Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Traveling For The Holidays :(


emcmaster

Recommended Posts

emcmaster Collaborator

I'm apologizing in advance for the lengthy post.

It's very hard for me to travel because of my food problems. I can't eat out anywhere and there are very few packaged products that I can safely consume, so I cook everything I eat (or eat it in its natural state, like apples).

My husband wants to go to stay at his "adoptive" parents' (his best friend's family, who he has spent holidays with for the last 12 years) house in Pensacola for Christmas. I'm all for that, except it will mean I have to cook and freeze 5 days worth of food and find a way to take it. That's not the problem. The problem is I'm very uncomfortable with literally taking over someone's freezer, refrigerator and, esentially, kitchen, for almost a week. The AMOUNT of food I have to bring with me is ridiculous (unsurprisingly, it takes a huge quantity of low-fat vegetable-based food to meet daily calorie requirements) so they will have to clean out their fridge and freezer ahead of time. And even though I can prepare the food before we leave and freeze it, it still means I will be in and out of their kitchen every hour or two, interrupting anything they're doing in there.

I really like these people and I would love to spend some time with them, but I'm incredibly uncomfortable taking over their kitchen for almost a week. And we can't really afford to rent a hotel room with a kitchenette for 5 days.

My husband thinks it's ridiculous that I am uncomfortable taking over someone else's kitchen. To be fair, I understand where he's coming from - he does things I think are irrational, too, and he's normally very supportive and incredibly careful about keeping me gluten-free. But I can't help having a disease that makes eating difficult and then feeling self-conscious about inconveniencing other people.

Is there another option that we're not seeing? I feel like this is a lost cause. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

These are the things that we never thought we would have to think about when we were diagnosed with Celiac! What a strange world we live in.

Couple thoughts run through my mind, although I'm sure you've already thought of them.

Can you call the family and discuss your concerns? Talk openly with them, explain the situation, see the response. They might (and probably will be) extremely gracious---they just want you, and don't care what food you come with. (that is the case with my family and my husband's family, luckily). They'll probably feel bad that you are even worrying. (although we understand)

Do you have to prepare everything before hand? What about shopping down there and picking some stuff up? Making your meals each day (or at least some)? When I go places, I bring a lot, but I also pick stuff up at the store. (I have multiple intolerances and do not eat ANY processed foods at all. None. Not fully sure what you have-but sounds similar in terms of lack of processed foods)

And I know it sucks-what I (and you!) would give to be 'normal.' But, thats not the case for us! We are special :). So, in order to live a normal life, we must do what we must. This is what you HAVE to do-its not a choice! So, don't apologize for being you. They really just want to see you and spend time with you. I had a hard time with this, as well. Then it becomes a new version of normal. My biggest thing that keeps me going---I tell myself that I will do everything and anything to not miss out on life because of my eating issues. In five years, what will you remember? Do you want to remember not spending a wonderful holiday together, but that you stayed home (I know that prob won't happen!) because you were too worried? Or do you want to remember a wonderful family holiday and that you were so lucky to have a safe food environment?!

Hope this helps, a bit. Let us know. xo

tarnalberry Community Regular

Well, why doesn't someone call them and ask if it's a problem? If they are his 'adoptive parents' and you are his wife, they might be hurt if you *don't* come use their kitchen for five days! :) Talk to them. You've got three months to work on this one. Use that time. And look into some foods that don't need to be cooked - bean salads, cold soups, etc.

Jestgar Rising Star

My guess is they'd be thrilled that you trust them enough to ask this of them. You are making your visit easier for them because they don't have to worry about poisoning you. And if anyone in the house enjoys cooking they might have fun learning some of your recipes.

Do ask them about it. Maybe plan some stuff to bring and some stuff to make there. Aim for food you can cook in foil or on/in parchment.

Bring a selection of gluten-free "treats" and have a tasting party.

It's a holiday! Have fun with your food and your situation.

jerseyangel Proficient

Hi Elizabeth,

I had a similar situation last summer. I obsessed and worried about it for weeks before! Everything turned out fine--I shouldn't have worried--and you shouldn't either :)

What I did was cook more than I really needed for meals some nights for the couple of weeks before. I'd make myself up a serving and freeze it immediately. I also brought other foods that I'd need with me. Another option would have been to go to the grocery store up there, but I didn't want to take the time to do that. (Little time--lots of people to visit!)

As for worrying about taking over the kitchen--all I really needed to do once there was use the microwave, and throw together salads. I never cook breakfast for myself anyway, and I baked what I needed and brought those things.

I found that my family and my husband's, too, were just glad to see us. What I thought was going to be a big problem , no one even blinked an eye at!

To put your mind at ease, do call and be open and ask--I'm sure that they will be happy to share a bit of their kitchen with you! :)

emcmaster Collaborator

Thank you all so much for your kind responses. I feel much better about the situation now. I'm going to call and talk to them about it. :)

Lollie Enthusiast

Glad to hear you are going to call! And that you feel better! I had a similar experience just this past August. We live in TX and had to travel to OH to visit my husbands family and gradma's. I took alot of things that I thought I wouldn't be able to find, and then shopped for fresh veggies and fruit when I got there. No body cared! I took over about three different kitchens while I was there. Because we switched houses continously! Everybody was just interested to know about celiac. And I think they liked not having to cook dinner for all of us. I did all the cooking. And that made me happy because I didn't have to worry about being sick! It was a win win situation!

Good Luck!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.