Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anti Social When Glutened?


Slackermommy

Recommended Posts

Slackermommy Rookie

<_< Does anyone else get very antisocial when glutened? I normally love to chat, and hang out talk, love parties, and all. But once I get glutened, I don't want to chat, I don't want to go out, I just want to hole up and be left alone. :huh:

(By the way, I don't have "d" when I had/have gluten, I head straight towards constipation, so a bathroom issue isn't the problem.)

I was just curious. Since I am SO grumpy :( and off, and decided to cancel the babysitter :blink: for tonight instead of going out to a cool bonfire party. (not like me) And, I am wondering if I got glutened, since I take awhile to show signs of it. But this is def. how I used to feel.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kyalesyin Apprentice

My wife gets pretty cranky and antisocial. She also gets very childlike, and has a habit of either losing her speech entirely [complete with sitting there snapping her fingers trying to find a word] or just stopping mid-sentence and asking 'what was I saying?'

For that reason, she stays off work when she's been glutened.

MinxyMandy Apprentice
<_< Does anyone else get very antisocial when glutened? I normally love to chat, and hang out talk, love parties, and all. But once I get glutened, I don't want to chat, I don't want to go out, I just want to hole up and be left alone. :huh:

(By the way, I don't have "d" when I had/have gluten, I head straight towards constipation, so a bathroom issue isn't the problem.)

I was just curious. Since I am SO grumpy :( and off, and decided to cancel the babysitter :blink: for tonight instead of going out to a cool bonfire party. (not like me) And, I am wondering if I got glutened, since I take awhile to show signs of it. But this is def. how I used to feel.

Thanks.

Hello,

Yep, I am doing the challenge at the moment on day 19 got to do 4 weeks leading up to biopsy and I feel really down, moody, bitter towards people who dont understand or support me, bored with it, cant be bothered with any thing..

So yeah I think its a sign..but then if you are uncomfortable as youve not been for a P in so long and your tummy is so tight where its the size of a woman about to give birth and your backs playing you up ..may have a bit to do with it to matey....:)

I tell you what though I get worse emotional issues if I eat sugar..but thats coz I also have candida..

Keep smiling and keep gluten-free..

Take care mand

Anonymousgurl Contributor

Aww I definitely feel your pain, especially with the whole constipation thing. I don't think people understand how uncomfortable and actually painful constipation can be too. When I get glutened and go into that whole cycle, I just sit in the bathroom and cry. LoL. Part of my feels like I'm missing out on life by not going out and having fun, but then the other glutened part of me wants to hide in my house forever. So I totally know what you're feeling!

SillyBoo Newbie

I also get antisocial when glutened. Part is just feeling too crummy, but the main part is that I cannot communicate coherently. It's difficult to understand what people are saying, and harder still to respond. This has recently contributed to having to quit the job I have had for 5 years, so it's not just that I miss social events. It truly sucks!

I think it's great to just stay home and watch movies when you get glutened. It beats the heck out of painful social interactions.

Slackermommy Rookie

Thank goodness for all of you.:)

I was beginning to feel like I was going insane, and I didn't want to turn into the girl who cried "gluten" :blink: for everything! :lol:

And, I think this is part of my getting glutened experience, I am still learning about how my body tells me. <_<

So, thank you, it is great to read that others feel the same way.

And, I am watching movies tonight, my children just went to bed..and now I can be alone. :happy sigh:

georgie Enthusiast

I get really moody and withdrawn - not wanting to go out or chat to people. Phew ...thought I was going crazy but seems I am not. I was Glutened 2 days ago and have been cranky ever since ...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Classicalbook22 Newbie

I think I get depressed actually, I have very severe symptoms when contaminated. I went nearly 17 years undiagnosed so I missed a lot of family conversation at dinner parties. Now I get to sit at the table for hours just talking. So when I get "glutened" I feel guilty, such as I felt for so many years. I also feel bad if I have to make people leave early because I'm sick. Sometimes I'd rather stay in the bathroom of the diner vomiting rather than making my family go home.

I especially hate getting contaminated when I'm with friends. My college friends just saw me "sick" for the first time last week.. We were at school between classes (lukily I had a 4 hour break and I was only slightly contaminated) I was back and forth between the study room and the bathroom, when in the study room I would just curl up in a ball in the cornor on the floor, lie down holding my stomach, or run off the the bathroom. I kept worrying they would think I was over reacting, or putting on a front. Luckily I have good friends who kept asking if I was ok, offering to drive me home, etc.

I think it's all worse now that I have been healthy for so long, now when it happens it just brings back too many bad memories.

aikiducky Apprentice

I get anti-social as well. I can't think straight when I'm glutened, and trying to respond to people feels like an overwhelming effort. Actually, a little light small talk can be ok, but if someone then asks me something where I have to think about the answer I get really upset, lol. And I also can't find words then, I forget the beginning of a sentence before I finish it...

Haven't been glutened for a while, thank goodness. :)

Pauliina

kbtoyssni Contributor

I'm the queen of anti-social behavior when glutened. Part of it is that gluten makes me depressed. My other symptoms (brain fog, fatigue, stomach pain) don't help matters.

Depending on how bad I am and the symptoms I have that day, I either go home and just sleep it off or force myself to get out and hang out with people so I'm not home feeling sorry for myself.

johnsoniu Apprentice

If you define anti-social as being crankier than an 80 year-old who just missed the 4:00 early bird special, then I fall into that category.

Got glutened last night for the 2nd time since being gluten free and I've not been the most pleasant person to be around today. I'm having my wife read this thread so she can see I'm not using it as an excuse to bite everyone's head off for blatant transgressions like moving my juice to the other side of the fridge. B)

Slackermommy Rookie
I'm having my wife read this thread so she can see I'm not using it as an excuse to bite everyone's head off for blatant transgressions like moving my juice to the other side of the fridge. cool.gif

John..I actually started this thread for my husband; so he could see it wasn't just me!! :lol:

And then, I got great comfort knowing I wasn't the only one.

JerryK Community Regular

If you call wanting to rip the hearts out of young children "anti-social":) then I guess I qualify.

A bit over-dramatic, but I experience serious irritability, depression and just plain feel horrid.

My dad had this and solved the problem by hitting the bottle of JD.

It makes me want to curl up in a ball and hide in my bedroom.

jerseyangel Proficient

Ugh--being glutened brings back my anxiety with a vengence. I get paranoid, moody, and will snap at anyone who gets on my nerves--which is pretty much everyone at that point. I would rather just be by myself, and tune everything else out.

I don't sleep well when glutened, either, which dosen't help. I will tend to just lay there half the night any worry.

That alone is worse for me than the GI stuff. The mood symptoms also take longer to go away than the GI upsets.

Slackermommy Rookie
I don't sleep well when glutened, either, which dosen't help.

That happens to me too! That not sleeping thing totally bites!

What did I do before this forum and before I figured out what was wrong???????

sansglutengrl Explorer
Ugh--being glutened brings back my anxiety with a vengence. I get paranoid, moody, and will snap at anyone who gets on my nerves--which is pretty much everyone at that point. I would rather just be by myself, and tune everything else out.

I don't sleep well when glutened, either, which dosen't help. I will tend to just lay there half the night any worry.

That alone is worse for me than the GI stuff. The mood symptoms also take longer to go away than the GI upsets.

It's the same for me!! I never had such horrible anxiety as I do when I get glutened :unsure: . I get plummeted into this horrible dark mood and I just can't get out of it or see the end in sight. I mean the stomach stuff is no dream either, but it's the anxiety and depression that hit me the hardest. I'm sorry that we all have to go through this, but always makes me feel a little better to know that other people share my pain.

JNBunnie1 Community Regular
It's the same for me!! I never had such horrible anxiety as I do when I get glutened :unsure: . I get plummeted into this horrible dark mood and I just can't get out of it or see the end in sight. I mean the stomach stuff is no dream either, but it's the anxiety and depression that hit me the hardest. I'm sorry that we all have to go through this, but always makes me feel a little better to know that other people share my pain.

Actually, I used to have anxiety issues before I went gluten-free, but since a few months after going gluten-free I've only had the GI symptoms when glutened. And brain fog, but I dont get crabby, I'm too confused to be crabby. I only had active GI symptoms that made me truly ILL enough to go to the doctor for about 1/2 a year though, I had that stress-triggered celiac disease thing that started when I was 19. Maybe I wasn't damaged in the same way as everyone else?

Keep in mind everyone, your gut is responsible for creating more than half the hormones in your body. So when your gut's damaged, so is your hormone production, hence the crabbiness. Just tell your spouses it's a scientific thing!

acod Rookie

this mood thing really fits my son. he is so grumpy, irritable, sad, crazed, and in discomfort due to stomach pain and constipation, that he screams all the time. he acts like he is loosing his mind, and it is hard for him to communicate. However, since he has been gluten free for 3 months, we do see changes that he is slooooowly getting better. He has calmer days, more empathy, and feels bad about yelling at everyone. What I want to know is how long did it take those of you to regain your "balance" or social being, once you first went gluten free? were your mood swings a way of life before going gluten free or are they just part of it now, whenever you are glutened? Thanks for sharing. There is s much to learn.

JNBunnie1 Community Regular
this mood thing really fits my son. he is so grumpy, irritable, sad, crazed, and in discomfort due to stomach pain and constipation, that he screams all the time. he acts like he is loosing his mind, and it is hard for him to communicate. However, since he has been gluten free for 3 months, we do see changes that he is slooooowly getting better. He has calmer days, more empathy, and feels bad about yelling at everyone. What I want to know is how long did it take those of you to regain your "balance" or social being, once you first went gluten free? were your mood swings a way of life before going gluten free or are they just part of it now, whenever you are glutened? Thanks for sharing. There is s much to learn.

Hi acod, it actually took me a year before my mood returned to 'normal'. I was a pretty even-keeled person before my celiac disease was triggered, and then I was very depressive for the six months I was the most sick. Once I went gluten free there was a small immediate improvement, and then slowly back to all better after a year or so. I think I would have recovered faster if I'd been feeding myself properly, instead of just being gluten-free. Now I eat lots of fatty things like avocado, coconut oil, organic, free-range chicken with the skin on, raw olive oil, nuits and things. These kinds of fats help your brain and the nerve endings in your gut to repair themselves. All the starchy food I used to eat just doesn't nourish those cells. Hope this helps!

sansglutengrl Explorer
this mood thing really fits my son. he is so grumpy, irritable, sad, crazed, and in discomfort due to stomach pain and constipation, that he screams all the time. he acts like he is loosing his mind, and it is hard for him to communicate. However, since he has been gluten free for 3 months, we do see changes that he is slooooowly getting better. He has calmer days, more empathy, and feels bad about yelling at everyone. What I want to know is how long did it take those of you to regain your "balance" or social being, once you first went gluten free? were your mood swings a way of life before going gluten free or are they just part of it now, whenever you are glutened? Thanks for sharing. There is s much to learn.

My celiac was triggered by emotional stress, and right before I went gluten-free my mood swings, depression and anxiety were nearly out of control - but looking back I think I always had tendencies. There were times I thought I was going to lose my mind, or never recover. But as soon as I cut it out, most of the anxiety - the absolute worst of it - went away almost immediately. And it comes back almost immediately when I get glutened. But it took me I think about 8-9 months to start feeling "normal," or regain my balance, as you say. I think behavior issues that are sparked by gluten can take a long time to recover from because they aren't entirely physical, and it's traumatizing to feel like that all the time. It's hard to learn to trust your body and mind again, which I would think would be especially hard on your son it he's young. You have to detach yourself from the way that you are used to feeling and have courage to let yourself feel good and healthy, and that's hard enough to do as an aware adult. I can't image doing it at a young age. And not only that but all of your comfort food is gone!

I hope this helps.

Adelle Enthusiast

Omg I'm the same way!! Pre-gluten-free I was actually DX'd bipolar AND borderline personality disorder. I went thru an intensive treatment program (that T was the 1st to believe that there was something physical wrong!). Now that I'm gluten-free I'm like the chillest person ever. It's a fascinating difference. One of my first symptoms of a glutening is by meanness. I just suddenly feel emotionally out of control. I'm so glad I'm not alone!!

Nantzie Collaborator

Yep. Completely antisocial, irritable, snappy, anxious, tired, headachy. I just don't want to deal with anyone.

Nancy

katecopsey Newbie

Well now, I can tell you that it is not always us that is antisocial - its the world that sometimes misses the point. The last time I had a reaction was on an overnight flight to Europe (USA-UK). The airline, which once did gluten free has stopped, provided me with a meal that was vegetarian, rather than low sodium (they have no sauce). One fork full of rice and I knew that something was not quite right. 8hrs later, after having a 10 yr sleeping like a restless octapus on my stomach and having had to undo every button on my slacks due to bloating, we arrived. Husband picked us up. He was in a rental car. He took us to my mother's house and on the way calmly mentioned that he expected me to drive my mothers brand new car into Birmingham (Major city in country that drives on the other side of the road), so he could drop off the rental. I haven't driven in England for 25 yrs, and he wanted me drive into a town that would scare the living daylights out of me even then.

I believe I spent something like 30 minutes telling him exactly what I thought of his idea!!!! The gluten reaction just made the aurgument more colorful perhaps! (and I got my way).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    4. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,164
    • Most Online (within 30 mins)
      7,748

    Kellyc79
    Newest Member
    Kellyc79
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done?
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.