Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thirst

Niteyx13

By Niteyx13
in Related Issues & Disorders

Recommended Posts

tom Contributor
tom
Posted
BTW: I rip on doctors alot because so many of them misdiganosed or mistreated me. But when I finally found a good one, he spent 6 months testing me and wouldn't give up til he diagnosed me. I had a check-up recently and he told me that, now that he knows what to look for, he's diagnosed 3 other celiacs in the past year. That's after 30 years of never diagnosing anyone with celiac! There are some doctors who actually try to do a good job.

Omg TestyTommy I got chills reading this!!

What a fantastic Dr!!

To everyone else -

If you've been gluten-free a while and are still too thirsty, having some GI symptoms, bloating, exhaustion, hdaches, etc (many possibilities where I'm going), you may do yourself a GREAT favor by looking into Candida overgrowth.

I saw more than a couple of posts reminding me of me in this regard.

I'm nearly positive that far more long-term celiacs develop Candida overgrowth than what seems to be accepted thought on this topic.

To make sure I'm clear - I'm talking about celiacs who've been gluten-free a while, but several symptoms, incl thirst remain, tho often the symptoms have diminished some since going gluten-free.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TestyTommy Rookie
TestyTommy
Posted

I was tested multiple time by multiple doctors for both types of diabetes. But, of course, since I didn't have it, the tests were always negative. Then the doctors would give up. "Well, the tests were negative, so there must not be anything wrong with you. It must be in your imagination."

My sister was also diagnosed with celiac a couple months ago. I hadn't seen her in awhile, and she showed up on a beautiful spring day wearing long sleeves. I teased her about it, and she showed me her 'rash' that she'd had for the past year or so. It was the biggest, nastiest giant red blotches I'd ever seen. I'd never had DH as a symptom, but I pulled out some of my celiac books and it sure looked like what they described. She had been to a number of doctors, and they all said things like, "Huh! I've never seen anything like that before!" No one tested her for celiac, despite her having a brother with the disease. She went back to her doctor, and he still didn't want to test her! DOCTORS ARE IDIOTS!

Tom:

I've always been suspicious of candida as one of those made-up internet diseases. Can you point me towards some info? Have you had any success? What kind of treatment have you had?

confusedks Enthusiast
confusedks
Posted

I have been researching extreme thirst! I am SO THIRSTY!!! I have been gluten-free for about 2 1/2 months. This is a new thing that is going on. I have NEVER had this before. I am so thirsty I am waking up numerous times in the middle of the night to get water. I also don't want ANYTHING but water which is new because I usually never want any water; only soda, juice, etc. Should I get tested for diabetes? I am worried...also I have been severely anemic in the past and it is fine now. Also the way I know is because water used to make me want to puke when I was anemic.

Kassandra ;)

TestyTommy Rookie
TestyTommy
Posted

Hi Kassandra,

Thirst can certainly be a sign of diabetes, so you should get tested. My problem (and the problem of some others on this thread) is that we were negative for diabetes, and then no one bothered to test us for anything else -- like celiac!

Another thing: watch your electrolytes. If you're drinking a lot of water, it may not be getting inside your cells if you're not getting enough electrolytes, especially salt. (This happened to me). Some things to try:

add about 1/4 tsp of salt to each glass of water you drink, especially in the morning.

sometime drink beverages like Gatorade that have electrolytes in them, instead of water.

I used a product called 'Endurolytes' that have electrolytes in capsule form.

Good luck!

lfij Newbie
lfij
Posted
A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!

Deanna

maybe your body is just working overtime and needs more fluids! (when you have the flu or are sick otherwise, you usually need more, celiac is no different if you're back on gluten for testing)

  • 2 weeks later...
lilpup Newbie
lilpup
Posted

I've also had terrible thirst for the past several days--never had it before going gluten-free 11 days ago. (No, I don't have diabetes.) I'm eating a balanced diet and have been cooking for myself no eating out, no premade foods. But each day the thirst seems to be getting more intense. Can anyone help?

boysmommy Newbie
boysmommy
Posted

OMG!! This is my first time on this. I was just recently diagnosed and I am looking for information. As I sit at my computer here with a bottle of ice cold water and a cup of ice! I crave ice or flavored ices ALL the time!! I actually feel sooooo sick (tired, nausea, headache) if I don;t drink a ridiculous amount of water. I am always up several time a night to pee. I also was checked for diabetes and do not have it. I was diagnosed with celiac (without a biopsy) as a baby and was told be 3 that I had outgrown it. I have suffered for years including bloating, cramps, nausea, migraines, foggy head, severely severely itchy skin without rashes....and others. I finally, on the recommendation of my children's pediatrician had blood work (positive) and then a biopsy to finally conclude, I really had always had celiac. I am really just learning about all of this but never knew my weird thirst was part of it!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


melrobsings Contributor
melrobsings
Posted

You might want to look into sjogrens.

Open Original Shared Link

It's also a hereditairy auto-immune and my mom has it.

If you have the book "Celiac Disease A Hidden Epidemic" there is a chapter in the book about it.

  • 4 years later...
drjlgphd Newbie
drjlgphd
Posted

A lot of you know I have gone back on gluten for a time to be tested. I have noticed since going back on it; aside of feeling just horrible, that I am constantly thristy all the time. Now this is a symptom I had before going gluten-free, and it went away when I was gluten-free, but I didn't even notice it was gone until going back on gluten and finding that it is back. And, wow is it back with a vengence! Anyone else noticed this? Is it a symptom of celiac disease, or is it maybe that gluten foods just have more dehydrating ingredients (I know that sounds weird but I am sure it is possible)? Thanks!

Deanna

I would guess that it is due to loose stools. I used to be so thirsty all the time that I was checked more than once for diabetes. Off-gluten for 4 years and I don't need to drink about 120oz of water a day anymore. I'm on a gluten challenge as of yesterday for one month to set up for an endoscopy and I woke up in the middle of the night so thirsty I could hardly get to the kitchen fast enough. I drank 16oz of water and had to stop myself from continuing. This morning, loose stools as I used to have before I went off of gluten. I'm pretty sure they're connected.

kareng Grand Master
kareng
Posted

Please note, the last post on this thread is from 2007. The OP you are responding to is from 2004.

  • 2 years later...
UK2004 Rookie
UK2004
Posted

I also had this extreme thirst, mine started 16 years ago and was my first majorly noticeable symptom.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.