Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned

concernedfriend

Recommended Posts

concernedfriend Newbie
concernedfriend
Posted

A friend of mine just found out she has celiac disease, and she isnt coping with it, well at all. First she wasnt aloud to eat her favorite foods, or spices cause they all have gluton (so she stuck with nasty rice cakes that she hates...) and now they are telling her that her make up has to be cheaked to. She is completely down and I dont know how to help her. Iv tried looking up stuff that wont have it but i get a bunch of other stuff and it really isnt that helpfull. And I am trying to be sympathetic (I cant eat sugar irritated bawl syndrome) so i know what it feels like to have something taken away that you love to eat, but hers is so much worse, gluten is EVERYWHERE, and I know she hates cheaking lables, but she has to do it and I can tell she is taking it hard. Right when she was getting ready to cope with out her food, they took away her make up and yea. So if anyone has any thoughts i would love to hear em!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marlene Contributor
Marlene
Posted

First I just want to say that you must be one of the nicest friends anyone could have!! That is so sweet that you are trying to help your friend.

I know how devastated I felt when I found out I could no longer have gluten and totally understand what your friend is going through. And then about a month later, I found out I can't have dairy either. I used to love food so much. I really had to grieve over all the things I can't have anymore. I have been gluten free since last July 1. Please tell you friend that what she is feeling is normal. She should just let herself be upset and grieve over this. Please also tell her that things will get better. She will find good food that she enjoys, either naturally gluten free or made especially that way. The first time I tried gluten free bread, I started to cry. But now, I have found a few that I really like and even found a mix that I make myself. It will get easier, honest. Also there is someone on this forum who has a newbie kit. I am sure someone else will be able to tell you how to get to her through this forum -- I can't think of her name right now. Once your friend gets over the shock, she will probably find that there are a lot of things that she can still eat.

One more thing, you mention that you have irritable bowel syndrome. I don't mean to scare you but tons of people who have gluten intolerance/celiac were first diagnosed with IBS. Personally, I think IBS means that you have an intolerance of some kind. You might want to get that checked out.

Marlene

ravenwoodglass Mentor
ravenwoodglass
Posted
A friend of mine just found out she has celiac disease, and she isnt coping with it, well at all. First she wasnt aloud to eat her favorite foods, or spices cause they all have gluton (so she stuck with nasty rice cakes that she hates...) and now they are telling her that her make up has to be cheaked to. She is completely down and I dont know how to help her. Iv tried looking up stuff that wont have it but i get a bunch of other stuff and it really isnt that helpfull. And I am trying to be sympathetic (I cant eat sugar irritated bawl syndrome) so i know what it feels like to have something taken away that you love to eat, but hers is so much worse, gluten is EVERYWHERE, and I know she hates cheaking lables, but she has to do it and I can tell she is taking it hard. Right when she was getting ready to cope with out her food, they took away her make up and yea. So if anyone has any thoughts i would love to hear em!

Welcome You are a good friend and she is lucky to have you. First and formost introduce her to this web site. That alone can be one of the best things she can do to deal with this. There is a lot of information and support available here. It can be a big adjustment and can be accompanied by depression at first. This is normal and for some it is a withdrawl symptom. Also with your having IBS you seriously should look into the possiblity that you also are gluten intolerant. IBS does not just happen and it is not usually associated with consuming sugar unless that sugar is in stuff like cake. Perhaps your best way to support her would be to become gluten free yourself for a month or two and then add it back in to see if you react.

Generic Apprentice
Generic
Posted

I believe it is nini who has the newbie kit. I don't have time to look now, I am litteraly getting ready to leave for out of town. You are a wonderful friend, I wish I had a friend like you.

As for the sugar, and IBS. IBS is kinda of term for we really don't know what is wrong with you so....we call it IBS. Back in the day, they thought celiac was caused from an intolerance to sugar.

-Laurie

amybeth Enthusiast
amybeth
Posted

Hi!

What a nice friend you are!

If it's any help to your friend - McCormick spices are (all or mostly gluten free)

Also some companies like Kraft will mark any/all gluten containing ingredients clearly on the label which is a time saver -- you don't have to call them and double check for "hidden" glutens.

Also for the start - plainer foods are better......meats, potatos, veggies can be filling square meals that you don't have to check labels for.

Good luck to your friend!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,221
    • Most Online (within 30 mins)
      7,748
    Hissyfit33
    Newest Member
    Hissyfit33
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Watch this space!  😊
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.