green12 Enthusiast
08 08 08 08 08 08

WE BEAT THE SENIORS!!!!!!!!!!!!!!

YAY!

I NOW HAVE TO DO HOMEWORK

I WILL HAVE PICTURES UP THIS WEEKEND!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Congratulations Molly! Looking forward to seeing the pictures and hearing all about it :)

Jessica, what have you been up to, wild on monkey island?? Please elaborate :lol::lol:

nikki-uk Enthusiast

Hi fellow citizens!

Firstly, I must update you on my Felix (kitty).

The vet was very pleased with him this week and he is responding to the meds! :)

She thinks if he gets through the next month then he may actually have a few years in him yet but cats are notorious for going downhill fast-so fingers crossed for my furry friend !!

Secondly,my son's biopsy results came in today (I've just posted in Parents of babies and children)

and celiac disease has been confirmed.

I am pleased that we know what we're are dealing with, but I am a little down. *sigh*

Only today Alan complained that his hip and legs were hurting,and after 5 mins of running round in the garden he said he was ''too tired Mum'' ( :( )

As Alan has Downs Syndrome he just doesn't understand the ramifications of the diet, and all the negative aspects of the diet are at the forefront of my mind ( :( )

Even a silly thing today dragged me down.

My Mum was over and she wanted to buy him an ice cream (in a cone) but when I explained he couldn't have it anymore she commented that it was much harder for Alan than for Terry (hubby) and I suppose up to now -even though I knew it was coeliac,I didn't want to think about the actual specifics.

We are to be sent an obligatory appointment for the dietician ( :rolleyes: ) and you never know- maybe I can teach her a thing or two.LOL !! :lol::lol: (trying desperately to laugh at my own humour!)

I will go into his school on Monday and 'tackle' the kitchen staff and see if there's anyway they can accomodate him with a school dinner-but I think he'll probably have to have packed lunch.

This will be an oppurtunity for me to brush up on my cooking skills!!( :ph34r: )

Alan's birthday is on Wednesday , and my cake making skills weren't renound even when using gluten flour!!! :lol:

Sorry I'm so gloomy- just needed to vent. It's not the end of the world , I know, but sometimes I feel like life has dealt my son a cr@p hand :(

(Ahhh,hubby just gave me a chocolate bar-said it would make me feel better!! :D )

I explained to my eldest son (he's 17 yrs ) that Alan has definitely got celiac disease and he asked me if he could get tested as he feels he's got some of the symptoms (stomach aches ,loose stools achey bones )

OH DEAR LORD!!! (Damn those Genes!!!!)

I said I'll make an appt to go to the G.P with him in the week :unsure:

Well, I must make the effort to cheer up- I'll see what the 40ish girls are up to, and see what laughs are in the tickle me elbow thread (I need a laugh!)thanks for listening-what would I do without you :D:D

CarlaB Enthusiast

Nikki, it was harder for me when Chloe was diagnosed than it was when I was diagnosed. It's natural to feel as you do. Eat another chocolate bar!

AndreaB Contributor

HUGS Nikki.

I know it's a lot to deal with. We are holding your hand and will help as much as possible.

Hang in there.....isn't chocolate good? Not to much though or you'll get a tummy ache. :)

nikki-uk Enthusiast

Thanks girls!! :)

Carla,-LOVING those braces!!! :D

Not to much though or you'll get a tummy ache. :)

DEATH BY CHOCOLATE!!!!! :lol:

Seriously though, I feel better already getting it off my chest. :)

I'm going to try and find a suitable pic of my new coeliac for my avatar. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

new pic this is of me after the dance not in costume with my gelled hair down and really really gross.

yeah i have more i will make a photo site and i will give it to y'alls.

AndreaB Contributor

We'll hold you to that Molly. Looking forward to seeing them.

flagbabyds Collaborator

i can't do it the way i usually so where can i put pics up for free and everyone can see them>????

Guest melannen
i can't do it the way i usually so where can i put pics up for free and everyone can see them>????

I use photobucket.com, just make sure to make your album public. or you could try flicker; I haven't had any experience with them but I know my aunt loves it!

flagbabyds Collaborator

Open Original Shared Link

i didn't title them, ask if you have questions i will get more pictures later on when my friends post their and some from the game today.

flagbabyds Collaborator

anyone here?

it's slowly dying

nikki-uk Enthusiast

I'm here Molly!!

OMG ,those Sumo costumes look like great fun!!! :lol::lol:

flagbabyds Collaborator

yeah that is the last game of homcming week and the day ralley and you have the biggest guy in your year do the summo wrestling

it's really funny to watch

AndreaB Contributor

Nice pics Molly. Just looked at them. Will be looking forward to what your friends have.

flagbabyds Collaborator

new avatar it is of me at the dress rehersal in costume and with the hair but no make-up

CarlaB Enthusiast

Nice pics Molly. Looks like you had fun!

TinkerbellSwt Collaborator

Hello All!!! We are back from Disney!!!

first Congrats to Molly! WTG on the win!

Now, Disney was great! I was in gluten free heaven!! I couldnt believe it! At one restaurant alone, in the Magic Kingdom, we got the greatest chef to come out and talk to me. He could make me anything on the menu gluten free. He also told me of all the stuff I could get thru out the parks.

The only mishap we had was in Epcot. We went to the restaurant, for my son to eat, as no one else was eating b/c it was the food and wine festival. I waited 20 minutes in line for my turn. I got to the front and a not so nice employee told me there was nothing that they could do for me!!! When I asked about a gluten free hamburger roll, he showed me the ingredient list for Wonder Bread rolls and said that was it!!

I went to Guest Relations a bit upset, the manager took me back to the restaurant, spoke to the manager and got my son a gluten free meal for free! They were also willing to feed my entire family, but we didnt want it.

Enough about the food... we had a great time! Colin loved the characters! We had so much fun at the character dinner with him. It was a blast. It was completely different being there for him than it was for myself, but it was amazing to see him so happy.

I hope this finds everyone well. We are good, just very tired. I am trying to get Colin back into the swing of things here... he is resisting that a bit! I will post a new avatar soon, probably of Colin and some character. Take care everyone!!!

Green12 Enthusiast

Molly, great pictures!!! Looks like you and your friends had so much fun :)

Stephanie, welcome back :) Good to hear you had such a wonderful trip in the land of Disney, only for that one mishap, but sounds like you got it all worked out.

AndreaB Contributor

Sounds like a great trip Stephanie. How often can you rave about a place catering to celiacs?

Will wait for you to get some rest and get back into the swing of things with Colin.....but am interested in seeing the new avatar.

CarlaB Enthusiast

Stephanie, thanks for letting us know about your trip. Disney sounds wonderful ... I have been there many times, but not since diagnosed.

Daxin Explorer

Glad to hear you had such a good time Stephanie. I am planning a trip there in the next year or so. I am impressed they make it so easy to get along there.

2Boys4Me Enthusiast

Stephanie - were you in Florida or California? We are going to Disneyland in California in December. The boys know that I have bought and paid for a trip to be taken sometime "later". Glenn travels a bit for work, so we will go to the airport with the idea of dropping Dad off for a trip and then we'll just all go. Sneaky :ph34r:.

I found some info on the Calgary Celiac site and we will be phoning "Chef Chris" who is supposed to give us the lowdown on eating gluten-free. I also just ordered the Triumph cards, so that might help us out when we're not in the park.

TinkerbellSwt Collaborator

We were in Disney World. I havent been to Disneyland in years. I am sure they will be just as accomodating there. They said all their places to eat have to be. In Disney World even the restaurants that are not Disney owned, such as Rainforest Cafe, Fultons and others have to be up to Disney standards and accomodate all allergys at all times. I thought that was pretty great too!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...