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I'm Suuuuuuuch An Idiot!


emcmaster

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emcmaster Collaborator

Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:


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Rusla Enthusiast

Even when you are dilligent it happens to be so hard on yourself. I was extremely dilligent and I still got it.

codetalker Contributor

Welcome to the club!

darlindeb25 Collaborator

Like they always say--when you fall off the horse, get right back on! It happens, don't beat yourself up!!!

Guest cassidy

I've done that as well. You can't be perfect on the diet especially when there are so many foods to avoid. I often thought about eating something bad after I've been accidently glutened because I wondered if it would make the recovery alot worse, or just a little worse. I've never done it because I don't think I could enjoy something that I knew was bad. Being pregnant now I really don't get that sick when I'm glutened and if I thought it wouldn't affect the baby I would eat a big old pizza, but fear would never let me do that.

Hope you feel better and the combination of glutenings doesn't make it that much worse.

gadgetgirl Newbie
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

Welcome to the club! I'm right there with you - my reward for my sloppy eating over the past week has been the first head cold that I've had in almost 2 years despite being constantly exposed to bugs. And to top it off, I've completely lost my voice and have a job where I interact with heariing impaired individuals on a daily basis. Duh!!!!

Like one of the others said, I've gotten back on the horse and am eating clean and have even started to chase sugar back out of my diet - it had snuck back in when I went gluten-free.

Hope you feel better soon!

jerseyangel Proficient

Hi Elizabeth,

I have to add my "don't be so hard on yourself"! It really does happen to all of us at one time or another.

You will get back to feeling well again--hopefully very soon :D


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emcmaster Collaborator

Thanks everyone! I appreciate the words of comfort!

I can't believe I used to feel this sick almost all the time - I feel like death warmed over. Bleh!

marciab Enthusiast

Blame it on the gluten ... It can do so many things to us, why not ??

I'm beating myself up right now over the same thing. It is just so hard to find replacements for everything ... And who really wants to believe that cross contamination can do as much harm as the real thing.

I'll stop beating myself up if you will ... marcia :blink:

SchnauzerMom Rookie

Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

ajay Newbie

I visited my family for the holidays and we went out to dinner for Christmas, which is the worst day to ever go to a restaurant if you have any special concerns. Most of the food is pre-prepared and the staff is usually the least experienced, because the senior staff is on vacation. I was as careful as possible under the circumstances..and currently covered with little red spots nonetheless. And crampy and sick. Bleah.

At least we all know what to do for New Year's Resolutions!

:P

emcmaster Collaborator

Thanks so much for the support!

I'm still feeling pretty bad. It got better on Friday and yesterday to where I thought the symptoms were finally going away. But then I woke up this morning in a lot of pain, really really bloated. (Guess that means I'll be wearing pajama pants at our New Year's Eve party <_< ).

I used to be dairy and fat intolerant, until early November. Does anyone know at what point I should start cutting that out again if I don't feel better soon? I'm so paranoid that those intolerances will come back...

happygirl Collaborator

Elizabeth,

I'm sorry to hear about your rough spell. It definitely is frustrating, but you have been around on this board long enough to know that we have ALL been glutened before :(.

Get back on the gluten free horse, and we'll resolve to make 2007 even MORE gluten free :)

Laura

emcmaster Collaborator

Thanks, Laura. Hope you're feeling better - how are your tests going to determine what else you have?

happygirl Collaborator

Elizabeth,

You are sweet to ask, esp considering your recent glutening :). I will PM you if that is ok :)

Laura

lilmama Apprentice
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

I did the exact same ting tis week. Sat down and munched on Doritos then the light bulb went off that I just ate the wrong thing. I paid dearly for it. It had been a sucky 2 wks and every turn I was glutening myself. I'm glad the holiday is over and that everyone is finally getting well in my house.

plantime Contributor
Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

I did the same thing with lemon meringue at my neighbor's on Christmas Day. Although I did learn that I am not as sensitive as I was before. I guess the 9 months since the last glutening allowed a lot of healing. For which I am truly thanking God!!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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