Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mini Cures

L.A.

By L.A.
in Coping with Celiac Disease

Recommended Posts

L.A. Contributor
L.A.
Posted

Hope this hasn't been posted before...I thought if we share our "mini cures" on how we cope with our disease and glutening we may be able to help each other. For example; I have been taking an antihistamine for the past 6 months and have noticed an improvement in the number of times I have been sick...went from every few weeks to every 2-3 months. Also, my cure all when glutened and after getting it out of my system, I drink lots of gatorade and this helps me recover fairly fast. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I eat mostly bananas and mashed potatoes when glutened and try to drink a lot of water and hot tea.

I try to get more rest since I get cranky (putting it nicely) and very tired.

If I need to be anywhere, I use Immodium--2 caplets.

L.A. Contributor
L.A.
Posted
  • Author
I eat mostly bananas and mashed potatoes when glutened and try to drink a lot of water and hot tea.

I try to get more rest since I get cranky (putting it nicely) and very tired.

If I need to be anywhere, I use Immodium--2 caplets.

I thought having D was my body's way of getting rid of the "poison" so I have never taken anything to stop it. Does the immodium work or just prolong the process? :unsure:

danikali Enthusiast
danikali
Posted

Well I'm going through a bout right now. I eat plain rice cakes, homemade applesauce (boiled smashed apples) and usually that's it, but this time I might add chicken and carrot soup.

L.A. Contributor
L.A.
Posted
  • Author
Well I'm going through a bout right now. I eat plain rice cakes, homemade applesauce (boiled smashed apples) and usually that's it, but this time I might add chicken and carrot soup.

Is this a recovery thing or do you maintain this when you're sick? My reaction to gluten puts me in the bathroom for about 5-8 hours and I don't eat during that time as too sick to do so.

jerseyangel Proficient
jerseyangel
Posted
I thought having D was my body's way of getting rid of the "poison" so I have never taken anything to stop it. Does the immodium work or just prolong the process? :unsure:

You are right about letting things run their course. That's what I generally do, but there are times when I can't have D, so I use it then.

Actually, I have not found that (for me) it prolongs anything. Quite the opposite, it quiets my system and usually by the next day, the D isn't as bad. It certainly helps with the cramping. I think it works much better than the Rx med that the doctor gave me.

But that's just my experience. :)

L.A. Contributor
L.A.
Posted
  • Author
You are right about letting things run their course. That's what I generally do, but there are times when I can't have D, so I use it then.

Actually, I have not found that (for me) it prolongs anything. Quite the opposite, it quiets my system and usually by the next day, the D isn't as bad. It certainly helps with the cramping. I think it works much better than the Rx med that the doctor gave me.

But that's just my experience. :)

Good to know. Will have to stock up, thanks! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lollie Enthusiast
Lollie
Posted

I drink lots and lots of sparkling mineral water. I also do the plain rice thing for a little while. I sometimes have to resort to a muscle relaxer. Just depends on how bad it gets!

Lollie

pixiegirl Enthusiast
pixiegirl
Posted

I posted this in another thread... I take a Rx called Gastrocrom for another GI issue I have however it helps me hugely if I get glutened. I'm not suggesting that anyone take it as a way to eat gluten (it doesn't work that well but I get pretty severe symptoms and I'd say it cuts them by about 75%) its a med for people with food allergies but in some way really helps with glutening. Its not dangerous as far as meds go so you might want to discuss it with your GI and see what they say about it. You mix it with water and drink, it adds no flavor or color at all.

Susan

bluejeangirl Contributor
bluejeangirl
Posted

Sipping on my homemade chicken broth and watching a DVD's. When I can eat I'll have soft boiled eggs and a slice of brown rice bread toasted with alittle butter. Then if Im doing ok later I'll have brown rice, Chicken breast and zucchinni (steamed). Maybe some yogurt and fruit.

I have chicken broth frozen for these times. Also chicken breasts are always in the freezer in individual portions. You don't want to have to run to the store. I thank God for net flix. Warm puppy dogs that lick your face also helps. :rolleyes::rolleyes:

Gail

Sweetfudge Community Regular
Sweetfudge
Posted

i drink lots of water. i also like to curl up on the couch with my hot corn bag (like a bean bag), that helps with the cramping and bloating a little too.

L.A. Contributor
L.A.
Posted
  • Author
Sipping on my homemade chicken broth and watching a DVD's. When I can eat I'll have soft boiled eggs and a slice of brown rice bread toasted with alittle butter. Then if Im doing ok later I'll have brown rice, Chicken breast and zucchinni (steamed). Maybe some yogurt and fruit.

I have chicken broth frozen for these times. Also chicken breasts are always in the freezer in individual portions. You don't want to have to run to the store. I thank God for net flix. Warm puppy dogs that lick your face also helps. :rolleyes::rolleyes:

Gail

Gail: I have two big silly labs that provide face licks... :)

i drink lots of water. i also like to curl up on the couch with my hot corn bag (like a bean bag), that helps with the cramping and bloating a little too.

OMG! I have one of those bags...but guess what? I think mine has wheat in it--shoot me now!

lonewolf Collaborator
lonewolf
Posted
OMG! I have one of those bags...but guess what? I think mine has wheat in it--shoot me now!

You can make your own with rice - just put rice in a clean sock, tie the end, stick it in the microwave for 1-1/2 minutes and you have a gluten-free hot pack.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.