Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Usually How Long

Mayster

By Mayster
in Coping with Celiac Disease

Recommended Posts

Mayster Newbie
Mayster
Posted
:( How long were you guys gluten free before feeling better? I've been reading that once folks have gone gluten free they've never felt better and I wonder how long after that was.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


linds Apprentice
linds
Posted

I'm not sure what other people will have to say but I have been gluten free for a month and feel a little bit better but I still don't have a whole day that I feel good. It seems that still everytime I eat no matter what it is i still have an upset stomach. I have heard some people say that it happens right away while it takes others months. Hope that helps.

Budew Rookie
Budew
Posted

Some folks feel better right away. Some find that they have other problems too.

I waited 2 years before I looked into related problems.

It took me 7 years to find a good doctor.

I thought I'd never be better. Wrong.

Everyday in every way things are getting better.

My mom has had celiac 50 years. Very few problems.

I think it depends on the damage eating gluten has done to your system before the diagnosis, and how careful a person is about food, cross contamination, and even shampoo lotions can cause continued problems.

How long have you been gluten-free now?

Aren't you feeling better?

If not, what's wrong? We may have suggestions?

If you both are not feeling better soon. Let us help.

Rest assured you can be just fine. : )

jerseyangel Proficient
jerseyangel
Posted

It took me 3-4 months to really "turn the corner". I was pretty sick--and had been for years. In addition to the D and nausea, I had severe anemia, tingling and numbness in my legs, feet and face, hair loss, weight loss, bruises on my arms, fatigue, depression, anxiety and brain fog.

I felt very tired for the first few weeks, then gradually began to feel better. It is different for everyone, as are the symptoms that we have.

The main thing is to stick with the gluten-free diet 100%, get as much rest as possible, drink lots of good water and be patient--it will get better :)

Mayster Newbie
Mayster
Posted
  • Author

I have been gluten free a month and this past week I have gone from wicked insomnia to barely staying awake. I'm on a lot of meds too though. My stomach hurts constantly. The docs tell me until my gut heals, I will have discomfort eating. Sip and nibble is what they say. When it gets real bad they say go back to liquids for a couple of days. Bipsy showed no villi left so until they grow back I am told to expect discomfort when I eat. They have given me Bentyl for spasms and Phenergan for the queasy feeling, but all in all it's still unpleasant to eat.

How long have you been gluten-free now?

Aren't you feeling better?

If not, what's wrong? We may have suggestions?

If you both are not feeling better soon. Let us help.

Rest assured you can be just fine. : )

Gamecreature Rookie
Gamecreature
Posted

Everybody's different. I've been gluten-free for about 6 weeks and while I've noticed immediate improvement in the way I've generally felt, I've had several flare-ups, some of which felt worse than I did before going gluten-free. Your age is a factor in how long it takes you to heal. The older you are, the longer it takes.

hez Enthusiast
hez
Posted

It took me about 6 months before I noticed the diet helping. Then by nine months I really felt great. I think it just took my body a while to heal (my vili were completely flat). Give your self some time, know that you will make mistakes and keep with the diet.

Hez

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted

I've been gluten-free 6 months now and haven't noticed much of a difference, although like others my villi were completely flat (I had been sick for many years before my 10th dr. discovered celiac!). I did notice today that I haven't had as many bruises on my legs these last few weeks (have always had huge unexplained bruises in the past), and my dizzy spells are less and less and my leg/foot cramps have just about gone away completely, so even though I haven't had any improvements in the intestinal issues, other things seem to be improving :)

Hang in there - I've heard it can take a year or more to notice improvements (that's what I'm shooting for).

LynRyn Newbie
LynRyn
Posted

I got Celiac about a month ago, and was diagnosed\on a gluten-free diet 2 weeks later. I started feeling normal again about a week after going gluten-free. I'm 17, so that probably helped a bit. Not that I was eating gluten while on celiac for very long.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748
    Cbear
    Newest Member
    Cbear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.