Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Found A Great Doctor!

kbtoyssni

By kbtoyssni
in Doctors

Recommended Posts

kbtoyssni Contributor
kbtoyssni
Posted

I had a doctor's appointment yesterday. I just moved here and was so nervous that I'd get someone who would pull a "well, you don't have an official diagnosis so let's put you back on gluten so we can test for sure". I mentioned celiac and that I suspect some other intolerances, and she started talking about how she's diagnosed several people. She did ask if I'd been tested but completely agreed that my dietary response was enough to "diagnose" myself. She's apparently been to several talks about the non-GI symptoms of celiac and tests every women she sees with infertility for celiac. I was floored. I never expected someone who actually knew what they were talking about.

If anyone lives in the Minneapolis/St Paul area and wants the name of my doc, let me know!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


linds Apprentice
linds
Posted

you are lucky to have found one. I live in northern minnesota and have been to many doctors that will just dismiss any digestive issues as IBS. if it only had to be one apt. it would almost be worth the 3 hour drive south to see someone.

  • 2 months later...
geminigal Rookie
geminigal
Posted

I would love to know where you are going and who you were seeing. I just recently had a visit with a Dr. at MN-gastro in Maplewood, but would like to have other options if I am not happy with him.

happygirl Collaborator
happygirl
Posted

that is great to know! it gives us hope when we here of doctors who 'get it', even if we don't have doctors like that ;). I'm happy to hear you have found someone you can trust!

sparkles Contributor
sparkles
Posted

I live in Bloomington and would like to know the name of the doc that you saw. My primary doc really frustrates me. I am overweight and she says if you ate less you would lose weight. I think that part of my difficulty in losing weight is being a celiac. I know for those of you whose symptoms included weight loss, this is hard to understand but I think that overweight celiacs have bodies that just suck in the fat. I have been overweight all of my life so this is not a new thing. I have even looked into the weight reduction surgeries. Anyway this is off the subject... is your doc a gastro doc or internal med or what????

  • 3 weeks later...
Pinto Newbie
Pinto
Posted

I am looking for a GI Doctor near in the Burnsville area that in knowledgable about Celiac. I was very disappointed when the Dr. who did my biopsy, simply told me to call his receptionist in a week for the results. The receptionist confirmed I had Celiac and simply gave me a number to a dietician who told me very little. Almost everything I've learned about Celiac has been from reading books & the web.

lavelli27 Newbie
lavelli27
Posted

Yes, I would love to know the name of the Dr. at MN Gastro, Maplewood. I also just moved here and was diagnosed w/ Celiac in May.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
mmaguire Newbie
mmaguire
Posted

Oh Please may I have the name of your doctor! I live in Saint Paul and have just started shopping around for a medical professional to help guide me through my celiac journey. I was diagnosed as an infant but told I outgrew it. I went gluten free 6 years ago as a test and sure enough it stopped my many odd symptoms and I am a different and healthier person as a result. But I feel a need for medical guidance to stay as healthy as I can.

Looking forward to the name of your doc! and Thanks

  • 2 months later...
Helicopter Newbie
Helicopter
Posted
I had a doctor's appointment yesterday. I just moved here and was so nervous that I'd get someone who would pull a "well, you don't have an official diagnosis so let's put you back on gluten so we can test for sure". I mentioned celiac and that I suspect some other intolerances, and she started talking about how she's diagnosed several people. She did ask if I'd been tested but completely agreed that my dietary response was enough to "diagnose" myself. She's apparently been to several talks about the non-GI symptoms of celiac and tests every women she sees with infertility for celiac. I was floored. I never expected someone who actually knew what they were talking about.

If anyone lives in the Minneapolis/St Paul area and wants the name of my doc, let me know!

I have a 24 year daughter that is in need of a Doctor for her Celiacs

kbtoyssni Contributor
kbtoyssni
Posted
  • Author

So good for me not checking this thread for months after saying I found a good doctor - sorry everyone. I see Dr Ronda Stellar at the Shoreview Medical Clinic (corner of Lexington and 96). She's a regular general doctor but I love having someone who's aware of celiac and not going to be skeptical every time I mention it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Winter 2026 Issue
      8

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

      Thanks this is helpful!
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fermented foods, Kefir, Kombucha?

      very interesting thanks for the info
    3. Florence Lillian
      - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

      More cookie recipes ...thanks so much for the heads-up Scott. One can never have too many. Cheers, Florence.
    4. Russ H
      - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
    5. cristiana
      - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

      Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,914
    • Most Online (within 30 mins)
      7,748
    Momxiety
    Newest Member
    Momxiety
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.