Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee?


holdthegluten

Recommended Posts

holdthegluten Rising Star

Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Piccolo Apprentice

Dear holdthe gluten,

I can't drink coffee either. I get sick just like you do. Tea has cafeen in it but not as much. Coke has it too, but tht adds sugar also. I drink tea.

Susan

Piccolo Apprentice

Dear holdthegluten,

I can't drink coffee either. I get sick just like you do. Tea has cafeen in it but not as much. Coke has it too, but tht adds sugar also. I drink tea.

Susan

flowergirl Rookie

You don't want to be drinking coffee while recovering on the gluten-free diet or if you have inflammation... if ever. Coffee is a strong gut irritant and will slow your progress significantly. Google the words "coffee gut irritant" and you'll find heaps of proof.

darlindeb25 Collaborator

You don't want to be drinking coffee while recovering on the gluten-free diet or if you have inflammation... if ever. Coffee is a strong gut irritant and will slow your progress significantly

This is only true for some, not for all. Coffee has never bothered me, never. Tea has bothered me. I stopped drinking tea for a long time after going gluten free, I never stopped with my coffee. We are all different and no standard other than being completely gluten free is true for "all".

Some gluten intolerant have to give up dairy, but not all, I didn't. Some gluten intolerant can tolerate soy, some of us can't.

Coffee is bad for those who can't tolerate it, but it is fine for those of us who can.

Fiddle-Faddle Community Regular

Coffee has always given me the runs, but the real reason I don't drink it is the post-caffeine crash.

There seems to be a link between gluten and bipolar syndrome--and there is a very strong link between coffee/caffeine and bipolar syndrome. Like Deb says, we are all different--but if you have any tendencies toward neuro issues, I would steer clear of both gluten AND caffeine!

That said, because of coffee's acidity, I would agree that it is a likely irritant to a not-yet-recovered leaky gut.

yellowbird22 Newbie

Coffee does terrible things to my stomach and sleep patterns. I drink green tea with soy milk!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Samanthasmomma Apprentice

2 cups black tea every morning with splenda and milk. Its my "fake" coffee, much better on my tummy.

Felidae Enthusiast

I can drink coffee or tea without any problems.

gfp Enthusiast

Some little known facts about coffee....

The cheapest coffee has far more caffine in it because it uses robusta beans which naturally have more caffine....

So the first move is go for something 100% arabica.

Second.. the more water you run through coffee the more caffine gets taken out... so even though you'd think that filter coffee would be better than a real strong expresso its actually not....

Honestly I know that one take a bit of believing....

If you take a ristretto its half the water of a expresso and 1/5th of a "long" type coffee ....

Personally i like a good ristretto but if you prefer something "longer" then start with a ristretto and then add water instead of pushing more water through the beans... which at this point is mainly just leaching out more caffine and hardly any flavor...

The worst coffee is greek/turkish or I guess what you americans might call cowboy coffee where you leave the grounds to steep i the water thus leaching out the max amount of caffine...

If you google there are quite a few analyses of different coffee's ... I seem to remember the McDo's was the highest in caffine ...

Anyway....its a different way to look at it I suppose.... its just one of those things that is at first counter intuitive.

Felidae Enthusiast
The worst coffee is greek/turkish or I guess what you americans might call cowboy coffee where you leave the grounds to steep i the water thus leaching out the max amount of caffine...

Do you mean coffee made in a French Press? The taste depends on the coffee you use. Also, I think the taste is a personal preference.

sfm Apprentice
Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.

I had to give up coffee... :(

And boy, did I fight it!!

I drink chai tea now, as it is spiced, so it has a bite to it, which is a little more interesting to me than plain tea. It has made a big difference with my acid reflux - which could be causing your nauseau. Sometimes when we get rid of the gluten, we start noticing all the other things that are sensitive, I think.

Sheryll

CraigN Newbie
Does anyone else have aproblem with coffee. The last 2 times i drank it, i got nauseous for about an hour and felt terrible. I need a caffeine pick me up in the morning, what could i drink to give me a boost in the morning besides coffee? Thanks everyone.

Yes - I stopped drinking about a week ago and have noticed a tremendous decrease in the pain in the left side of my gut. I started drinking tea in the morning and haven't missed the coffee a bit.

SunnyDyRain Enthusiast

I still drink coffee, but had to get rid of the sweet and low - had to go to real sugar. I limit my real coffee to one cup every 12 hours. If i am really jonesing for coffee after the first one, I go decaf.

larry mac Enthusiast
I still drink coffee, but had to get rid of the sweet and low - had to go to real sugar. I limit my real coffee to one cup every 12 hours. If i am really jonesing for coffee after the first one, I go decaf.

sdr,

May I ask why you had to give up sweet & low (sacchharin) ? I've never used it (it's very bitter to my taste buds), but my wife uses lots of it (not celiac). I have read that of the main three sugar substitutes, it is the least objectionable (health nut wise, and I say that with all due respect as I may be one myownself), with equal (apertame) next and then splenda (sucralose).

Did you have actual reactions to it, or just gave it up on general principals?

best regards, lm

little d Enthusiast

Hi ya'll Donna here

I can drink coffee with my sugar and cream (Coffee Mate Cream) is Gluten Free ya!(International Creamers) are not that i know of. But I can not drink the dark blends they tend to really hurt my tummy. Soft drinks have to be diet (I know aspertame is not good for me as well), regular hurt my tummy. I mistakely on Friday morning (I work nights I drank it at 3AM for everybody else that would be 3 in the afternoon you have to look at it that way) a regular Cherry Pepsi and my stomach burned for a while, and I think that contributed to my Migrane that I had on Sunday that started on Saturday night, My system is slow so my reaction time is about 1 to 2 days, sometime sooner. But I saw somewhere that flavored coffees are a no no for people who suffer from celiac disease or might suffer from celiac disease. So I stopped drinking flavored did not miss it too much. I do go to 7-11 for coffee and sometime choose to put the flavor syrup but i have to put sugar free flavor because the reg has high fructose corn syrup.

VioletBlue Contributor

Oh well poop. Just burst my bubble why don't you? I buy the really good stuff and drink only espresso. So that dark dark brew actually contains LESS caffine? Uggggg. Well, I still prefer the taste, particularly since 2/3 of what I drink it decaf. Only way I've ever found to make decaf drinkable.

Some little known facts about coffee....

The cheapest coffee has far more caffine in it because it uses robusta beans which naturally have more caffine....

So the first move is go for something 100% arabica.

Second.. the more water you run through coffee the more caffine gets taken out... so even though you'd think that filter coffee would be better than a real strong expresso its actually not....

Honestly I know that one take a bit of believing....

sugarlust Newbie

heya

i must say for myself my tummy has never been able to handle much caffine. i have been a 3 cup a day coffee drinker for 5+ years now and recently gave it up about 1 month ago (also briefly gave up 1 year ago but only for 1 month) I like the 'high' caffine gives me' but most ppl i know think i am depressed whenever coming down from the high. i tell them my brain is just having a rest! lol i am very sensative to all sorts be it caffine, alcohol or drugs (over the counter/prescibed ones. havent done any illegal ones apart from trying pot twice when i was 18, just didnt interest me)

but since i gave up coffee i have noticed a 'calm' within myself when i was always tense on coffee and of course it added to my tummy probs i think. and now whenever i have a high caffine cola drink or just too much cola, i get Horrible pains (last time i had some unknowingly. wasnt till my BF checked the label as he thought it Smelled like coffee, turned out to be coffee flavoured cola and higher caffine content in it)

and on the other hand, caffineated tea tends to Help me go to the toilet often, if i am a bit 'stuck' (thought some of u may like that info lol)

  • 8 months later...
Natasha H. Newbie

Trouble with coffee: YES. I am newly diagnosed and of course am still sorting it out like the rest of us, so here I am, sitting with the biggest bloated sore belly ever. I can't ever remember coffee not doing a number on me, but isn't it strange what we will put up with for a buzz? I think that coffee is really rough on the entire digestive system, and possibly there could be some gluten traces in it. Why not? Everything else seems to have gluten in it!

VioletBlue Contributor

Pure coffee is highly unlikely to have gluten in it. Coffee beans live in the company of other coffee beans when they're harvested roasted and ground. The roasting equipment and processes are unique to coffee beans so they would not be sharing equipment with anything else. The exception would be some flavored coffees. Added flavorings can have gluten in them. The flavoring is not in the bean but added to the coffee as or after it's ground. I personally carefully check for those few companies that think chicory belongs in coffee. I'm allergic to chicory. But pure ground coffee beans are going to be gluten free unless someone deliberatly adds gluten to them, cross contaminates them in the process of brewing your cup of coffee, or perhaps uses the coffee grinder for grinding something other than coffee beans.

There is also the matter of what creamers and sweetners are used. I'm highly allergic to that Stevia crap. My reaction to Stevia is horrendous, much worse than to gluten. Others have allergic reactions to other sweetners. Some people, particually those newly diagnosed have issues with concentrated amounts of sugar and or milk products. Not all non dairy creamers are gluten free.

Trouble with coffee: YES. I am newly diagnosed and of course am still sorting it out like the rest of us, so here I am, sitting with the biggest bloated sore belly ever. I can't ever remember coffee not doing a number on me, but isn't it strange what we will put up with for a buzz? I think that coffee is really rough on the entire digestive system, and possibly there could be some gluten traces in it. Why not? Everything else seems to have gluten in it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.