Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr Is Testing Me For Lyme And Lupus

mythreesuns

By mythreesuns
in Related Issues & Disorders

Recommended Posts

mythreesuns Contributor
mythreesuns
Posted

and other auto-immune stuff.

This is my primary dr, and he's still working under the assumption that I don't have issues with gluten. I called him today because the pain has gotten progressively worse all week, especially this morning. I could barely walk to the bathroom this morning!

What's the likelihood that all my symptoms (migraines, arthritis, diarrhea, bloating and gas, etc.) could be attributed to one of these conditions: Lupus, Lyme, RA

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rinne Apprentice
rinne
Posted

I don't know so much but I do know that is true for Lyme.

kabowman Explorer
kabowman
Posted

I was tested for all that too, after going gluten-free and my doc supported that, except all she said was, great, glad you figured it all out, well thanks.

Anyway, they still watch my thyroid occasionally but, I was treated for lyme disease by a dermatologist, even though all the tests came back negative, for 6 months and I got better - I didn't think it would work, I didn't think it was lyme, I really suspected lupus or RA, and I quit taking the meds when I got better and haven't gone back to the doc. Now, I do have some other lingering side effects but not bad and not worth worrying about.

Either way, the tests are often false negatives and if you are having problems, in addition to the gluten intolerance, keep looking. Another thing I figured out was, I cannot have hardly any sugar and it really causes me to have a lot of ups and downs.

Once I figured out ALL my food issues, my joint pain went away. My rashes are under control by my allergist (rosacea and eczema). I almost hate getting ready in the AM now, 4 different creams, ointments, and gels but they work.

Nancym Enthusiast
Nancym
Posted

Lyme disease is very tricky to find once it has been in the body for awhile. It leaves the blood and goes elsewhere. If you suspect you have it, you should probably try to find someone extremely knowledgeable about it.

imsohungry Collaborator
imsohungry
Posted
Lyme disease is very tricky to find once it has been in the body for awhile. It leaves the blood and goes elsewhere. If you suspect you have it, you should probably try to find someone extremely knowledgeable about it.

I agree with NancyM. Finding an extremely knowledgable dr. is important in dx. any autoimmune disease (because the symptoms mimic those of other illnesses and are often not easily pinpointed by simple bloodwork). Can you be referred to a rheumatologist? If you have a PPO insurance plan, you may not even need to be referred. Good luck to you! :) -Julie

mythreesuns Contributor
mythreesuns
Posted
  • Author
Can you be referred to a rheumatologist?

The dr said if anything iffy shows up on all the bloodwork he's referring me to a rheumatologist. I USED to have a PPO but now I have an HMO. :(

But I have a fairly good primary who listens and is willing to refer if he thinks something is over his head.

up-late Rookie
up-late
Posted

My old doc tested me for these when I was ending up in his office twice a week with the same symptoms. Mine came back negative, but then he told me I didn't have osteo-athritis either when the specialist showed me my x-rays and they clearly showed I did. :angry: Press him to continue tests or refer you. Don't let him fob you off.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mythreesuns Contributor
mythreesuns
Posted
  • Author
Press him to continue tests or refer you. Don't let him fob you off.

My dr's been pretty good so far. He's already confirmed arthritis from the x-ray on my toe; this was before everything ELSE started hurting, so he is not taking the pain lightly. He's already pointed out that some things don't make sense; I'm young for osteoarthritis which seems to making him curious about what's giving me the arthritis, and I didn't develop migraines until I was 31, which is very uncommon.

I have a feeling I'll end up with a rheumatologist. I'll make sure of it. :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,230
    • Most Online (within 30 mins)
      7,748
    CarolfromSanDiego
    Newest Member
    CarolfromSanDiego
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Betsy Crum
      Chest pain from celiac

      By Betsy Crum · Posted

      Thank you for your response! I have considered starting a food diary in the past, I suppose this is as good a time as any to start.  
    • Betsy Crum
      Chest pain from celiac

      By Betsy Crum · Posted

      I don't have health insurance so I have never had any testing done. I always thought if I stay away from gluten Ill be fine but I suppose that isn't enough anymore. I will look into getting an allergy test. Thank you for your input! 
    • trents
      Celiac Brand for Indian grocery

      By trents · Posted

      I remember reading an article summarizing testing done by Gluten Free Watchdog on several brands of dried lentils. They were all heavily cross contaminated with wheat and the commentary was to the effect that dried lentils in general were the most heavily cross contaminated product category in their testing data base. So, I would definitely not use any dried lentil product that was not tested to be Gluten Free (<20ppm of gluten) or Certified Gluten Free (<10ppm of gluten).
    • Scott Adams
      Celiac Brand for Indian grocery

      By Scott Adams · Posted

      While spices, lentils, beans and chickpeas are naturally gluten-free, the main concern with any brand is cross-contamination during processing and packaging. Since Suraj doesn't appear to certify their products as gluten-free or use dedicated gluten-free facilities, there is some risk of trace gluten exposure, especially with their corn flour which could be milled on shared equipment with gluten-containing grains. For absolute safety, I'd recommend looking for brands that are certified gluten-free by organizations like GFCO - good options include McCormick for spices, TruRoots or Bob's Red Mill for lentils and beans, and Anthony's for corn flour. That said, if you need to use Suraj products, be sure to carefully check labels for any wheat warnings, thoroughly rinse lentils and beans before cooking, and consider contacting the manufacturer directly to ask about their gluten testing protocols. Many in our community have found that investing in certified gluten-free brands gives them greater peace of mind and helps avoid accidental gluten exposure, especially for higher-risk items like flours.
    • Scott Adams
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Scott Adams · Posted

      Dapsone, commonly prescribed for dermatitis herpetiformis (the itchy gluten-related skin condition), comes with several potential side effects that patients should monitor. The most frequent issues include blood-related problems like hemolytic anemia (especially in those with G6PD deficiency, which is more common in certain ethnic groups) and methemoglobinemia that can cause fatigue, shortness of breath, or bluish skin. Many patients also experience headaches, nausea, dizziness, or skin sensitivity to sunlight. While these effects are often manageable, there are rare but serious risks including dapsone hypersensitivity syndrome (with fever, rash and organ inflammation), liver problems, or severe anemia that require immediate medical attention. That's why doctors typically monitor blood counts and liver enzymes regularly during treatment. A crucial tip: proton pump inhibitors like omeprazole can interfere with dapsone's effectiveness, so discuss all medications with your doctor. If you develop fever, unexplained fatigue, yellowing skin/eyes, or a spreading rash while on dapsone, stop taking it and contact your healthcare provider right away. For celiac patients specifically, remember that strict gluten-free eating may eventually reduce or eliminate the need for dapsone to control dermatitis herpetiformis symptoms over time.
×
×
  • Create New...