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Double Scope Next Wk Lots Of Biopsies


ravenwoodglass

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ravenwoodglass Mentor

As some may know I had a severe episode of D and V with a lot of bleeding last week. I saw the doctor today and he agrees it was most likely food poisoning as I have none of the problems I would usually have with gluten poisoning.

He is doing a endo and colonoscopy together next week. This will be my first endo and my second colonoscopy. I was diagnosed 5 years ago but didn't have an endo at that time as the gluten challenge almost killed me. When I saw the doctor today he decided to do both. I recieved a packet of materials with instructions before the test. In the packet was a sheet saying to avoid wheat, fiber, oats, unpeeled fruits and nuts and seeds for 4 days before the testing. Nuts and seeds will be hard as they are a primary protein source but I'll get through it. I didn't get anything like this before though. He also ordered a celiac panel that the nurse forgot last week which better be negative.

He said he was going to do a lot of biopsies, he was almost rubbing his hands together in glee, and that he was very interested in what they might show. I told him if they show anything I will be shocked and dismayed because I am pretty much symptomless now.

My big concern is discomfort levels after he takes all those biopsies on both ends. For those of you that have had biopsies done is there much discomfort afterwards? Does it last for very long?

My biggest concern of all though is the Big C, I have had a swelling that has continued to grow for over 2 years now. They did some tests last year and just said my intestines have moved out of where they should be but my internest just let it go at that since I am not usually in pain. I know no one can help with that concern but just 'talking about it' sometimes helps. I went misdiagnosed for so long it is hard for me to not think about the possibity.

Anyway back to the original query, are these biopsies going to cause pain after they are done?


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Lisa Mentor

When I had my endo and biopsy, almost two years ago, I felt no pain from the biopsy whatsoever. I did have a raw throat for a day or two. I felt no internal discomfort at all. Don't worry about that at all. Many others don't even have a soar throat. The internal nerves are not the same, as in hemoroids, you can't feel them and only know when some blood is pass in the rectum.

The endo proceedure is nothing to worry about. I got a shot, went to sleep, woke up and they were feeding me juice and CRACKERS, after he just viewed the villi blunting.

And, as you know, the worst part of the colonoscopy is the prep, that was yucky.

If you doctor is correct with the potenial food poisoning, every thing else should be fine. :)

jerseyangel Proficient

Hi Ravenwood :) ,

I had the colo and endo done the same day almost 2 years ago (June). As you know, the roughest part of the colo is the prep :angry: . The actual day of my procedures went fine--I was incredibly nervous because I didn't know what to expect.

I remember nothing from shortly after the IV went in until I woke up in recovery. I had no pain at all--not even the sore throat! He took biopsies from both my small and large intestine, because at the time, he was ruling other things out. I had absolutely no pain or even a feeling that anything had been done.

I don't recommend this, but on the way home from the surgical center, my husband and I stopped at Whole Foods :ph34r: . I can honestly tell you I had no problems at all.

I'll be anxious to hear how you do--please let us know :)

ravenwoodglass Mentor

Thanks guys, he didn't do biopsies with the first colonoscopy and my DH was the one who brought up the idea of possible pain. I am glad to hear that the biopsies didn't cause problems that is a big relief.

Does anyone know for sure if Dulcolax is gluten-free? I'm supposed to take a few with the Nylightly the night before. I'm assuming the liquid prep though nasty is gluten-free but the other stuff is OTC and I have never heard of it. I am not looking forward to the prep, I'll get it as cold as I can I know that helped with the Golightly (what a misnomer that is) and hope it will with this stuff too. I didn't get any cramps last time but boy it took a long time to clean out all those diverticuli.

super-sally888 Contributor

Hi,

if I remember right from Physiology, the gut (stomach, etc) doesn't have pain receptors. The pain or sensations that we feel come from stretching / movement.

I also had no pain from biopsies (I did mine with no anaesthetic (for top and bottom)) and although i could feel them taking the biopsies (a little tugging sensation), there was no pain associated.

lovegrov Collaborator

No pain for me.

richard

jacqui Apprentice
As some may know I had a severe episode of D and V with a lot of bleeding last week. I saw the doctor today and he agrees it was most likely food poisoning as I have none of the problems I would usually have with gluten poisoning.

He is doing a endo and colonoscopy together next week. This will be my first endo and my second colonoscopy. I was diagnosed 5 years ago but didn't have an endo at that time as the gluten challenge almost killed me. When I saw the doctor today he decided to do both. I recieved a packet of materials with instructions before the test. In the packet was a sheet saying to avoid wheat, rye, oats, unpeeled fruits and nuts and seeds for 4 days before the testing. Nuts and seeds will be hard as they are a primary protein source but I'll get through it. I didn't get anything like this before though. He also ordered a celiac panel that the nurse forgot last week which better be negative.

He said he was going to do a lot of biopsies, he was almost rubbing his hands together in glee, and that he was very interested in what they might show. I told him if they show anything I will be shocked and dismayed because I am pretty much symptomless now.

My big concern is discomfort levels after he takes all those biopsies on both ends. For those of you that have had biopsies done is there much discomfort afterwards? Does it last for very long?

My biggest concern of all though is the Big C, I have had a swelling that has continued to grow for over 2 years now. They did some tests last year and just said my intestines have moved out of where they should be but my internest just let it go at that since I am not usually in pain. I know no one can help with that concern but just 'talking about it' sometimes helps. I went misdiagnosed for so long it is hard for me to not think about the possibity.

Anyway back to the original query, are these biopsies going to cause pain after they are done?

My 8 1/2 y/o just had a biopsy and a bowel biopsy and she did not complain of any pain. (which she complains over everything!) I had a sore throat after the egd and no pain after the colonoscopy. They weren't done at the same time. The EGD was done after an ER visit for sever abd./flank pain and major vomitous (only once but at least 24 hours worth of undigested food ---->celiac disease).

Good luck!

Jacqui


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ravenwoodglass Mentor

You have all set my mind at ease a lot. Still not looking forward to the prep but as you all know it is doable, just not pleasant. Thanks again everyone.

happygirl Collaborator

RWG---Best of luck. I hope that it provides some much needed answers for you.

I've had multiple endos and colonoscopies...two of them were joint like yours. My last one was done at Johns Hopkins and he biopsied everything, in multiple sites: eosaphagus, stomach, small intestine, large intestine. I didn't have any pain from the biopsies.

Keep us updated, and I hope it goes smoothly for you.

Laura

dlp252 Apprentice
Anyway back to the original query, are these biopsies going to cause pain after they are done?

Just adding my encouragement. I had a combo endo/colonoscopy done last year. The doctor took biopsies of my esophagus, stomach and intestines and even removed a polyp from my stomach. I felt no pain afterwards at all...I had a slight sore throat and that was it.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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