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Thankyou I did reach out to a dietitian from this website and since popular there's a bit of a wait at first, My appointment I believe is in June on zoom.Going in to see pcp about medication im having a reaction from, told neurologist and she said its a common affect so need to ck and see if thsts through case this afternoon. This nightmare could easily been...- autoimmune disease
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You’re raising a very real and very well-documented problem, and you’re absolutely right to be frustrated. Medication labeling is a major blind spot for people with celiac disease, because unlike food, drug manufacturers are not required to clearly disclose the source of binders, fillers, or excipients—even when they may be derived from wheat. That puts ...- celiac disease
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nothing has changed
What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies c... -
- Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Is it gluten?
Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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By Scott Adams · Posted
What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away. -
By Scott Adams · Posted
Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done. -
I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease. Thier gluten free options are awesome.
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Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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Recommended Posts
Thanks Jess! Our son will probably devour most of it because he hasn't eaten yet today and is being lazy about having a snack. That's why I always make two. Wish me luck. It's the first time I'm using the convection setting on my oven.
Loey
Thanks Nikki- just forwarded it to many folks!!!!
have a happy fart free day!!!
Loey
Jumping up and down (((hug)))
What she said!!
Oh, dear gawd... .. . . ...he wants you to cook LIVER for him?? Jyessss, if you're not ready for something like this, you must tell him - - a good man will understand, and let you take your time.. . . . ..
(((((serious voice)))) Jyessss, I'm so happy for you! He is a lucky guy.
:D 
Thanksgiving went well. No one complained about gluten-free food. My sis was eating the cornbread and asked if I should be eating it. Her hub, I was worried he sometimes is picky about food, was interested in the recipes and my bag of Pamelas flour. Jess, Hub & I "L" word the sweet potatoes.
J & M played with the 3 year old all night. They admitted they had fun with him. The 6 month old needed to sleep but wouldn't. He had to watch what the boys were doing, even at his own peril (He & I got hit with stray Nerf darts). Finally, J sat down & put the baby sitting next to him and baby fell asleep. I told him girls will be impressed with this. He may borrow the baby to use as a chick magnet.
And the big break-through: I took a clean fork and gave my mom a bite of the ginger snap crust (she had regular). She took it off the fork and put it on her plate and handed me the fork back. My dad said," She can't use that fork. It might have touched your pie."
Your whole day sounds fantastic. I'm glad it went well.
Wondering how Lo's quackers turned out!
Happy for you both, Jess!!
Happy late T-day everyone . . . still stumbling about in a food coma here . . . had in-laws here (and still do).
My condolences!
Hi all--hope everybody's doing ok the day after......
I had a bit too much phun
<by phun, of course I mean wine> and I'm happy to report that my gluten-free pumpkin pie was a hit amongst the gluten eaters. 
9PM and I already have me jammies on and am thinking of heading to bed.....