Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Normal?


GlutenWrangler

Recommended Posts

GlutenWrangler Contributor

Is it normal to have symptoms similar to a glutening for the first few days of taking a strong probiotic? The probiotic is definitely gluten-free. Thanks

-Brian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

My system couldn't handle probiotics. They made me awfully sick. I had to stop using them. I gave them a full week to work and I just stayed sick. I've heard the same from others. Perhaps some people are just sensitive to them.

Guest cassidy

I have never had any reaction to them, but if you think about it, if the new good bacteria is killing off the old bad bacteria you might have some sort of a die off reaction. Last year I took an antifungal for candida and two different antibiotics for an amoeba and bad bacteria and those things made me feel terrible. After all that I took tons of probiotics and those never made me feel bad, but the die off from the first things was almost more than I could take.

I have no idea if that is a real possibility, but it sounds logical.

GlutenWrangler Contributor

I did some reading and found something called excessive drainage syndrome, which can cause headache, diarrhea, bloating, and gas. It makes sense that it would feel like getting glutened. Thanks for the replies.

-Brian

dionnek Enthusiast

does anyone know if probiotics and L-Glutamine are ok to take when yoiu are pregnant? I will check with my dr, but they are usually so clueless about stuff like this.

GlutenWrangler Contributor

I read that probiotics are fine to take when you are pregnant. I would think that L-Glutamine would be fine too, because it is a naturally occuring amino acid in the body. But I think that you should double check with your doctor because I could be wrong.

-Brian

Ursa Major Collaborator

I was supposed to take a probiotic when I had terrible diarrhea for a week and a half just recently (caused by some meds that were high in salicylates, long story). So, I started taking one I had in the house, and it made me feel terrible, and made the diarrhea worse. I checked the ingredients, and it had maltodextrin.

I went to the health food store to buy a new probiotic. Almost all of them had either dairy in them (whey and lactase I think), and the others had maltodextrin. I only found one without either, and with a guarantee of not containing any sucrose, starch, salt, preservatives, artificial colours, flavours or additives, or any corn, wheat, yeast, gluten, soy, dairy or animal by-products.

This one of course cost me $55.00 for 120 caps. Quite steep. But it worked to stop the diarrhea, and it didn't make me feel bad, even tough I was taking about ten a day. It is called HMF Forte, and is by Genestra Brands.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast
Is it normal to have symptoms similar to a glutening for the first few days of taking a strong probiotic?

Dieoff is certainly a possibilty as some have reported this happening and they would feel worse before feeling better. When I first tried to take probiotics I would have very caustic D right away. I would try to stay with them because *everyone* said it was so important to good health. But, the negatives outweighed the positives and I stopped after trying probably 5 different brands/combinations.

It wasn't until I started looking for corn derivatives that I discovered that the ALL had either dairy, corn or soy. No wonder I had problems. Like Ursa said, it is very difficult to find a probiotic that doesn't have corn in it (dextrose, maltodextrin, citric acid, etc.)

So, if your symptoms don't improve, you might want to explore other food sensitivies.

GlutenWrangler Contributor

I'm using HLC Intensive probiotics. This is from the website:

Each capsule contains:

HLC LAB4 Consortium......24 billion viable cells (may contain up to 30 billion)

L. acidophilus CUL 60

L. acidophilus CUL 21

Bifidobacterium bifidum CUL 20

Bifidobacterium lactis CUL 34

Other Ingredients: cellulose, silica, vegetable magnesium stearate.

HLC probiotics contain no dairy, casein, wheat, gluten, soy, corn, or other common allergens.

So I don't think they could cause me a problem with gluten or casein, right?

-Brian

marciab Enthusiast

Brian,

Unfortunately, anyone can react to anything and we are all different. If it is a capsule, you could always open it and pour a little in applesauce, etc. if you still want to try it.

It's always possible that this is just too strong for you right now. Or maybe it is has gone bad. That would be the downside of supplements. You never know how they have been stored.

Also, I may be mistaken, but doesn't the L. in front of Acidophulus stand for lactose ?

Miso and sauerkraut also contain probiotics ... I found some chick pea miso at my health food store that is gluten-free, DF,CF, SF and it tastes great. Google fermented foods to find other natural probiotics.

Good luck ... marcia

jerseyangel Proficient

Add me to the list of people who can not tolerate probiotics. The first one I tried, Culturelle, made me terribly nauseous. I took them for as long as I could stand it--about a week.

The second time, the probiotic was in a digestive enzyme--I immediately got gas, bloating and nausea.

I thought it must just be me because I read so much about people taking them and feeling better. I just felt worse. It's good to hear that I'm not the only one! (We say that a lot around here!) :D

Ursa Major Collaborator

I looked it up, because mine have L. Acidophilus as well. It stand for Lactobacillus Acidophilus. No lactose involved.

Brian, I am stumped, I don't see anything that could cause you to be sick. Do you take them with a meal? If I take probiotics on an empty stomach, I get a stomach ache and feel nauseous.

GlutenWrangler Contributor

It's not that I feel really sick right away. It's just the next morning what I get up I don't really feel good. I attribute it to my body getting rid of the toxins in my intestine. I feel a little better every day. This is my 5th day taking them. After 30 days I switch to the High Potency capsules which have half of the amount of bacteria that is in the Intensive capsules. If it doesn't get any better soon I'll just switch to the lower dose. I can't stop taking them because I think they will help with the D. I still have it almost 6 months into the diet. Maybe things have to get a little worse before they get better.

-Brian

Nancym Enthusiast

I switched from trying probiotics to using kefir instead. It really seems much easier on the gut.

Guest cassidy
does anyone know if probiotics and L-Glutamine are ok to take when yoiu are pregnant? I will check with my dr, but they are usually so clueless about stuff like this.

Both my ob/gyn and my holistic doctor said that probiotics are ok when pregnant. My holistic doctor said that both probiotics and digestive enzymes are very helpful when pregnant because your body is already straining so much to take care of the baby that any help you can give your gi system is beneficial. My health food store also said they are ok and I have been taking them the entire time with no problem.

Guest AutumnE
I'm using HLC Intensive probiotics. This is from the website:

Each capsule contains:

HLC LAB4 Consortium......24 billion viable cells (may contain up to 30 billion)

L. acidophilus CUL 60

L. acidophilus CUL 21

Bifidobacterium bifidum CUL 20

Bifidobacterium lactis CUL 34

Other Ingredients: cellulose, silica, vegetable magnesium stearate.

HLC probiotics contain no dairy, casein, wheat, gluten, soy, corn, or other common allergens.

So I don't think they could cause me a problem with gluten or casein, right?

-Brian

vegetable magnesium stearate could be corn, what vegetable do they use for it? Alot of times they call it hypoallergenic because they pull out the protein part of the corn but I still have a reaction. Im not the only one either others sometimes are hypersensitive to it.

GlutenWrangler Contributor

Autumn,

I don't think it's from corn because they say they don't use corn in their ingredients. I'm not sure which vegetable they use for the vegetable magnesium stearate. I tried to look that up myself a few days ago, but found no answers. I don't think I'm sensitive to corn anyway though. I've eaten it once since going gluten-free, and didn't have a problem.

Anyway the good news is that I feel pretty good today. I think that my body has finally adjusted and rid itself of most of the toxins. I'm glad that I can finally tolerate them. I had no idea so many people had trouble tolerating probiotics. Thanks everyone,

-Brian

Guest AutumnE

Im glad your doing better :) It stinks to not feel well around the holidays.

Take Care

TestyTommy Rookie

Add me to the list of people who react to probiotics.

I started taking one a couple of days ago. I got a stomach ache and felt bloated & gassy. Then I got the big D. It was similar to a gluten reaction, except when I was on gluten, I felt bloated and gassy, but could never pass any of the gas. This gas is definitely passing.

Will this wear off after a while? Is it a good sign? Or should I stop taking the probiotics?

Thanks for any advice any of you can offer.

marciab Enthusiast

"Miso and sauerkraut also contain probiotics ... I found some chick pea miso at my health food store that is gluten-free, DF,CF, SF and it tastes great. Google fermented foods to find other natural probiotics. "

I had to come back here and let you know that I am having a major candida outbreak and I believe it is from the miso, etc.

I'm confused because I read that people with candida should avoid fermented foods (miso, etc), but they are also considered beneficial if they still contain live cultures (from the Body Ecology diet) ...

Just wanted to give y'all a heads up ... I am back on kefir for now, since this is what cleared me up the first time ...

Marcia

debmidge Rising Star

add my husband to list of those who have celiac disease & can't take probiotics (reaction)

GlutenWrangler Contributor

Tommy,

My first few days were pretty rough. I was about to stop taking them, but I decided to stick with it. Each day after that I got better and better. At this point my body has no problem tolerating the probiotics. I've been taking them for roughly 2 weeks now, and I'm definitely happy about the improvement. My healing process had kind of stalled, and now it seems like it's back on track, and I feel better than I have in a very long time.

If you have a bad mixture of intestinal flora, the probiotics will be able to help you. But in order to repopulate your intestine with good bacteria, the bad bacteria has to be removed. This cleansing period makes you feel like crap, but it should lessen and then disappear with time. If it doesn't get better, you might want to try another brand. Make sure there is no hidden gluten in the ingredients. I hope it works out for you. Good luck.

-Brian

TestyTommy Rookie

Thanks, Brian. I'll stick it out for a couple of weeks and see what happens. Besides, what's a little belly ache and GI distress to a celiac?? :P

GlutenWrangler Contributor

Couldn't have said it any better myself

NoGluGirl Contributor
Brian,

Unfortunately, anyone can react to anything and we are all different. If it is a capsule, you could always open it and pour a little in applesauce, etc. if you still want to try it.

It's always possible that this is just too strong for you right now. Or maybe it is has gone bad. That would be the downside of supplements. You never know how they have been stored.

Also, I may be mistaken, but doesn't the L. in front of Acidophulus stand for lactose ?

Miso and sauerkraut also contain probiotics ... I found some chick pea miso at my health food store that is gluten-free, DF,CF, SF and it tastes great. Google fermented foods to find other natural probiotics.

Good luck ... marcia

Dear Marcia,

As far as I know, L. stands for Lactobacillus. That is the genus of the bacteria. That means the strain it is unique to. This normally states what family it is from. I do not think it has anything to do with dairy. The most common source of it is yogurt, though.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.