Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed With Questions

mandyann

Recommended Posts

mandyann Newbie
mandyann
Posted

I am new here, my first post but I have been reading the board for a while now. I just rec'd my positive gliadin test results back, my IGA came back at 52. I am relieved to possibly have a cause for my odd symptoms but the one thing that I don't have problems with is my stomach. I have read here that Celiac's can have a range of symptoms but is it normal to not have digestive issues? My biggest problem is musle spasms and migraines. I went gluten free this past spring for 6 weeks, being very careful as to what I was eating and still didn't have any relief from the pain. It seems that most find relief within a couple of weeks. I would appreciate any input you all are willing to share.

Thanks!

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Stomach problems are certianly the "classic celiac" symptoms, but many never have them. It takes time to heal ... it also takes time to figure out how to be 100% gluten-free with no contamination. I would bet that as you are gluten-free for longer and as you find all the places gluten hides, you will see improvement.

Welcome!

tarnalberry Community Regular
tarnalberry
Posted

And sometimes we have problems that are independent of celiac disease. I have migraines, that became an issue two years *after* going gluten free, and appear to be unrelated to celiac (or any other food trigger I can identify). I have to take prophylactic medication (topomax) for them, because they would come so often.

But Carla is right, improvement can take a while, and requires being *strictly* gluten free, and may also require identifying any other food intolerances you have.

Jestgar Rising Star
Jestgar
Posted

I have no digestive problems with gluten. I get headaches and joint pain mostly. I have a friend who's only symptom is (take-you-out-for-two-days) migraines.

mythreesuns Contributor
mythreesuns
Posted
I am new here, my first post but I have been reading the board for a while now. I just rec'd my positive gliadin test results back, my IGA came back at 52. I am relieved to possibly have a cause for my odd symptoms but the one thing that I don't have problems with is my stomach. I have read here that Celiac's can have a range of symptoms but is it normal to not have digestive issues? My biggest problem is musle spasms and migraines. I went gluten free this past spring for 6 weeks, being very careful as to what I was eating and still didn't have any relief from the pain. It seems that most find relief within a couple of weeks. I would appreciate any input you all are willing to share.

Welcome, Diana!!!

You may be ingesting gluten "hidden" in the foods you're eating, or you may have other food intolerances as well. It doesn't have to say "wheat" in the ingredient list to have gluten in it. There are all kinds of products that you wouldn't even think have gluten in them, but they do.

Also, I found that milk gave me headaches just as much as gluten. Have you tried to do without milk (all parts of it) products? Soy gives me problems too, but mostly I get diarrhea from it.

Have you de-glutened your hygeine products? That's something else we don't think about at first, but it could still make you sick.

Some people do feel better in a couple of weeks, but some people do take longer, so hang in there! Don't give up just yet. :)

mandyann Newbie
mandyann
Posted
  • Author
Welcome, Diana!!!

You may be ingesting gluten "hidden" in the foods you're eating, or you may have other food intolerances as well. It doesn't have to say "wheat" in the ingredient list to have gluten in it. There are all kinds of products that you wouldn't even think have gluten in them, but they do.

Also, I found that milk gave me headaches just as much as gluten. Have you tried to do without milk (all parts of it) products? Soy gives me problems too, but mostly I get diarrhea from it.

Have you de-glutened your hygeine products? That's something else we don't think about at first, but it could still make you sick.

Some people do feel better in a couple of weeks, but some people do take longer, so hang in there! Don't give up just yet. :)

Hi-

Thanks for your advice. I need to take a closer look at my hygeine products. I've been tested for food allergies and nothing really came up, just odd things like alfalfa, green beans and things like that. I was fine on dairy but I do know that when I finally gave it up last spring (on top of everything else I eliminated), that's when I began feeling better. I am very careful with my food, watch the labels and don't eat anything processed. I'm only one week into being gluten free now that the testing is over, it will be interesting to see how long it takes to turn my health around.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,268
    • Most Online (within 30 mins)
      7,748
    MaryCan231
    Newest Member
    MaryCan231
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.