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Hi everyone,

Sorry, this isn't going to be a very cheery post. I got glutened last wednesday, and it was awful. But it's monday noq and I thought it would be over by now!! I just feel like I can't deal with this anymore. I keep cutting things out, suspecting things, being afraid of everything that goes in my mouth..... And I'm usually not feeling like this but when I get gluteend I feel like I shouldn't have to go to work, shouldn't have to deal with people, and should just get to sleep until it's gone. And why isn't there anything out there that we can take to alleiviate the pain of this yet?? I'm ok with having celiac when I'm not glutened - I can give everything up and still be a pretty happy person - but isn't that enough? getting glutened is just not fair.

I'm sorry, just had to get that out.

:(

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I am so sorry that you got glutened, yep it is the worst & makes you feel emotionally drained.

I wish you could have slept all day...

Please try to do some nice things for yourself all week & take it easy...

Next week will be better!!!

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Hi everyone,

Sorry, this isn't going to be a very cheery post. I got glutened last wednesday, and it was awful. But it's monday noq and I thought it would be over by now!! I just feel like I can't deal with this anymore. I keep cutting things out, suspecting things, being afraid of everything that goes in my mouth..... And I'm usually not feeling like this but when I get gluteend I feel like I shouldn't have to go to work, shouldn't have to deal with people, and should just get to sleep until it's gone. And why isn't there anything out there that we can take to alleiviate the pain of this yet?? I'm ok with having celiac when I'm not glutened - I can give everything up and still be a pretty happy person - but isn't that enough? getting glutened is just not fair.

I'm sorry, just had to get that out.

:(

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Hi everyone,

Sorry, this isn't going to be a very cheery post. I got glutened last wednesday, and it was awful. But it's monday noq and I thought it would be over by now!! I just feel like I can't deal with this anymore. I keep cutting things out, suspecting things, being afraid of everything that goes in my mouth..... And I'm usually not feeling like this but when I get gluteend I feel like I shouldn't have to go to work, shouldn't have to deal with people, and should just get to sleep until it's gone. And why isn't there anything out there that we can take to alleiviate the pain of this yet?? I'm ok with having celiac when I'm not glutened - I can give everything up and still be a pretty happy person - but isn't that enough? getting glutened is just not fair.

I'm sorry, just had to get that out.

:(

Get mad!@ Punch your pillow out, it won't mind. Look at everyone with the gluteny-goodness with disdain! Ask questions, order pie the way you want it, shout it out to the world! Then forgive everyone, especially yourself. It will get better...

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I completly understand how you feel. Most of us feel the same way from time to time. Life would be so much better if there was no gluten!

Hez

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Dear sansglutengrl,

Yep, I have been there! It sucks. :( Even worse, no one around you gives a crap. :angry: They do not have a clue what it is like to deal with this. When I get glutened, I have to down a promethazine, and eventually it kicks in. Then, I am incredibly drowsy and have to sleep for a long time. I get so violently ill at the onset that the medication is the only thing that helps. Being Celiac is not easy to deal with at those times.

Sincerely,

NoGluGirl


Jin

Strawberry Allergy, mold allergy, dustmites allergy, ragweed allergy, dust allergy, food dye allergy - 1985

Asthma - 1994

Ovarian Cyst - May 1999

Anemia - 2000

4 More Ovarian Cysts - March 2000

Bloodwork for Celiac - November 2000 negative

Colonoscopy, Endoscopy, Intercolisis, Gastric Emptying Study - May and June 2001 negative biopsy

Fibromyalgia - June 2001

IBS - June 2001

Gallbladder Removal - July 28, 2003 after doctor said the tests showed nothing, so it was not gallbladder disease. It was very inflamed and irritated and nearly ruptured the surgeon told me at my 10 day post-op check-up.

Thyroid Disease - August 2004

Celiac Disease - March 2007 Current Dr. refers to me as Celiac, as she says blood tests are often inaccurate.

Official Purple Glittery Bat Keeper, District Attorney, and Chinese Restaurant Owner of The Silver Dragon of Rachelville

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Hi again,

I just wanted to thank everyone for your kind words and support. I'm just starting to feel more normal, and phew!! I think I can wear my skinny pants now, that's a plus at least. :)

Thanks again!

p.s - noglugirl, what's a promethazine? would you recommend it?

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>>>Cyber Hugs<<<

Glad you're feeling a little better.

Yes, it does suck that not only do we have to make a MAJOR lifestyle change, but are still left to feel the awful effects of a glutening, no matter how careful we've been. I know when I've been glutened, I don't like to have to deal with anyone, and most of them don't feel like dealing with me either( I get a tad on the testy side).


John

positive blood tests 2/07

positive endoscopy 2/07

colonoscopy with benign polyps 2/07

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Hi again,

I just wanted to thank everyone for your kind words and support. I'm just starting to feel more normal, and phew!! I think I can wear my skinny pants now, that's a plus at least. :)

Thanks again!

p.s - noglugirl, what's a promethazine? would you recommend it?

Promethazine is an anti-nausea medication that's quite effective, I used to take it before I figured out my Celiac. I don't have symptoms as bad as NoGluGirl when I'm glutened so i haven't had to use it since I got 'better', but it works quite well for people with bad nausea after a glutening, if you can get it down. It will make you very sleepy though, you won't really be able to work. Imodium can help with nausea too, by reducing the intestinal cramping lower down.


If you're going through hell, keep going. ~Winston Churchill

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