Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With Questions

mandyann

Recommended Posts

mandyann Newbie
mandyann
Posted

I am new here, my first post but I have been reading the board for a while now. I just rec'd my positive gliadin test results back, my IGA came back at 52. I am relieved to possibly have a cause for my odd symptoms but the one thing that I don't have problems with is my stomach. I have read here that Celiac's can have a range of symptoms but is it normal to not have digestive issues? My biggest problem is musle spasms and migraines. I went gluten free this past spring for 6 weeks, being very careful as to what I was eating and still didn't have any relief from the pain. It seems that most find relief within a couple of weeks. I would appreciate any input you all are willing to share.

Thanks!

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Stomach problems are certianly the "classic celiac" symptoms, but many never have them. It takes time to heal ... it also takes time to figure out how to be 100% gluten-free with no contamination. I would bet that as you are gluten-free for longer and as you find all the places gluten hides, you will see improvement.

Welcome!

tarnalberry Community Regular
tarnalberry
Posted

And sometimes we have problems that are independent of celiac disease. I have migraines, that became an issue two years *after* going gluten free, and appear to be unrelated to celiac (or any other food trigger I can identify). I have to take prophylactic medication (topomax) for them, because they would come so often.

But Carla is right, improvement can take a while, and requires being *strictly* gluten free, and may also require identifying any other food intolerances you have.

Jestgar Rising Star
Jestgar
Posted

I have no digestive problems with gluten. I get headaches and joint pain mostly. I have a friend who's only symptom is (take-you-out-for-two-days) migraines.

mythreesuns Contributor
mythreesuns
Posted
I am new here, my first post but I have been reading the board for a while now. I just rec'd my positive gliadin test results back, my IGA came back at 52. I am relieved to possibly have a cause for my odd symptoms but the one thing that I don't have problems with is my stomach. I have read here that Celiac's can have a range of symptoms but is it normal to not have digestive issues? My biggest problem is musle spasms and migraines. I went gluten free this past spring for 6 weeks, being very careful as to what I was eating and still didn't have any relief from the pain. It seems that most find relief within a couple of weeks. I would appreciate any input you all are willing to share.

Welcome, Diana!!!

You may be ingesting gluten "hidden" in the foods you're eating, or you may have other food intolerances as well. It doesn't have to say "wheat" in the ingredient list to have gluten in it. There are all kinds of products that you wouldn't even think have gluten in them, but they do.

Also, I found that milk gave me headaches just as much as gluten. Have you tried to do without milk (all parts of it) products? Soy gives me problems too, but mostly I get diarrhea from it.

Have you de-glutened your hygeine products? That's something else we don't think about at first, but it could still make you sick.

Some people do feel better in a couple of weeks, but some people do take longer, so hang in there! Don't give up just yet. :)

mandyann Newbie
mandyann
Posted
  • Author
Welcome, Diana!!!

You may be ingesting gluten "hidden" in the foods you're eating, or you may have other food intolerances as well. It doesn't have to say "wheat" in the ingredient list to have gluten in it. There are all kinds of products that you wouldn't even think have gluten in them, but they do.

Also, I found that milk gave me headaches just as much as gluten. Have you tried to do without milk (all parts of it) products? Soy gives me problems too, but mostly I get diarrhea from it.

Have you de-glutened your hygeine products? That's something else we don't think about at first, but it could still make you sick.

Some people do feel better in a couple of weeks, but some people do take longer, so hang in there! Don't give up just yet. :)

Hi-

Thanks for your advice. I need to take a closer look at my hygeine products. I've been tested for food allergies and nothing really came up, just odd things like alfalfa, green beans and things like that. I was fine on dairy but I do know that when I finally gave it up last spring (on top of everything else I eliminated), that's when I began feeling better. I am very careful with my food, watch the labels and don't eat anything processed. I'm only one week into being gluten free now that the testing is over, it will be interesting to see how long it takes to turn my health around.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      4

      Gluten Sensitivity

      Not that I can remember but my reaction has never been more than diarrhea and I probably ate a lot of wheat products for years not knowing I was sensitive to it. Dr. never tested me because he attributed it to IBS.
    2. Awol cast iron stomach
      - Awol cast iron stomach replied to Tanya177's topic in Coping with Celiac Disease
      6

      Worried about being isolated

      Hi, I have worked in education in the past. Based on where assigned and building crowding I made adjustments when needed. I understand completely what you mentioned. I brought food from home in my own Pyrex glass container. I kept it in my own lunch tote that I kept with me during the day. In the teacher's lounge/staff lunch room I would wipe down...
    3. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      4

      Gluten Sensitivity

      People get genetic modification confused with hybridization. Wheat, as has most of our food crops, has been altered through hybridization to make it more disease resistant, more drought resistant and even to increase the gluten content. Hybridization uses selective breeding/cross pollination to enhance certain characteristics. Genetic modification, on the...
    4. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      4

      Gluten Sensitivity

      Thank you for your response. I have had several different antibiotics over the years and none affected my sensitivity to wheat products which I assumed was due to the gluten in them. However I do believe this time it was an antibiotic I’ve never had before so if your explanation is correct it would seem this antibiotic (cefuroxime 500 MG tablet Commonly k...
    5. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      4

      Gluten Sensitivity

      Welcome to the forum, @The Logician! Many antibiotics have anti-inflammatory properties. By the way, GMO wheat is not used in food products: https://www.chefsresource.com/faq/is-wheat-genetically-modified-in-the-united-states/ There is a common misconception that it is.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,991
    • Most Online (within 30 mins)
      7,748
    Jubaroo
    Newest Member
    Jubaroo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      Not that I can remember but my reaction has never been more than diarrhea and I probably ate a lot of wheat products for years not knowing I was sensitive to it. Dr. never tested me because he attributed it to IBS. 
    • Awol cast iron stomach
      Worried about being isolated

      By Awol cast iron stomach · Posted

      Hi, I have worked in education in the past. Based on where assigned and building crowding I made adjustments when needed.  I understand completely what you mentioned. I brought food from home in my own Pyrex glass container.  I kept it in my own lunch tote that I kept with me during the day. In the teacher's lounge/staff lunch room I would wipe down the area I sat at with soap and water with disposable paper towel.  I also placed down a fabric placemat prior to unpacking my meal. Unfortunately, one district I could never use the microwaves as they were filled with splatters and crumbs. (To be honest at that one school even if I didn't have this condition, I would not have used those microwaves based on their state of cleanliness). There were mini lockers nearby that I kept my placemat in. I brought my placemat  home weekly to launder.  There were times if the staff had a celebration with cake or pizza I would eat outside or in my car . As the  eating tables also had to display the  party spread. So the pizza and cake was on the communal lunch tables. Those days I just diverted to outside on the grass or my car. When I was fortunate to have a consistent schedule many staff "knew" my spot, and it was usually empty when I arrived. Occasionally, it was taken and it normally was by a substitute who didn't know about me/my situation.  I hope you are able to navigate this new change of building/assignment. I do know these days many districts have crowding and teachers often share classrooms or the same desk. This was often my experience whether in teacher or support staff role. Some districts you don't even have your own desk or space. I hope you do have some space to retreat to when possible. There often times is that awkwardness of a new schedule assignment where they ask why you don't want cake, pizza ,or always bring your lunch etc. For me that happened in every job education or business sector as often times I was the only one with this condition.  I hope this may have offered some support to lessen your anxiety about the new school year  assignment change. Best wishes     
    • trents
      Gluten Sensitivity

      By trents · Posted

      People get genetic modification confused with hybridization. Wheat, as has most of our food crops, has been altered through hybridization to make it more disease resistant, more drought resistant and even to increase the gluten content. Hybridization uses selective breeding/cross pollination to enhance certain characteristics. Genetic modification, on the other hand, uses a "gene gun" to knock out certain genes and replace them with unnatural ones. In some cases, plant genes are replaced with animal genes to achieve certain properties. This is what GMO is about. Have you actually been formerly tested for celiac disease, either by blood antibody testing, biopsy or both, to rule out celiac disease?
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      Thank you for your response. I have had several different antibiotics over the years and none affected my sensitivity to wheat products which I assumed was due to the gluten in them. However I do believe this time it was an antibiotic I’ve never had before so if your explanation is correct it would seem this antibiotic (cefuroxime 500 MG tablet Commonly known as: CEFTIN, 1 tablet by mouth 2 (Two) Times a Day for 10 days.)  could be a cure for my sort of sensitivity. I assume the hospital IV was the same antibiotic. The IV was ordered because my blood culture showed bacteria in my blood. I remember hearing years ago the gmo wheat was found in some products but I guess that was a misnomer. Believe me after over 20 years of putting up with this sensitivity, despite the fact that growing up eating subs, pizza and spaghetti regularly never affected me, I am so relieved to no longer have to avoid wheat.. I hope!
    • trents
      Gluten Sensitivity

      By trents · Posted

      Welcome to the forum, @The Logician! Many antibiotics have anti-inflammatory properties. By the way, GMO wheat is not used in food products: https://www.chefsresource.com/faq/is-wheat-genetically-modified-in-the-united-states/ There is a common misconception that it is.
×
×
  • Create New...