Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain-fog


Moscow

Recommended Posts

Moscow Newbie

Diagnosed about two months ago. I think I'm getting better but I am not sure. I have recovered mu energy but the brain fog is still there making it rather difficult to teach a classroom full of kids. Why does it take so long for this brain thing to clear. I mean what exactly is the process? Am I slowly clearing out my system or what? Two more questions: Can I eat corned beef out of a can and is there any fast food that I can eat - not that I want to - it's just that the whole Coeliac thing can be tricky in airports.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angel42 Enthusiast
Diagnosed about two months ago. I think I'm getting better but I am not sure. I have recovered mu energy but the brain fog is still there making it rather difficult to teach a classroom full of kids. Why does it take so long for this brain thing to clear. I mean what exactly is the process? Am I slowly clearing out my system or what? Two more questions: Can I eat corned beef out of a can and is there any fast food that I can eat - not that I want to - it's just that the whole Coeliac thing can be tricky in airports.

Hi Moscow,

I would try to make absolutely sure you were not accidentally still eating foods containing gluten or are getting the brain fog from cross-contamination. It took me a few months to really understand what I could and could not eat. There is a great book called "The Gluten Free Bible" which goes into great detail regarding what you can eat at fast food restaurants as well as providing lots of helpful insight into Celiac disease in general.

Hope that helps!

heathen Apprentice

from a strictly physiological point of view, brain processes take a while to adjust. for instance, anti-depressants take a week to a month to take effect even after they change the neurotransmitter concentrations. i had major brain fog as well. it took about 3-6 months of gluten-free eating to clear it--and i know that it comes back with a vengeance when i'm glutened. my suggestion: get as much sleep/rest as you can. that gives your body more time to heal. i know with your job, that sounds like an impossiblity, but try to find the time. and really make sure you are not still contaminating. it'll catch up to you the longer you are mostly gluten-free.

good luck. it does get better.

heather

Moscow Newbie

Thanks Heather,

I was wondering could it be deodorant, shampoo and soap? If I am not ingesting it, then i shouldn't be getting glutened, right? I find it really difficult to tell when i've been glutened because other than not absorbing iron, I had no other symptoms! Well feeling a little confused - the brain fog was another symptom.

Moscow

from a strictly physiological point of view, brain processes take a while to adjust. for instance, anti-depressants take a week to a month to take effect even after they change the neurotransmitter concentrations. i had major brain fog as well. it took about 3-6 months of gluten-free eating to clear it--and i know that it comes back with a vengeance when i'm glutened. my suggestion: get as much sleep/rest as you can. that gives your body more time to heal. i know with your job, that sounds like an impossiblity, but try to find the time. and really make sure you are not still contaminating. it'll catch up to you the longer you are mostly gluten-free.

good luck. it does get better.

heather

faegan Contributor

I've been on a gluten-free diet for almost a year now, and once in a while still get the brain fog, even when I know I'm only eating whole fresh foods that can't have gluten contamination. Some here have said the brain fog was the last thing to go for them... perhaps as long as two years. I know that it's not what you want to hear, but I just accept the fact that I wasn't diagnosed until I was 34 - and probably had it for most of my life, if not all. It takes time to heal!

Moscow Newbie
I've been on a gluten-free diet for almost a year now, and once in a while still get the brain fog, even when I know I'm only eating whole fresh foods that can't have gluten contamination. Some here have said the brain fog was the last thing to go for them... perhaps as long as two years. I know that it's not what you want to hear, but I just accept the fact that I wasn't diagnosed until I was 34 - and probably had it for most of my life, if not all. It takes time to heal!

What a pain in the neck. Really. A year. Crikey. Any idea about shampoo and so on. Could that stuff really get you when you're not ingesting it?

VioletBlue Contributor
from a strictly physiological point of view, brain processes take a while to adjust. for instance, anti-depressants take a week to a month to take effect even after they change the neurotransmitter concentrations. i had major brain fog as well. it took about 3-6 months of gluten-free eating to clear it--and i know that it comes back with a vengeance when i'm glutened. my suggestion: get as much sleep/rest as you can. that gives your body more time to heal. i know with your job, that sounds like an impossiblity, but try to find the time. and really make sure you are not still contaminating. it'll catch up to you the longer you are mostly gluten-free.

good luck. it does get better.

heather

You hit on something Heather that just occurred to me this morning. The last couple days I've been so spacey and tired. I've been gluten free about three months. This morning I was sitting here at the computer contemplating the distance between my brain and my fingers - hard to explain - when it hit me that I'd felt this way once before. Several years ago I took an SSRi anti-depressant for about a year. The first two weeks were tough because I was so spacey and nauseous and tired all the time. Once my body and brain adjusted the world was a wonderful place. But that is how I feel right now. It's not exactly brain fog, but just this tendency to wander off in my head. I think if someone had never experienced what happens when serotonin levels change there's a change they'd mistake it for the same old gluten brain fog. I look forward to what's on the other side of this.

violet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Moscow:

You must check you shampoos, lotions, toothpaste or anything that can get into your mouth. That often is an overlooked gluten source.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,570
    • Most Online (within 30 mins)
      7,748

    Moody
    Newest Member
    Moody
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.