Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Lynne - Tiredofdoctors


mouse

Recommended Posts

Mtndog Collaborator

I thank all of you. Armetta for getting the ball rolling even when she felt yucky, Lisa and Laura- for compilig everything. If they get this I am so flying down to Lou-ville for thaat week. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 112
  • Created
  • Last Reply
Rusla Enthusiast

Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

Lisa Mentor

Armetta, I thank you for your gift of compassion, generosity and the knowledge of "it's just the right thing to do". Good things happen, to good people making it happen.

Thoughts to you, Lisa

Lisa Mentor
Armetta, Lisa, and Laura, I want to thank all of you for thinking of this for Lynne and Dave. I don't know how many letters you rounded up. I do hope they take it to heart what we have all said. Not only does Lynne need this but she deserves this.

Just to clarify........Armetta is in command, Laura and I are the ground crew. Metta., has the yucks, so we are the stand ins. :blink:

Thanks and yes she does.

Turtle Enthusiast

I think it's really great how everyone came together and made every effort to help out on this project!

Thanks to Metta and her ground crew for all their hard work and organization!!

Keep us posted!!!!

num1habsfan Rising Star

Hmm does that mean I missed the cut-off? :blink:

~ lisa ~

  • 4 weeks later...
angel-jd1 Community Regular

Just curious if They made the cut??

-Jessica :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I should have posted this earlier:

All the little pieces are coming together and they should be ready to submit VERY soon. It is a technical process and full of lots of detail. Hopefully, within a week or so, the whole package will be sent off and submitted.

All of those who care or have written a letter, it is a gift that you bring. Thank you :)

Armetta, is force behind this project. Hopes and prayers could make it happen. But, lets get there first.

Lisa

I will post with any news or updates.

Mtndog Collaborator

No one deserves it more than our Lynne! :rolleyes: :rolleyes:

debmidge Rising Star

is there still time for more? I got bombarded at work and didn't get to my letter...

happygirl Collaborator

Deb, if you want to get it to me soon, I can include it! I'll PM you my email.

xoxo

  • 3 weeks later...
angel-jd1 Community Regular

Any updates? Did they make the cut. They should be hearing back by now I would think. This was all done forever ago :)

-Jessica :rolleyes:

Lisa Mentor

Lynne and Dave have been sick with the flu and Lynne had a bad case of pneunonia and is recovering and feeling better. They are looking for a good sunny day to arrange the video.

Lynne, you can chime in here......... :D

Laura has done a great deal of work getting the letters in perfect submission. Thanks you so much Laura for you hard work and a lot of you private time.

Armetta has the package ready to go when the video is complete.

We are wishful, for Lynne. It would be soooo cool.

Armetta or I will let you know when the package has been submitted and you guy will be the first (well, second) to know!

Lisa

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,067
    • Most Online (within 30 mins)
      7,748

    Beansy
    Newest Member
    Beansy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.