Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cbs News Story

floridanative

By floridanative
in Publications & Publicity

Recommended Posts

beaglemania Rookie
beaglemania
Posted

I am sooo happy about that Celiac Disease news piece!! I sent an email to CBS thanking them for showing the piece and educating the public about celiac disease!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 97
  • Created
  • Last Reply
GFBetsy Rookie
GFBetsy
Posted
Just watched the video. Good story, but that gluten free store?! Must've been a set. No such thing in real life. Maaaybe a gluten-free section.

There's a gluten free store in Taylorsville, UT. It's called Against the Grain, and they only carry gluten-free stuff. The owner's not making a ton of money for herself, but she is able to pay her rent and keeps up the store so that when others are diagnosed they've got a resource to help them out as they start the diet. It's great!

Turtle Enthusiast
Turtle
Posted

I sent CBS a thank you e-mail!!

AndreaB Contributor
AndreaB
Posted

Ok, stupid question.

Where on the cbs site do you click to send an email. I didn't see anything offhand.

beaglemania Rookie
beaglemania
Posted

IT at the bottom of the page on a blue toolbar. click contact us and a little window will pop up where u can write a comment.

Turtle Enthusiast
Turtle
Posted

I sent mine to evening@cbsnews.com

Hopefully this will get to the right person! I found it under the "contact us" section on their website!

Guest nini
Guest nini
Posted

is there anyone else running Firefox? I can't get RealPlayer10 to play the video, it doesn't recognize the format... aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaagggggggggggggggggggggghhhhhhhhhhhhhhhhhhh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Nisla,

I couldn't get it to run from the links posted here. I went to www.cbsnews.com and scrolled down to find the Celiac video.

2Boys4Me Enthusiast
2Boys4Me
Posted

Okay, okay....I take back my comment about the gluten-free store being a set. I'll just say that I've never seen one in real life. B)

Matilda Enthusiast
Matilda
Posted

...

Guest nini
Guest nini
Posted
Nisla,

I couldn't get it to run from the links posted here. I went to www.cbsnews.com and scrolled down to find the Celiac video.

I tried that, I still couldn't get it to play. Couldn't get ANY of their videos to play. My OS plays videos from Google, YouTube and CNN with no problems...

happygirl Collaborator
happygirl
Posted

LindaLee-

2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com? That is a great place too---kind of a co-op for the area. Love it, too.

I love that Farm Fresh carries a bunch of stuff, too...the new one on Independence is wonderful, also.

I'll ask my mom where the gluten free place is in PA. They live outside of Harrisburg, in Mechanicsburg. I want to say the place is near Dillsburg, PA. There was an article in the Harrisburg newspaper about it, which is how she heard about it.

I'm actually in the process of moving, but I'll get the info and PM ya once I have settled....leaving Virginia Beach for Northern VA. Sad to leave the beach.......

Laura

beaglemania Rookie
beaglemania
Posted

Me and my dad just laughed when the little girl said yest, that a substitute could be found for everything she wanted in that store! I'm thinking, hmmm.... I could really go for a soft pretzel right now, wonder if they have some in there??

*yes* lol

LKelly8 Rookie
LKelly8
Posted
2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com?

Ok. I need glasses. :blink: I missed the "de" in "organicdepot.com". I reread that first paragraph 3 times before I caught it.

:lol::lol::lol:

jaten Enthusiast
jaten
Posted
is there anyone else running Firefox? I can't get RealPlayer10 to play the video, it doesn't recognize the format... aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaagggggggggggggggggggggghhhhhhhhhhhhhhhhhhh

Yes, I run Firefox as my primary browser, but often I run into a glitch with videos, espectially from the msn site. IF your computer has a Windows OS, though you should have Internet Explorer even if you're not using it. (Look around, I bet it's there.) There's even a Firefox plugin that you can download that will allow you to right-click and choose (Open this window in IE) It's not necessary though. Just open the IE browser if you're running a Windows OS. I do have that plugin for just such instances...it's convenient. In fact, when I got ready to view this video, I didn't even try from Firefox. Rt-click, poof, I'm in IE; watch the video; close IE; poof I'm back in Firefox.

You can flip back and forth between browsers painlessly. I hope this helps you! The video is GREAT!

Gamecreature Rookie
Gamecreature
Posted

There appears to be something wrong with the way the video is embedded in the page. I'm using Firefox and I can't view the video on the website.

HOWEVER

I used their link to send the video to me via email and the resulting link plays fine. Give this a try:

Open Original Shared Link

mommida Enthusiast
mommida
Posted

It was a great segment! I got teary eyed too. :blink:

We have two gluten free stores here in Mi., Celiac Specialties of Chesterfield and Bel Cibo, in Clawson. They also have eat in tables. Chef Andrew, Bel Cibo, will make you a hot fresh pizza and other entrees to go. :P:D

L.

Guest nini
Guest nini
Posted
Yes, I run Firefox as my primary browser, but often I run into a glitch with videos, espectially from the msn site. IF your computer has a Windows OS, though you should have Internet Explorer even if you're not using it. (Look around, I bet it's there.) There's even a Firefox plugin that you can download that will allow you to right-click and choose (Open this window in IE) It's not necessary though. Just open the IE browser if you're running a Windows OS. I do have that plugin for just such instances...it's convenient. In fact, when I got ready to view this video, I didn't even try from Firefox. Rt-click, poof, I'm in IE; watch the video; close IE; poof I'm back in Firefox.

You can flip back and forth between browsers painlessly. I hope this helps you! The video is GREAT!

I'm not using Windows, I'm using Linspire (Linux) OS...

There appears to be something wrong with the way the video is embedded in the page. I'm using Firefox and I can't view the video on the website.

HOWEVER

I used their link to send the video to me via email and the resulting link plays fine. Give this a try:

Open Original Shared Link

that didn't work either :(

lindalee Enthusiast
lindalee
Posted
LindaLee-

2nd Storehouse on Indian River Road. Take 64, get off at exit 286b (Indian River East) and turn R at the light (if you turn left you turn into the Founders Inn/Regent). It is before you hit the intersection at Centerville.

Jeff is the owner, and is a super nice guy. Its a small place, but he has lots of great stuff.

Have you tried organicdepot.com? That is a great place too---kind of a co-op for the area. Love it, too.

I love that Farm Fresh carries a bunch of stuff, too...the new one on Independence is wonderful, also.

I'll ask my mom where the gluten free place is in PA. They live outside of Harrisburg, in Mechanicsburg. I want to say the place is near Dillsburg, PA. There was an article in the Harrisburg newspaper about it, which is how she heard about it.

I'm actually in the process of moving, but I'll get the info and PM ya once I have settled....leaving Virginia Beach for Northern VA. Sad to leave the beach.......

Laura

Thanks Laura, I'll check it out. Call me when you come back and we'll get together. Best Wishes on your move and new job.

mythreesuns Contributor
mythreesuns
Posted

I was very impressed with the coverage, the whole story. However, my only fear is that all these people will push to get tested and only get the standard blood test and be told they DON'T have it (like I was) and then go on eating gluten.

I was hoping for some mention of the unreliability of the "standard" tests for gluten intolerance.

floridanative Community Regular
floridanative
Posted
  • Author

I e-mailed CBS as well....we all need to do so if we want to see a more comprehensive story on Celiac in the future. A CBS producer today could be working for NBC or ABC tomorrow. Producers get credit if a story gets a lot of feedback, especially if it's good.

Since Dr. Green was in the segment I figured his staff would know how it came about. One of his assistants told me via e-mail, that Dr. LaPook (sp?) works at Columbia too so he apparently knows Dr. Green. So kudos to both Dr. Green and Dr. LaPook for making this happen. I also sent Dr. Green a thank you e-mail to his staff anyway, who promised to pass it on. I said what we need now is Dr. Green and Danna Korn on Oprah...the doc can talk about the medical side of Celiac and Danna can show how the gluten free lifestyle can be tasty and fun as well, besides being healthy. Now if that ever happened, I'd probably faint so I'd have to be taping it - lol!

happygirl Collaborator
happygirl
Posted

I just wrote them, thanking them for such a wonderful and accurate story.

jerseyangel Proficient
jerseyangel
Posted

I emailed them the same night it aired.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    5. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.