Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Very Ill

jennyj

By jennyj
in Coping with Celiac Disease

Recommended Posts

jennyj Collaborator
jennyj
Posted

I wrote a few days ago that I had been severly ill. I went to the doctor yeterday and today. I haven't eaten for 5 days and am still sipping some fluids. He said my hemoglobin is 10. I have had since Monday (sorry a little gross) very watery black stools. I had to take specimens in today and am waiting to hear the results. He started me on Promethazine tonight and did more blood work today. I am just so tired and want to know what is going on. Please keep me in your thoughts and prayers so I can start to feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rinne Apprentice
rinne
Posted

I sorry to hear that you have been ill, I hope they can find some answers for you and that you feel better soon.

CarlaB Enthusiast
CarlaB
Posted

I hope you feel better soon. Ten is awfully low! Are you bleeding? Is that what they are suspecting?

key Contributor
key
Posted

I am sorry you are so sick. That is miserable. I hope they figure out what it is soon, so you will feel better!! You are in my thoughts and prayers.

Monica

Lisa Mentor
Lisa
Posted

If you are not eating, please drink lots of fluids...gatoraid is good. It could be just a flu bug. But, never the less keep hydrated.

Check in soon.

Lisa

SchnauzerMom Rookie
SchnauzerMom
Posted

You will be in my thoughts and prayers. I hope they figure out what is wrong and deal with it soon!

penguin Community Regular
penguin
Posted

I'm sorry you're sick :(

The promethazine (phenergan) will help you get relief, though.

I hope they figure out what's wrong soon, gluten is often not the/only problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Carriefaith Enthusiast
Carriefaith
Posted

I hope they quickly solve this problem for you. Thoughts and prayers.

babygirl1234 Rookie
babygirl1234
Posted

i hope that you feel better soon

AndreaB Contributor
AndreaB
Posted

Sorry you are so ill. Please make sure you get your liquids if you can't eat.

Thoughts and prayers coming your way. :)

Post when you can.

jesscarmel Enthusiast
jesscarmel
Posted

hi

i hope you feel better :(

also pedialyte is good for dehyrdation and is gluten free! you can get it at cvs.

-Jess

jennyj Collaborator
jennyj
Posted
  • Author

Thank you for all the kind thoughts and words. I still haven't heard from the doctor on my specimens or my blood work. It is so frustrating to sit and wait for them to call. I did manage to eat a little rice last night. I will keep you all updated. Thanks again for the support, it really helps.

key Contributor
key
Posted

I hope you figure out what is going on soon. It is terrible not to know. Have things slowed down at all? ARe you still nauseated?

Hugs,

Monica

jennyj Collaborator
jennyj
Posted
  • Author

My doctor's nurse finally called. She said that what she could tell me is that my iron level that was supposed to be between 15 and 55 was at 9. My hemoglobin had dropped below 10 and my hematacrit?? was at 20 something ( I do not remember) My stool tests came back negative for salmonella, e coli, and parasites. It did show signs of blood loss (duh). I am scheduled to do another IV iron infusion on Monday. She said there is a bad stomach flu going around and with my system already injured that this really got to me. I did eat some potato soup broth tonight and so far so good. Thanks again

AmandaD Community Regular
AmandaD
Posted

JennyJ - It does sound like you're going to be okay...rest and take care of yourself!!!

almostnrn Explorer
almostnrn
Posted

My thoughts and prayers are with you. I hope they find a solution for you soon!

lindalee Enthusiast
lindalee
Posted

Hope things are better for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.