Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Concerned

concernedfriend

Recommended Posts

concernedfriend Newbie
concernedfriend
Posted

A friend of mine just found out she has celiac disease, and she isnt coping with it, well at all. First she wasnt aloud to eat her favorite foods, or spices cause they all have gluton (so she stuck with nasty rice cakes that she hates...) and now they are telling her that her make up has to be cheaked to. She is completely down and I dont know how to help her. Iv tried looking up stuff that wont have it but i get a bunch of other stuff and it really isnt that helpfull. And I am trying to be sympathetic (I cant eat sugar irritated bawl syndrome) so i know what it feels like to have something taken away that you love to eat, but hers is so much worse, gluten is EVERYWHERE, and I know she hates cheaking lables, but she has to do it and I can tell she is taking it hard. Right when she was getting ready to cope with out her food, they took away her make up and yea. So if anyone has any thoughts i would love to hear em!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marlene Contributor
Marlene
Posted

First I just want to say that you must be one of the nicest friends anyone could have!! That is so sweet that you are trying to help your friend.

I know how devastated I felt when I found out I could no longer have gluten and totally understand what your friend is going through. And then about a month later, I found out I can't have dairy either. I used to love food so much. I really had to grieve over all the things I can't have anymore. I have been gluten free since last July 1. Please tell you friend that what she is feeling is normal. She should just let herself be upset and grieve over this. Please also tell her that things will get better. She will find good food that she enjoys, either naturally gluten free or made especially that way. The first time I tried gluten free bread, I started to cry. But now, I have found a few that I really like and even found a mix that I make myself. It will get easier, honest. Also there is someone on this forum who has a newbie kit. I am sure someone else will be able to tell you how to get to her through this forum -- I can't think of her name right now. Once your friend gets over the shock, she will probably find that there are a lot of things that she can still eat.

One more thing, you mention that you have irritable bowel syndrome. I don't mean to scare you but tons of people who have gluten intolerance/celiac were first diagnosed with IBS. Personally, I think IBS means that you have an intolerance of some kind. You might want to get that checked out.

Marlene

ravenwoodglass Mentor
ravenwoodglass
Posted
A friend of mine just found out she has celiac disease, and she isnt coping with it, well at all. First she wasnt aloud to eat her favorite foods, or spices cause they all have gluton (so she stuck with nasty rice cakes that she hates...) and now they are telling her that her make up has to be cheaked to. She is completely down and I dont know how to help her. Iv tried looking up stuff that wont have it but i get a bunch of other stuff and it really isnt that helpfull. And I am trying to be sympathetic (I cant eat sugar irritated bawl syndrome) so i know what it feels like to have something taken away that you love to eat, but hers is so much worse, gluten is EVERYWHERE, and I know she hates cheaking lables, but she has to do it and I can tell she is taking it hard. Right when she was getting ready to cope with out her food, they took away her make up and yea. So if anyone has any thoughts i would love to hear em!

Welcome You are a good friend and she is lucky to have you. First and formost introduce her to this web site. That alone can be one of the best things she can do to deal with this. There is a lot of information and support available here. It can be a big adjustment and can be accompanied by depression at first. This is normal and for some it is a withdrawl symptom. Also with your having IBS you seriously should look into the possiblity that you also are gluten intolerant. IBS does not just happen and it is not usually associated with consuming sugar unless that sugar is in stuff like cake. Perhaps your best way to support her would be to become gluten free yourself for a month or two and then add it back in to see if you react.

Generic Apprentice
Generic
Posted

I believe it is nini who has the newbie kit. I don't have time to look now, I am litteraly getting ready to leave for out of town. You are a wonderful friend, I wish I had a friend like you.

As for the sugar, and IBS. IBS is kinda of term for we really don't know what is wrong with you so....we call it IBS. Back in the day, they thought celiac was caused from an intolerance to sugar.

-Laurie

amybeth Enthusiast
amybeth
Posted

Hi!

What a nice friend you are!

If it's any help to your friend - McCormick spices are (all or mostly gluten free)

Also some companies like Kraft will mark any/all gluten containing ingredients clearly on the label which is a time saver -- you don't have to call them and double check for "hidden" glutens.

Also for the start - plainer foods are better......meats, potatos, veggies can be filling square meals that you don't have to check labels for.

Good luck to your friend!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,921
    • Most Online (within 30 mins)
      7,748
    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.