Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss


taffymorgan

Recommended Posts

taffymorgan Newbie

Hi,

I am new to this post and am currently undergoing tests to see if I have this disease. I was quite surprised to have my Doctor suggest it and had never heard of it before but I am a petite female who in the past 6 months has lost alot of weight and am now losing my hair. Its quite freaky and due to my intestinal problems, he is suggesting it could be Celiac disease. Has anyone else experienced similar symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

Yup. :rolleyes: <--- looking up at my receded hairline.

It's the malabsorption. The damaged small intestine can't absorb vitamins and the following vitamin deficiencies cause all sorts of havoc.

My hair is in the process of growing back (after 1+ yr gluten-free), now instead of balding I look like I had a really bad perm. (we need a "bad hair day" smiley :lol: )

jennyj Collaborator

Me too. I am also anemic. :huh:

taffymorgan Newbie
Yup. :rolleyes: <--- looking up at my receded hairline.

It's the malabsorption. The damaged small intestine can't absorb vitamins and the following vitamin deficiencies cause all sorts of havoc.

My hair is in the process of growing back (after 1+ yr gluten-free), now instead of balding I look like I had a really bad perm. (we need a "bad hair day" smiley :lol: )

Really?? So, I'm not going insane? But, It will grow back!? Is there anything I can do now to counteract the process? I don't mean to sound so superficial but its scaring me so bad and I dread washing my hair every morning.

jerseyangel Proficient

Hi Taffy,

My hair was falling out in the year and a half before I was diagnosed. I actually had spots where you could see my scalp.

I was also severly anemic, which is common in people with Celiac. I took suppliments, but because I wasn't absorbing correctly, they didn't do much good.

When I had been gluten-free for about 4 months, my hair stopped falling out--and blood testing after 6 months showed that the anemia was gone! It's been 16 months now, and all of the hair that I lost has grown back.

Good luck with your tests :)

Lisa Mentor

My thin hair is still falling out. What types of suppliments would you suggest?

LKelly8 Rookie

Taffy - I can't promise you you don't have something else, with or without celiac, like female pattern baldness or alopecia areata. Open Original Shared Link But if it is celiac, then yes it will grow back.

Once on the gluten-free diet it'll take time for your intestine to heal and start absorbing the normal amount of nutrients again. The small intestine takes in alot of your vitamins, all the b-vits, vit A, calcium, vit D and vit K - I never even knew there was a vit K! Vitamin k helps your blood clot, not enough causes easy bleeding and bruising. Deficiencies in these (and iron, and other minerals), are common with celiac - so a multivitamin with minerals is a good start.

I've heard zinc is good for hair, but the only supplement I've taken that seemed to effect my hair was folic acid. I had to take a large dose to counteract a rheumatoid arthritis medication I was taking. (methotrexate) MTX binds to folic acid and drains it from your body. Not surprisingly one of it's side effects is hair loss. :rolleyes: The mega dose took care of the MTX but also seemed to boost new hair growth and the hair I had seemed thicker and stronger.

I currently take a Stress B Complex with C and Zinc, an extra 400mcg folic acid, and I eat my veggies like mom always told me too. :D

I use Nature Made vitamins because they label "gluten-free" right on the package.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Very informative, thanks

Lisa

Ursa Major Collaborator

Hair loss could also be caused by thyroid problems. I am just throwing that in, so it won't be overlooked.

elye Community Regular

Hair loss was my only symptom of celiac disease. My very with-it family doctor tested my iron, found it very low, then ran the celiac panel. Voila! So I went off gluten and almost all of my hair has grown back. :)

Lisa Mentor

Hey Emily:

taffymorgan began this thread, but much interest for me.

I take additional folic acid, but my multi-V I used to take is no longer available here. Can you suggest a good gluten-free multi-V.?

Thanks, Lisa

e&j0304 Enthusiast

My little 3 year old also suffered horribly from hair loss. She was actually almost bald on spots of her head and I couldn't put her hair up in a pony tail because you could see all the bald patches and also because I was afraid more would fall out.

She is doing much better now and since being gluten-free for a year her hair looks pretty normal. She takes a multi vitamin and we just make sure she eats really well.

Good luck to you!

  • 2 weeks later...
Robina Contributor
Really?? So, I'm not going insane? But, It will grow back!? Is there anything I can do now to counteract the process? I don't mean to sound so superficial but its scaring me so bad and I dread washing my hair every morning.

Girl... trust me I know how you feel... the shed I experienced came on so suddenly and rapidly but then just continued and continued and continued... I would literally cry every morning during and after my shower... my hair fall has slowed down since I went gluten free... and is slowly tapering off... and I can see a fine new fringe of hair along my hairline... so there's hope... just relax (stress can worsen it)... follow the diet and get plenty of rest...

kevsmom Contributor

One of the symptoms that I had prior to diagnoses was bruising. I ended up having a 4 hour nosebleed that could not be stopped (because I was not retaining vitamin K), and was admitted to the hospital to get blood and plasma. I was also extremely anemic.

May hair loss started before this was all going on. I would get out of the shower in the morning and be covered in hair! My doctor suggested that I try Zinc and Selinium. I find that if I take the 100% daily reqirement of Selinium, that it isn't enough. I take 285%.

I also take the Nature Made vitamins. They say gluten free right on the bottle!

Fiddle-Faddle Community Regular

I take children's Little Critter Gummy vitamins--says gluten-free on the label. I take at least one a day, and when I can remember, 2 (one with lunch, one with dinner).

harriedlate Newbie
My thin hair is still falling out. What types of suppliments would you suggest?

It doesnt make sense for me to feel better after hearing about some one else having thinning hair but it gives me comfort to know it might get better. I have actually thought of transplants because it is so hard to style.

Matilda Enthusiast

...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.