Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling For A Prayer For My Sister!


blueeyedmanda

Recommended Posts

blueeyedmanda Community Regular

Today when I got home from work, I got a call from my mom, my sister who is 20, had been up all night with bad "D" and ended up with a Dr's appointment this morning. At the Dr her blood pressure bottomed out and she passed out. She was rushed to the hospital and she is dehydrated.

I was just informed she has a Gastro Infection and has other tests pending.

I am worried, she has been healthy and never really sick now she is in the hospital and can barely breathe!!

Please send a little prayer her way. She is scared and I wish i could be there with her but she is over 2 and 1/2 hrs away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I hope that she is okay....you must be so worried! But, the good thing is that she is getting the care she needs. Please keep us updated to let us know.

She will be in my prayers.

Viola 1 Rookie

That is so scary for you and the rest of the family. I'm sending prayers her way.

Keep us up to date.

Lisa Mentor

Good wishes and thoughts her way.

Guhlia Rising Star

Amanda, that's horrible! I will keep her in my prayers. Please let us know how things go over the next few days. Hopefully they'll have some answers relatively quickly so you and and your family aren't in the dark for long. Let me know if you need anything. I'm not too far away if you need help. Anything, just let me know.

blueeyedmanda Community Regular

Thanks Everyone!

Angie-You are wonderful. I am glad you are so close. You are a great friend.

Right now she is resting, and my parents have left her. She is in a small hospital up in NEPA. She was in a room with an elderly person who was not doing too well, but they moved her into her own room, I am hoping so not to tramatize her. She has never been in a hospital.

I am a little angry, they waited until after 8 to give her an IV, she was so thirsty and hadn't had a thing, her Dr had ordered an IV at 12 when she went to the hospital, but for some reason it didn't get put in till 8 :blink: Poor girl! Hopefully she will get some sleep.

My poor mom, had to watch her daughter gasp for air and pass out a few times. I wish I could be there with them.

mouse Enthusiast

My thoughts and prayers are with your sister. Hopefully you will have some answers soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Your poor mother... I can't even imagine what that would be like watching your daughter suffer like that. It's ridiculous it took them that long to follow doctor's orders, especially since she was dehydrated. Hopefully that won't cause any setbacks in her recovery. Do they have any clue yet what is going on? I'm assuming she's being admitted over night, right? Does she have a boyfriend/husband/best friend who will be able to spend time with her while she's in the hospital? That always helped me. When I was in the hospital getting diagnosed with Celiac I was so sick I thought I was going to die and the only thing that brightened my day was my husband coming in and getting flowers from friends. I was in for a week. Hopefully your poor sister won't be in nearly that long. I hope they figure things out right away.

Will you be able to get out there this weekend if she's still sick or do you work this weekend?

Canadian Karen Community Regular
Today when I got home from work, I got a call from my mom, my sister who is 20, had been up all night with bad "D" and ended up with a Dr's appointment this morning. At the Dr her blood pressure bottomed out and she passed out. She was rushed to the hospital and she is dehydrated.

I was just informed she has a Gastro Infection and has other tests pending.

I am worried, she has been healthy and never really sick now she is in the hospital and can barely breathe!!

Please send a little prayer her way. She is scared and I wish i could be there with her but she is over 2 and 1/2 hrs away.

That is absolutely negligent that she had to wait that long for an IV when she was dehydrated!

I remember when Eileen (my oldest dd, who is now 13) was 8 years old, she got sick in the morning, was sick both ends every 10 minutes all day long, and by 7 pm, her eyes sunk right in her face and she looked "off"...... I rushed her up to the after hours clinic and they took one look at her and rushed her next door to the hospital and she had an IV in her arm 2 minutes after arrival. She ended up being in the hospital for 1 week. It was a very nasty case of rotavirus......

Sending prayers and positive thoughts your sister's way!

Hugs.

Karen

blueeyedmanda Community Regular

I am hoping to get there this weekend, I dont work but with the IVF I have to go into clinic on certain mornings. I was supposed to go this past weekend...but with the interstates being closed I was stuck here, I-81 is the main way there.

No one is allowed to stay overnight, but her boyfriend was there up until they chased him out. At Hershey they allow people to stay overnight. I don't do well in hospitals (yet I work there which is odd) While I was in same day surgery and had complications in Sept, I had to stay overnight and having John there helped so much.

She might be there a few days. I personally think she should be in a better hospital, I am not knocking on small hospitals. I have a great community hospital down the street, I prefer it over my own hospital. No crowds so you get better attention. This hospital she is at, is not a place where there are ever young people. It is most for elderly residents in the area, they have not delivered babies there in years, no PEDS area, no young adults area. The ER has two beds. I think she has a better shot at a quicker recovery in Scranton. There is a little more advancement and if they get a diagnosis quicker, she will be on the mend sooner.

John and I are sending flowers in the morning.

My coworker who I share space with is also sick with a mystery stomach illness..... :unsure: I tried calling her tonight and her husband said she came home from work and went right to bed and has not been up since. She looked horrible all day, complained of stomach pain, body aches, chills, and she looked flushed. She had no energy, no appetite. Strangely my mom said my sister had been complaining about these things on and off for a few days. Yet last night, my mom saw my sister around 8 when she dropped by after her basketball game. My said she seemed fine. They ate some dinner. Now she is in the hospital. My thought food poisioning at first but now she is unsure too.

Well, I guess I will just go lie down and catch everyone up in the morning.

Thank You again :):):):)

lonewolf Collaborator

I hope your sister is doing better. I've sent up a few prayers for her.

Guhlia Rising Star

Any chance she ate any contaminated peanut butter??? Or that she also has Celiac on top of the infection???

blueeyedmanda Community Regular

She only eats JIF, and thats on occasion, she is not a big Peanut Butter fan. As for celiac, my sisters never showed signs of being sick, but they were also both adopted so they don't carry the same genes as my parents. We all do look very much alike though.

I haven't been able to get a hold of her yet this morning, I am hoping she is still sleeping. I am at work now and I am going to buy her some flowers to get delivered to my moms house and then my mom can take them to her.

jerseyangel Proficient

Hi Amanda,

I'm just seeing this--I truly hope that by now your sister is improving and more comfortable.

I'm so sorry for all your family is having to go through--it's a very scary thing. I will keep your sister, as well as your family in my prayers. :)

jkmunchkin Rising Star

Amanda,

I will absolutely be thinking of your sister. Please keep us all posted on her recovery.

xoxo

blueeyedmanda Community Regular

Another update.

She is still in the hospital, will not come home today as she had hoped. (she really wants a shower) She is very contagious, my mom is not good with medical jargon so she forgot the name. I believe it is Rotavirus. Carrie feels better, but because I am going through IVF and my other sister is pregnant they suggest we stay away for a few days until antibotics start working.

She did love the flowers I sent, it was a boutique of daisies. She sounded a little more energetic, but not as much as she nearly is and not as drugged up as when I spoke with her last night.

Thank you all for your support. I will keep everyone posted. :):)

Guhlia Rising Star

Wow, it sounds like she's doing much better then. That's great news. Hopefully she'll be able to come home tomorrow and get her long awaited shower. I was really worried for you guys. Tori had rotavirus last year and she was soooooooooooo sick so I can definitely sympathize. We thought we were going to have to hospitalize her for it. It's definitely not a fun thing. Ugh...

Yenni Enthusiast

I am glad she is doing better. I'll send of some good thoughts her way.

jerseyangel Proficient

I'm so glad to hear she's doing better!

Rotavirus is a nasty little bugger :angry: --my older son had it. But he got over it just fine, and so will your sister. Sounds like the worst is behind her. Bet that shower will feel like the best one she's ever had :D

Thanks for the update :)

Fiddle-Faddle Community Regular

Am sending good thoughts and prayers.

A quick word of advice--ask the admitting physician or whoever is the physician to waive the policy that doesn't allow people to stay overnight in her room, and cite the fact that the IV he ordered at noon wasn't put in until 8. Your sister needs an advocate to be with her 24 hours a day. In some ways, small hospitals can be better than big inner city ones, but the nurses are still overworked, and the mistakes are made far more often than anyone will admit.

If they don't waive the policy, call your health insurance company and raise holy heck until something changes. Tell the ins. co. about the fact that the IV ordered at noon didn't get put in for 8 hours, and that your sister's life was in jeopardy.

Whatever you do, do NOT leave your sister alone.

Viola 1 Rookie

I'm so glad she is doing better now! She will really appreciate being home again for sure.

Is rotovirus something similiar to the Norwalk (sp) virus? It does sound like it.

  • 3 weeks later...
Guhlia Rising Star

Amanda, I'm assuming your sister is fine by now, but I just wanted to check in and make sure.

blueeyedmanda Community Regular

Angie,

I am so sorry, with the whole IVF surgery I forgot to update everyone. She has been home and although looking better and overall feeling better, she still has "D" So my mom keeps making her drink pedialyte to keep her body in balance. she has been back in school, she started her internship. I have not personally seen her, but from talking to her she seemed much better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748

    V Arnold
    Newest Member
    V Arnold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...