Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good Example Of A Little Bit Of Knowlege Being Dangerous


mamatide

Recommended Posts

mamatide Enthusiast

Cityline, a daily Canadian talk show, did a brief segment on what it means to be gluten-free this morning and stated:

1. that something can be done to wheat to remove the gluten

2. that organic wheat is ok

3. that spelt is a good substitute

4. that oats are a substitute

5 that gluten can be removed from the diet and then slowly reintroduced

and should be kept at a minimum thereafter.

The also suggested that going gluten free can be a solution for hot flashes (that would

be nice if it's true - let me know!)

Only a minor suggestion of Celiac disease (just mentioned the name, not

what it was).

I emailed them as I was listening to (and cringing at) the segment. I gave them some links (what is gluten, what is celiac disease, what is spelt) and a few of the more stunning statistics (1 in 133, 10 years to diagnose).

I only hope they haven't done harm with what they've said. I told them they need to correct this.

<sigh>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Amazing. I'm glad you emailed.

I've been gluten-free for a month. My hot flashes haven't improved. (But I didn't go on this diet for that anyway. It would be a nice fringe benefit, though. Did they say how long this was supposed to take? :lol: )

Daxin Explorer

THey usually appear more organized than that. I hope the information you directed them too allows for an on air correction. Let us know how it turns out.

Felidae Enthusiast

I watched the show this morning too. Cityline is usually really good and I'm a big fan of the show. I'm leaning towards blaming the guest, Rose Reisman since I think she is very ill-informed. Most cooks/chefs that I have heard talk about celiac are better informed than her. Or if they don't know enough about the topic they don't go into it in detail. Even when Rachel Ray talks about ingredients being gluten-free, she just leaves it that.

mamatide Enthusiast
I watched the show this morning too. Cityline is usually really good and I'm a big fan of the show. I'm leaning towards blaming the guest, Rose Reisman since I think she is very ill-informed. Most cooks/chefs that I have heard talk about celiac are better informed than her. Or if they don't know enough about the topic they don't go into it in detail. Even when Rachel Ray talks about ingredients being gluten-free, she just leaves it that.

I emailed Rose Reisman too. Here's the correction she posted on her website:

Open Original Shared Link

blueeyedmanda Community Regular

Is this show seen in the US too? Either way I am glad you emailed them to get the correct information out. Giving the wrong information can hurt people who are just starting out or still in the testing phases. Good Job :):):)

tarnalberry Community Regular

the correction continues to support the use of spelt, and the idea that some celiacs can tolerate some levels of gluten. it's still a VERY misleading, and in some places just plain wrong, correction. HORRID!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

stupid canadians ;)

i should march on up there...

SillyBoo Newbie

For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!

ArtGirl Enthusiast
For a couple of months pre-diagnosis, I was having hot flashes at least a couple of times every day. Within 2 weeks of going gluten-free (October 2006), they dwindled to only one or two a week, and then almost completely disappeared for the past month and a half. I can only assume it's related to eliminating gluten. Definitely a nice side effect!

If only I should be so fortunate. :( I did read somewhere that gluten can affect the hormones which is why going gluten-free is helpful for this. Apparently gluten is not causing mine so no relief going gluten-free. I'm 60 and still have the darn things! It's been over 15 years for me.

Felidae Enthusiast
stupid canadians ;)

i should march on up there...

I thought Rose Reisman was an American. LOL

It really doesn't matter, except that her information is very wrong. She really shouldn't pretend to know things that she has not thoroughly informed herself on.

elye Community Regular

Sad, but true...we can be rather dumb up here. Lookit all the WHEAT we grow! :lol:

  • 2 weeks later...
Nic Collaborator

Could it be that going gluten free will help hot flashes if the hot flashes were caused by gluten symptoms and not the hot flashes that are caused by normal hormone changes such as menapause? I have heard from a few people here that they had hot flashes prior to going gluten free.

Nicole

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,642
    • Most Online (within 30 mins)
      7,748

    BethC
    Newest Member
    BethC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.