Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rachelville 2

Rachel--24

Recommended Posts

nikki-uk Enthusiast
nikki-uk
Posted

Great news!!!

Enjoy camping!! :D:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 1.7k
  • Created
  • Last Reply
2Boys4Me Enthusiast
2Boys4Me
Posted

Whew. Glad to hear he's all right.

Better you than me camping...I do have to do a scout bottle drive tomorrow morning, I think the forecast is for sunny and 7. I have my fingers crossed.

jerseyangel Proficient
jerseyangel
Posted

Oh Sandy, that is the absolute best news! :D:D

AndreaB Contributor
AndreaB
Posted

Sandy,

A big sigh of relief.

Have fun camping! :)

2kids4me Contributor
2kids4me
Posted

Thank you everyone - so good to share great news!

Linda - you mean you guys didnt have enough fun selling popcorn? :D

AND that the wind wont be blowing either - the other day, I thought our railings were going to blow off, the school flagpole snapped and I tried to walk my dog (nature calls) and she was getting buffeted around.

I only have to camp one night, they have someone out there for tonight and after I drop off stuff for our church tea and bazaar - I am grabbing my bedroll and heading out.

Sandy :)

2Boys4Me Enthusiast
2Boys4Me
Posted

Ha Ha. We only did one block. Luckily the people at my and my husband's office are pigs. Family, too. The thing that bugged me about popcorn is the guy made it sound like it was mandatory to go door to door and it turns out it's optional.

I remember the first bottle drive. We were thinking What! He's been a Beaver for a day and he has a bottle drive? :blink:

Ty has hockey tomorrow morning, but I'd rather not risk the weather in January or March, so I'll be out there sorting by myself until he shows up to help.

Holy cow! That wind! Any damage down there? We were okay.

2kids4me Contributor
2kids4me
Posted

we had some damage to eavestrough, other houses had shingles blown off, one tree toppled into a garage. We had semis everywhere parked in town.. at least 5 were in the ditch to the west and south of us... so when truckers got here - they stopped!

They always push the door to door cause it increases sales = more money to the big guys. We did pretty good here - we only have 5 beavers, 2 cubs and 7 scouts... we sold close to $9,000 in popcorn!!

Sandy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author
GOOD NEWS!!!!!!!!!!!!!!!!!!!

Bone scan normal! So the part of his femur that looked abnormal is not "active" whcih means he must have, at some point in the past banged his thigh hard enough to cause a bit of bone reaction. Not sure when, but he IS a boy! :D

YEAH

AWESOME!!

What a relief Sandy.....thats great news. :)

Have fun on the camping trip!

I LOVE camping.....its one of my favorite things. :)

Daxin Explorer
Daxin
Posted

Sansy, that's great news!!! Hope the camping goes well.

Well folks, I'm going to be rather inactive for the next month or so. I am off on a course that I need for my career advancement, and will be limited in my internet use for a while.

I want to wish you all a very happy Thanksgiving, and to wish you all the warmest start to your HUGE holiday seasons.

Talk to you all as soon as I can,

Ryan

jerseyangel Proficient
jerseyangel
Posted

Warmest holiday wishes to you and your family, Ryan!

Take care--we'll be here when you get back :)

AndreaB Contributor
AndreaB
Posted

Good to see you Ryan, although briefly. I've been wondering if you were still with us.

We'll be here when you can return. :)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hello all... I havent been around too much again.. I hope everyone is doing well

Sandy.. glad to hear all turned out well!

Ryan.. good luck! see you when you get back.

  • 4 weeks later...
Daxin Explorer
Daxin
Posted

Well, I am back, but now have 50 odd pages of unread posts to wade through.

It's good to be home.

nikki-uk Enthusiast
nikki-uk
Posted
Well, I am back, but now have 50 odd pages of unread posts to wade through.

It's good to be home.

Welcome back Ryan - it must be great to be home!! :):)

jerseyangel Proficient
jerseyangel
Posted
Well, I am back, but now have 50 odd pages of unread posts to wade through.

It's good to be home.

Ryan! Nice to have you back! When you get a chance, you'll have to fill us in--hope your assignment is going well.

Bet the family is so-o-o happy that you're home :D

AndreaB Contributor
AndreaB
Posted

Welcome Back Ryan!

Hope all is well with you. Updates when you can. :)

  • 4 weeks later...
2kids4me Contributor
2kids4me
Posted

Its nice to be here in Rachelville. I have been unable to get to the site becasue I had an old version of explorer which kept telling me - page is unavailable. Fixed it so now I can see I have 61 pages to sift thru!

My mother in Law passed away last week and we had the funeral 2 days ago. Very hard on kids as this grandma lived close by and adored the kids and spoiled them as Grandmas are supposed to do. She was in ICU for 5 weeks when they decided to discontunue life support. She died of complications related to heart meds. Apparently a drug called Amniodarone can cause lung scarring.

And just because life is never dull, Kathryn has bilirubin and protein in her urine, GP here did basic liver function tests and said ' Oh there all fine. That was Dec 28/06. I asked for a referral to pediatrician and still waiting, so called and asked them to check on status of referral.

I had asked that autoimmune hepatitis be ruled out and he (the doc) gave me "the look" and said:" well those tests are very expensive". Yeah okay, so refer me please to someone who deals with chidlren who have multiple immune mediated illnesses and then we'll see. I lalso know that bilirubin in the urine is the earliest sign of a problem in the liver (a problem with red blood cells has been ruled out).

SIGH....................

and THEN at the funeral, at least 3 relatives on my husband's side of the family all assure me that the children will "outgrow" celiac..... because THEY did! So I said bluntly - you dont outgrow celiac, you can still have ongoing damage but no outward symptoms. I ended it like that cause a funeral is no place for the debate - they are all adults, I have enought to deal with..

I really do wish Rachelville existed in a physical form and I could move there.

Sandy

2Boys4Me Enthusiast
2Boys4Me
Posted

Sigh, Sandy, what a rough time you've had. ((hug))

Good luck with getting to a pediatrician quickly.

nikki-uk Enthusiast
nikki-uk
Posted

Oh boy Sandy - you have had alot to deal with! :(

I'm really sorry for your loss.

Hope you get some answers for Kathryn - gosh it's alway's something to worry about with kids isn't it? <_<

..and as for the relatives who've 'outgrown' celiac disease....*sigh*...well you can only try and correct them! :blink:

Yes..in Rachelville you would not have to deal with such people!! :lol:

AndreaB Contributor
AndreaB
Posted

Sandy,

I'm sorry about the loss of your MIL. That's got to be tough dealing with that on top of the "outgrow celiac" and Kathryn.

I hope you can get in to see the ped. soon and get some testing to get things ruled in or out.

HUGS.

2kids4me Contributor
2kids4me
Posted

Thank you all for such quick replies of support and empathy!! This is such a wonderful place. Just reading them has boosted my spirit !! :):)

Sandy

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Its nice to be here in Rachelville. I have been unable to get to the site becasue I had an old version of explorer which kept telling me - page is unavailable. Fixed it so now I can see I have 61 pages to sift thru!

Sandy,

I dont know what I would do if I couldnt access this site. :blink:

Glad that you got the problem fixed and we're glad to see you back here. :)

Sorry about all that you've been going through....I guess when it rains it pours. :(

I hope the Dr.s can figure out whats going on with Kathryn and I'm very sorry about the loss of your MIL.

Daxin Explorer
Daxin
Posted

Sandy,

My thoughts and prayers to you and you family. It is never easy when things seem to all pile up at once like that.

I hope you find some answers for Kathryn quickly! :)

If Rachelville existed in a real way, I think we would ALL benefit from a move.

Please keep us posted.

Mtndog Collaborator
Mtndog
Posted

Sandy- I'm so sorry about your loss and your experience at the funeral. :(

I hope that everything turns out OK with Kathryn. I'll keep you all in my thoughts and prayers.

Judyin Philly Enthusiast
Judyin Philly
Posted

SANDY..SO SORRY FOR YOUR LOSS AND THE FUNERAL EXPERIENCE

HUGS COMING YOUR WAY.

I'M SO GLAD TO SEE RACHELVILLE BACK UP AND RUNNING. I HAVEN'T CK'D THE LAST FEW PAGES AT ALL...JUST GLAD TO SEE YOU GUYS AGAIN.

MISSED YOU ALL.

LET'S KEEP THIS ACTIVE, OK.

JUDY IN PHILLY

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.