Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Other People's Comments Bother You?


NWLAX36Mom

Recommended Posts

kbtoyssni Contributor

I think most people are just curious about the diet and surprised by what you can and cannot eat. Yes, there are some that just don't care and are being hurtful, but I don't think this is the case with most. I don't mind questions - I look at it as a way to educate about celiac and how my life is not over and I can eat "normal" food like everyone else.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



prinsessa Contributor

The negative comments used to bother me. Like when my BIL said that gluten intolerance was all in my head. Now I don't let any comments bother me. Most people are really interested. DS's teacher is really good. She always asks me if he can eat something even if it seems like something that doesn't have gluten (like sunflower seeds....which did have wheat starch in them). I bring his snacks everyday and she explained to all the kids why he is eating something different. I rather people ask what might seem like strange questions (to people who are used to gluten intolerance) then just assume anything.

jkmunchkin Rising Star
I'm only recently gluten-free and my sister thinks it's a fad diet. She planned my birthday meal of pizza and cake and told me I could eat one of those Amy's pizzas. Well, the two Gluten-free varieties are spinach and cheese which both sound kind of grody to me. I think it's kind of like me taking her (a vegetarian) to a steak house for her birthday and telling her she can eat the french fries!

Ok that is flat out obnoxious. Now that I would be offended at.

As far as people making comments, like most people have said, I'm not offended at all. I take it as they want to learn about it, which I think is really nice. My husband's family on the other hand are the densest people I have ever met when it comes to this. And no matter how many times I explain what I can't have, and how many holidays I attend they just don't get it and make all sorts of retarded comments, and conclusions as to what I can't eat. (This past Easter his aunt, said oh you can't have the cheese on the manicotti?... Seriously!! How many times have we been over this). But I just laugh about it. You can't fix stupid.

If people want to have negative thoughts about me because I am taking care of my health and my body, oh well.

GeoffCJ Enthusiast
I guess it wouldn't have bothered me if it sounded like he was surprised at what I was eating or being inquisitive. But the way he said it, I felt more like he was accusing me of doing something I shouldn't.

I think I'll give him another test. I'll try eating a bagel in front of him sometime soon and see if he says anything. I'll be sure to listen to his tone, etc. and see if I was wrong!

BTW, I also think it is interesting when people say things like, "Oh, you are being so good, you are not eating a bun with your burger". Well that would be nice! Anyway, I really don't feel like explaining it to everyone or making a big deal out of it so I just let that type of comment go.

I had an interesting experience, I was a conference the last few days, and had lots of snack foods with me. Several people noticed I was eating the offered food. Some clearly noticed, but didn't comment. A few asked if I had "allergies". One had a celiac relative and noticed the gluten free labeling on something. Nobody seemed upset, or suprised, or really seemed to "care" beyond curiosity.

Geoff

GeoffCJ Enthusiast

Funny story.

My wife's family is Vietnamese/Chinese. Mom and Grandma and some of the Aunts (it's a BIG family) know about my diet. The big thing I have to watch for when eating with them is Soy Sauce (not with immediate family, but at gatherings). I guess that because of all the times it's asked (in chinese or Vietnamese), "Does this have Soy Sauce?" one of Kim's Uncles thought it was Soy Sauce I was "allergic" too. He got really confused when I turned down Birthday Cake. He said" There's no Soy Sauce in cake!"

Kim's mom explained it to him!

par18 Apprentice

My alltime favorite and it has happened more than once is when I told people how much weight I had lost before the Dx (unlike them I was not overweight to start with) they replied "maybe I should get it so I can lose some weight". My response to one of them was it would be easier to just put a piece of duct tape over your mouth when you feel the urge to eat something and it would be just as effective. Not to mention it would also save all those unecessary trips to the bathroom. As you might expect all I received in response was the classic "puzzled look". I really think the person was too stupid to be offended.

Tom

mamatide Enthusiast
I had someone say "it is too bad you have read every label before you buy anything."

Usually when I pick up something (at a party or someone's house) people assume I'm checking the fat content!

Whatever. No one should have to apologize for looking at the label - IMO more people SHOULD be looking at what's in the food they eat!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chocolatelover Contributor

Tom, I have to remember that one!! It's great--I actually laughed out loud!

Mamatide--I agree 1000%--more people should not only be looking at what they're eating, but probably not eating most of it anyway!

My favorite is my MIL, who baked a loaf of bread with the plastic wrap on. I was letting it rise and asked her to put it in oven for me while I was out for a run. She didn't take the plastic off the bread because she thought that not having gluten in it made it different than regular bread. Like it's ok to bake plastic into it just because it doesn't have gluten?? :blink:

mamatide Enthusiast
Mamatide--I agree 1000%

Thanks!

LOL about the plastic on the loaf - I usually use a towel to cover my bread - does plastic work better (aside from the well-meaning but clueless relatives of course!?)

brendygirl Community Regular

I brought my own lunch to work while "they" had a pot luck and this lady looks at what I'm eating and says LOUDLY, "OH COME ON!! YOU can't eat ANYTHING??? What about that SOUP (pointing, dramatically with her whole arm so everyone looks)???!!

I said, I cannot have broth, bullion cubes have binders that contain gluten.

Even the salad had those crunchy Asian noodle things on it, so that was a NO, too.

In fact, the only thing I could have eaten were grapes-- if I trusted that gluteny fingers hadn't contaminated them.

AND NO, I DON'T think she was concerned or curious, even tho her husband's a pastor and you'd think she'd have compassion!

HawkFire Explorer

I believe the diet seems so restrictive at first that all who hear of it are wondering what it is a celiac will end up being able to eat. I think it is wonderful that your boss took an interest in your food. It shows he remembered your health issue. He's curious. That's a good thing.

cmom Contributor

I admit I feel ashamed when people who are actually concerned about me ask me to explain what I cannot eat. Then they want to know what I am able to consume. Since going gluten-free, I have gained 20+ pounds and I can see where it does look a little suspicious if I can't eat alot of foods but am still overweight. I feel like a hypocrite b/c I should be much thinner since I am doing without so much. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748

    STy
    Newest Member
    STy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.