Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Suuuuuuuch An Idiot!


emcmaster

Recommended Posts

emcmaster Collaborator

Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Even when you are dilligent it happens to be so hard on yourself. I was extremely dilligent and I still got it.

codetalker Contributor

Welcome to the club!

darlindeb25 Collaborator

Like they always say--when you fall off the horse, get right back on! It happens, don't beat yourself up!!!

Guest cassidy

I've done that as well. You can't be perfect on the diet especially when there are so many foods to avoid. I often thought about eating something bad after I've been accidently glutened because I wondered if it would make the recovery alot worse, or just a little worse. I've never done it because I don't think I could enjoy something that I knew was bad. Being pregnant now I really don't get that sick when I'm glutened and if I thought it wouldn't affect the baby I would eat a big old pizza, but fear would never let me do that.

Hope you feel better and the combination of glutenings doesn't make it that much worse.

gadgetgirl Newbie
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

Welcome to the club! I'm right there with you - my reward for my sloppy eating over the past week has been the first head cold that I've had in almost 2 years despite being constantly exposed to bugs. And to top it off, I've completely lost my voice and have a job where I interact with heariing impaired individuals on a daily basis. Duh!!!!

Like one of the others said, I've gotten back on the horse and am eating clean and have even started to chase sugar back out of my diet - it had snuck back in when I went gluten-free.

Hope you feel better soon!

jerseyangel Proficient

Hi Elizabeth,

I have to add my "don't be so hard on yourself"! It really does happen to all of us at one time or another.

You will get back to feeling well again--hopefully very soon :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emcmaster Collaborator

Thanks everyone! I appreciate the words of comfort!

I can't believe I used to feel this sick almost all the time - I feel like death warmed over. Bleh!

marciab Enthusiast

Blame it on the gluten ... It can do so many things to us, why not ??

I'm beating myself up right now over the same thing. It is just so hard to find replacements for everything ... And who really wants to believe that cross contamination can do as much harm as the real thing.

I'll stop beating myself up if you will ... marcia :blink:

SchnauzerMom Rookie

Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

ajay Newbie

I visited my family for the holidays and we went out to dinner for Christmas, which is the worst day to ever go to a restaurant if you have any special concerns. Most of the food is pre-prepared and the staff is usually the least experienced, because the senior staff is on vacation. I was as careful as possible under the circumstances..and currently covered with little red spots nonetheless. And crampy and sick. Bleah.

At least we all know what to do for New Year's Resolutions!

:P

emcmaster Collaborator

Thanks so much for the support!

I'm still feeling pretty bad. It got better on Friday and yesterday to where I thought the symptoms were finally going away. But then I woke up this morning in a lot of pain, really really bloated. (Guess that means I'll be wearing pajama pants at our New Year's Eve party <_< ).

I used to be dairy and fat intolerant, until early November. Does anyone know at what point I should start cutting that out again if I don't feel better soon? I'm so paranoid that those intolerances will come back...

happygirl Collaborator

Elizabeth,

I'm sorry to hear about your rough spell. It definitely is frustrating, but you have been around on this board long enough to know that we have ALL been glutened before :(.

Get back on the gluten free horse, and we'll resolve to make 2007 even MORE gluten free :)

Laura

emcmaster Collaborator

Thanks, Laura. Hope you're feeling better - how are your tests going to determine what else you have?

happygirl Collaborator

Elizabeth,

You are sweet to ask, esp considering your recent glutening :). I will PM you if that is ok :)

Laura

lilmama Apprentice
Anyone remember that whole mantra of once you heal and feel really good, you often become lazy and not as diligent as you were when you were first diagnosed?

I didn't believe it would happen to me, but it did.

I seriously think I got glutened EVERY DAY this past week. Every day. I thought I was being careful, but realizing that the huge bag of Doritos I ate was not gluten-free (um, DUH) brought about a huge smack in the face. Sadly, the doritos were probably one of the lesser glutenings.

I've been doing ok with my reactions to gluten, given that it happens so sparingly. The "suffering" time has been about 20% of the time it used to be.

But not this time. It's been 3 days and I'm still just as sick.

GRR. The only person I have to blame is myself. :angry:

I did the exact same ting tis week. Sat down and munched on Doritos then the light bulb went off that I just ate the wrong thing. I paid dearly for it. It had been a sucky 2 wks and every turn I was glutening myself. I'm glad the holiday is over and that everyone is finally getting well in my house.

plantime Contributor
Count me in. I messed up at a Christmas dinner at my sister-in-law's. The meat and veggies were fine but then I had dessert. Chocolate pie, I thought I could just not eat the crust and I would be alright. Wrong! I'm getting over it finally.

I did the same thing with lemon meringue at my neighbor's on Christmas Day. Although I did learn that I am not as sensitive as I was before. I guess the 9 months since the last glutening allowed a lot of healing. For which I am truly thanking God!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.