Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Losing My Doctor


Rusla

Recommended Posts

Rusla Enthusiast

Finally, I find a decent doctor who knows about Celiac disease. Everything is going swimmingly and I go see him last Thursday at his office and he doesn't say he is leaving. There are six other doctors in the clinic and he was the most popular. He did work a great deal out of the hospital but no office there.

Well I find out this week that he is no longer at the clinic and the other doctors will refuse to take his patients.

I am so lost and have no idea where I will find a doctor who doesn't pull the "oh you can't be celiac" or hasn't a clue to what I am talking about routine. I am so very sad and the list of doctors that are taking patients, forget it they have been on the taking patients list for years meaning they are probably lousy ones.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Rusla, I am sorry your lost your doctor. I know it will be tough finding another one who actually understands. Don't give up, and I hope you'll find another great doctor soon.

Carriefaith Enthusiast

I am really sorry :( So you do have that list of doctor's taking patients in Calgary? I went to see one of the doctors still on the list and I really liked him. I've went in a few times now and I'm considering him my new doctor. I'm going to PM you.

lorka150 Collaborator

I'm sorry you are losing your doctor and I hope that Carriefaith's info can help you.

For what it's worth, I don't have a doctor - instead, I just go to my internist. It helps a lot, we have regular appt's, and so on. Maybe you can just work with your GI or if you have an internist, also?

LyndaCanada Rookie

Wow, that's awful! I'm so sorry. Do you think maybe if you contacted your local Celiac Association chapter they might have a list of good doctors? Where did your doctor go, is he still praticing in Calgary or what?

Is this your GP that you mean or your GI doctor?

To be honest, my GP was completely useless in helping me with my diagnosis, she was the one that told me "I couldn't possibly have Celiac Disease" because of my negative blood test after TWO positive biopsies. I depend soley on my GI doctor now.

Do you have a good GI doctor you go to in Calgary? You should try to get into the GI clinic in Edmonton, it's really awesome. They have a whole office building next to the U of A hospital.

There are at least 6-8 doctors that practice out of there.

Good luck!!

Lynda

jennyj Collaborator

I can sympathize with you my doctor left at Thanksgiving, right after I was really sick. I have another doctor that I haven't been to yet but he was my mother's doctor nad he is currently my husbands doc. He is a great man but I don't know what he knows about celiac. I have to see him next Thursday for an earache I can't seem to shake so I guess I'll see whats going to happen with the rest of my problems. Good luck.

kbtoyssni Contributor

Sorry and good luck finding a new doctor. I try to look for someone younger. They may not know a lot about celiac, but they tend to be more willing to learn and try non-traditional things. They would probably still be on the "accepting patients" list just because they're new. I'm not sure if the reason doctors don't believe you is because you don't have an official biopsy, but if I were going to a new doc and they started to doubt me, I'd probably lie and said I had a positive biopsy and blood test. Not that I recommend lying to your doctor... I just get so frustrated with things sometimes it's easier.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Creative-Soul Newbie

So sorry to hear that...I wonder why he didn't say that he was leaving? I hope you find an understanding doctor soon!

  • 4 weeks later...
floridanative Community Regular

That totally sucks Rusla. I'm so sorry to hear this news....why didn't the guy at least say he was leaving? How odd - maybe he was fired. I'll be thinking good thoughts that you find an even better doctor but I know how frustrating the search can be. Good luck and keep up posted on your progress.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.