Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 + 2 = Celiac?


Nantzie

Recommended Posts

Nantzie Collaborator

I was thinking about this today. What odd things make sense now that you know you've have (or may have always had) celiac. Just those odd things that aren't necessarily symptoms, but that now make you think, A-HA!!! So that's what that was!!!

For me it's:

- Almost passing out when I tried wheatgrass as part of one of my New Year's Resolution Health Kicks. I had a 2.5yo and a 1yo at the time and I was home alone. Scary!

- At different times either gaining 25 pounds for no reason (low fat = high carb = high gluten diet) in a matter of weeks, or LOSING 25 pounds for no reason within a few weeks. Okay..., that was a symptom. But tell that to a 25yo who doesn't know any better that now that she fits into a size 6 she should go to the doctor. "She " just thanked her lucky stars and went shopping... I didn't know any better than to wonder if my digestive problems had anything to do with it.

So what are your 20/20 hindsight realizations?

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

Realising that coeliac was the reason I was always hungry, I am the opposite now.

Feeling the weight of the world on my shoulder, but now it has lightened.

Feeling that my brain power was slipping away, thinking it was an age thing, and not diet related.

Just an unhappy person, wondering what there was to live for. But I think meeting my future husband during one of my sad times, helped me through that and gave me a reason to smile. But I don't doubt that coeliac helped me get so low.

Cathy

Guest ~jules~

Hmmm.....going from a size 10 to a 4 in 3 months or less, depression battles since age 16, nausea, bloating, gas, the big D all the time, irritablitly all the time, headaches, eyeball aches. The ones that are really making me go "ooohhh I get it now" are the horrible leg cramps at night, sleeplessness, mouth sores, hair loss. Most of those were after my "trigger" which was 2-21/2 years ago, but the depresssion and stomach problems have been constant since I can remember, and aside from having my kids, I have always been too thin....

Guest nini

I think the biggest one is the depression/anxiety that I suffered through for so many years. The ADD symptoms where I couldn't concentrate on anything, and the fact that despite how little I actuallyate, that I couldn't lose weight.

elye Community Regular

I have always had much better blood sugar control when my grain intake stays low...and I'm sure now that many of the past sudden spikes in my BS, "for no good reason", were caused by a gluten-filled meal. Brown rice and gluten-free pasta have never caused these fluctuations like a slice of rye toast did. Amazing how illuminating hindsight can be!...

kbtoyssni Contributor

The depression going away was something that surprised me when I went gluten-free. And how much energy I have now. I knew gluten made me fatigued, but I didn't realize it was that bad!

lonewolf Collaborator

Now I know that having 12 cavities at one visit (about age 9) to the dentist REALLY wasn't my fault. And now I know why I started having stomach aches so frequently in high school and college - I learned to bake delicious yeast bread and baked often for family and friends and always some for me too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TriticusToxicum Explorer

Lots of things seem to makes sense now that I've "seen the light".

I was anemic as a child - no chronic D or other syptoms at the time...just sickly

I could clear the upstairs of my frat house just by using the bathroom (There's a feather in my cap!) :ph34r::blink:

The awful three day "hangovers" after a night at the bar (not binging mind you).

The many mornings of discomfort, after my wife suggested I increase my fiber intake - "...boy does that stuff really work! It cleans you right out!" I think I actually said that... ;)

ÆON Newbie

I haven't had this for too long (about 6 months) but the one thing that becomes clear now is why I was in the hospital for a couple of days.

The doctors thought is was gallstones but my having mono stopped them from operating.

After that I figured out a low fat diet wasn't doing anything to help with the painful attacks.

This is a bad thing to have but it's better to know what to do about it. This forum is a great place too, reading it has helped me cope. :)

cgilsing Enthusiast

I now know why I was always sick the nights I worked at my first job (at Jimmy Johns), and now I know why I never could gain weight, and why I always hated the way bran muffins made me feel :blink:

munchkinette Collaborator

Beer has made me sick for about 15 years, long before I ever had grain problems. Even about half a beer made me feel sick. Less than one shot of vodka in a mixed drink did the same thing. I started drinking cider, wine, and tequila drinks just because they didn't make me feel like barfing.

I was really skinny (for my frame) for the past couple years. I had to eat a ton of junk food for a few months in a row before I'd gain weight. Little did I realize that it was passing right through me and I was malnourished.

I also had some major problems with the big "C" for the last 10 years. Now I know why.

I asked my mom a bunch of questions about family medical history while I was reading some of the celiac books. We both had a lot of "Aha!" moments about my grandmother, great aunt, and their mother. In particular, there's this running joke in our family about how my gran always asked us about our "BMs". Well, now I know that she had grain problems.

emcmaster Collaborator

A lot of things have made sense:

- looking back over the past 5 years, I realized that the only times I felt good (before I was diagnosed) was when I was on a low-carb diet that allowed only sweet potatoes and brown rice for carbs... I was still getting gluten in small ways, but not eating it made a big difference

- lower back pain - it flares up badly when I get glutened, but I never connected it to gluten before

- big "C" which still hasn't cleared up, but I think I might be chronically constipated...

ianm Apprentice

Basically it explained why the first 36 years of my life were a disaster. Now almost 3 years later it could not be better. It is better than I ever could have imagined.

Nantzie Collaborator

Here's another one from me.

I had to have my appendix out several years ago. For the first few days afterward, before they let me eat anything and I was just on an IV, I remember thinking that it would be so nice if I didn't have to eat anymore. Then after I started eating I was eating things like chicken noodle soup, toast, crackers, etc. I never connected it with anything specific, but just felt like no matter what I ate it made me feel gross. I just wished that I could have gone back to the IV because I felt so queasy.

Those few days on the IV, I felt terrific. High energy, the whole deal. I just thought I must have been so sick from the appendix for longer that I knew that once it was out, I had kind of a rebound from it, and then after a few days I justs went back to the way I had always been. Blech.

Nancy

KayJay Enthusiast

Why I am so much smaller than everyone else in my family.

I used to have the worst stomach ache and my mom would give me dry toast and noodle soup. I would say it made me feel worse and she thought I was being difficult. Now we now why :)

  • 2 weeks later...
mellajane Explorer

Its so funny now because I have actually been sick since I was 7. My brother and sister never got sick so you can imagine that little bit of sibling rivrarly.... My parents were always having to take me to the Dr. My momma made the sad comment one day how bad she felt because it was like I have been poisened by Dr.s all this time. Until then I had never really put much thought into it. Im also Italian which means pasta and breads and fried foods (torture now that I know the problem) so my family would see me sick at times and really think I was belimic or anorexic. It was always very sad for me to see the look in their eyes knowing food was actually a passion and luxuary for me. The releif in my heart when I finally could tell them we have found out the reason. Everything made sense once I went wheat/gluten free.

I was thinking about this today. What odd things make sense now that you know you've have (or may have always had) celiac. Just those odd things that aren't necessarily symptoms, but that now make you think, A-HA!!! So that's what that was!!!

For me it's:

- Almost passing out when I tried wheatgrass as part of one of my New Year's Resolution Health Kicks. I had a 2.5yo and a 1yo at the time and I was home alone. Scary!

- At different times either gaining 25 pounds for no reason (low fat = high carb = high gluten diet) in a matter of weeks, or LOSING 25 pounds for no reason within a few weeks. Okay..., that was a symptom. But tell that to a 25yo who doesn't know any better that now that she fits into a size 6 she should go to the doctor. "She " just thanked her lucky stars and went shopping... I didn't know any better than to wonder if my digestive problems had anything to do with it.

So what are your 20/20 hindsight realizations?

Nancy

4getgluten Rookie

My digestive issues started in college about 22 years ago.. I thought I had a sensitive stomach, and I had to deal with it. Looking back there were a lot of clues:

1. I gave up eating cereal for breakfast in college because it made me so sick. I thought it was too "heavy" for my system to digest, so I ate fruit instead.

2. The fact that beer was like a laxative to me... I thought it was the alcohol that gave me D.

3. I always got "food poisoning" at Italian restaurants. Every time I went out for Italian food, I got sick... hum, I should have clued in then.

4. When bagels were all the rage, I tried eating those for breakfast. I ended up with the worst "brain fog". I could hardly do my job. I had to give up bagels and go back to my fruit for breakfast. Again. I thought bagels were just too heavy for my system.

arc Newbie

Now I know why I could never drink beer. It would absolutely kill my stomach.

Also why I was diagnosed with ulcers (they never actually looked in my stomach) at age 12. I always have had "stomach issues". So did my mom.

The almost constant canker sores growing up.

The severe acne I've had all my life (well, since age 12 or so), even into my 40s. I go gluten free and the breakouts are instantly gone. If I accidently get glutened - breakouts for a week. I'm still pretty pissed that I have always been told that diet doesn't matter with acne by doctors. :angry:

MallysMama Explorer

Even though I've had Celiac all my life, I'd have to say that I was grateful to finally understand that my most embarrassing moment in my entire life was caused because of it (I never understood that growing up... it just "hit" me not too long ago). I was in 1st grade...and a very quiet/shy person (still am, I guess). I've always hated to have the attention on me....so raising my hand, interupting, to ask to use the restroom made me very uncomfortable (then and now). Well, I don't even remember needing to really "go"...but my memory is that it either happened before or shortly after I left the classroom on my way to the bathroom.... I had severe "D". And no change of clothes. Yuck!! Talk about mortifying!! But now I understand that it was probably because I was glutened...and at the time had severe symptoms that came on quickly (I don't anymore, thankfully).

I also remember a time when my parents were gone on a date and we had a babysitter over. I remember not feeling well and having BLUE bowel movements (too much info, I know, sorry!). I remember being embarrassed to tell anyone...not wanting to freak them out. (Though, thankfully, they already knew the cause...but like I said before, I hated having all the attention on me - for any reason.)

It's nice to know the symptoms we had were Normal for having Celiac (even if you didn't learn you had Celiac until later).

happy4dolphins Enthusiast

Now that I look back on things I just can't believe it makes so much sense!

-When I was in college we practically lived on noodles and poptarts. I was always ill and had marjor diareah numberous times a day.

- a bowl of cheerios would make me have diareah more times in a day then I could imagine as a teen, but it was reliable when I was constipated.

-reoccuring stomachaches,yet, I craved bread and pasta

-Had much trouble with dyslexia in school and still do on occasion. and brain fog, trouble concentrating, depression, much period trouble (also have endometrisos) but the gluten-free diet has helped a ton.

-always wondered why I felt sick 20 minutes after I ate.

-can not tolerat fast food like McDonalds. With in 40 minutes, I am in the bathroom, and continues throughout the night.

-lower left ab pain that I always thought was realated to my endometriosis. When getting in internal ultrasound I'd be in massive, jumping off of the table pain. It now clears up when on a gluten-free diet.

Nicole

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,935
    • Most Online (within 30 mins)
      7,748

    Kristina Windom
    Newest Member
    Kristina Windom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.