Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rise In Celiacs Or More Awareness?


up-late

Recommended Posts

up-late Rookie

Is there anything out there on what causes Celiacs or why it is becoming so common? Is it possible it's been around for a long time and we just didn't know what it was?

My uncle on my dads side died as a child from "disentry" (my dad is the genetic link with celiacs) could he have had it and they just didn't know?

I found a site recently that said celiacs was one of the undesclosed side effects of new medications taken for depression and athritis, the site was a legal one starting class action against the pharm company who manufactured them, I have taken almost all the ones the stated as causing it as well as manifesting other side effects mentioned on the site. Could it be the excessive perscription culture, negligent pharm companies or GM, pesticides and overprocessing of our food coupled with profit driven companies that is responsible or has it been around longer and we just did not know about it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast
Is it possible it's been around for a long time and we just didn't know what it was?

ABSOLUTELY!!!!!

Heck, some doctors STILL don't know what it is. Once they "get a clue" and start learning how to recognise and diagnose, more people will be able to get a diagnosis and save themselves years of problems!

Guest nini

It's been around for a long time, it's still unbelievably undiagnosed and misdiagnosed entirely too often.

sure the other factors may serve to either trigger the onset or aggravate symtoms but I doubt seriously that any of the factors you mentioned could CAUSE celiac.

AndreaB Contributor

If you read any of Dogtor J's stuff, he has done a lot of research and says that dysentry is really celiac. It poses the same symptoms. His site is Open Original Shared Link. I believe the article is "The Answer". It is very long but the part about dysentry is within the first 12 pages I believe of the part of the article called "Why is the Plane of our Health in a Death Spiral?".

Very interesting reading as you have time. I'm only about 1/2 way through that big article so far. :P

gfp Enthusiast

I think its a whole combination, simply by saying its very very rare stopped diagnosis of many...

Also because of the way foods are manufactured today its impossible to miss it out.

When I lived in Africa I was mostly gluten-free because 99% of what I ate was fresh fruit, meat and veg so I only got gluten in large doses... so if you stop eating bread and pasta for a week in an environment like that you notice wheras if you try gluten free in the West today ytou are not gluten-free because of all the hidden gluten so this makes it even more evasive. This is not even including pharmacuticals containing gluten !!

Saz Explorer

Hey there.

There does seem to be many more people with allergies. I don't think that all people who don't eat wheat are celiac though. I have heard of people who while they don't have anything diagnosed, say that they just don't feel "right" if they eat a lot of bread etc.

In regards to "triggers. " My understanding is that if you are 20 and are diagnosed as celiac, you have had it all of your life, the symptoms just may not have shown up before now.

I would be interested to know what exactely causes it in the first place, there is no history of it in family.

up-late Rookie

The Dogtorj article made a lot of sense, just skimming through it I noticed the exact things I was thinking about, it just made sense.

I've been worried about what the big companies have been doing to our food for some time. My grandmother couldn't buy seed that would regenerate with the next crop. A family friend had an orchard and Coles told him what to grow, he had to graft their (Monsanto had a hand in this) strains into his crops or they wouldn't buy them, he could not guarantee his crops would not be cross pollinated tainting both his organic crop and their bogus crop, then they used a propoganda campaign to claim the new strains were the only ones suitable for commercial comsumption, imagine that centuries of hortoculture wiped away in one foul sweep by a multi national, of course their product is nutritionally inferior and tastes like it's been sitting in the back of my feezer for 10 years but hey it has a higher yeild. The farmers here are still at war with the compaines who want to introduce GM canola siteing that even if they don't grow it cross contamination from GM crops in the area will destroy their crop, the companies have even come under suspicion for releasing GM crop and growing it under the disguse of the real thing in order to do just that. It's a serious problem, what happens if all our natural crops end up being wiped out and then we have no choice but to eat food that will harm us?

With the tastelss food, packaging and processing I wonder how like it will be before we are mimicking bad 70's sci-fi popping steak and three veg pills instead of eating real food.

I'm getting off topic here :wacko: but I wonder if they can get away with doing that, what else has slipped by.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfp Enthusiast
The Dogtorj article made a lot of sense, just skimming through it I noticed the exact things I was thinking about, it just made sense.

I've been worried about what the big companies have been doing to our food for some time. My grandmother couldn't buy seed that would regenerate with the next crop. A family friend had an orchard and Coles told him what to grow, he had to graft their (Monsanto had a hand in this) strains into his crops or they wouldn't buy them, he could not guarantee his crops would not be cross pollinated tainting both his organic crop and their bogus crop, then they used a propoganda campaign to claim the new strains were the only ones suitable for commercial comsumption, imagine that centuries of hortoculture wiped away in one foul sweep by a multi national, of course their product is nutritionally inferior and tastes like it's been sitting in the back of my feezer for 10 years but hey it has a higher yeild. The farmers here are still at war with the compaines who want to introduce GM canola siteing that even if they don't grow it cross contamination from GM crops in the area will destroy their crop, the companies have even come under suspicion for releasing GM crop and growing it under the disguse of the real thing in order to do just that. It's a serious problem, what happens if all our natural crops end up being wiped out and then we have no choice but to eat food that will harm us?

With the tastelss food, packaging and processing I wonder how like it will be before we are mimicking bad 70's sci-fi popping steak and three veg pills instead of eating real food.

I'm getting off topic here :wacko: but I wonder if they can get away with doing that, what else has slipped by.

I think its pretty much endemic and pervasive to the point that most people never read a label, let alone wonder what they are eating.

Before diagnosis I was firmly in the "a few additives can't hurt" camp. Just having to read labels made me aware just how much additives are in food but it goes way beyond this. Food has become a battle to sell the lowest quality products cheaper than anyone else. Its over abundance in Europe/US has stopped us appreciating it as a 'luxury' item and reduced it to for many people an inconvenience.

I recently posted that most "fresh" fruit is kept in biologically sterile cold stores and sprayed with many things (including candida) just to keep it in a place it can be distributed in the most efficient way but this isn't isolated, the whole food industry is based on putting things in tins and packets and adding chemical preservatives because it saves cents on distribution over fresh produce.

par18 Apprentice
Is there anything out there on what causes Celiacs or why it is becoming so common? Is it possible it's been around for a long time and we just didn't know what it was?

My uncle on my dads side died as a child from "disentry" (my dad is the genetic link with celiacs) could he have had it and they just didn't know?

I found a site recently that said celiacs was one of the undesclosed side effects of new medications taken for depression and athritis, the site was a legal one starting class action against the pharm company who manufactured them, I have taken almost all the ones the stated as causing it as well as manifesting other side effects mentioned on the site. Could it be the excessive perscription culture, negligent pharm companies or GM, pesticides and overprocessing of our food coupled with profit driven companies that is responsible or has it been around longer and we just did not know about it?

I think Celiac has probably been around as long as gluten. There is more awareness now but not as much as should be. The fact that so many people take prescription drugs for just about everything make it difficult to determine just how many people may be affected. It appears a large segment of the population either cannot or will not cook meals at home so that would make it difficult to determine which food items individual persons cannot tolerate. What I would like to see is some type of facility that a person could go to for a brief stay and just have the diet altered to find out if health issues were related to what someone is eating. Most of the diet type places I have heard of are only for persons to lose weight. This could be some type of "diet elimination" center in which diet is the "only" treatment. Probably could not get an endorsement from the drug companies or fast food industry though. Would only need a doctor onsite in case someone has an allergic reaction to a food. There would not be any more risk than if someone ate something at home they did not know affected them and had to go to the ER. Might also be a lot cheaper than having to go somewhere like the Mayo Clinic to find out the same thing. Then places like the Mayo Clinic could be used for people who really needed it. Just a thought.

Tom

marciab Enthusiast
What I would like to see is some type of facility that a person could go to for a brief stay and just have the diet altered to find out if health issues were related to what someone is eating. Most of the diet type places I have heard of are only for persons to lose weight. This could be some type of "diet elimination" center in which diet is the "only" treatment. Probably could not get an endorsement from the drug companies or fast food industry though. Would only need a doctor onsite in case someone has an allergic reaction to a food. There would not be any more risk than if someone ate something at home they did not know affected them and had to go to the ER. Might also be a lot cheaper than having to go somewhere like the Mayo Clinic to find out the same thing. Then places like the Mayo Clinic could be used for people who really needed it. Just a thought.

Tom

I was thinking the same thing. I would love to be able to do this for those who are too sick to try this on their own. Think we can get the NIH to sponsor it ?? ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

    2. - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    3. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    5. - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.